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Original Articles

Posttraumatic Stress and General Distress Among Parents of Children Surviving a Brain Tumor

Pages 169-182 | Published online: 07 Jun 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (8)

Meridith Burles, Jill M. G. Bally, Lorraine Holtslander, Marcelline Zimmer & Heather Hodgson-Viden. (2023) Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention. Children's Health Care 52:4, pages 430-448.
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Megan N. Perez, Christina M. Sharkey, Alayna P. Tackett, Alexandria M. Delozier, Dana M. Bakula, Kaitlyn L. Gamwell, Sunnye Mayes, Rene McNall, John M. Chaney, Ashley H. Clawson & Larry L. Mullins. (2018) Post traumatic stress symptoms in parents of children with cancer: A mediation model. Pediatric Hematology and Oncology 35:4, pages 231-244.
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Larry L. Mullins, Christopher C. Cushing, Kristina I. Suorsa, Alayna P. Tackett, Elizabeth S. Molzon, Sunnye Mayes, Rene McNall-Knapp, Alexandria J. Mullins, Kaitlyn L. Gamwell & John M. Chaney. (2016) Parent illness appraisals, parent adjustment, and parent-reported child quality of life in pediatric cancer. Pediatric Hematology and Oncology 33:5, pages 314-326.
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Michelle Goldwin, Sengyeon Lee, Khalid Afzal, Tina Drossos & Niranjan Karnik. (2014) The Relationship between Patient and Parent Posttraumatic Stress in Pediatric Oncology: A Theoretical Framework. Children's Health Care 43:1, pages 1-15.
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Martin Cernvall, Per Carlbring, Gustaf Ljungman & Louise von Essen. (2013) Guided Self-Help as Intervention for Traumatic Stress in Parents of Children with Cancer: Conceptualization, Intervention Strategies, and a Case Study. Journal of Psychosocial Oncology 31:1, pages 13-29.
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Cortney Wolfe-Christensen, LarryL. Mullins, DavidA. Fedele, PhilipL. Rambo, Angelica Eddington & MelissaY. Carpentier. (2010) The Relation of Caregiver Demand to Adjustment Outcomes in Children With Cancer: The Moderating Role of Parenting Stress. Children's Health Care 39:2, pages 108-124.
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Bernard F. Fuemmeler, Larry L. Mullins, Jill Van Pelt, Melissa Y. Carpentier & Joan Parkhurst. (2005) Posttraumatic Stress Symptoms and Distress Among Parents of Children With Cancer. Children's Health Care 34:4, pages 289-303.
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AlunC. Jackson, Menka Tsantefski, Helen Goodman, Belinda Johnson & Jeffery Rosenfeld. (2004) The Psychosocial Impacts on Families of Low-Incidence, Complex Conditions in Children. Social Work in Health Care 38:1, pages 81-107.
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Articles from other publishers (51)

Nele Loecher, Abbie Jordan, Sheri L. Spunt, Pamela Simon, Laura E. Simons, Gary Dahl, Kristin Kosyluk & Lauren C. Heathcote. (2023) “You don’t accept he’s completely ok”: a reflexive thematic analysis of parents’ roles in monitoring their child’s health and symptoms after finishing childhood cancer treatment. Journal of Cancer Survivorship.
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Kendall L. Umstead, Samuel Woolford, Ellen F. Macnamara, Tatiane Yanes, Kyle B. Brothers, Paul K. J. Han, Julie C. Sapp, Molly Crenshaw, Cristofer S. Price & Barbara B. Biesecker. (2023) Parental Uncertainty About a Child’s Health Scale (PUCHS): Development and Validation of a Novel Measure. Georgetown Medical Review 6:1.
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Hamidah Alias, Sasirekha Krisnan Morthy, Syed Zulkifli Syed Zakaria, Zulaiha Muda & Azmi Mohd Tamil. (2020) Behavioral outcome among survivors of childhood brain tumor: a case control study. BMC Pediatrics 20:1.
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Perri R. Tutelman, Christine T. Chambers, Robin Urquhart, Conrad V. Fernandez, Lauren C. Heathcote, Melanie Noel, Annette Flanders, Gregory M.T. Guilcher, Fiona Schulte, Jennifer N. Stinson, Julia MacLeod & Maya Stern. (2019) When “a headache is not just a headache”: A qualitative examination of parent and child experiences of pain after childhood cancer. Psycho-Oncology 28:9, pages 1901-1909.
