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Original Articles

Assessing and Enhancing the Research Consent Capacity of Children and Youth

Pages 13-26 | Published online: 04 Jun 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (11)

Saima Husain, Mike Molesworth & Georgiana Grigore. (2023) Expanding knowledge of institutional complexity through the hyphen-spaces opened up by participant videography. Journal of Marketing Management 0:0, pages 1-22.
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Jhalok Ronjan Talukdar, Tajudeen Oyewale, Enam Hasib, Nadia Ishrat Alamgir, M. Ziya Uddin & Ilias Mahmud. (2021) Well-being of children affected by HIV/AIDS in Bangladesh: a cross-sectional study. Vulnerable Children and Youth Studies 16:4, pages 369-379.
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Amy E. Caruso Brown. (2020) Constrained Adolescent Autonomy for Healthcare Should Include Participation in Survey Research. The American Journal of Bioethics 20:10, pages 85-87.
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Sara Jahnke & Agustín Malón. (2019) How pedophilic men think about adult-child sex: effects of child gender and physical maturity. Psychology, Crime & Law 25:1, pages 90-107.
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Sumit Kane, Esther Miedema, Marjolein Dieleman & Jacqueline Broerse. (2019) ‘You have a child who will call you “mama” ’: understanding adolescent pregnancy in South Sudan. Global Health Action 12:1.
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Emily F. Rothman, Amy Farrell, Katherine Bright & Jennifer Paruk. (2018) Ethical and Practical Considerations for Collecting Research-Related Data from Commercially Sexually Exploited Children. Behavioral Medicine 44:3, pages 250-258.
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Sue Dockett, Bob Perry & Emma Kearney. (2013) Promoting children’s informed assent in research participation. International Journal of Qualitative Studies in Education 26:7, pages 802-828.
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Sue Dockett, Johanna Einarsdóttir & Bob Perry. (2012) Young children's decisions about research participation: opting out. International Journal of Early Years Education 20:3, pages 244-256.
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Eric R. Pedersen, Clayton Neighbors, Judy Tidwell & Ty W. Lostutter. (2011) Do Undergraduate Student Research Participants Read Psychological Research Consent Forms? Examining Memory Effects, Condition Effects, and Individual Differences. Ethics & Behavior 21:4, pages 332-350.
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Jessica Masty & Celia Fisher. (2008) A Goodness-of-Fit Approach to Informed Consent for Pediatric Intervention Research. Ethics & Behavior 18:2-3, pages 139-160.
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Richard M. Lerner, Celia B. Fisher & Lawrence Gianinno. (2006) Editorial: Constancy and Change in the Development of Applied Developmental Science. Applied Developmental Science 10:4, pages 172-173.
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Articles from other publishers (38)

