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Articles

Parents’ Experiences of Having a Baby With a Congenital Heart Defect and the Child’s Heart Surgery

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Ayşe Ay, Sevil Çınar Özbay, Handan Boztepe & Eda Gürlen. (2023) “All in One: Fear, Happiness, Faith” A Qualitative Study on Experiences and Needs of Turkish Mothers of Infants with Congenital Heart Disease. Comprehensive Child and Adolescent Nursing 46:2, pages 126-141.
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Articles from other publishers (20)

Dua'a F. Al-Maghaireh, Mariam Mofleh Kawafha, Khatijah Lim Abdullah, Najah Sami Shawish, Andaleeb M. Abu Kamel & Niven Rizk Basyouni. (2023) Psychological problems among parents of children with congenital anomalies. Journal of Neonatal Nursing 29:6, pages 846-850.
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Tuba Büşra ALTIN & Gülçin ÖZALP GERÇEKER. (2023) Kalp Hastalığı Olan Çocuklarda Yaşam Kalitesi ve Hemşirelik BakımıQuality of Life and Nursing Care in Children with Heart Disease. İzmir Katip Çelebi Üniversitesi Sağlık Bilimleri Fakültesi Dergisi 8:3, pages 1039-1045.
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Ewelina Kolarczyk, Aleksandra Morka, Kamil Barański & Lesław Szydłowski. (2023) Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire. Frontiers in Psychology 14.
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Rebecca K. Delaney, Alistair Thorpe, Nelangi M. Pinto, Elissa M. Ozanne, Mandy L. Pershing, Lisa M. Hansen, Linda M. Lambert, Kirstin Tanner & Angela Fagerlin. (2023) Parents' quality of life and health after treatment decision for a fetus with severe congenital heart defect. Journal of Pediatric Nursing 70, pages 20-25.
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Qi-Liang Zhang, Shi-Hao Lin, Wen-Hao Lin, Qiang Chen & Hua Cao. (2023) The effect of applying telehealth education to home care of infants after congenital heart disease surgery. International Journal for Quality in Health Care 35:1.
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Xueying Ding, Jiaxuan Wen, Xinxin Yue, Yudan Zhao, Cuiping Qi, Di Wang & Xiuhong Wei. (2022) Effect of comprehensive nursing intervention for congenital heart disease in children: A meta-analysis. Medicine 101:41, pages e31184.
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Kunnara Maneekunwong, Arunrat Srichantaranit & Wanlaya Thampanichawat. (2021) Factors influencing caregivers' uncertainty of children undergoing cardiac surgery in Bangkok, Thailand. Journal of Health Research 36:5, pages 919-928.
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Elena Mitteregger, Martina Wehrli, Manuela Theiler, Jana Logoteta, Irina Nast, Brigitte Seliner & Beatrice Latal. (2021) Parental experience of the neuromotor development of children with congenital heart disease: an exploratory qualitative study. BMC Pediatrics 21:1.
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Marjorie A.C.P. Man, Elisabeth W. Segers, Renske Schappin, Kees Leeden, Roelie M. Wösten‐van Asperen, Hans Breur, Carolina Weerth & Agnes Hoogen. (2021) Parental experiences of their infant’s hospital admission undergoing cardiac surgery: A systematic review. Acta Paediatrica 110:6, pages 1730-1740.
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Rachel Knight Lozano, Stephen May, Carl Clarkson & Rebecca Sarjeant. (2021) Caregiver experiences of paediatric inpatient cardiac services: A qualitative systematic review. European Journal of Cardiovascular Nursing 20:2, pages 147-159.
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Huaying He, Zhiyong Lin, Yuelan Weng, Jianjie Zhou, Man Ye, Xiaowei Luo & Qifeng Zhao. (2021) Clinical Effect of an Improved Post-Operative Feeding Protocol “in Transition” Infants of Congenital Heart Disease with Pulmonary Hypertension. Congenital Heart Disease 16:6, pages 655-673.
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Midori Ruth Lumsden, Debbie M. Smith, Emma Twigg, Rafael Guerrero & Anja Wittkowski. (2020) Children with single ventricle congenital heart defects: An interpretative phenomenological analysis of the lived parent experience. Progress in Pediatric Cardiology 59, pages 101297.
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Ólöf Kristjánsdóttir, Annica Sjöström-Strand & Gudrún Kristjánsdóttir. (2020) Living with the Memories—Parents’ Experiences of Their Newborn Child Undergoing Heart Surgery Abroad: A Qualitative Study. International Journal of Environmental Research and Public Health 17:23, pages 8840.
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Kristin Billaud Feragen, Nicola Marie Stock, Anita Myhre & Bernt J. Due-tønnessen. (2019) Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition. The Cleft Palate-Craniofacial Journal 57:2, pages 228-237.
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Robyn R. Lotto, Ian D. Jones, Rafael Guerrero, Ram Dhannapuneni & Attilio A. Lotto. (2019) Congenital cardiac surgery and parental perception of risk: a qualitative study. Cardiology in the Young 29:11, pages 1361-1367.
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Flerida Imperial-PerezMarySue V. Heilemann. (2019) Having to Be the One: Mothers Providing Home Care to Infants With Complex Cardiac Needs. American Journal of Critical Care 28:5, pages 354-360.
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Tricia S Williams, Kyla P McDonald, Samantha D Roberts, Vann Chau, Mike Seed, Steven P Miller & Renee Sananes. (2019) From Diagnoses to Ongoing Journey: Parent Experiences Following Congenital Heart Disease Diagnoses. Journal of Pediatric Psychology 44:8, pages 924-936.
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Zhi Hong Ni, Hai Tao Lv, Sheng Ding & Wen Ying Yao. (2019) Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study. PLOS ONE 14:3, pages e0213154.
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Silvio Simeone, Gianluca Pucciarelli, Marco Perrone, Grazia Dell Angelo, Rea Teresa, Assunta Guillari, Gianpaolo Gargiulo, Giuseppe Comentale & Gaetano Palma. (2018) The lived experiences of the parents of children admitted to a paediatric cardiac intensive care unit. Heart & Lung 47:6, pages 631-637.
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Sarah E Woolf‐King, Emily Arnold, Sandra Weiss & David Teitel. (2018) “There's no acknowledgement of what this does to people”: A qualitative exploration of mental health among parents of children with critical congenital heart defects. Journal of Clinical Nursing 27:13-14, pages 2785-2794.
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