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Research Articles

Development and psychometric characteristics of the SCI-QOL Bladder Management Difficulties and Bowel Management Difficulties item banks and short forms and the SCI-QOL Bladder Complications scale

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Read on this site (10)

Gabrielle K. King, Louise M. Goodes, Carly Hartshorn, Jeffery Thavaseelan, Sheryl Jonescu, Anne Watts, Matthew Rawlins, Peter Woodland, Emma-Leigh Synnott, Trent Barrett, Dickon Hayne, Peter Boan & Sarah A. Dunlop. (2023) Intravesical hyaluronic acid with chondroitin sulphate to prevent urinary tract infection after spinal cord injury. The Journal of Spinal Cord Medicine 46:5, pages 830-836.
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Denise G. Tate, Edward J. Rohn, Martin Forchheimer, Suzanne Walsh, Lisa DiPonio, Gianna M. Rodriguez & Anne P. Cameron. (2023) Factors influencing decisions about neurogenic bladder and bowel surgeries among veterans and civilians with spinal cord injury. The Journal of Spinal Cord Medicine 46:2, pages 215-230.
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Jessica Pruente, Allen W. Heinemann, Kathy Zebracki, Shubra Mukherjee & Deborah Gaebler-Spira. (2023) Adult outcomes for children who sustained firearm-related spinal cord injuries. The Journal of Spinal Cord Medicine 46:1, pages 68-74.
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Mehmet Akif Guler, Deniz Doğan & Ebru Yilmaz Yalcinkaya. (2022) Validity and reliability of the Turkish version of the neurogenic bladder symptom score. Disability and Rehabilitation 44:12, pages 2889-2895.
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Jeffery Johns, Klaus Krogh, Gianna M. Rodriguez, Janice Eng, Emily Haller, Malorie Heinen, Rafferty Laredo, Walter Longo, Wilda Montero-Colon, Catherine S. Wilson & Mark Korsten. (2021) Management of Neurogenic Bowel Dysfunction in Adults after Spinal Cord Injury. The Journal of Spinal Cord Medicine 44:3, pages 442-510.
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Denise G. Tate, Tracey Wheeler, Giulia I. Lane, Martin Forchheimer, Kim D. Anderson, Fin Biering-Sorensen, Anne P. Cameron, Bruno Gallo Santacruz, Lyn B. Jakeman, Michael J. Kennelly, Steve Kirshblum, Andrei Krassioukov, Klaus Krogh, M. J. Mulcahey, Vanessa K. Noonan, Gianna M. Rodriguez, Ann M. Spungen, David Tulsky & Marcel W. Post. (2020) Recommendations for evaluation of neurogenic bladder and bowel dysfunction after spinal cord injury and/or disease. The Journal of Spinal Cord Medicine 43:2, pages 141-164.
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Matthew L. Cohen, Pamela A. Kisala, Trevor A. Dyson-Hudson & David S. Tulsky. (2018) Measuring pain phenomena after spinal cord injury: Development and psychometric properties of the SCI-QOL Pain Interference and Pain Behavior assessment tools. The Journal of Spinal Cord Medicine 41:3, pages 267-280.
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Krista L. Best, Karen Ethans, B. Catharine Craven, Luc Noreau & Sander L. Hitzig. (2017) Identifying and classifying quality of life tools for neurogenic bladder function after spinal cord injury: A systematic review. The Journal of Spinal Cord Medicine 40:5, pages 505-529.
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David S. Tulsky & Pamela A. Kisala. (2015) The Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system: Development, psychometrics, and item bank calibration. The Journal of Spinal Cord Medicine 38:3, pages 251-256.
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David S. Tulsky, Pamela A. Kisala, David Victorson, Denise G. Tate, Allen W. Heinemann, Susan Charlifue, Steve C. Kirshblum, Denise Fyffe, Richard Gershon, Ann M. Spungen, Charles H. Bombardier, Trevor A. Dyson-Hudson, Dagmar Amtmann, Claire Z. Kalpakjian, Seung W. Choi, Alan M. Jette, Martin Forchheimer & David Cella. (2015) Overview of the Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system. The Journal of Spinal Cord Medicine 38:3, pages 257-269.
