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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 18, 2017 - Issue 5-6
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Original Article

Coping strategies and psychological distress in caregivers of patients with Amyotrophic Lateral Sclerosis (ALS)

Mattia SicilianoDepartment of Psychology, Second University of Naples, Caserta, Italy, ;Department of Medical, Surgical, Neurological, Metabolic and Aging Sciences, Second University of Naples (SUN), Naples, Italy, ;Department of Neuroscience, Reproductive and Odontostomatologic Sciences, University “Federico II”, Naples, Italy,
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Gabriella SantangeloDepartment of Psychology, Second University of Naples, Caserta, Italy, ;IDC-Hermitage-Capodimonte, Naples, Italy, and
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Francesca TrojsiDepartment of Medical, Surgical, Neurological, Metabolic and Aging Sciences, Second University of Naples (SUN), Naples, Italy, ORCID Iconhttp://orcid.org/0000-0002-3790-8018
ORCID Icon,
Carmela Di SommaDepartment of Psychology, Second University of Naples, Caserta, Italy,
,
Manila PatroneDepartment of Psychology, Second University of Naples, Caserta, Italy,
,
Cinzia FemianoDepartment of Medical, Surgical, Neurological, Metabolic and Aging Sciences, Second University of Naples (SUN), Naples, Italy,
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Maria Rosaria MonsurròDepartment of Medical, Surgical, Neurological, Metabolic and Aging Sciences, Second University of Naples (SUN), Naples, Italy, ORCID Iconhttp://orcid.org/0000-0002-6784-0472
ORCID Icon,
Luigi TrojanoDepartment of Psychology, Second University of Naples, Caserta, Italy, ;Salvatore Maugeri Foundation, Scientific Institute of Telese, Telese Terme, Benevento, ItalyCorrespondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-0328-9642
ORCID Icon &
Gioacchino TedeschiDepartment of Medical, Surgical, Neurological, Metabolic and Aging Sciences, Second University of Naples (SUN), Naples, Italy, ORCID Iconhttp://orcid.org/0000-0002-3321-1125
ORCID Icon show all
Pages 367-377 | Received 02 Sep 2016, Accepted 10 Jan 2017, Published online: 10 Feb 2017

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Anna Maksymowicz-Śliwińska, Dorothée Lulé, Krzysztof NieporĘcki, Katarzyna Ciećwierska, Albert C. Ludolph & Magdalena Kuźma-Kozakiewicz. (2023) The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 317-326.
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Jashelle Caga, Margaret C. Zoing, David Foxe, Eleanor Ramsey, Mirelle D’Mello, Eneida Mioshi, Rebekah M. Ahmed, Matthew C. Kiernan & Olivier Piguet. (2021) Problem-focused coping underlying lower caregiver burden in ALS-FTD: implications for caregiver intervention. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:5-6, pages 434-441.
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Jessica de Wit, Leonhard A. Bakker, Annerieke C. van Groenestijn, Joost F. Baardman, Leonard H. van den Berg, Johanna M.A. Visser-Meily & Carin D. SchrÖder. (2019) Psychological distress and coping styles of caregivers of patients with amyotrophic lateral sclerosis: a longitudinal study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:3-4, pages 235-241.
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Priya Treesa Thomas, Manjusha G. Warrier, Arun Sadasivan, Bhuvaneshwari Balasubramanium, Veeramani Preethish-kumar, Saraswati Nashi, Kiran Polavarapu, Gopalkrishna Krishna, Seena Vengalil, Prakashi Rajaram & Atchayaram Nalini. (2018) Caregiver burden and quality of life of patients with amyotrophic lateral sclerosis in India. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:7-8, pages 606-610.
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Articles from other publishers (19)

