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Original Articles

Bereavement Support for Families Following the Death of a Child from Cancer

Experience of Bereaved Parents

, , , , &
Pages 65-83 | Published online: 22 Sep 2008

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (11)

Christina Hanauer, Berit Telaar, Nadja Al-Dawaf, Rita Rosner & Bettina K. Doering. (2023) ‘Feeling disconnected’ – risk factors for PGD and themes in grief counselling during the COVID-19 pandemic. A mixed-method study. European Journal of Psychotraumatology 14:1.
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Sarah Turner, Jeannette Littlemore, Eloise Parr, Julie Taylor & Annie Topping. (2023) ‘Lights in the darkness’, part 1: characterising effective communication with healthcare practitioners following the death of a child. Mortality 28:4, pages 627-644.
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Isabella Loxton, Melissa Oxlad & Anna Perry. (2023) Consulting parents bereaved by childhood cancer: A qualitative study to improve bereavement services. Death Studies 47:8, pages 891-901.
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Méabh Kenny, Sinead Darcy-Bewick, Aoife Martin, Jessica Eustace-Cook, Carol Hilliard, Frieda Clinton, Lorna Storey, Imelda Coyne, Kim Murray, Katie Duffy, Gillian Fortune, Owen Smith, Agnes Higgins & Geralyn Hynes. (2020) You are at rock bottom: A qualitative systematic review of the needs of bereaved parents as they journey through the death of their child to cancer. Journal of Psychosocial Oncology 38:6, pages 761-781.
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Oindrila Dutta, Geraldine Tan-Ho, Ping Ying Choo & Andy Hau Yan Ho. (2019) Lived experience of a child’s chronic illness and death: A qualitative systematic review of the parental bereavement trajectory. Death Studies 43:9, pages 547-561.
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Naomi Greenwald, Maru Barrera, Alexandra Neville & Kelly Hancock. (2017) Feasibility of group intervention for bereaved siblings after pediatric cancer death. Journal of Psychosocial Oncology 35:2, pages 220-238.
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Kelly R. Rossetto. (2015) Bereaved Parents’ Strategies and Reactions When Supporting Their Surviving Children. Western Journal of Communication 79:5, pages 533-554.
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Anne Marie Jones, Celine Deane & Orla Keegan. (2015) The development of a framework to support bereaved children and young people: the Irish Childhood Bereavement Care Pyramid. Bereavement Care 34:2, pages 43-51.
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Lauren J Breen. (2012) The effect of caring on post-bereavement outcome: Research gaps and practice priorities. Progress in Palliative Care 20:1, pages 27-30.
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Articles from other publishers (61)