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Aidin Abedi, Priya Kohli, Stefania Montero, Luis Morales, Nhi Ha, Armita Abedi, Anibal La Riva, David Ginsberg & Evgeniy Kreydin. (2023) Content, face, and construct validity of the Irritable Bowel Syndrome Quality of Life (IBS‐QOL) as a measure of bowel‐related quality of life in spinal cord injury. Neurourology and Urodynamics 42:6, pages 1362-1373.
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Meike den Brave, Charlotte Beaudart, Benoit Maertens de Noordhout, Vincent Gillot & Jean-Francois Kaux. (2023) Effect of robot-assisted gait training on quality of life and depression in neurological impairment: A systematic review and meta-analysis. Clinical Rehabilitation 37:7, pages 876-890.
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Rochelle E. Tractenberg, Suzanne L. Groah, Jamie K. Frost, Futoshi Yumoto, Amanda K. Rounds & Inger H. Ljungberg. (2023) Urinary Symptoms Among People With Neurogenic Lower Urinary Tract Dysfunction (NLUTD) Vary by Bladder Management. Topics in Spinal Cord Injury Rehabilitation 29:3, pages 31-43.
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Susan Dunreath Newman, Sherwood Toatley, Marka Danielle Rodgers, Suparna Qanungo, Martina Mueller, Brian Denny & Angela Rodriguez. (2023) Feasibility of a Community-Based, Online, Peer-Supported Spinal Cord Injury Self-management Intervention: Protocol for a Pilot Wait-Listed Randomized Trial. JMIR Research Protocols 12, pages e42688.
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Gianna Rodriguez, Anne P. Cameron & Michael Bush-Arnold. 2023. Handbook of Neurourology. Handbook of Neurourology 621 631 .
Louise C. Kelly, Joanne V. Glinsky, Lianne M. Nier, Gillian Garrett & Lisa A. Harvey. (2022) Are micro enemas administered with a squeeze tube and a 5 cm-long nozzle as good or better than micro enemas administered with a 10 cm-long catheter attached to a syringe in people with a recent spinal cord injury? A non-inferiority, crossover randomised controlled trial. Spinal Cord 60:12, pages 1136-1143.
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Chor Yin Lam, Paul Aarne Koljonen, Christopher Chun Hei Yip, Ivan Yuen Wang Su, Yong Hu, Yat Wa Wong & Kenneth Man Chee Cheung. (2022) Functional recovery priorities and community rehabilitation service preferences of spinal cord injury individuals and caregivers of Chinese ethnicity and cultural background. Frontiers in Neurology 13.
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Gianna M. Rodriguez & David R. Gater. (2022) Neurogenic Bowel and Management after Spinal Cord Injury: A Narrative Review. Journal of Personalized Medicine 12:7, pages 1141.
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E. M. J. R. Brouwers, C. B. Terwee, L. D. Roorda, A. F. Hosman, H. van de Meent & R. H. M. A. Bartels. (2022) Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms. European Spine Journal 31:6, pages 1349-1357.
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Mauricio Garnier-Villarreal, Daniel Pinto, Chaithanya K. Mummidisetty, Arun Jayaraman, Candy Tefertiller, Susan Charlifue, Heather B. Taylor, Shuo-Hsiu Chang, Nicholas McCombs, Catherine L. Furbish, Edelle C. Field-Fote & Allen W. Heinemann. (2022) Predicting Duration of Outpatient Physical Therapy Episodes for Individuals with Spinal Cord Injury Based on Locomotor Training Strategy. Archives of Physical Medicine and Rehabilitation 103:4, pages 665-675.
