Advanced search
Publication Cover
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 18, 2017 - Issue 5-6
Submit an article Journal homepage
755
Views
24
CrossRef citations to date
0
Altmetric
Original Article

Advance care planning for patients with amyotrophic lateral sclerosis

Benjamin H. LeviDepartment of Humanities & Pediatrics, Penn State College of Medicine, Hershey, PA, USA, Correspondence[email protected]
,
Zachary SimmonsDepartment of Neurology, Penn State College of Medicine, ALS Clinic and Research Center, Hershey, PA, USA,
,
Courtney HannaPenn State College of Medicine, Hershey, PA, USA,
,
Allyson BrothersHuman Development and Family Studies, Colorado State University, Fort Collins, CO, USA,
,
Erik LehmanDepartment of Public Health Sciences, Penn State College of Medicine, Hershey, PA, USA,
,
Elana FaraceDepartment of Public Health Sciences, Penn State College of Medicine, Hershey, PA, USA,
,
Megan BainDepartment of Humanities, Penn State College of Medicine, Hershey, PA, USA, and
,
Renee StewartDepartment of Humanities, Penn State College of Medicine, Hershey, PA, USA, and
&
Michael J. GreenDepartment of Humanities & Medicine, Penn State College of Medicine, Hershey, PA, USA
 show all
Pages 388-396 | Received 14 Oct 2016, Accepted 10 Jan 2017, Published online: 05 Mar 2017

Citations (24)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (1)

Amy Henderson Riley, Elizabeth Critchlow, Lyena Birkenstock, MariaLisa Itzoe, Katherine Senter, Nichole M. Holmes & Steven Wesley Buffer. (2021) Vignettes as research tools in global health communication: a systematic review of the literature from 2000 to 2020. Journal of Communication in Healthcare 14:4, pages 283-292.
Read now

Articles from other publishers (23)

