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Amyotrophic Lateral Sclerosis Volume 10, 2009 - Issue 1
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Review Article

Quality of life in amyotrophic lateral sclerosis/motor neuron disease: A structured review

Joanna Epton Worcester College, Oxford
,
Robert Harris Department of Public Health, University of Oxford, Old Road Campus, OxfordCorrespondence[email protected]
&
Crispin Jenkinson Department of Public Health, University of Oxford, Old Road Campus, Oxford; Harris Manchester College, Oxford, UK
Pages 15-26 | Received 09 Aug 2007, Published online: 10 Jul 2009

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Matthias Boentert. (2019) Sleep disturbances in patients with amyotrophic lateral sclerosis: current perspectives. Nature and Science of Sleep 11, pages 97-111.
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Francesco Pagnini. (2013) Psychological wellbeing and quality of life in amyotrophic lateral sclerosis: A review. International Journal of Psychology 48:3, pages 194-205.
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Francesco Tramonti, Paolo Bongioanni, Carolina Di Bernardo, Sara Davitti & Bruno Rossi. (2012) Quality of life of patients with amyotrophic lateral sclerosis. Psychology, Health & Medicine 17:5, pages 621-628.
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Articles from other publishers (23)

Ambereen K. Mehta, Max Sarmet, Samuel Maiser, Jenny A. Meyer, Sherry Kolodziejczak, Karla Washington & Zachary Simmons. (2023) Quality‐of‐life assessment instruments used across ALS clinics . Muscle & Nerve 68:6, pages 865-872.
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Faryal Zahir, Alicia Hanman, Nazmehr Yazdani, Sabrina La Rosa, Gemma Sleik, Brooke Sullivan, Ava Mehdipour, Selina Malouka & Ayse Kuspinar. (2023) Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review. Quality of Life Research 32:9, pages 2447-2462.
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Benjamin Ziegeler, Wendyl D’ Souza, Anita Vinton, Sarah Mulukutla, Cameron Shaw & Ross Carne. (2022) Neurological Health: Not Merely the Absence of Disease: Current Wellbeing Instruments Across the Spectrum of Neurology. American Journal of Lifestyle Medicine 17:2, pages 299-316.
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Anna Markella Antoniadi, Miriam Galvin, Mark Heverin, Lan Wei, Orla Hardiman & Catherine Mooney. (2022) A Clinical Decision Support System for the Prediction of Quality of Life in ALS. Journal of Personalized Medicine 12:3, pages 435.
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Till Schrempf, Julia Finsel, Ingo Uttner, Albert C. Ludolph & Dorothée Lulé. (2021) Neuropsychological deficits have only limited impact on psychological well-being in amyotrophic lateral sclerosis. Journal of Neurology 269:3, pages 1369-1374.
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Ivana Štětkářová & Edvard Ehler. (2021) Diagnostics of Amyotrophic Lateral Sclerosis: Up to Date. Diagnostics 11:2, pages 231.
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Matthias Boentert. (2020) Sleep and Sleep Disruption in Amyotrophic Lateral Sclerosis. Current Neurology and Neuroscience Reports 20:7.
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Maisa Vitória Gayoso, Flávia Seullner Domingues, Marcondes Cavalcante França Junior, Stephanie H. Felgoise, Acary Souza Bulle Oliveira & Guilherme Antonio Moreira de Barros. (2019) Cross-cultural adaptation and validation for the Brazilian population of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life–Short Form (ALSSQOL-SF). Quality of Life Research 29:3, pages 805-813.