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Eren O. Kuris, Daniel Alsoof, Camilo Osorio & Alan H. Daniels. (2022) Bowel and Bladder Care in Patients With Spinal Cord Injury. Journal of the American Academy of Orthopaedic Surgeons 30:6, pages 263-272.
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David S. Tulsky & Pamela A. Kisala. (2022) Overview of the Spinal Cord Injury-Functional Index (SCI-FI): Structure and Recent Advances. Archives of Physical Medicine and Rehabilitation 103:2, pages 185-190.
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Gianna Rodriguez, Anne P. Cameron & Michael Bush-Arnold. 2022. Handbook of Neurourology. Handbook of Neurourology 1 19 .
Odinachi Moghalu, John T. Stoffel, Sean Elliott, Blayne Welk, Sara Lenherr, Jennifer Herrick, Angela Presson & Jeremy Myers. (2021) Psychosocial aspects of health-related quality of life and the association with patient-reported bladder symptoms and satisfaction after spinal cord injury. Spinal Cord 59:9, pages 987-996.
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De Gong, Yingmin Wang, Lirong Zhong, Mengmeng Jia, Ting Liu & Kun Li. (2021) Excretory dysfunction and quality of life after a spinal cord injury: A cross‐sectional study. Journal of Clinical Nursing 30:9-10, pages 1394-1402.
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Peter H. Gorman, Gail F. Forrest, Pierre K. Asselin, William Scott, Stephen Kornfeld, Eunkyoung Hong & Ann M. Spungen. (2021) The Effect of Exoskeletal-Assisted Walking on Spinal Cord Injury Bowel Function: Results from a Randomized Trial and Comparison to Other Physical Interventions. Journal of Clinical Medicine 10:5, pages 964.
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Jeffery Johns, Klaus Krogh, Gianna M. Rodriguez, Janice Eng, Emily Haller, Malorie Heinen, Rafferty Laredo, Walter Longo, Wilda Montero-Colon, Catherine Wilson & Mark Korsten. (2021) Management of Neurogenic Bowel Dysfunction in Adults after Spinal Cord Injury. Topics in Spinal Cord Injury Rehabilitation 27:2, pages 75-151.
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Eduardo Cortes & Linda Cardozo. 2021. Pelvic Floor Disorders. Pelvic Floor Disorders 249 262 .
Katherine M. Theisen, Rachel Mann, Joshua D. Roth, Joseph J. Pariser, John T. Stoffel, Sara M. Lenherr, Jeremy B. Myers, Blayne Welk & Sean P. Elliott. (2020) Frequency of patient-reported UTIs is associated with poor quality of life after spinal cord injury: a prospective observational study. Spinal Cord 58:12, pages 1274-1281.
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Anthony S. Burns, Jude J. Delparte, Sander L. Hitzig, John Shephard & B. Catharine Craven. (2020) Development of a novel neurogenic bowel patient reported outcome measure: the Spinal Cord Injury Patient Reported Outcome Measure of Bowel Function & Evacuation (SCI-PROBE). Spinal Cord 58:10, pages 1060-1068.
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Ann M. Spungen, William A. Bauman, Kousick Biswas, Karen M. Jones, Amanda J. Snodgrass, Lance L. Goetz, Peter H. Gorman, Steven Kirshblum, Sunil Sabharwal, Kevin T. White, Pierre K. Asselin, Kel G. Morin, Christopher M. Cirnigliaro & Grant D. Huang. (2020) The design of a randomized control trial of exoskeletal-assisted walking in the home and community on quality of life in persons with chronic spinal cord injury. Contemporary Clinical Trials 96, pages 106102.
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Audrey Chun, Pierre K. Asselin, Steven Knezevic, Stephen Kornfeld, William A. Bauman, Mark A. Korsten, Noam Y. Harel, Vincent Huang & Ann M. Spungen. (2019) Changes in bowel function following exoskeletal-assisted walking in persons with spinal cord injury: an observational pilot study. Spinal Cord 58:4, pages 459-466.
