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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 19, 2018 - Issue 5-6
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Clinical

Provision of assistive technology devices among people with ALS in Germany: a platform-case management approach

Andreas FunkeOutpatient Center for ALS and other Motor Neuron Disorders, Charité – Universitätsmedizin Berlin, Berlin, Germany, View further author information
,
Susanne SpittelOutpatient Center for ALS and other Motor Neuron Disorders, Charité – Universitätsmedizin Berlin, Berlin, Germany, View further author information
,
Torsten GrehlDepartment of Neurology, Outpatient Center for ALS and other Motor Neuron Disorders, Alfried Krupp Krankenhaus, Essen, Germany, View further author information
,
Julian GrosskreutzHans Berger Department of Neurology, University Hospital Jena, Jena, Germany, View further author information
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Dagmar KettemannOutpatient Center for ALS and other Motor Neuron Disorders, Charité – Universitätsmedizin Berlin, Berlin, Germany, View further author information
,
Susanne PetriDepartment of Neurology, Medizinische Hochschule Hannover, Hannover, Germany, View further author information
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Ute WeyenDepartment of Neurology, Outpatient Center for ALS and other Motor Neuron Disorders, Berufsgenossenschaftliches Universitätsklinikum Bergmannsheil, Bochum, Germany, View further author information
,
Patrick WeydtDepartment of Neurodegenerative Diseases and Gerontopsychiatry, University of Bonn, Bonn, Germany, View further author information
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Johannes DorstDepartment of Neurology, University of Ulm, Ulm, Germany, View further author information
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Albert C. LudolphDepartment of Neurology, University of Ulm, Ulm, Germany, View further author information
,
Petra BaumDepartment of Neurology, Universitätsklinikum Leipzig, Leipzig, Germany, View further author information
,
Moritz OberstadtDepartment of Neurology, Universitätsklinikum Leipzig, Leipzig, Germany, View further author information
,
Berit JordanDepartment of Neurology, Martin-Luther-University Halle-Wittenberg, Halle (Saale), Germany, View further author information
,
Andreas HermannDepartment of Neurology, Technische Universität Dresden, Dresden, Germany, ;Research Site Dresden, German Center for Neurodegenerative Diseases (DZNE), Dresden, Germany, View further author information
,
Joachim WolfDepartment of Neurology, Diakonissenkrankenhaus Mannheim, Mannheim, Germany, View further author information
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Matthias BoentertDepartment for Sleep Medicine and Neuromuscular Disorders, Universitätsklinikum Münster, Münster, Germany, and View further author information
,
Bertram WalterAmbulanzpartner Soziotechnologie APST GmbH, Berlin, GermanyView further author information
,
Nadine GajewskiAmbulanzpartner Soziotechnologie APST GmbH, Berlin, GermanyView further author information
,
André MaierOutpatient Center for ALS and other Motor Neuron Disorders, Charité – Universitätsmedizin Berlin, Berlin, Germany, View further author information
,
Christoph MünchOutpatient Center for ALS and other Motor Neuron Disorders, Charité – Universitätsmedizin Berlin, Berlin, Germany, ;Ambulanzpartner Soziotechnologie APST GmbH, Berlin, GermanyView further author information
&
Thomas MeyerOutpatient Center for ALS and other Motor Neuron Disorders, Charité – Universitätsmedizin Berlin, Berlin, Germany, ;Ambulanzpartner Soziotechnologie APST GmbH, Berlin, GermanyCorrespondence[email protected]
View further author information
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Pages 342-350 | Received 03 Sep 2017, Accepted 09 Jan 2018, Published online: 30 Jan 2018

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Thomas Meyer, Susanne Spittel, Torsten Grehl, Ute Weyen, Robert Steinbach, Dagmar Kettemann, Susanne Petri, Patrick Weydt, René Günther, Petra Baum, Elena Schlapakow, Jan Christoph Koch, Matthias Boentert, Joachim Wolf, Julian Grosskreutz, Annekathrin Rödiger, Benjamin Ilse, Moritz Metelmann, Jenny Norden, Ruhan Yasemin Koc, Péter Körtvélyessy, Alessio Riitano, Bertram Walter, Barbara Hildebrandt, Friedrich Schaudinn, Christoph Münch & André Maier. (2023) Remote digital assessment of amyotrophic lateral sclerosis functional rating scale – a multicenter observational study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 175-184.
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Satish Mishra, Ariane Laplante-Lévesque, Giulia Barbareschi, Luc De Witte, Sarah Abdi, Alice Spann, Chapal Khasnabis & Michael Allen. (2022) Assistive technology needs, access and coverage, and related barriers and facilitators in the WHO European region: a scoping review. Disability and Rehabilitation: Assistive Technology 0:0, pages 1-12.