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Leila Bond, Gloria Bowen, Benjamin Mertens, Keelie Denson, Kathleen Jordan, Branislav Vidakovic & Cassie S. Mitchell. (2020) Associations of Patient Mood, Modulators of Quality of Life, and Pharmaceuticals with Amyotrophic Lateral Sclerosis Survival Duration. Behavioral Sciences 10:1, pages 33.
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Naile Alankaya, Zeliha Tülek, Aylin Özakgül, Alper Kaya & Aynur Dik. (2019) Validity and Reliability of the Turkish Version of the Amyotrophic Lateral Sclerosis Assessment Questionnaire. Journal of Neuroscience Nursing 51:5, pages 253-258.
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LEEGYESEUNG. (2018) A Study on the Anxiety Experience of Disabled Person with Progressive Rare Disease. Korean Journal of Social Welfare 70:2, pages 247-273.
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Alan Moore, Carolyn A. Young & Dyfrig A. Hughes. (2016) Economic Studies in Motor Neurone Disease: A Systematic Methodological Review. PharmacoEconomics 35:4, pages 397-413.
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Nadine Le Forestier. (2017) D’incertitudes en vérité d’accompagnements au cours des annonces lors de la maladie incurable en neurologie. Jusqu’à la mort accompagner la vie N° 128:1, pages 41-52.
Crossref
. 2016. Occupational therapy and neurological conditions. Occupational therapy and neurological conditions 101 121 .
Ana Londral, Anabela Pinto, Susana Pinto, Luis Azevedo & Mamede De Carvalho. (2015) Quality of life in amyotrophic lateral sclerosis patients and caregivers: Impact of assistive communication from early stages. Muscle & Nerve 52:6, pages 933-941.
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Benjamin Ilse, Tino Prell, Mario Walther, Viktor Hartung, Susanne Penzlin, Florian Tietz, Otto-Wilhelm Witte, Bernhard Strauss & Julian Grosskreutz. (2014) Relationships Between Disease Severity, Social Support and Health-Related Quality of Life in Patients with Amyotrophic Lateral Sclerosis. Social Indicators Research 120:3, pages 871-882.
Crossref
Huub CreemersJan H. VeldinkHepke GrupstraFrans NolletAnita BeelenLeonard H. van den Berg. (2014) Cluster RCT of case management on patients' quality of life and caregiver strain in ALS. Neurology 82:1, pages 23-31.
Crossref
D. CellaJ.-S. LaiC.J. NowinskiD. VictorsonA. PetermanD. MillerF. BethouxA. HeinemannS. RubinJ.E. CavazosA.T. RederR. SufitT. SimuniG.L. HolmesA. SiderowfV. WojnaR. BodeN. McKinneyT. PodrabskyK. WortmanS. ChoiR. GershonN. RothrockC. Moy. (2012) Neuro-QOL. Neurology 78:23, pages 1860-1867.
Crossref
Crispin Jenkinson. 2011. Quality of Life Measurement in Neurodegenerative and Related Conditions. Quality of Life Measurement in Neurodegenerative and Related Conditions 41 51 .
Yaroslav Winter, Karsten Schepelmann, Annika E. Spottke, Detlef Claus, Christoph Grothe, Rolf Schröder, Dieter Heuss, Stefan Vielhaber, Björn Tackenberg, Veit Mylius, Jens-Peter Reese, Reinhard Kiefer, Bertold Schrank, Wolfgang H. Oertel & Richard Dodel. (2010) Health-related quality of life in ALS, myasthenia gravis and facioscapulohumeral muscular dystrophy. Journal of Neurology 257:9, pages 1473-1481.
Crossref
Lorenzo Norris, Guinevere Que & Elham Bayat. (2010) Psychiatric Aspects of Amyotrophic Lateral Sclerosis (ALS). Current Psychiatry Reports 12:3, pages 239-245.
Crossref
Alex J. Mitchell, Steven Kemp, Julián Benito-León & Markus Reuber. (2014) The influence of cognitive impairment on health-related quality of life in neurological disease. Acta Neuropsychiatrica 22:1, pages 2-13.
Crossref
Luis Rajmil, Lilisbeth Perestelo-Pérez & Michael Herdman. 2010. Rare Diseases Epidemiology. Rare Diseases Epidemiology 251 272 .

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