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Empirical Studies

“To be, or not to be”: experiencing deterioration among people with young-onset dementia living alone

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Article: 1490620 | Accepted 10 Jun 2018, Published online: 05 Jul 2018

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (5)

Johanne Alteren, Aud Johannessen, Anne Marit Lyberg & Inger-Lise Magnussen. (2023) Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies. Journal of Multidisciplinary Healthcare 16, pages 851-861.
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A-S. Helvik, L. Hvidsten, K. Engedal, H. Kersten, M. C. N. Dourado & A. Johannessen. (2023) Living with young-onset dementia in the family – a mixed method study. Aging & Mental Health 0:0, pages 1-8.
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Paula Gasparini Emery Trindade, Aud Johannessen, Maria Alice Tourinho Baptista, Virgínia Maffiolletti & Marcia Cristina Nascimento Dourado. (2023) ‘I do not enjoy too much being with people, it takes me a long time to interact’: a qualitative analysis of awareness of relationships in people with dementia. Aging & Mental Health 27:6, pages 1120-1126.
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Kirsten Thorsen, Marcia C. N. Dourado & Aud Johannessen. (2020) Awareness of dementia and coping to preserve quality of life: a five-year longitudinal narrative study. International Journal of Qualitative Studies on Health and Well-being 15:1.
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Aud Johannessen, Knut Engedal, Per Kristian Haugen, Marcia CN Dourado & Kirsten Thorsen. (2019) Coping with transitions in life: a four-year longitudinal narrative study of single younger people with dementia. Journal of Multidisciplinary Healthcare 12, pages 479-492.
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Articles from other publishers (22)

