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Thomas Meyer, Susanne Spittel, Torsten Grehl, Ute Weyen, Robert Steinbach, Dagmar Kettemann, Susanne Petri, Patrick Weydt, René Günther, Petra Baum, Elena Schlapakow, Jan Christoph Koch, Matthias Boentert, Joachim Wolf, Julian Grosskreutz, Annekathrin Rödiger, Benjamin Ilse, Moritz Metelmann, Jenny Norden, Ruhan Yasemin Koc, Péter Körtvélyessy, Alessio Riitano, Bertram Walter, Barbara Hildebrandt, Friedrich Schaudinn, Christoph Münch & André Maier. (2023) Remote digital assessment of amyotrophic lateral sclerosis functional rating scale – a multicenter observational study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 175-184.
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Hikari Ando, Rosanna Cousins & Carolyn A. Young. (2022) Flexibility to manage and enhance quality of life among people with motor neurone disease. Disability and Rehabilitation 44:12, pages 2752-2762.
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Rachel Tattersall, Simon Carty, Dara Meldrum, Orla Hardiman & Deirdre Murray. (2022) The patient's perspective of remote respiratory assessments during the COVID-19 pandemic. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:1-2, pages 76-80.
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Deirdre Murray, James Rooney, Amar Al-Chalabi, Tommy Bunte, Theresa Chiwera, Mutahhara Choudhury, Adriano Chio, Lauren Fenton, Jennifer Fortune, Lindsay Maidment, Umberto Manera, Chris Mcdermott, Dara Meldrum, Myrte Meyjes, Rachel Tattersall, Maria Claudia Torrieri, Philip Van Damme, Elien Vanderlinden, Claire Wood, Leonard H. Van Den Berg & Orla Hardiman. (2021) Correlations between measures of ALS respiratory function: is there an alternative to FVC?. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:7-8, pages 495-504.
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Rosa Capozzo, Stefano Zoccolella, Marco Musio, Roberta Barone, Miriam Accogli & Giancarlo Logroscino. (2020) Telemedicine is a useful tool to deliver care to patients with Amyotrophic Lateral Sclerosis during COVID-19 pandemic: results from Southern Italy. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 542-548.
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Roxanna N. Pebdani, Adriana M. Zeidan, Erin M. Fearn-Smith & Lynda R. Matthews. (2022) Telehealth Assessment in Rehabilitation Counseling During the COVID-19 Pandemic. Rehabilitation Counseling Bulletin 67:2, pages 139-146.
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Ting LiYucai ZhangXin le LuoWen WanHuiran ZhangXiaoqing WangDong Wang. (2023) Exploring Patients' Intentions for Usage of Video Telemedicine Follow-Up Services: Cross-Sectional Study. Telemedicine and e-Health.
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Cara Donohue, Jennifer L. Chapin, Amber Anderson, Lauren DiBiase, Lauren Tabor Gray, James P. Wymer & Emily K. Plowman. (2023) Sensitivity and specificity of the Amyotrophic Lateral Sclerosis Functional Rating Scale—Revised to detect dysarthria in individuals with amyotrophic lateral sclerosis. Muscle & Nerve 68:3, pages 296-302.
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Kathryn A. KvamMichael BenatarAlisa BrownleeTracie CallerRohit R. DasPhil GreenSherry KolodziejczakJohn RussoDanica SandersNadia SethiKara StavrosJulie StierwaltNancy Giles WaltersAmy BennettScott R. WesselsBenjamin Rix Brooks. (2023) Amyotrophic Lateral Sclerosis Quality Measurement Set 2022 Update. Neurology 101:5, pages 223-232.
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Anders Brantnell, Serdar Temiz, Enrico Baraldi, Joanne Woodford & Louise von Essen. (2023) Barriers to and Facilitators of the Implementation of Digital Mental Health Interventions as Perceived by Primary Care Decision Makers: Content Analysis of Structured Open-Ended Survey Data. JMIR Human Factors 10, pages e44688.
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Emanuela Coriolano Fidelix, Glauciane Costa Santana, Daniele Montenegro da Silva Barros & Mário Emílio Teixeira Dourado Junior. (2023) Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center. Arquivos de Neuro-Psiquiatria 81:05, pages 469-474.
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Arjonne Laar, Ana Ligia Silva de Lima, Bart R. Maas, Bastiaan R. Bloem & Nienke M. de Vries. (2023) Successful implementation of technology in the management of Parkinson's disease: Barriers and facilitators. Clinical Parkinsonism & Related Disorders 8, pages 100188.
