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Research Article

“Don't give up”: Employment experiences of individuals with amyotrophic lateral sclerosis who use augmentative and alternative communication

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Pages 179-195 | Published online: 12 Jul 2009

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Stephanie Lackey, Glenda Watson Hyatt, Beata Batorowicz, Sydney van Engelen, Shuangxi Li, Shane Pinder & T. Claire Davies. (2023) Barriers and facilitators to accommodations in the workplace for adults who use augmentative and alternative communication (AAC): a systematic review. Augmentative and Alternative Communication 39:3, pages 181-197.
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Erin Beneteau, Heather Feldner & Wanda Pratt. (2023) “I miss work:” employment experiences and attitudes of adults with acquired disabilities who use assistive technologies. Disability and Rehabilitation: Assistive Technology 0:0, pages 1-10.
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Michelle C. S. Therrien. (2019) Perspectives and experiences of adults who use AAC on making and keeping friends. Augmentative and Alternative Communication 35:3, pages 205-216.
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Janice Light, David McNaughton, David Beukelman, Susan Koch Fager, Melanie Fried-Oken, Thomas Jakobs & Erik Jakobs. (2019) Challenges and opportunities in augmentative and alternative communication: Research and technology development to enhance communication and participation for individuals with complex communication needs. Augmentative and Alternative Communication 35:1, pages 1-12.
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Tanja Makkonen, Hanna Ruottinen, Anna-Maija Korpijaakko-Huuhka & Johanna Palmio. (2018) Variation in communication strategies in amyotrophic lateral sclerosis during a two-year follow-up. Speech, Language and Hearing 21:2, pages 123-130.
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Beata Batorowicz, Gillian King, Freda Vane, Madhu Pinto & Parimala Raghavendra. (2017) Exploring validation of a graphic symbol questionnaire to measure participation experiences of youth in activity settings. Augmentative and Alternative Communication 33:2, pages 97-109.
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Jessica Gosnell Caron & Janice Light. (2017) Social media experiences of adolescents and young adults with cerebral palsy who use augmentative and alternative communication. International Journal of Speech-Language Pathology 19:1, pages 30-42.
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Helen L. Paterson. (2017) The use of social media by adults with acquired conditions who use AAC: current gaps and considerations in research. Augmentative and Alternative Communication 33:1, pages 23-31.
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Janice Light & David Mcnaughton. (2015) Designing AAC Research and Intervention to Improve Outcomes for Individuals with Complex Communication Needs. Augmentative and Alternative Communication 31:2, pages 85-96.
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Jae Ri Kim, Young Tae Kim, Hyun Jung Lee & Eun Hye Park. (2015) Influence of message error type on Korean adults' attitudes toward an individual who uses augmentative and alternative communication. Augmentative and Alternative Communication 31:2, pages 159-169.
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Elizabeth R. Oommen & John W. McCarthy. (2015) Simultaneous Natural Speech and AAC Interventions for Children with Childhood Apraxia of Speech: Lessons from a Speech-Language Pathologist Focus Group. Augmentative and Alternative Communication 31:1, pages 63-76.
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Marco Caligari, Marco Godi, Simone Guglielmetti, Franco Franchignoni & Antonio Nardone. (2013) Eye tracking communication devices in amyotrophic lateral sclerosis: Impact on disability and quality of life. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:7-8, pages 546-552.
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Suzanne Prior, Annalu Waller & Thilo Kroll. (2013) Focus groups as a requirements gathering method with adults with severe speech and physical impairments. Behaviour & Information Technology 32:8, pages 752-760.
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Janice Light & David McNaughton. (2012) The Changing Face of Augmentative and Alternative Communication: Past, Present, and Future Challenges. Augmentative and Alternative Communication 28:4, pages 197-204.
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Tracy Rackensperger. (2012) Family Influences and Academic Success: The Perceptions of Individuals Using AAC. Augmentative and Alternative Communication 28:2, pages 106-116.
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Susan Fager, David R. Beukelman, Melanie Fried-Oken, Tom Jakobs & John Baker. (2012) Access Interface Strategies. Assistive Technology 24:1, pages 25-33.
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Erinn H. Finke, Erinn H. Finke, David B. McNaughton & Kathryn D. R. Drager. (2009) “All Children Can and Should Have the Opportunity to Learn”: General Education Teachers' Perspectives on Including Children with Autism Spectrum Disorder who Require AAC. Augmentative and Alternative Communication 25:2, pages 110-122.
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David R. Beukelman, Laura J. Ball & Susan Fager. (2008) An AAC Personnel Framework: Adults with Acquired Complex Communication Needs. Augmentative and Alternative Communication 24:3, pages 255-267.
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John Dattilo, Gus Estrella, Laura J. Estrella, Janice Light, David McNaughton & Meagan Seabury. (2008) “I have chosen to live life abundantly”: Perceptions of leisure by adults who use Augmentative and Alternative Communication. Augmentative and Alternative Communication 24:1, pages 16-28.
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Sarah W. Blackstone, Michael B. Williams & David P. Wilkins. (2007) Key principles underlying research and practice in AAC. Augmentative and Alternative Communication 23:3, pages 191-203.
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David R. Beukelman, Susan Fager, Laura Ball & Aimee Dietz. (2007) AAC for adults with acquired neurological conditions: A review. Augmentative and Alternative Communication 23:3, pages 230-242.
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Frank Deruyter, David McNaughton, Kevin Caves, Diane Nelson Bryen & Michael B. Williams. (2007) Enhancing AAC connections with the world. Augmentative and Alternative Communication 23:3, pages 258-270.
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John McCarthy, John McCarthy, Janice Light & David McNaughton. (2007) The effects of internet-based instruction on the social problem solving of young adults who use augmentative and alternative communication. Augmentative and Alternative Communication 23:2, pages 100-112.
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Shelley K. Lund & Janice Light. (2007) Long-term outcomes for individuals who use augmentative and alternative communication: Part III – contributing factors. Augmentative and Alternative Communication 23:4, pages 323-335.
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Melanie Fried-Oken, Lynn Fox, Marie T. Rau, Jill Tullman, Glory Baker, Mary Hindal, Nancy Wile & Jau-Shin Lou. (2006) Purposes of AAC device use for persons with ALS as reported by caregivers. Augmentative and Alternative Communication 22:3, pages 209-221.
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Bruce Hamm & Pat Mirenda. (2006) Post-school quality of life for individuals with developmental disabilities who use AAC. Augmentative and Alternative Communication 22:2, pages 134-147.
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Tracy Rackensperger, Carole Krezman, David Mcnaughton, Michael B. Williams & Karen D'Silva. (2005) “When I First Got It, I Wanted to Throw It Off a Cliff”: The Challenges and Benefits of Learning AAC Technologies as Described by Adults who use AAC. Augmentative and Alternative Communication 21:3, pages 165-186.
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John McCarthy & Janice Light. (2005) Attitudes toward Individuals Who Use Augmentative and Alternative Communication: Research Review. Augmentative and Alternative Communication 21:1, pages 41-55.
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David McNaughton, Janice Light & Stephanie Gulla. (2003) Opening Up a ‘Whole New World’: Employer and Co-Worker Perspectives on Working with Individuals who use Augmentative and Alternative Communication. Augmentative and Alternative Communication 19:4, pages 235-253.
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David McNaughton & Diane Nelson Bryen. (2002) Enhancing Participation in Employment Through AAC Technologies. Assistive Technology 14:1, pages 58-70.
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Articles from other publishers (1)

Katharina Linse, Elisa Aust, Markus Joos & Andreas Hermann. (2018) Communication Matters—Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis. Frontiers in Neurology 9.
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