Elisa Aust, René Günther, Andreas Hermann & Katharina Linse. (2023) Psychologisch geleitete Gruppentreffen für Angehörige von ALS-Patient*innen. Fortschritte der Neurologie · Psychiatrie.
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Emília Márcia Gomes de Souza e Silva, Stephano Tomaz da Silva, Ledycnarf Januário de Holanda, Daniel Tezoni Borges, Ana Paula Mendonça Fernandes, Kelly Evangelista Rodrigues da Silva, Tatiana Souza Ribeiro, Luciana Protásio de Melo, Ricardo Alexsandro de Medeiros Valentim, Danilo Alves Pinto Nagem & Ana Raquel Rodrigues Lindquist. (2023) Effects of a self-care educational program via telerehabilitation on quality of life and caregiver burden in amyotrophic lateral sclerosis: a single-blinded randomized clinical trial protocol. Frontiers in Psychology 14.
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Eleonora Volpato, Paola Pierucci, Maria Luisa De Candia, Massimo Casparrini, Valeria Volpi, Francesco Pagnini, Giovanna Elisiana Carpagnano & Paolo Banfi. (2023) Life Experiences in Neuromuscular Tracheotomized Patients in Times of Covid-19. Journal of Neuromuscular Diseases 10:4, pages 517-529.
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Paola Pierucci, Eleonora Volpato, Francesca Grosso, Maria De Candia, Massimo Casparrini, Elena Compalati, Francesco Pagnini, Paolo Banfi & Giovanna Carpagnano. (2023) Caregivers of Neuromuscular Patients Living with Tracheostomy during COVID-19 Pandemic: Their Experience. Journal of Clinical Medicine 12:2, pages 555.
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Songul DURAN & Yasemin ÇIRAK. (2022) Marital Satisfaction and Sexual Quality of Life of Patients with Amyotrophic Lateral Sclerosis (ALS). Sexuality and Disability 40:4, pages 657-667.
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Jashelle Caga, Matthew C. Kiernan & Olivier Piguet. (2021) A Systematic Review of Caregiver Coping Strategies in Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Journal of Geriatric Psychiatry and Neurology 35:6, pages 763-777.
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Elisa Aust, Katharina Linse, Sven-Thomas Graupner, Markus Joos, Daniel Liebscher, Julian Grosskreutz, Johannes Prudlo, Thomas Meyer, René Günther, Sebastian Pannasch & Andreas Hermann. (2022) Quality of life and mental health in the locked-in-state—differences between patients with amyotrophic lateral sclerosis and their next of kin. Journal of Neurology 269:11, pages 5910-5925.
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Ling Lian, Minying Zheng, Ruojie He, Jianing Lin, Weineng Chen, Zhong Pei & Xiaoli Yao. (2022) Analysing the influencing factors on caregivers’ burden among amyotrophic lateral sclerosis patients in China: a cross-sectional study based on data mining. BMJ Open 12:9, pages e066402.
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Karin E. Thomas, Kathryn Lyndes & Katie Jackson. (2022) The Amyotrophic Lateral Sclerosis Caregiver Experience During the Pandemic: A Preliminary Qualitative Exploration and Reflection of Interview Data. Perspectives of the ASHA Special Interest Groups 7:4, pages 1182-1188.
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Minoo Sharbafshaaer, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Sabrina Esposito, Fabrizio Canale, Giulia D’Alvano, Marcello Silvestro, Antonio Russo, Gioacchino Tedeschi, Mattia Siciliano & Francesca Trojsi. (2022) Psychological Support for Family Caregivers of Patients With Amyotrophic Lateral Sclerosis at the Time of the Coronavirus Disease 2019 Pandemic: A Pilot Study Using a Telemedicine Approach. Frontiers in Psychiatry 13.
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Yuka Shibata, Masaaki Matsushima, Megumi Takeuchi, Momoko Kato & Ichiro Yabe. (2022) Inappropriate Metacognitive Status Increases State Anxiety in Genetic Counseling Clients. Frontiers in Psychology 13.
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Giulia D’Alvano, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Luigi Lavorgna, Gioacchino Tedeschi, Mattia Siciliano & Francesca Trojsi. (2021) Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic. Brain Sciences 12:1, pages 49.
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Mitsuko Ushikubo, Emiko Nashiki, Tadahiro Ohtani & Hiromi Kawabata. (2021) Practical Measures for Dealing With the Struggles of Nurses Caring for People With Amyotrophic Lateral Sclerosis Comorbid With Cognitive Impairment in Japan. Frontiers in Psychology 12.
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Samar M. Aoun, Kerrie Noonan, Geoff Thomas & Bruce Rumbold. (2021) Traumatised, angry, abandoned but some empowered: a national survey of experiences of family caregivers bereaved by motor neurone disease. Palliative Care and Social Practice 15, pages 263235242110385.
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Lauren Treat. (2020) Youth provide caregiving to adults with ALS. Neurology 94:14, pages 601-602.
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Soumia Benbrika, Béatrice Desgranges, Francis Eustache & Fausto Viader. (2019) Cognitive, Emotional and Psychological Manifestations in Amyotrophic Lateral Sclerosis at Baseline and Overtime: A Review. Frontiers in Neuroscience 13.
Crossref
Tom Burke, Jennifer Wilson O'Raghallaigh, Sinead Maguire, Miriam Galvin, Mark Heverin, Orla Hardiman & Niall Pender. (2019) Group interventions for amyotrophic lateral sclerosis caregivers in Ireland: a randomised controlled trial protocol. BMJ Open 9:9, pages e030684.
Crossref
Jashelle Caga, Sharpley Hsieh, Patricia Lillo, Kaitlin Dudley & Eneida Mioshi. (2019) The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers. Frontiers in Neurology 10.
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Michelle M. Hampton & Patricia Newcomb. (2018) Self-efficacy and Stress Among Informal Caregivers of Individuals at End of Life. Journal of Hospice & Palliative Nursing 20:5, pages 471-477.
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