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Blayne Welk, Sara Lenherr, Sean Elliott, John Stoffel, Cristiano M. Gomes, Jose de Bessa, Lisley K. L. Cintra & Jeremy B. Myers. (2020) The creation and validation of a short form of the Neurogenic Bladder Symptom Score. Neurourology and Urodynamics 39:4, pages 1162-1169.
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Samsuk Kim, Daniel Whibley, David A. Williams & Anna L. Kratz. (2020) Pain Acceptance in People With Chronic Pain and Spinal Cord Injury: Daily Fluctuation and Impacts on Physical and Psychosocial Functioning. The Journal of Pain 21:3-4, pages 455-466.
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Darshan P. Patel, Jennifer S. Herrick, John T. Stoffel, Sean P. Elliott, Sara M. Lenherr, Angela P. Presson, Blayne Welk, Amitabh Jha & Jeremy B. Myers. (2019) Reasons for cessation of clean intermittent catheterization after spinal cord injury: Results from the Neurogenic Bladder Research Group spinal cord injury registry. Neurourology and Urodynamics 39:1, pages 211-219.
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Felicia Skelton, Lindsey Ann Martin, Charlesnika T Evans, Jennifer Kramer, Larissa Grigoryan, Peter Richardson, Mark E Kunik, Ivy Oiyee Poon, S Ann Holmes & Barbara W Trautner. (2019) Determining Best Practices for Management of Bacteriuria in Spinal Cord Injury: Protocol for a Mixed-Methods Study. JMIR Research Protocols 8:2, pages e12272.
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Mohamed-Amine Choukou, Krista L. Best, B. Catharine Craven & Sander L. Hitzig. (2019) Identifying and Classifying Quality of Life Tools for Assessing Neurogenic Bowel Dysfunction After Spinal Cord Injury. Topics in Spinal Cord Injury Rehabilitation 25:1, pages 1-22.
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Gianna Rodriguez & Anne P. Cameron. 2019. Neurourology. Neurourology 447 455 .
Jeremy B. Myers, Sara M. Lenherr, John T. Stoffel, Sean P. Elliott, Angela P. Presson, Chong Zhang, Jeffery Rosenbluth, Amitabh Jha, DarshanP Patel & Blayne Welk. (2018) The effects of augmentation cystoplasty and botulinum toxin injection on patient‐reported bladder function and quality of life among individuals with spinal cord injury performing clean intermittent catheterization. Neurourology and Urodynamics 38:1, pages 285-294.
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Alina Ionela Palimaru, William E. Cunningham, Marcus Dillistone, Arturo Vargas-Bustamante, Honghu Liu & Ron D. Hays. (2018) Development and Psychometric Evaluation of a Fatigability Index for Full-Time Wheelchair Users With Spinal Cord Injury. Archives of Physical Medicine and Rehabilitation 99:9, pages 1827-1839.e6.
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Blayne Welk, Sara Lenherr, Sean Elliott, John Stoffel, Angela P. Presson, Chong Zhang & Jeremy B. Myers. (2017) The Neurogenic Bladder Symptom Score (NBSS): a secondary assessment of its validity, reliability among people with a spinal cord injury. Spinal Cord 56:3, pages 259-264.
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Darshan P. Patel, Sara M. Lenherr, John T. Stoffel, Sean P. Elliott, Blayne Welk, Angela P. Presson, Amitabh Jha, Jeffrey Rosenbluth & Jeremy B. Myers. (2017) Study protocol: patient reported outcomes for bladder management strategies in spinal cord injury. BMC Urology 17:1.
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Blayne Welk. (2017) Quality of Life and the Neurogenic Bladder: Does Bladder Management Technique Matter?. Current Bladder Dysfunction Reports 12:4, pages 305-310.
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Darshan P. Patel, Jeremy B. Myers & Sara M. Lenherr. (2017) How to Measure Quality-of-Life Concerns in Patients with Neurogenic Lower Urinary Tract Dysfunction. Urologic Clinics of North America 44:3, pages 345-353.
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