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Applied Neuropsychology: Child Volume 6, 2017 - Issue 4
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Articles

The Discrepancy between Performance-Based Measures and Questionnaires when Assessing Clinical Outcomes and Quality of Life in Pediatric Patients with Neurological Disorders

V. CoutinhoPediatric Neurology Unit, APHP, GHUEP, Trousseau Hospital, Paris, France;Neurofibromatosis Referral Centre, Paris, France;National Institute of Health and Medical Research, INSERM CESP1018, Villejuif, France;Paris Descartes University, Paris, FranceCorrespondence[email protected]
,
H. Câmara-CostaNational Institute of Health and Medical Research, INSERM CESP1018, Villejuif, France
,
I. KemlinPediatric Neurology Unit, APHP, GHUEP, Trousseau Hospital, Paris, France;Neurofibromatosis Referral Centre, Paris, France
,
T. Billette de VillemeurPediatric Neurology Unit, APHP, GHUEP, Trousseau Hospital, Paris, France;Sorbonne Universities, UPMC, Paris, France;National Institute of Health and Medical Research, INSERM U1141, Paris, France
,
D. RodriguezPediatric Neurology Unit, APHP, GHUEP, Trousseau Hospital, Paris, France;Neurofibromatosis Referral Centre, Paris, France;Sorbonne Universities, UPMC, Paris, France;National Institute of Health and Medical Research, INSERM U1141, Paris, France
&
G. DellatolasNational Institute of Health and Medical Research, INSERM CESP1018, Villejuif, France
Pages 255-261 | Published online: 16 May 2016

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Claire E. Fraley, Jennifer C. Thigpen, Matthew M. Pearson, John F. Kuttesch$suffix/text()$suffix/text(), Leandra Desjardins, Kristen R. Hoskinson, Abraham Alvarado-Gonzalez, Adam J. Esbenshade, Devang Pastakia, Debra L. Friedman, John C. Wellons, Colleen M. McNally, Rachel E. Siciliano & Bruce E. Compas. (2021) Predictors of cognitive function in pediatric brain tumor patients: Pre-surgery through 24-month follow-up. Applied Neuropsychology: Child 10:4, pages 340-347.
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Articles from other publishers (10)

Sameera Ramjan, Cara Levitch, Stephen Sands, Soo Young Kim, Marie Barnett, Jesse Bledsoe & Alice Ann Holland. (2023) Executive and social functioning in pediatric posterior fossa tumor survivors and healthy controls. Neuro-Oncology Practice 10:2, pages 152-161.
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Jolanda C Naafs, Jan Pieter Marchal, Paul H Verkerk, Eric Fliers, A S Paul van Trotsenburg & Nitash Zwaveling-Soonawala. (2021) Health-Related Quality of Life in Patients With Early-Detected Central Congenital Hypothyroidism. The Journal of Clinical Endocrinology & Metabolism 106:10, pages e4231-e4241.
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Clément Le Fur, Hugo Câmara-Costa, Leila Francillette, Marion Opatowski, Hanna Toure, Dominique Brugel, Anne Laurent-Vannier, Philippe Meyer, Laurence Watier, Georges Dellatolas & Mathilde Chevignard. (2020) Executive functions and attention 7 years after severe childhood traumatic brain injury: Results of the Traumatisme Grave de l’Enfant (TGE) cohort. Annals of Physical and Rehabilitation Medicine 63:4, pages 270-279.
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Jennifer Janusz, Caroline Harrison, Cristina Boada, Lisa Cordeiro, Susan Howell, Nicole Tartaglia & Richard Boada. (2020) Executive function in XXY : Comparison of performance‐based measures and rating scales . American Journal of Medical Genetics Part C: Seminars in Medical Genetics 184:2, pages 469-481.
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Hugo Câmara-Costa, Leila Francillette, Marion Opatowski, Hanna Toure, Dominique Brugel, Anne Laurent-Vannier, Philippe Meyer, Georges Dellatolas, Laurence Watier & Mathilde Chevignard. (2020) Self- and Parent-Reported Fatigue 7 Years After Severe Childhood Traumatic Brain Injury: Results of the Traumatisme Grave de l'Enfant Prospective Longitudinal Study. Journal of Head Trauma Rehabilitation 35:2, pages 104-116.
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Hugo Câmara-Costa, Marion Opatowski, Leila Francillette, Hanna Toure, Dominique Brugel, Anne Laurent-Vannier, Philippe Meyer, Laurence Watier, Georges Dellatolas & Mathilde Chevignard. (2019) Self- and parent-reported Quality of Life 7 years after severe childhood traumatic brain injury in the Traumatisme Grave de l’Enfant cohort: associations with objective and subjective factors and outcomes. Quality of Life Research 29:2, pages 515-528.
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Ana Moscoso, Aurélie Julien, Antoine Tanet, Angèle Consoli, Martine Pagnard, France Trevisan, Isabelle Kemlin, Diana Rodriguez & David Cohen. (2019) Clinical Management of Children and Adolescents with Neurofibromatosis Type 1 Like Phenotypes and Complex Behavioural Manifestations: A Multidisciplinary and Dimensional Approach. Case Reports in Psychiatry 2019, pages 1-12.
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Alana M. McNeill, Rebekah L. Hudock, Allison M. H. Foy, Ryan Shanley, Margaret Semrud‐Clikeman, Mary Ella Pierpont, Susan A. Berry, Katherine Sommer, Christopher L. Moertel & Elizabeth I. Pierpont. (2019) Emotional functioning among children with neurofibromatosis type 1 or Noonan syndrome. American Journal of Medical Genetics Part A 179:12, pages 2433-2446.
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Lori Wiener, Haven Battles, Sima Zadeh Bedoya, Andrea Baldwin, Brigitte C. Widemann & Maryland Pao. (2017) Identifying Symptoms of Distress in Youth Living with Neurofibromatosis Type 1 (NF1). Journal of Genetic Counseling 27:1, pages 115-123.
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Hugo Câmara-CostaKim S BullColin KennedyAndreas WienerGabriele CalaminusAnika ReschVirginie KiefferClémence LalandeGeraldina PoggiKatja von HoffJacques GrillFrançois DozStefan RutkowskiMaura MassiminoRolf-Dieter KortmannBirgitta LanneringGeorges DellatolasMathilde Chevignard. (2017) Quality of survival and cognitive performance in children treated for medulloblastoma in the PNET 4 randomized controlled trial. Neuro-Oncology Practice 4:3, pages 161-170.
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