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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 22, 2021 - Issue 1-2
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Short Reports

Engaging ALS patients and caregivers (the ALS research ambassadors) to help design the REFINE-ALS biomarker study

James D. Berry1 Sean M. Healey and AMG Center for ALS, Massachusetts General Hospital, Boston, MA, USAView further author information
,
Richard Bedlack2 Duke University School of Medicine, Durham, NC, USAView further author information
,
Debra Mathews3 Johns Hopkins Berman Institute of Bioethics, Baltimore, MD, USAView further author information
,
Wendy Agnese4 Formerly Mitsubishi Tanabe Pharma America, Inc., Jersey City, NJ, USA, andView further author information
&
Stephen Apple5 Mitsubishi Tanabe Pharma America, Inc., Jersey City, NJ, USACorrespondence[email protected]
View further author information
Pages 147-150 | Received 27 Apr 2020, Accepted 29 Jul 2020, Published online: 24 Aug 2020

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