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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 24, 2023 - Issue 3-4

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Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS

Mira Ahmad1 Department of History, University of Ottawa, Ottawa, Canada

Shelagh K. Genuis2 Division of Neurology, Department of Medicine, University of Alberta, Edmonton, Canada, and

Westerly Luth2 Division of Neurology, Department of Medicine, University of Alberta, Edmonton, Canada, and

Tania Bubela3 Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada

Wendy S. Johnston2 Division of Neurology, Department of Medicine, University of Alberta, Edmonton, Canada, andCorrespondence[email protected]

Pages 246-255 | Received 09 Feb 2022, Accepted 29 Aug 2022, Published online: 16 Sep 2022

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https://doi.org/10.1080/21678421.2022.2119869
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Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2023) What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project . Muscle & Nerve 68:3, pages 286-295.
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Kathryn A. Kvam, Michael Benatar, Alisa Brownlee, Tracie Caller, Rohit R. Das, Phil Green, Sherry Kolodziejczak, John Russo, Danica Sanders, Nadia Sethi, Kara Stavros, Julie Stierwalt, Nancy Giles Walters, Amy Bennett, Scott R. Wessels & Benjamin Rix Brooks. (2023) Amyotrophic Lateral Sclerosis Quality Measurement Set 2022 Update. Neurology 101:5, pages 223-232.
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