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Lene Klem Olesen, Karen la Cour, Heidi With, Annette Faber Mahoney & Charlotte Handberg. (2022) A cross-sectional evaluation of acceptability of an online palliative rehabilitation program for family caregivers of people with amyotrophic lateral sclerosis and cognitive and behavioral impairments. BMC Health Services Research 22:1.
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Stella Bu, Allan ‘Ben’ Smith, Anna Janssen, Candice Donnelly, Ann Dadich, Lisa J. Mackenzie, Andrea L. Smith, Alison L. Young, Verena S. Wu, Sarah J. Smith & Ursula M. Sansom-Daly. (2022) Optimising implementation of telehealth in oncology: A systematic review examining barriers and enablers using the RE-AIM planning and evaluation framework. Critical Reviews in Oncology/Hematology 180, pages 103869.
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Pavani Rangachari, Swapandeep S. Mushiana & Krista Herbert. (2022) A scoping review of applications of the Consolidated Framework for Implementation Research (CFIR) to telehealth service implementation initiatives. BMC Health Services Research 22:1.
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Andrew Chan, Rachel Cohen, Katherine-Marie Robinson, Devvrat Bhardwaj, Geoffrey Gregson, Jeffrey W Jutai, Jason Millar, Adriana Ríos Rincón & Atena Roshan Fekr. (2022) Evidence and User Considerations of Home Health Monitoring for Older Adults: Scoping Review. JMIR Aging 5:4, pages e40079.
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M. L. Dontje, E. Kruitwagen-van Reenen, E. van Wijk, E. Baars, J. M. A. Visser-Meily, A. Beelen, Jim van Os, Leonard van den Berg, Conny van der Meijden, Vincent Cornelissen, Marietta Eimers, Anja Horemans, Esther Kruitwagen, Janneke Sterk, Laura Peeters, Evelien Pirard, Trees Spendel, Anne-Wil Koopman, Remco Timmermans, Germaine Kramer, Evert Schouten & Rineke Jaspers Focks. (2022) Evaluation of the nation-wide implementation of ALS home monitoring & coaching: an e-health innovation for personalized care for patients with motor neuron disease. BMC Health Services Research 22:1.
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Jochem Helleman, Barbara Johnson, Cory Holdom, Esther Hobson, Deirdre Murray, Frederik J. Steyn, Shyuan T. Ngo, Anjali Henders, Madhura B. Lokeshappa, Johanna M. A. Visser-Meily, Leonard H. van den Berg, Orla Hardiman, Anita Beelen, Chris McDermott & Ruben P. A. van Eijk. (2022) Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey. Journal of Neurology 269:11, pages 6003-6013.
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Stephanie Filbay, Kim L Bennell, Renata Morello, Lizzie Smith, Rana S Hinman & Belinda J Lawford. (2022) Exploring experiences with telehealth-delivered allied healthcare services for people with permanent and significant disabilities funded through a national insurance scheme: a qualitative study examining challenges and suggestions to improve services. BMJ Open 12:9, pages e065600.
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Amy M. Dennett, Nicholas F. Taylor, Kimberley Williams, Annie K. Lewis, Peter Brann, Judith D. Hope, Anita M. Wilton & Katherine E. Harding. (2021) Consumer perspectives of telehealth in ambulatory care in an Australian health network. Health & Social Care in the Community 30:5, pages 1903-1912.
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Ntibaneng Hunadi Maleka & Walter Matli. (2022) A review of telehealth during the COVID-19 emergency situation in the public health sector: challenges and opportunities. Journal of Science and Technology Policy Management.
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Jochem Helleman, Jaap N. E. Bakers, Evelien Pirard, Leonard H. van den Berg, Johanna M. A. Visser-Meily & Anita Beelen. (2022) Home-monitoring of vital capacity in people with a motor neuron disease. Journal of Neurology 269:7, pages 3713-3722.
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Sarah Jacob, Ronak Kapadia, Tyler Soule, Honglin Luo, Kerri L. Schellenberg, Renée N. Douville & Gerald Pfeffer. (2022) Neuromuscular Complications of SARS-CoV-2 and Other Viral Infections. Frontiers in Neurology 13.
