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Empirical Studies

Life strategies of people with deafblindness due to Usher syndrome type 2a - a qualitative study

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Article: 1656790 | Accepted 06 Aug 2019, Published online: 30 Aug 2019

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Elin Lundin, Stephen E. Widén, Moa Wahlqvist, Sarah Granberg & Agneta Anderzén-Carlsson. (2022) Experiences of rehabilitation services from the perspective of older adults with dual sensory loss – a qualitative study. International Journal of Qualitative Studies on Health and Well-being 17:1.
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Mattias Ehn, Moa Wahlqvist, Claes Möller & Agneta Anderzén-Carlsson. (2020) The lived experiences of work and health of people living with deaf-blindness due to Usher syndrome type 2. International Journal of Qualitative Studies on Health and Well-being 15:1.
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Articles from other publishers (17)

Beatriz Rocha Cuzzuol, Jonathan Santos Apolonio, Ronaldo Teixeira da Silva Júnior, Lorena Sousa de Carvalho, Luana Kauany de Sá Santos, Luciano Hasimoto Malheiro, Marcel Silva Luz, Mariana Santos Calmon, Henrique de Lima Crivellaro, Fabian Fellipe Bueno Lemos & Fabrício Freire de Melo. (2024) Usher syndrome: Genetic diagnosis and current therapeutic approaches. World Journal of Otorhinolaryngology 11:1, pages 1-17.
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Peter Simcock, Jill Manthorpe & Anthea Tinker. (2022) A salutogenesis approach to ageing with impairment: the managing and coping experiences of older people ageing with deafblindness. Ageing and Society 43:12, pages 2957-2982.
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Ryan Crane, Lars Tebbe, Maggie L. Mwoyosvi, Muayyad R. Al-Ubaidi & Muna I. Naash. (2023) Expression of the human usherin c.2299delG mutation leads to early-onset auditory loss and stereocilia disorganization. Communications Biology 6:1.
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E. Veenman, A. A. J. Roelofs, M. L. Stolwijk, A. M. Bootsma & R. M. A. van Nispen. (2023) Experiences of people with dual sensory loss in various areas of life: A qualitative study. PLOS ONE 18:9, pages e0272890.
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Satu Turunen-Taheri, Annica Hagerman Sirelius, Sten Hellström, Åsa Skjönsberg & Gunnel Backenroth. (2023) Combined severe-to-profound hearing and vision impairment—Experiences of daily life and need of support, an interview study. PLOS ONE 18:6, pages e0280709.
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Todd Durham, Judit Banhazi, Francesco Patalano & Thiran Jayasundera. (2023) Beyond the NEI-VFQ: Recent Experience in the Development and Utilization of Patient-Reported Outcomes for Inherited Retinal Diseases. Cold Spring Harbor Perspectives in Medicine 13:3, pages a041298.
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Peter Simcock, Jill Manthorpe & Anthea Tinker. (2022) Vulnerability among older people ageing with deafblindness. Journal of Social Work 23:1, pages 60-84.
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Camilla Warnicke, Moa Wahlqvist, Agneta Anderzén-Carlsson & Ann-Sofie Sundqvist. (2022) Interventions for adults with deafblindness - an integrative review. BMC Health Services Research 22:1.
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Maria Björk, Moa Wahlqvist, Karina Huus & Agneta Anderzén-Carlsson. (2020) The consequences of deafblindness rules the family: Parents’ lived experiences of family life when the other parent has deafblindness. British Journal of Visual Impairment 40:1, pages 18-28.
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Miwako EtoSena YamamotoHarue Arao. (2022) Flexible Coping in Cancer Care. Cancer Care Research Online 2:1, pages e016.
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Eric NisenbaumTorin P. ThielhelmAida Nourbakhsh, Denise Yan, Susan H. Blanton, Yilai Shu, Karl R. Koehler, Aziz El-Amraoui, Zhengyi Chen, Byron L. Lam & Xuezhong Liu. (2022) Review of Genotype-Phenotype Correlations in Usher Syndrome. Ear & Hearing 43:1, pages 1-8.
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Martin Swobodzinski, Amy T. Parker, Julie D. Wright, Kyrsten Hansen & Becky Morton. (2021) Seamless Wayfinding by a Deafblind Adult on an Urban College Campus: A Case Study on Wayfinding Performance, Information Preferences, and Technology Requirements. Frontiers in Education 6.
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Abinethaa Paramasivam, Atul Jaiswal, Renu Minhas, Walter Wittich & Roxanna Spruyt-Rocks. (2021) Informed Consent or Assent Strategies for Research With Individuals With Deafblindness or Dual Sensory Impairment: A Scoping Review. Archives of Rehabilitation Research and Clinical Translation 3:2, pages 100115.
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Walter Wittich, Sarah Granberg, Moa Wahlqvist, M. Kathleen Pichora-Fuller & Elina Mäki-Torkko. (2021) Device abandonment in deafblindness: a scoping review of the intersection of functionality and usability through the International Classification of Functioning, Disability and Health lens. BMJ Open 11:1, pages e044873.
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Moa Wahlqvist, Claes Möller, Kerstin Möller & Berth Danermark. (2020) Similarities and Differences in Health, Social Trust, and Financial Situation in People With Usher Syndrome, a Bio-Psychosocial Perspective. Frontiers in Psychology 11.
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Moa Wahlqvist, Maria Björk, Agneta Anderzén-Carlsson & Karina Huus. (2020) Health-Related Quality of Life, Family Climate and Sense of Coherence of Families in Which a Parent Has Deafblindness. Frontiers in Education 5.
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