Yeji Hwang & Jayeong Kim. (2024) Influence of caregivers’ psychological well-being on the anxiety and depression of care recipients with dementia. Geriatric Nursing 55, pages 44-51.
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Katja Hautsalo, Jari Pirhonen & Ilkka Pietilä. (2023) Continuity, coping and finding meanings in everyday life: Storytelling by family members of people with young onset dementia. Journal of Family Research 35, pages 574-594.
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Xueting Tang, Junqiao Wang, Bei Wu, Ann-Margaret Navarra, Xiaoyan Cui & Jing Wang. (2023) Lived experiences of maintaining self-identity among persons living with young-onset dementia: A qualitative meta-synthesis. Dementia 22:8, pages 1776-1798.
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Aikaterini Mentzou, Judith Sixsmith, Maggie P. Ellis & Josephine Ross. (2023) Change in the psychological self in people living with dementia: A scoping review. Clinical Psychology Review 101, pages 102268.
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Samantha M Loi, Monica Cations & Dennis Velakoulis. (2023) Young‐onset dementia diagnosis, management and care: a narrative review. Medical Journal of Australia 218:4, pages 182-189.
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Esther Vera Gerritzen, Gianna Kohl, Martin Orrell & Orii McDermott. (2022) Peer support through video meetings: Experiences of people with young onset dementia. Dementia 22:1, pages 218-234.
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Mónica Spínola, Joana Câmara, Luís Ferreira, Ana Lúcia Faria & Sergi Bermúdez i Badia. (2022) Customizing a Cognitive Stimulation Program for Individuals with Dementia through a Participatory Design Approach. Applied Sciences 12:22, pages 11612.
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Gabriela Pacas Fronza, Jacki Liddle, Leander K. Mitchell, Gerard J. Byrne, Nancy A. Pachana & Nadeeka N. Dissanayaka. (2022) Phenomenology of anxiety in people living with mild to moderate dementia: A conceptual meta-ethnographic review. Dementia 21:8, pages 2677-2699.
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Paula J Popok, Mira Reichman, Lisa LeFeber, Victoria A Grunberg, Sarah M Bannon & Ana-Maria Vranceanu. (2022) One Diagnosis, Two Perspectives: Lived Experiences of Persons With Young-Onset Dementia and Their Care-Partners. The Gerontologist 62:9, pages 1311-1323.
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Samantha M. Loi, Libby Flynn, Claire Cadwallader, Phoebe Stretton-Smith, Christina Bryant & Felicity A. Baker. (2022) Music and Psychology & Social Connections Program: Protocol for a Novel Intervention for Dyads Affected by Younger-Onset Dementia. Brain Sciences 12:4, pages 503.
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Sarah Bannon, Mira Reichman, Paula Popok, Juliana Wagner, Melissa Gates, Simrit Uppal, Lisa LeFeber, Bonnie Wong, Bradford C Dickerson & Ana-Maria Vranceanu. (2022) In It Together: A Qualitative Meta-Synthesis of Common and Unique Psychosocial Stressors and Adaptive Coping Strategies of Persons With Young-Onset Dementia and Their Caregivers. The Gerontologist 62:2, pages e123-e139.
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Yeji Hwang, Lauren Massimo, Subhash Aryal & Nancy A. Hodgson. (2022) The relationship between social isolation and anxiety in people with cognitive impairment in the United States. International Journal of Geriatric Psychiatry 37:2.
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Lihui Pu, Christian Bakker, Britt Appelhof, Sandra A. Zwijsen, Steven Teerenstra, Martin Smalbrugge, Frans R.J. Verhey, Marjolein E. de Vugt, Sytse U. Zuidema & Raymond T.C.M. Koopmans. (2021) The Course of Quality of Life and Its Predictors in Nursing Home Residents With Young-Onset Dementia. Journal of the American Medical Directors Association 22:7, pages 1456-1464.e1.
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Anne-S. Helvik. 2021. Health Promotion in Health Care – Vital Theories and Research. Health Promotion in Health Care – Vital Theories and Research 359 371 .
Chiara De Poli, Jan R Oyebode, Christopher Binns, Richard Glover & Mara Airoldi. (2020) Effectiveness–implementation hybrid type 2 study evaluating an intervention to support ‘information work’ in dementia care: an implementation study protocol. BMJ Open 10:12, pages e038397.
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Yeji Hwang, Lauren Massimo & Nancy Hodgson. (2020) Modifiable factors associated with anxiety in persons with dementia: An integrative review. Geriatric Nursing 41:6, pages 852-862.
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Paula Gasparini Emery Trindade, Raquel Luiza Santos, Aud Johannessen, Jose Pedro Simões Neto & Marcia Cristina Nascimento Dourado. (2020) Awareness of Functional Status: People with Alzheimer’s Disease Abilities to Self-Report Impairment in Activities of Daily Living. Journal of Alzheimer's Disease Reports 4:1, pages 405-415.
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Kirsten Thorsen, Marcia Cristina Nascimento Dourado & Aud Johannessen. (2018) Developing dementia: The existential experience of the quality of life with young-onset dementia – A longitudinal case study. Dementia 19:3, pages 878-893.
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Alana Manson, Carrie Ciro, Kristine N. Williams & Sally L. Maliski. (2020) Identity and perceptions of quality of life in Alzheimer's disease. Applied Nursing Research 52, pages 151225.
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Rubén Trigueros, Noelia Navarro-Gómez, José M. Aguilar-Parra & Adolfo J. Cangas. (2020) Factorial Structure and Measurement Invariance of the Acceptance and Action Questionnaire-Stigma (AAQ-S) in Spain. International Journal of Environmental Research and Public Health 17:2, pages 658.
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Siren Eriksen, Ruth Louise Bartlett, Ellen Karine Grov, Tanja Louise Ibsen, Elisabeth Wiken Telenius & Anne Marie Mork Rokstad. (2020) The Experience of Lived Time in People with Dementia: A Systematic Meta-Synthesis. Dementia and Geriatric Cognitive Disorders 49:5, pages 435-455.
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Amandine Mayelle, Mohamad El Haj & Pascal Antoine. (2019) Awareness of Self and Disease Assessment: Development and Validation of a Subjective Measure in People with Alzheimer’s Disease. Journal of Alzheimer's Disease 71:3, pages 841-850.
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