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Alexandria M. Delozier, Kaitlyn L. Gamwell, Christina Sharkey, Dana M. Bakula, Megan N. Perez, Cortney Wolfe-Christensen, Paul Austin, Laurence Baskin, Kerlly J. Bernabé, Yee-Ming Chan, Earl Y. Cheng, David A. Diamond, Rebecca E. H. Ellens, Allyson Fried, Denise Galan, Saul Greenfield, Thomas Kolon, Bradley Kropp, Yegappan Lakshmanan, Sabrina Meyer, Theresa Meyer, Natalie J. Nokoff, Kristy J. Reyes, Blake Palmer, Dix P. Poppas, Alethea Paradis, Amy C. Tishelman, Elizabeth B. Yerkes, John M. Chaney, Amy B. Wisniewski & Larry L. Mullins. (2019) Uncertainty and Posttraumatic Stress: Differences Between Mothers and Fathers of Infants with Disorders of Sex Development. Archives of Sexual Behavior 48:5, pages 1617-1624.
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Man Cheung Chung & Edward R. Kaminski. (2018) Posttraumatic Stress Disorder and Chronic Idiopathic URTICARIA: the Role of Coping and Personality. Psychiatric Quarterly 90:1, pages 47-62.
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Marta Pérez-Campdepadrós, Carmina Castellano-Tejedor & Tomás Blasco. (2018) Aspectos psicosociales de la calidad de vida en supervivientes pediátricos de tumores en el sistema nervioso central. Psicooncología 15:2, pages 217-236.
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Mi Young Kim. (2017) Factors Influencing Posttraumatic Growth in Mothers of Children With Cancer. Journal of Pediatric Oncology Nursing 34:4, pages 250-260.
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Lauren Szulczewski, Larry L. Mullins, Sarah L. Bidwell, Angelica R. Eddington & Ahna L. H. Pai. (2017) Meta-Analysis: Caregiver and Youth Uncertainty in Pediatric Chronic Illness. Journal of Pediatric Psychology 42:4, pages 395-421.
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A.L. Holley, A.C. Wilson, M. Noel & T.M. Palermo. (2016) Post-traumatic stress symptoms in children and adolescents with chronic pain: A topical review of the literature and a proposed framework for future research. European Journal of Pain 20:9, pages 1371-1383.
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김민아, 김수현 & 이재희. (2016) Service Needs for Parenting a Child With Cancer: Perspectives of the Parents. Health and Social Welfare Review 36:2, pages 544-580.
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Alayna P. Tackett, Christopher C. Cushing, Kristina I. Suorsa, Alexandria J. Mullins, Kaitlyn L. Gamwell, Sunnye Mayes, Rene McNall-Knapp, John M. Chaney & Larry L. Mullins. (2016) Illness Uncertainty, Global Psychological Distress, and Posttraumatic Stress in Pediatric Cancer: A Preliminary Examination Using a Path Analysis Approach. Journal of Pediatric Psychology 41:3, pages 309-318.
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Andrea Turner-Sack, Rosanne Menna, Sarah Setchell, Cathy Maan & Danielle Cataudella. (2016) Psychological Functioning, Post-Traumatic Growth, and Coping in Parents and Siblings of Adolescent Cancer Survivors. Oncology Nursing Forum 43:1, pages 48-56.
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Lamia P. Barakat, Yimei Li, Wendy L. Hobbie, Sue K. Ogle, Thomas Hardie, Ellen M. Volpe, Margo M. Szabo, Maureen Reilly & Janet A. Deatrick. (2015) Health-related quality of life of adolescent and young adult survivors of childhood brain tumors. Psycho-Oncology 24:7, pages 804-811.
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Mohamed S Abdel-Baki, Emily Hanzlik & Mark W Kieran. (2015) Multidisciplinary pediatric brain tumor clinics: the key to successful treatment?. CNS Oncology 4:3, pages 147-155.
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Larry L. Mullins, Elizabeth S. Molzon, Kristina I. Suorsa, Alayna P. Tackett, Ahna L. H. Pai & John M. Chaney. (2015) Models of Resilience: Developing Psychosocial Interventions for Parents of Children with Chronic Health Conditions. Family Relations 64:1, pages 176-189.
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Linda S. Franck, Jo Wray, Caryl Gay, Annette K. Dearmun, Kirsty Lee & Bruce A. Cooper. (2015) Predictors of parent post-traumatic stress symptoms after child hospitalization on general pediatric wards: A prospective cohort study. International Journal of Nursing Studies 52:1, pages 10-21.
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Laura Beek, Renske Schappin, Rob Gooskens, Jaap Huisman & Marian Jongmans. (2015) Surviving a brain tumor in childhood: impact on family functioning in adolescence. Psycho-Oncology 24:1, pages 89-94.