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Stacy A. Rudnicki, Jinsy A. Andrews, Angela Genge, Carlayne Jackson, Noah Lechtzin, Timothy M. Miller, Bettina M. Cockroft, Fady I. Malik, Lisa Meng, Jenny Wei, Andrew A. Wolff & Jeremy M. Shefner. (2022) Prescription and acceptance of durable medical equipment in FORTITUDE-ALS, a study of reldesemtiv in ALS: post hoc analyses of a randomized, double-blind, placebo-controlled clinical trial. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:3-4, pages 263-270.
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Krzysztof Barć, Christian Weber, Anna Maksymowicz-Śliwińska, Katarzyna Ciećwierska, Olga Helczyk, Albert Ludolph C.Magdalena Kuźma-Kozakiewicz & Dorothée Lulé. (2020) Healthcare provision in amyotrophic lateral sclerosis: procedures, queries and pitfalls in Germany and Poland. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:3-4, pages 193-202.
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Elizabeth Elliott, Judith Newton, Phillipa Rewaj, Jenna M. Gregory, Lynda Tomarelli, Shuna Colville, Siddharthan Chandran & Suvankar Pal. (2020) An epidemiological profile of dysarthria incidence and assistive technology use in the living population of people with MND in Scotland. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:1-2, pages 116-122.
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Elisa Aust, René Günther, Andreas Hermann & Katharina Linse. (2023) Psychologisch geleitete Gruppentreffen für Angehörige von ALS-Patient*innen. Fortschritte der Neurologie · Psychiatrie.
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Renae Kelly, Bridget Manning & Kieran Broome. (2023) Assistive technology in palliative medicine: equipment needs. BMJ Supportive & Palliative Care, pages bmjspcare-2022-003723.
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Birgit Hennig & Jana Tessmer. 2023. Assistive Technologien, technische Rehabilitation und Unterstützte Kommunikation. Assistive Technologien, technische Rehabilitation und Unterstützte Kommunikation 63 74 .
Karina Reyes-Lio, Cristina Ramirez-Fernandez, Ismael Hernandez-Capuchin, Victoria Meza-Kubo & Alberto L. Moran. (2022) DAITOV: An interactive assistive device for occupational therapy for learning to dress. DAITOV: An interactive assistive device for occupational therapy for learning to dress.
Robert Klebbe, Stefan Scherzinger & Cornelia Eicher. (2022) Assistive Robots for Patients With Amyotrophic Lateral Sclerosis: Exploratory Task-Based Evaluation Study With an Early-Stage Demonstrator. JMIR Rehabilitation and Assistive Technologies 9:3, pages e35304.
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André Maier, Marcel Gaudlitz, Torsten Grehl, Ute Weyen, Robert Steinbach, Julian Grosskreutz, Annekathrin Rödiger, Jan Christoph Koch, Teresa Lengenfeld, Patrick Weydt, René Günther, Joachim Wolf, Petra Baum, Moritz Metelmann, Johannes Dorst, Albert C. Ludolph, Dagmar Kettemann, Jenny Norden, Ruhan Yasemin Koc, Bertram Walter, Barbara Hildebrandt, Christoph Münch, Thomas Meyer & Susanne Spittel. (2022) Use and subjective experience of the impact of motor-assisted movement exercisers in people with amyotrophic lateral sclerosis: a multicenter observational study. Scientific Reports 12:1.
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Deidre D. Morgan, Eileen Willis, Kate Sweet, Pen Roe, Joana Rabaçal & David C. Currow. (2022) The Complexities of Prescribing Assistive Equipment at the End of Life—Patient and Caregivers’ Perspectives. Healthcare 10:6, pages 1005.
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Ana Londral. (2022) Assistive Technologies for Communication Empower Patients With ALS to Generate and Self-Report Health Data. Frontiers in Neurology 13.
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Katharina Linse, Elisa Aust, René Günther & Andreas Hermann. (2022) Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?. Journal of Clinical Medicine 11:1, pages 254.
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André Maier, Cornelia Eicher, Joern Kiselev, Robert Klebbe, Marius Greuèl, Dagmar Kettemann, Marcel Gaudlitz, Bertram Walter, Ursula Oleimeulen, Christoph Münch, Thomas Meyer & Susanne Spittel. (2021) Acceptance of Enhanced Robotic Assistance Systems in People With Amyotrophic Lateral Sclerosis–Associated Motor Impairment: Observational Online Study. JMIR Rehabilitation and Assistive Technologies 8:4, pages e18972.
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Veronika van der Wardt, Hannah Seipp, Annette Becker, Catharina Maulbecker-Armstrong, Rebecca Kraicker, Annika Schneider, Andreas Heitz & Ulf Seifart. (2021) Rehabilitation care planning on a digital communication platform for patients with a work disability: protocol for the RehaPro-SERVE feasibility study. Pilot and Feasibility Studies 7:1.
