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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 23, 2022 - Issue 1-2
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Short Reports

Amyotrophic lateral sclerosis caregiver burden and patients’ quality of life during COVID-19 pandemic

Silvia Giusiano1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Laura Peotta1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyCorrespondence[email protected]
View further author information
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Barbara Iazzolino1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Enza Mastro1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Martina Arcari1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Francesca Palumbo1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
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Maria Claudia Torrieri1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
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Alessandro Bombaci1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyORCID Iconhttps://orcid.org/0000-0002-3961-6780View further author information
ORCID Icon,
Maurizio Grassano1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Sara Cabras1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Francesca Di Pede1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Filippo DeMattei1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Enrico Matteoni1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
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Luca Solero1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Margherita Daviddi1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
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Paolina Salamone1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Giuseppe Fuda1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
,
Umberto Manera1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
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Antonio Canosa1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, Italy;2 1 Division of Neurology and ALS Center, Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino, Turin, Italy andView further author information
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Adriano Chiò1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, Italy;2 1 Division of Neurology and ALS Center, Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino, Turin, Italy and;3 Institute of Cognitive Sciences and Technologies, National Research Council, Rome, ItalyORCID Iconhttps://orcid.org/0000-0001-9579-5341View further author information
ORCID Icon,
Andrea Calvo1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, Italy;2 1 Division of Neurology and ALS Center, Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino, Turin, Italy andView further author information
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Cristina Moglia1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, Italy;2 1 Division of Neurology and ALS Center, Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino, Turin, Italy andView further author information
&
Rosario Vasta1 “Rita Levi Montalcini” Department of Neuroscience, University of Turin, Turin, ItalyView further author information
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Pages 146-148 | Received 16 Feb 2021, Accepted 29 Mar 2021, Published online: 16 Apr 2021

Citations (9)

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Kristin M. Schaffer & Maya L. Henry. (2023) Implementing a telehealth-delivered psychoeducational support group for care partners of individuals with primary progressive aphasia. Aphasiology 37:7, pages 1087-1111.
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Articles from other publishers (8)

Ines Testoni, Lorenza Palazzo, Sara Pompele, Ciro De Vincenzo, Maria Perardi & Lucia Ronconi. (2023) Coping and Managing ALS Disease in the Family during COVID-19: Caregivers' Perspective. OBM Neurobiology 07:01, pages 1-26.
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Catherine C. Shoults, Michael W. Rutherford, Aaron S. Kemp, Merideth A. Addicott, Aliza Brown, Carolyn J. Greene, Corey J. Hayes, Jennifer M. Gan, Linda J. Larson-Prior & Jonathan P. Bona. (2023) Analysis of Caregiver Burden Expressed in Social Media Discussions. International Journal of Environmental Research and Public Health 20:3, pages 1933.
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Paola Pierucci, Eleonora Volpato, Francesca Grosso, Maria De Candia, Massimo Casparrini, Elena Compalati, Francesco Pagnini, Paolo Banfi & Giovanna Carpagnano. (2023) Caregivers of Neuromuscular Patients Living with Tracheostomy during COVID-19 Pandemic: Their Experience. Journal of Clinical Medicine 12:2, pages 555.
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Éilís Conroy, Polly Kennedy, Mark Heverin, Orla Hardiman & Miriam Galvin. (2023) Care, burden and self-described positive aspects of caring in amyotrophic lateral sclerosis: an exploratory, longitudinal, mixed-methods study. BMJ Open 13:1, pages e064254.
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Ling Lian, Minying Zheng, Ruojie He, Jianing Lin, Weineng Chen, Zhong Pei & Xiaoli Yao. (2022) Analysing the influencing factors on caregivers’ burden among amyotrophic lateral sclerosis patients in China: a cross-sectional study based on data mining. BMJ Open 12:9, pages e066402.
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Minoo Sharbafshaaer, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Sabrina Esposito, Fabrizio Canale, Giulia D’Alvano, Marcello Silvestro, Antonio Russo, Gioacchino Tedeschi, Mattia Siciliano & Francesca Trojsi. (2022) Psychological Support for Family Caregivers of Patients With Amyotrophic Lateral Sclerosis at the Time of the Coronavirus Disease 2019 Pandemic: A Pilot Study Using a Telemedicine Approach. Frontiers in Psychiatry 13.
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Giulia D’Alvano, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Luigi Lavorgna, Gioacchino Tedeschi, Mattia Siciliano & Francesca Trojsi. (2021) Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic. Brain Sciences 12:1, pages 49.
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Fabiola De Marchi, Chiara Gallo, Maria Francesca Sarnelli, Ilaria De Marchi, Massimo Saraceno, Roberto Cantello & Letizia Mazzini. (2021) Accelerated Early Progression of Amyotrophic Lateral Sclerosis over the COVID-19 Pandemic. Brain Sciences 11:10, pages 1291.
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