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Maria Elvira De Caroli & Elisabetta Sagone. (2014) Stress and Support in Relation to Parental Self: A Comparison between Mothers of Children in Cancer Treatment and Mothers of Healthy Children. Procedia - Social and Behavioral Sciences 114, pages 211-215.
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Laura Stoppelbein, Leilani Greening & Hayley Wells. (2013) Parental coping and posttraumatic stress symptoms among pediatric cancer populations: tests of competing models. Psycho-Oncology 22:12, pages 2815-2822.
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Emily Bennett, Martin William English, Michael Rennoldson & Arleta Starza-Smith. (2013) Predicting parenting stress in caregivers of children with brain tumours. Psycho-Oncology 22:3, pages 629-636.
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Kyung Jin AnYoo Sook JoungKi Woong SungJi-Hae Kim. (2013) Health-Related Quality of Life and Cognitive Functioning at On- and Off-Treatment Periods in Children Aged between 6-13 Years Old with Brain Tumors: A Prospective Longitudinal Study. Yonsei Medical Journal 54:2, pages 306.
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Emma I. Hovén, Birgitta Lannering, Göran Gustafsson & Krister K. Boman. (2011) Persistent impact of illness on families of adult survivors of childhood central nervous system tumors: a population‐based cohort study. Psycho-Oncology 22:1, pages 160-167.
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Larry L. Mullins, David A. Fedele, Mark Chaffin, Stephanie E. Hullmann, Carol Kenner, Angelica R. Eddington, Sean Phipps & Rene Y. McNall-Knapp. (2012) A Clinic-Based Interdisciplinary Intervention for Mothers of Children Newly Diagnosed With Cancer: A Pilot Study. Journal of Pediatric Psychology 37:10, pages 1104-1115.
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Maria C. McCarthy, David M. Ashley, Katherine J. Lee & Vicki A. Anderson. (2012) Predictors of Acute and Posttraumatic Stress Symptoms in Parents Following Their Child's Cancer Diagnosis. Journal of Traumatic Stress 25:5, pages 558-566.
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Xiaojian Jiang & Guoping He. (2012) Effects of an uncertainty management intervention on uncertainty, anxiety, depression, and quality of life of chronic obstructive pulmonary disease outpatients. Research in Nursing & Health 35:4, pages 409-418.
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Amy J. Houtrow, Torunn I. Yock, Jennifer Delahaye & Karen Kuhlthau. (2012) The Family Impacts of Proton Radiation Therapy for Children With Brain Tumors. Journal of Pediatric Oncology Nursing 29:3, pages 171-179.
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David A. Fedele, Rachelle R. Ramsey, Jamie L. Ryan, Margaret S. Bonner, Larry L. Mullins, James N. Jarvis & John M. Chaney. (2011) The Association of Illness Uncertainty to Parent and Youth Adjustment in Juvenile Rheumatic Diseases: Effect of Youth Age. Journal of Developmental & Behavioral Pediatrics 32:5, pages 361-367.
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M. Bruce, D. Gumley, L. Isham, P. Fearon & K. Phipps. (2011) Post-traumatic stress symptoms in childhood brain tumour survivors and their parents. Child: Care, Health and Development 37:2, pages 244-251.
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Elena Camisasca. 2011. Post‐Traumatic Syndromes in Childhood and Adolescence. Post‐Traumatic Syndromes in Childhood and Adolescence 91 110 .
Kyung Jin AnMi Sun SongKi Woong SungYoo Sook Joung. (2011) Health-Related Quality of Life, Activities of Daily Living and Parenting Stress in Children with Brain Tumors. Psychiatry Investigation 8:3, pages 250.
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Lori A. LongDavid L. Wodrich, Roy Levy, Michael M. EtzlJrJr & Annie T. Gieseking. (2010) Students with brain tumors: their post-treatment perceptions of teachers, peers, and academics and retrospective views on school during treatment. Journal of Child Health Care 14:1, pages 111-125.
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Amélie Corbeil, Andréa Maria Laizner, Patricia Hunter & Nancy Hutchison. (2009) The Experience of Uncertainty in Young Adults With Cancer. Cancer Nursing 32:5, pages E17-E27.
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A. LINDAHL NORBERG & S. STENEBY. (2009) Experiences of parents of children surviving brain tumour: a happy ending and a rough beginning. European Journal of Cancer Care 18:4, pages 371-380.