Heather A. Turner. 2022. Handbook of Interpersonal Violence and Abuse Across the Lifespan. Handbook of Interpersonal Violence and Abuse Across the Lifespan 1851 1879 .
Anna Dion, Aime Klevor, Amy Nakajima & Neil Andersson. (2021) Evidence‐based priorities of under‐served pregnant and parenting adolescents: addressing inequities through a participatory approach to contextualizing evidence syntheses. International Journal for Equity in Health 20:1.
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Steven Roche, Catherine Flynn & Philip Mendes. (2021) ‘They became my second family’: Children's relational lives and relationship‐based practice in residential care in the Philippines. Child & Family Social Work 26:4, pages 652-663.
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Nakia K. Lee-Foon, Carmen H. Logie, Arjumand Siddiqi & Daniel Grace. (2020) “I just trust what Google says, it’s the Bible”: Exploring young, Black gay and other men who have sex with men’s evaluation of sexual health information sources in Toronto, Canada. The Canadian Journal of Human Sexuality 29:3, pages 275-288.
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Heather A. Turner. 2020. Handbook of Interpersonal Violence and Abuse Across the Lifespan. Handbook of Interpersonal Violence and Abuse Across the Lifespan 1 29 .
Quianta L. Moore. 2020. Sexually Transmitted Infections in Adolescence and Young Adulthood. Sexually Transmitted Infections in Adolescence and Young Adulthood 43 50 .
Diana J. Meter, Samuel E. Ehrenreich, Christopher Carker, Elinor Flynn & Marion K. Underwood. (2019) Older Adolescents’ Understanding of Participant Rights in the BlackBerry Project, a Longitudinal Ambulatory Assessment Study. Journal of Research on Adolescence 29:3, pages 662-674.
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Jason R. Silva, Beth Fera, Susruta Sudula, Deborah Koetzle & Craig Schwalbe. (2019) Cognitive Interviewing to Improve Questionnaires for Justice-Involved Youth. International Journal of Offender Therapy and Comparative Criminology 63:10, pages 1931-1951.
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Celia B. Fisher & Rimah Jaber. 2019. Prevention of Substance Use. Prevention of Substance Use 281 299 .
Paula Cristina Martins, Vitor Hugo Oliveira & Iva Tendais. (2018) Research with children and young people on sensitive topics – The case of poverty and delinquency. Childhood 25:4, pages 458-472.
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Rebecca Rogers & Meredith Labadie. (2016) Rereading assent in critical literacy research with young children. Journal of Early Childhood Literacy 18:3, pages 396-427.
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Emmanuel Mayeza. 2018. The Palgrave Handbook of Ethics in Critical Research. The Palgrave Handbook of Ethics in Critical Research 339 354 .
Jacqueline Marx & Catriona Ida Macleod. 2018. The Palgrave Handbook of Ethics in Critical Research. The Palgrave Handbook of Ethics in Critical Research 307 323 .
Kathryn Macapagal, Ryan Coventry, Miriam R. Arbeit, Celia B. Fisher & Brian Mustanski. (2016) “I Won’t Out Myself Just to Do a Survey”: Sexual and Gender Minority Adolescents’ Perspectives on the Risks and Benefits of Sex Research. Archives of Sexual Behavior 46:5, pages 1393-1409.
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Stacey Crane & Marion E. Broome. (2017) Understanding Ethical Issues of Research Participation From the Perspective of Participating Children and Adolescents: A Systematic Review. Worldviews on Evidence-Based Nursing 14:3, pages 200-209.
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Robert D. Rieske, Stephanie C. Babbitt, Joe H. Neal & Julie A. Spencer. 2017. Handbook of Treatments for Autism Spectrum Disorder. Handbook of Treatments for Autism Spectrum Disorder 67 84 .
Erica K. Salter. (2017) Conflating Capacity & Authority: Why We're Asking the Wrong Question in the Adolescent Decision‐Making Debate . Hastings Center Report 47:1, pages 32-41.
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Rebecca Rogers, Meredith Labadie & Kathryn Pole. (2016) Balancing voice and protection in literacy studies with young children. Journal of Early Childhood Literacy 16:1, pages 34-59.
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Quianta L. MooreMary E. PaulAmy L. McGuireMary A. Majumder. (2016) Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections. American Journal of Public Health 106:1, pages 40-44.
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Allyn Fives. 2016. Justice, Education and the Politics of Childhood. Justice, Education and the Politics of Childhood 35 47 .
Miguel Ruiz-Canela, Cristina Lopez-del Burgo, Silvia Carlos, Maria Calatrava, Carlos Beltramo, Alfonso Osorio & Jokin de Irala. (2013) Observational research with adolescents: a framework for the management of the parental permission. BMC Medical Ethics 14:1.
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A. S. Iltis. (2013) Parents, Adolescents, and Consent for Research Participation. Journal of Medicine and Philosophy 38:3, pages 332-346.
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Celia B. Fisher, Donald J. Brunnquell, Diane L. Hughes, Lynn S. Liben, Valerie Maholmes, Stuart Plattner, Stephen T. Russell & Elizabeth J. Susman. (2013) Preserving and Enhancing the Responsible Conduct of Research Involving Children and Youth: A Response to Proposed Changes in Federal Regulations and commentaries. Social Policy Report 27:1, pages 1-23.
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Shanon K. Phelan & Elizabeth Anne Kinsella. (2012) Picture This . . . Safety, Dignity, and Voice—Ethical Research With Children. Qualitative Inquiry 19:2, pages 81-90.
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Melanie Zuch, Amanda J Mason-Jones, Catherine Mathews & Lesley Henley. (2012) Changes to the law on consent in South Africa: implications for school-based adolescent sexual and reproductive health research. BMC International Health and Human Rights 12:1.
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Thomas J. McMahon. 2012. Genetic Research on Addiction. Genetic Research on Addiction 61 83 .
Cathy Chabot, Jean A. Shoveller, Grace Spencer & Joy L. Johnson. (2012) Ethical and Epistemological Insights: A Case Study of Participatory Action Research with Young People. Journal of Empirical Research on Human Research Ethics 7:2, pages 20-33.
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Sandra B. McPherson. 2012. Handbook of Juvenile Forensic Psychology and Psychiatry. Handbook of Juvenile Forensic Psychology and Psychiatry 69 81 .
Sue Dockett & Bob Perry. (2010) Researching with Young Children: Seeking Assent. Child Indicators Research 4:2, pages 231-247.
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Heike Felzmann. (2009) Ethical Issues in School-Based Research. Research Ethics 5:3, pages 104-109.
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Sarah Flicker & Adrian Guta. (2008) Ethical Approaches to Adolescent Participation in Sexual Health Research. Journal of Adolescent Health 42:1, pages 3-10.
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Celia B. Fisher. (2006) Privacy and Ethics in Pediatric Environmental Health Research—Part I: Genetic and Prenatal Testing. Environmental Health Perspectives 114:10, pages 1617-1621.
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Jennifer Langhinrichsen-Rohling, Catalina Arata, Natalie O'Brien, David Bowers & Jeffrey Klibert. (2006) Sensitive Research With Adolescents: Just How Upsetting Are Self-Report Surveys Anyway?. Violence and Victims 21:4, pages 425-444.
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Luis H. Zayas, Leopoldo J. Cabassa & M. Carmela Perez. (2016) Capacity-to-Consent in Psychiatric Research: Development and Preliminary Testing of a Screening Tool. Research on Social Work Practice 15:6, pages 545-556.
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Ellen B. BogolubNigel Thomas. (2016) Parental Consent and the Ethics of Research with Foster Children. Qualitative Social Work 4:3, pages 271-292.
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Faye MishnaBeverley J. Antle & Cheryl Regehr. (2016) Tapping the Perspectives of Children. Qualitative Social Work 3:4, pages 449-468.
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Celia B. Fisher. (2003) Goodness‐of‐fit ethic for informed consent to research involving adults with mental retardation and developmental disabilities. Mental Retardation and Developmental Disabilities Research Reviews 9:1, pages 27-31.
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Celia B. Fisher, Kimberly Hoagwood, Cheryl Boyce, Troy Duster, Deborah A. Frank, Thomas Grisso, Robert J. Levine, Ruth Macklin, Margaret Beale Spencer, Ruby Takanishi, Joseph E. Trimble & Luis H. Zayas. (2002) Research ethics for mental health science involving ethnic minority children and youths.. American Psychologist 57:12, pages 1024-1040.
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