Joel Phillips, Stacy Dixon, Tracy Koehler & Benzi Kluger. (2023) Advance Care Planning Among Patients With Amyotrophic Lateral Sclerosis: Patient Perspectives on Goals of Care Conversations. American Journal of Hospice and Palliative Medicine®, pages 104990912311729.
Crossref
Charlèss Dupont, Fanny Monnet, Lara Pivodic, Aline De Vleminck, Chantal Van Audenhove, Lieve Van den Block & Tinne Smets. (2023) Evaluating an advance care planning website for people with dementia and their caregivers: Protocol for a mixed method study. DIGITAL HEALTH 9.
Crossref
Lindsay Prizer & Peter Hudson. 2023. Neuropalliative Care, Part II. Neuropalliative Care, Part II 203 219 .
Christen Shoesmith. 2023. Neuropalliative Care, Part II. Neuropalliative Care, Part II 139 155 .
Louise Magdeleine & Julie Maziller. (2022) Quels facteurs influencent les prises de décision dans le cadre de la Sclérose Latérale Amyotrophique au sein des membres de la triade patient, proches-aidants et soignants ?. Revue internationale de soins palliatifs Vol. 37:2, pages 57-80.
Crossref
Sara Alquati, Luca Ghirotto, Ludovica De Panfilis, Cristina Autelitano, Elisabetta Bertocchi, Giovanna Artioli, Francesca Sireci, Silvia Tanzi & Simona Sacchi. (2022) Negotiating the Beginning of Care: A Grounded Theory Study of Health Services for Amyotrophic Lateral Sclerosis. Brain Sciences 12:12, pages 1623.
Crossref
Zachary Klock, Stephanie Dobak, Gail Houseman, Amy T. Cunningham & Margaret Kreher. (2021) Advance Care Planning and Healthcare Utilization in Patients With Amyotrophic Lateral Sclerosis: A Retrospective Chart Review. American Journal of Hospice and Palliative Medicine® 39:10, pages 1152-1156.
Crossref
Bronson R. Kunzler, Andrew J. Foy, Benjamin H. Levi, Lauren J. Van Scoy, Erik B. Lehman, Theresa J. Smith & Michael J. Green. (2021) Does Caregiver Participation in Advance Care Planning Using a Decision Support Tool Together With Patients Reduce Caregiver Strain, Burden and Anxiety Over Time? A Post-Hoc Analysis of a Randomized Controlled Trial. American Journal of Hospice and Palliative Medicine® 39:7, pages 757-761.
Crossref
Suze G. Berkhout, Kelly Fritsch, Alexandra Vieux Frankel & Kathleen Sheehan. (2022) Obligation and the “Gift of Life”: Understanding frictions surrounding advance care planning and goals of care discussions in liver transplantation. Journal of Liver Transplantation 7, pages 100102.
Crossref
Isabel Vandenbogaerde, Rose Miranda, Jan L De Bleecker, Emma Carduff, Agnes van der Heide, Lieve Van den Block, Luc Deliens & Aline De Vleminck. (2022) Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers. BMJ Open 12:5, pages e060451.
Crossref
Sara M. Takacs & Amber R. Comer. (2021) Documentation of advance care planning forms in patients with amyotrophic lateral sclerosis. Muscle & Nerve 65:2, pages 187-192.
Crossref
Andrea Giordano, Ludovica De Panfilis, Marta Perin, Laura Servidio, Marta Cascioli, Maria Grazia Grasso, Alessandra Lugaresi, Eugenio Pucci, Simone Veronese & Alessandra Solari. (2022) Advance Care Planning in Neurodegenerative Disorders: A Scoping Review. International Journal of Environmental Research and Public Health 19:2, pages 803.
Crossref
Anke Erdmann, Celia Spoden, Irene Hirschberg & Gerald Neitzke. (2022) Talking about the end of life: communication patterns in amyotrophic lateral sclerosis – a scoping review. Palliative Care and Social Practice 16, pages 263235242210836.
Crossref
Janet Jull, Sascha Köpke, Maureen Smith, Meg Carley, Jeanette Finderup, Anne C Rahn, Laura Boland, Sandra Dunn, Andrew A Dwyer, Jürgen Kasper, Simone Maria Kienlin, France Légaré, Krystina B Lewis, Anne Lyddiatt, Claudia Rutherford, Junqiang Zhao, Tamara Rader, Ian D Graham & Dawn Stacey. (2021) Decision coaching for people making healthcare decisions. Cochrane Database of Systematic Reviews 2021:11.
Crossref
Shelagh K. Genuis, Westerly Luth, Sandra Campbell, Tania Bubela & Wendy S. Johnston. (2021) Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Frontiers in Neurology 12.
Crossref
Elizabeth ThiedeBenjamin H. LeviDaniella LipnickRhonda JohnsonIn Seo LaErik B. LehmanTheresa SmithDebra WiegandMichael GreenLauren Jodi Van Scoy. (2021) Effect of Advance Care Planning on Surrogate Decision Makers' Preparedness for Decision Making: Results of a Mixed-Methods Randomized Controlled Trial. Journal of Palliative Medicine 24:7, pages 982-993.
Crossref
Michael J. Green, Lauren J. Van Scoy, Andrew J. Foy, Anne E.F. Dimmock, Erik Lehman & Benjamin H. Levi. (2019) Patients With Advanced Cancer Choose Less Aggressive Medical Treatment on Vignettes After Using a Computer-Based Decision Aid. American Journal of Hospice and Palliative Medicine® 37:7, pages 537-541.
Crossref
Elyse A. EverettElizabeth PedowitzSamuel MaiserJoss CohenJessica BesbrisAmbereen K. MehtaLuqi ChiChristopher A. Jones. (2020) Top Ten Tips Palliative Care Clinicians Should Know About Amyotrophic Lateral Sclerosis. Journal of Palliative Medicine 23:6, pages 842-847.
Crossref
Doris van der Smissen, Anouk Overbeek, Sandra van Dulmen, Lisette van Gemert-Pijnen, Agnes van der Heide, Judith AC Rietjens & Ida J Korfage. (2020) The Feasibility and Effectiveness of Web-Based Advance Care Planning Programs: Scoping Review. Journal of Medical Internet Research 22:3, pages e15578.
Crossref
Jane R. Schubart, Benjamin H. Levi, Megan M. Bain, Elana Farace & Michael J. Green. (2019) Advance Care Planning Among Patients With Advanced Cancer. Journal of Oncology Practice 15:1, pages e65-e73.
Crossref
Maisha T. Robinson & Danny Estupinan. 2019. Neuropalliative Care. Neuropalliative Care 101 115 .
Ralf J. Jox. 2019. Neuropalliative Care. Neuropalliative Care 205 218 .
Michael J. Green, Lauren J. Van Scoy, Andrew J. Foy, Renee R. Stewart, Ramya Sampath, Jane R. Schubart, Erik B. Lehman, Anne E. F. Dimmock, Ashley M. Bucher, Lisa S. Lehmann, Alyssa F. Harlow, Chengwu Yang & Benjamin H. Levi. (2017) A Randomized Controlled Trial of Strategies to Improve Family Members’ Preparedness for Surrogate Decision-Making. American Journal of Hospice and Palliative Medicine® 35:6, pages 866-874.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.