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Katherine C. Hutchinson, Victoria W. Willard, Kristina K. Hardy & Melanie J. Bonner. (2008) Adjustment of caregivers of pediatric patients with brain tumors: a cross‐sectional analysis. Psycho-Oncology 18:5, pages 515-523.
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Adam J. Noble & Thomas Schenk. (2008) Posttraumatic stress disorder in the family and friends of patients who have suffered spontaneous subarachnoid hemorrhage. Journal of Neurosurgery 109:6, pages 1027-1033.
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Christina J.M. Colletti, Cortney Wolfe-Christensen, Melissa Y. Carpentier, Melanie C. Page, René Y. McNall-Knapp, William H. Meyer, John M. Chaney & Larry L. Mullins. (2008) The relationship of parental overprotection, perceived vulnerability, and parenting stress to behavioral, emotional, and social adjustment in children with cancer. Pediatric Blood & Cancer 51:2, pages 269-274.
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Owen Richard LightseyJr.Jr. & James Sweeney. (2008) Meaning in Life, Emotion-Oriented Coping, Generalized Self-Efficacy, and Family Cohesion as Predictors of Family Satisfaction Among Mothers of Children With Disabilities. The Family Journal 16:3, pages 212-221.
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Rose Steele, Sarah Derman, Susan Cadell, Betty Davies, Hal Siden & Lynn Straatman. (2008) Families’ transition to a Canadian paediatric hospice. Part one: planning a pilot study. International Journal of Palliative Nursing 14:5, pages 248-256.
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C. M. Jantien Vrijmoet-Wiersma, J. M. M. van Klink, A. M. Kolk, H. M. Koopman, L. M. Ball & R. Maarten Egeler. (2008) Assessment of Parental Psychological Stress in Pediatric Cancer: A Review. Journal of Pediatric Psychology 33:7, pages 694-706.
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Man Cheung Chung, Zoë Berger & Hannah Rudd. (2008) Coping with posttraumatic stress disorder and comorbidity after myocardial infarction. Comprehensive Psychiatry 49:1, pages 55-64.
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Karin Ribi, Margarete E Vollrath, Felix H Sennhauser, Hanspeter E Gnehm & Markus A Landolt. (2007) Prediction of posttraumatic stress in fathers of children with chronic diseases or unintentional injuries: a six-months follow-up study. Child and Adolescent Psychiatry and Mental Health 1:1.
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Anne E. Kazak & Chiara Baxt. (2007) Families of infants and young children with cancer: A post-traumatic stress framework. Pediatric Blood & Cancer 49:S7, pages 1109-1113.
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Annika Lindahl Norberg. (2007) Burnout in Mothers and Fathers of Children Surviving Brain Tumour. Journal of Clinical Psychology in Medical Settings 14:2, pages 130-137.
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Matt Bruce. (2006) A systematic and conceptual review of posttraumatic stress in childhood cancer survivors and their parents. Clinical Psychology Review 26:3, pages 233-256.
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Merle H. Mishel, Barbara B. Germino, Karen M. Gil, Michael Belyea, Iris Carlton LaNey, Janet Stewart, Laura Porter & Margaret Clayton. (2005) Benefits from an uncertainty management intervention for African–American and Caucasian older long‐term breast cancer survivors. Psycho-Oncology 14:11, pages 962-978.
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Ahna L. Hoff, Larry L. Mullins, Stephen R. Gillaspy, Melanie C. Page, Jill C. Van Pelt & John M. Chaney. (2005) An Intervention to Decrease Uncertainty and Distress Among Parents of Children Newly Diagnosed With Diabetes: A Pilot Study.. Families, Systems, & Health 23:3, pages 329-342.
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Maru Barrera, Norma M. D'Agostino, Julie Gibson, Thomas Gilbert, Rosanna Weksberg & David Malkin. (2004) Predictors and mediators of psychological adjustment in mothers of children newly diagnosed with cancer. Psycho-Oncology 13:9, pages 630-641.
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Sheila Judge Santacroce. (2004) Parental Uncertainty and Posttraumatic Stress in Serious Childhood Illness. Journal of Nursing Scholarship 35:1, pages 45-51.
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Ahna L. Hoff, Larry L. Mullins, John M. Chaney, Valerie L. Hartman & David Domek. (2002) Illness Uncertainty, Perceived Control, and Psychological Distress Among Adolescents With Type 1 Diabetes. Research and Theory for Nursing Practice 16:4, pages 223-236.
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Bernard F. Fuemmeler, T.David Elkin & Larry L. Mullins. (2002) Survivors of childhood brain tumors. Clinical Psychology Review 22:4, pages 547-585.
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