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Filipe Gonçalves & Bruno Magalhães. (2021) Effects of prolonged interruption of rehabilitation routines in amyotrophic lateral sclerosis patients. Palliative and Supportive Care 20:3, pages 369-374.
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Raffaele Pugliese, Riccardo Sala, Stefano Regondi, Benedetta Beltrami & Christian Lunetta. (2022) Emerging technologies for management of patients with amyotrophic lateral sclerosis: from telehealth to assistive robotics and neural interfaces. Journal of Neurology 269:6, pages 2910-2921.
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Christine Jacob, Emre Sezgin, Antonio Sanchez-Vazquez & Chris Ivory. (2022) Sociotechnical Factors Affecting Patients’ Adoption of Mobile Health Tools: Systematic Literature Review and Narrative Synthesis. JMIR mHealth and uHealth 10:5, pages e36284.
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Aline Alves de Souza, Stephano Tomaz da Silva, Karen de Medeiros Pondofe, Vanessa Regiane Resqueti, Luciana Protásio de Melo, Ricardo Alexsandro de Medeiros Valentim & Tatiana Souza Ribeiro. (2022) Remote versus face-to-face home-based exercise programme in people with amyotrophic lateral sclerosis: protocol for a randomised clinical trial. BMJ Open 12:5, pages e056323.
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Ana Londral. (2022) Assistive Technologies for Communication Empower Patients With ALS to Generate and Self-Report Health Data. Frontiers in Neurology 13.
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Nakul Katyal, Naureen Narula, Raghav Govindarajan & Pradeep Sahota. (2022) Setting Up a Teleneurology Clinic during COVID-19 Pandemic: Experience from an Academic Practice. International Journal of Telemedicine and Applications 2022, pages 1-7.
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Yuyu Jiang, Pingping Sun, Zhongyi Chen, Jianlan Guo, Shanshan Wang, Fenglan Liu & Jinping Li. (2022) Patients’ and healthcare providers’ perceptions and experiences of telehealth use and online health information use in chronic disease management for older patients with chronic obstructive pulmonary disease: a qualitative study. BMC Geriatrics 22:1.
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M. L. Dontje, E. Kruitwagen - van Reenen, J. M. A. Visser-Meily & A. Beelen. (2021) Implementation and evaluation of an e-health innovation for personalized care for patients with amyotrophic lateral sclerosis (ALS): protocol for a participatory action research study. Implementation Science Communications 2:1.
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Anne-Kathrin Rausch, Heiner Baur, Leah Reicherzer, Markus Wirz, Fabienne Keller, Emmanuelle Opsommer, Veronika Schoeb, Stefano Vercelli & Marco Barbero. (2021) Physiotherapists’ use and perceptions of digital remote physiotherapy during COVID-19 lockdown in Switzerland: an online cross-sectional survey. Archives of Physiotherapy 11:1.
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Ileana M. Howard & Kathleen Burgess. (2021) Telehealth for Amyotrophic Lateral Sclerosis and Multiple Sclerosis. Physical Medicine and Rehabilitation Clinics of North America 32:2, pages 239-251.
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Louise Tully, Lucinda Case, Niamh Arthurs, Jan Sorensen, James P. Marcin & Grace O'Malley. (2021) Barriers and Facilitators for Implementing Paediatric Telemedicine: Rapid Review of User Perspectives. Frontiers in Pediatrics 9.
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Erika A Saliba-Gustafsson, Rebecca Miller-Kuhlmann, Samantha M R Kling, Donn W Garvert, Cati G Brown-Johnson, Anna Sophia Lestoquoy, Mae-Richelle Verano, Laurice Yang, Jessica Falco-Walter, Jonathan G Shaw, Steven M Asch, Carl A Gold & Marcy Winget. (2020) Rapid Implementation of Video Visits in Neurology During COVID-19: Mixed Methods Evaluation. Journal of Medical Internet Research 22:12, pages e24328.
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Sonu Bhaskar, Sian Bradley, Vijay Kumar Chattu, Anil Adisesh, Alma Nurtazina, Saltanat Kyrykbayeva, Sateesh Sakhamuri, Sebastian Moguilner, Shawna Pandya, Starr Schroeder, Maciej Banach & Daniel Ray. (2020) Telemedicine as the New Outpatient Clinic Gone Digital: Position Paper From the Pandemic Health System REsilience PROGRAM (REPROGRAM) International Consortium (Part 2). Frontiers in Public Health 8.
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