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Progress in Palliative Care
Science and the Art of Caring
Volume 23, 2015 - Issue 6
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Article

The palliative care needs of people severely affected by neurodegenerative disorders: A qualitative study

S. VeroneseFondazione Assistenza e Ricerca in Oncologia (FARO) onlus, Turin, ItalyCorrespondence[email protected]
,
G. GalloFondazione Assistenza e Ricerca in Oncologia (FARO) onlus, Turin, Italy
,
A. ValleFondazione Assistenza e Ricerca in Oncologia (FARO) onlus, Turin, Italy
,
C. CugnoFondazione Assistenza e Ricerca in Oncologia (FARO) onlus, Turin, Italy
,
A. ChiòALS Centre, Department of Neuroscience, University of Turin, Turin, Italy
,
A. CalvoALS Centre, Department of Neuroscience, University of Turin, Turin, Italy
,
C. RivoiroIstituto di Ricerche Economico Sociali del Piemonte Ires Piemonte, Turin, Italy
&
D. J. OliverCentre for Professional Practice, University of Kent, Chatham, UK
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Pages 331-342 | Published online: 06 Jun 2015

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David J. Oliver & Simone Veronese. (2017) Symptomatic management of neurodegenerative disease in the elderly. Progress in Palliative Care 25:1, pages 11-16.
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Articles from other publishers (15)

Noreen O’Shea, Shane Lyons, Stephen Higgins & Sean O’Dowd. (2023) Neurological update: the palliative care landscape for atypical parkinsonian syndromes. Journal of Neurology 270:4, pages 2333-2341.
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Barbara Clyne, Sinead M O’Neill, Daniel Nuzum, Michelle O'Neill, James Larkin, Máirín Ryan & Susan M Smith. (2022) Patients' spirituality perspectives at the end of life: a qualitative evidence synthesis. BMJ Supportive & Palliative Care 12:e4, pages e550-e561.
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Alba Aza, María Gómez-Vela, Marta Badia, M. Begoña Orgaz, Eva González-Ortega, Isabel Vicario-Molina & Estrella Montes-López. (2022) Listening to families with a person with neurodegenerative disease talk about their quality of life: integrating quantitative and qualitative approaches. Health and Quality of Life Outcomes 20:1.
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Toby B. Steinberg & Rachel A. Hadler. 2022. Perioperative Medicine. Perioperative Medicine 628 636 .
Pankaj Kumar, Farah Yasmin, Muhammad Shahzeb Khan, Izza Shahid, Mufaddal Najmuddin Diwan, Richard E Leiter & Haider J Warraich. (2021) Place of death in Parkinson’s disease: trends in the USA. BMJ Supportive & Palliative Care, pages bmjspcare-2021-003016.
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Blanca Goni-Fuste, Iris Crespo, Cristina Monforte-Royo, Josep Porta-Sales, Albert Balaguer & Denise Pergolizzi. (2021) What defines the comprehensive assessment of needs in palliative care? An integrative systematic review. Palliative Medicine 35:4, pages 651-669.
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Michael Toze, Mo Ray, Thomas George, Kelly Sisson & David Nelson. (2020) End of life care for long-term neurological conditions: A meta-ethnographic review of the experiences of informal carers. Palliative Medicine 35:2, pages 335-354.
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Simone Veronese & Andrea Calvo. 2021. Public Policy in ALS/MND Care. Public Policy in ALS/MND Care 163 175 .
D. Nimmons, L. Hatter, N. Davies, EL Sampson, K. Walters & A. Schrag. (2020) Experiences of advance care planning in Parkinson's disease and atypical parkinsonian disorders: a mixed methods systematic review. European Journal of Neurology 27:10, pages 1971-1987.
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Lauanda Barbosa dos Santos, Cláudia Tiemi Mituuti & Karen Fontes Luchesi. (2020) Atendimento fonoaudiológico para pacientes em cuidados paliativos com disfagia orofaríngea. Audiology - Communication Research 25.
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Clare Mc Veigh, Colette Donaghy, Briege Mc Laughlin, Alison Dick, Kiran Kaur, John Mc Conville & Max Watson. (2019) Palliative care for patients with motor neurone disease and their bereaved carers: a qualitative study. BMC Palliative Care 18:1.
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Radka Bužgová, Radka Kozáková & Lubica Juríčková. (2018) The Unmet Needs of Patients With Progressive Neurological Diseases in the Czech Republic: A Qualitative Study. Journal of Palliative Care 34:1, pages 38-46.
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Katharina Maria Lex, Philip Larkin, Jürgen Osterbrink & Stefan Lorenzl. (2018) A Pilgrim's Journey—When Parkinson's Disease Comes to an End in Nursing Homes. Frontiers in Neurology 9.
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Juyeon Oh & Jung A Kim. (2017) Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. Journal of Clinical Nursing 26:23-24, pages 4129-4152.
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Louise Wiblin, Rory Durcan, Mark Lee & Katie Brittain. (2017) The Importance of Connection to Others in QoL in MSA and PSP. Parkinson's Disease 2017, pages 1-9.
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