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Introduction

The Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system: Development, psychometrics, and item bank calibration

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Read on this site (8)

Jessica Pruente, Allen W. Heinemann, Kathy Zebracki, Shubra Mukherjee & Deborah Gaebler-Spira. (2023) Adult outcomes for children who sustained firearm-related spinal cord injuries. The Journal of Spinal Cord Medicine 46:1, pages 68-74.
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Jeanne M. Zanca, Christine Gilchrist, Caroline E. Ortiz & Trevor A. Dyson-Hudson. (2022) Pilot clinical trial of a clinical meditation and imagery intervention for chronic pain after spinal cord injury. The Journal of Spinal Cord Medicine 45:3, pages 339-353.
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Kristian P. Nitsch, Kelsey Stipp, Kristen Gracz, Linda Ehrlich-Jones, Ian D. Graham & Allen W. Heinemann. (2021) Integrating Spinal Cord Injury – Quality of Life instruments into rehabilitation: Implementation science to guide adoption of patient-reported outcome measures. The Journal of Spinal Cord Medicine 44:6, pages 940-948.
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Andréane Richard-Denis, Delphine Benazet, Cynthia Thompson & Jean-Marc Mac-Thiong. (2020) Determining priorities in functional rehabilitation related to quality of life one-year following a traumatic spinal cord injury. The Journal of Spinal Cord Medicine 43:2, pages 241-246.
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Matthew L. Cohen, Pamela A. Kisala, Trevor A. Dyson-Hudson & David S. Tulsky. (2018) Measuring pain phenomena after spinal cord injury: Development and psychometric properties of the SCI-QOL Pain Interference and Pain Behavior assessment tools. The Journal of Spinal Cord Medicine 41:3, pages 267-280.
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John P. Handrakis, Dwindally Rosado-Rivera, Kamaldeep Singh, Kirsten Swonger, Frank Azarelo, Alex T. Lombard, Ann M. Spungen, Steven C. Kirshblum & William A. Bauman. (2017) Self-reported effects of cold temperature exposure in persons with tetraplegia. The Journal of Spinal Cord Medicine 40:4, pages 389-395.
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Timothy R. Elliott. (2015) Studying depression following spinal cord injury: Evidence, policy and practice. The Journal of Spinal Cord Medicine 38:5, pages 584-586.
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Laura A. Baehr, Michael BruneauJr.Jr. & Margaret Finley. (2023) Baseline Comparison of Exercisers and Nonexercisers With Spinal Cord Injury Enrolled in a Group Tele-Exercise Program. Topics in Spinal Cord Injury Rehabilitation 29:4, pages 27-36.
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David S. Tulsky, Pamela A. Kisala, Callie E. Tyner, Jerry Slotkin, Christina Kaufman, Christopher L. Dearth, Annamarie D. Horan, Simon G. Talbot, Jaimie T. Shores, Kodi Azari, Curtis CetruloJr,Jr,, Gerald Brandacher, Carisa M. Cooney, David Victorson, Mary Dooley, L. Scott Levin & CDR Scott M. Tintle. (2023) Identifying Health-Related Quality of Life Domains After Upper Extremity Transplantation. Archives of Physical Medicine and Rehabilitation 104:6, pages 878-891.
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Benjamin Ziegeler, Wendyl D’ Souza, Anita Vinton, Sarah Mulukutla, Cameron Shaw & Ross Carne. (2022) Neurological Health: Not Merely the Absence of Disease: Current Wellbeing Instruments Across the Spectrum of Neurology. American Journal of Lifestyle Medicine 17:2, pages 299-316.
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Stefan Schneider, Doerte U. Junghaenel, Joshua M. Smyth, Cheng K Fred Wen & Arthur A. Stone. (2023) Just-in-time adaptive ecological momentary assessment (JITA-EMA). Behavior Research Methods.
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Callie E. Tyner, Jerry Slotkin, Pamela A. Kisala, L. Scott Levin, Scott M. Tintle & David S. Tulsky. (2023) Assessment of quality of life after upper extremity transplantation: Framework for patient-reported outcome scale domains. Frontiers in Psychology 13.