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Thomas Meyer. (2021) Amyotrophe Lateralsklerose (ALS) – Diagnose, Verlauf und neue Behandlungsoptionen. DMW - Deutsche Medizinische Wochenschrift 146:24/25, pages 1613-1618.
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Daniel Fürstenau, Stefan Klein, Amyn Vogel & Carolin Auschra. (2021) Multi-sided platform and data-driven care research. Electronic Markets 31:4, pages 811-828.
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Jenny Pernilla Rolland, Mari-Anne Myrberget & Tore Wergeland Meisingset. (2021) The Assistive Device Situation for ALS Patients in Norway. Occupational Therapy International 2021, pages 1-5.
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Shelagh K. Genuis, Westerly Luth, Sandra Campbell, Tania Bubela & Wendy S. Johnston. (2021) Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Frontiers in Neurology 12.
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Thomas Meyer, André Maier, Zeljko Uzelac, Tim Hagenacker, René Günther, Olivia Schreiber‐Katz, Markus Weiler, Robert Steinbach, Ute Weyen, Jan Christoph Koch, Dagmar Kettemann, Jenny Norden, Johannes Dorst, Claudia Wurster, Albert C. Ludolph, Benjamin Stolte, Maren Freigang, Alma Osmanovic, Susanne Petri, Julian Grosskreutz, Annekathrin Rödiger, Ramona Griep, Marcel Gaudlitz, Bertram Walter, Christoph Münch & Susanne Spittel. (2021) Treatment expectations and perception of therapy in adult patients with spinal muscular atrophy receiving nusinersen. European Journal of Neurology 28:8, pages 2582-2595.
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Susanne Spittel, André Maier, Dagmar Kettemann, Bertram Walter, Birgit Koch, Kerstin Krause, Jenny Norden, Christoph Münch & Thomas Meyer. (2020) Non‐invasive and tracheostomy invasive ventilation in amyotrophic lateral sclerosis: Utilization and survival rates in a cohort study over 12 years in Germany. European Journal of Neurology 28:4, pages 1160-1171.
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Thomas Meyer, Dagmar Kettemann, André Maier, Torsten Grehl, Ute Weyen, Julian Grosskreutz, Robert Steinbach, Jenny Norden, Annette George, Andreas Hermann, René Guenther, Susanne Petri, Olivia Schreiber-Katz, Johannes Dorst, Albert C Ludolph, Bertram Walter, Christoph Münch & Susanne Spittel. (2020) Symptomatic pharmacotherapy in ALS: data analysis from a platform-based medication management programme. Journal of Neurology, Neurosurgery & Psychiatry 91:7, pages 783-785.
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Helena Hemmingsson & Maria Borgestig. (2020) Usability of Eye-Gaze Controlled Computers in Sweden: A Total Population Survey. International Journal of Environmental Research and Public Health 17:5, pages 1639.
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G.Y. Wang, S.L. Rayner, R. Chung, B.Y. Shi & X.J. Liang. (2020) Advances in nanotechnology-based strategies for the treatments of amyotrophic lateral sclerosis. Materials Today Bio 6, pages 100055.
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Cornelia Eicher, Jörn Kiselev, Kirsten Brukamp, Diana Kiemel, Susanne Spittel, André Maier, Thomas Meyer, Ursula Oleimeulen & Marius Greuèl. (2019) Experiences with assistive technologies and devices (ATD) in patients with amyotrophic lateral sclerosis (ALS) and their caregivers. Technology and Disability 31:4, pages 203-215.
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Thomas Meyer, Andreas Funke, Christoph Münch, Dagmar Kettemann, André Maier, Bertram Walter, Annett Thomas & Susanne Spittel. (2019) Real world experience of patients with amyotrophic lateral sclerosis (ALS) in the treatment of spasticity using tetrahydrocannabinol:cannabidiol (THC:CBD). BMC Neurology 19:1.
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Isabela Lopes Trevizan, Talita Dias Silva, Helen Dawes, Thais Massetti, Tânia Brusque Crocetta, Francis Meire Favero, Acary Souza Bulle Oliveira, Luciano Vieira de Araújo, Ana Carolina Costa Santos, Luiz Carlos de Abreu, Shelly Coe & Carlos Bandeira de Mello Monteiro. (2018) Efficacy of different interaction devices using non-immersive virtual tasks in individuals with Amyotrophic Lateral Sclerosis: a cross-sectional randomized trial. BMC Neurology 18:1.
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Robert Meyer, Susanne Spittel, Laura Steinfurth, Andreas Funke, Dagmar Kettemann, Christoph Münch, Thomas Meyer & André Maier. (2018) Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study. JMIR Rehabilitation and Assistive Technologies 5:2, pages e10099.
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Katharina Linse, Elisa Aust, Markus Joos & Andreas Hermann. (2018) Communication Matters—Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis. Frontiers in Neurology 9.
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