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Eva Wallace, Bente Thoft Jensen, Caroline Ahern & Susanne Ammitzbøll Rasmussen. 2023. Handbook of Neurourology. Handbook of Neurourology 325 341 .
David S. Tulsky & Pamela A. Kisala. (2022) Overview of the Spinal Cord Injury-Functional Index (SCI-FI): Structure and Recent Advances. Archives of Physical Medicine and Rehabilitation 103:2, pages 185-190.
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Callie E. Tyner, Pamela A. Kisala, Allen W. Heinemann, Denise Fyffe, Denise G. Tate, Mary D. Slavin, Alan M. Jette & David S. Tulsky. (2022) Validation of the Spinal Cord Injury–Functional Index for Use in Community-Dwelling Individuals With SCI. Archives of Physical Medicine and Rehabilitation 103:2, pages 191-198.
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Eva Wallace, Bente Thoft Jensen, Caroline Ahern & Susanne Ammitzbøll Rasmussen. 2022. Handbook of Neurourology. Handbook of Neurourology 1 17 .
De Gong, Yingmin Wang, Lirong Zhong, Mengmeng Jia, Ting Liu & Kun Li. (2021) Excretory dysfunction and quality of life after a spinal cord injury: A cross‐sectional study. Journal of Clinical Nursing 30:9-10, pages 1394-1402.
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Peter H. Gorman, Gail F. Forrest, Pierre K. Asselin, William Scott, Stephen Kornfeld, Eunkyoung Hong & Ann M. Spungen. (2021) The Effect of Exoskeletal-Assisted Walking on Spinal Cord Injury Bowel Function: Results from a Randomized Trial and Comparison to Other Physical Interventions. Journal of Clinical Medicine 10:5, pages 964.
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Allen W. Heinemann, Pamela A. Kisala, Aaron J. Boulton, Mark Sherer, Angelle M. Sander, Nancy Chiaravalloti, Tamara Bushnik, Robin Hanks, Elliot Roth & David S. Tulsky. (2020) Development and Calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction With Social Roles and Activities Item Banks and Short Forms. Archives of Physical Medicine and Rehabilitation 101:1, pages 20-32.
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Ceren Yarar-Fisher, Jia Li, Amie McLain, Barbara Gower, Robert Oster & Casey Morrow. (2019) Utilizing a low-carbohydrate/high-protein diet to improve metabolic health in individuals with spinal cord injury (DISH): study protocol for a randomized controlled trial. Trials 20:1.
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Noelle E. Carlozzi, Stephen Schilling, Jenna Freedman, Claire Z. Kalpakjian & Anna L. Kratz. (2018) The reliability of end of day and ecological momentary assessments of pain and pain interference in individuals with spinal cord injury. Quality of Life Research 27:11, pages 3003-3012.
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John T. Stoffel, F. Van der Aa, D. Wittmann, S. Yande & S. Elliott. (2018) Neurogenic bowel management for the adult spinal cord injury patient. World Journal of Urology 36:10, pages 1587-1592.
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Tracey L. Wheeler, William de Groat, Kymberly Eisner, Anton Emmanuel, Jennifer French, Warren Grill, Michael J. Kennelly, Andrei Krassioukov, Bruno Gallo Santacruz, Fin Biering-Sørensen & Naomi Kleitman. (2018) Translating promising strategies for bowel and bladder management in spinal cord injury. Experimental Neurology 306, pages 169-176.
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Sarah A. Morrison, Douglas Lorenz, Carol P. Eskay, Gail F. Forrest & D. Michele Basso. (2018) Longitudinal Recovery and Reduced Costs After 120 Sessions of Locomotor Training for Motor Incomplete Spinal Cord Injury. Archives of Physical Medicine and Rehabilitation 99:3, pages 555-562.
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A. L. Kratz, C. Z. Kalpakjian & R. A. Hanks. (2017) Are intensive data collection methods in pain research feasible in those with physical disability? A study in persons with chronic pain and spinal cord injury. Quality of Life Research 26:3, pages 587-600.
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