Berit Telaar, Christina Hanauer, Rita Rosner & Bettina K. Doering. (2023) Predictors of Client Satisfaction With Bereavement Counselling: The Role of Negative Effects. OMEGA - Journal of Death and Dying.
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Deborah Feifer, Elizabeth G. Broden, Justin N. Baker, Joanne Wolfe & Jennifer Snaman. (2023) “It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents. Journal of Pain and Symptom Management 65:5, pages e399-e407.
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Eddy Carolina Pedraza, Gisela Michel, Aurelia Altherr, Manya Jerina Hendriks & Eva De Clercq. (2023) Coping strategies in families who lost a child to cancer: A scoping review. EJC Paediatric Oncology 1, pages 100011.
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Émilie Dumont, Claude Julie Bourque, Michel Duval, Antoine Payot & Serge Sultan. (2020) A Portrait of Self-Reported Health and Distress in Parents Whose Child Died of Cancer. OMEGA - Journal of Death and Dying 85:4, pages 958-973.
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Shannon V. D'Alton, Leigh Ridings, Conrad Williams & Shannon Phillips. (2022) The bereavement experiences of children following sibling death: An integrative review. Journal of Pediatric Nursing 66, pages e82-e99.
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Kimberly L. Schoonover, Larry Prokop & Maria I. Lapid. (2022) Valuable Informal Bereavement Support Strategies for Bereaved Parents of Stillborn, Young Children, and Adult Children: A Scoping Review. Journal of Palliative Care 37:3, pages 381-400.
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Omid Rasouli, Unni Karin Moksnes, Trude Reinfjell, Odin Hjemdal & Mary-Elizabeth Bradley Eilertsen. (2022) Impact of resilience and social support on long-term grief in cancer-bereaved siblings: an exploratory study. BMC Palliative Care 21:1.
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Prachi Simran Vig, Jia Yin Lim, Randal Wei Liang Lee, Huixin Huang, Xiu Hui Tan, Wei Qiang Lim, Marie Bernadette Xin Yi Lim, Alexia Sze Inn Lee, Min Chiam, Crystal Lim, Vijayendra Ranjan Baral & Lalit Kumar Radha Krishna. (2021) Parental bereavement – impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review. BMC Palliative Care 20:1.
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Christine Denhup. (2021) “Parenting Beyond the Veil”: The Continued Parenting Relationship After a Child's Death Due to Cancer. Journal of Pediatric Oncology Nursing 38:6, pages 364-374.
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Wendy J. Haylett, Donna Scott Tilley, Becky Spencer, Shann Hwa Hwang & Terrah Foster Akard. (2021) Parenting Surviving Children After the Death of a Child from Cancer: An Interpretative Phenomenological Analysis. Journal of Child and Family Studies 30:9, pages 2225-2237.
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Arefeh Sepehrtaj, Seyed Jalal Younesi, Parisa Seyed Mousavi, Ali Khani Jeihooni & Parvin Jafari. (2021) Effectiveness of Theraplay in Internalizing and Externalizing Problems in Bereaved Siblings of Children with Cancer. Iranian Journal of Psychiatry and Behavioral Sciences 15:2.
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Gabrielle Helton, Sue E. Morris, Olivia R. Dole, Joanne Wolfe & Jennifer M. Snaman. (2021) Parental Perceptions of Hospital-Based Bereavement Support Following a Child's Death From Cancer: Room for Improvement. Journal of Pain and Symptom Management 61:6, pages 1254-1260.
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Davie E. Bara. (2018) The Hidden Cost of Cancer: The Siblings’ Story, A Mother’s Narrative on How Three of Her Children Journeyed Through Their 14-Year-Old Sister’s 9-Month Journey From Ill Heath to Death and Beyond. Illness, Crisis & Loss 29:1, pages 19-36.
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Eline M. Kochen, Floor Jenken, Paul A. Boelen, Laura M. A. Deben, Jurrianne C. Fahner, Agnes van den Hoogen, Saskia C. C. M. Teunissen, Karin Geleijns & Marijke C. Kars. (2020) When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories. BMC Palliative Care 19:1.
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Ashley Ridley & Sandra Frache. (2020) Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review. Palliative Medicine 34:10, pages 1340-1350.
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Callista V. Raharjo, Kate Hetherington, Leigh Donovan, Joanna E. Fardell, Vera Russell, Richard J. Cohn, Nicola L. Morgan, Julia Siddiqui & Claire E. Wakefield. (2020) An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer. Journal of Pain and Symptom Management 59:6, pages 1278-1286.
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Chu‐Won Sim, Silke Heuse, Dorothée Weigel & Friederike Kendel. (2020) If only I could turn back time—Regret in bereaved parents. Pediatric Blood & Cancer 67:6.
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David Bara. (2017) In My Hours of Need, I Was Robbed of My Family, Friends, Beliefs, and Education. A Mother’s Narrative on Her 14-Year-Old Daughter’s 9-Month Journey From Ill Health to Death. Illness, Crisis & Loss 28:2, pages 158-174.
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Katianne M. Howard Sharp, Emily A. Meadows, Madelaine C. Keim, Adrien M. Winning, Maru Barrera, Mary Jo Gilmer, Terrah Foster Akard, Bruce E. Compas, Diane L. Fairclough, Betty Davies, Nancy Hogan, Kathryn Vannatta & Cynthia A. Gerhardt. (2019) The Influence of Parent Distress and Parenting on Bereaved Siblings’ Externalizing Problems. Journal of Child and Family Studies 29:4, pages 1081-1093.
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Buket ŞİMŞEK ARSLAN & Kadriye BULDUKOĞLU. (2019) Yasın Aile Üzerine Etkilerini Azaltmak İçin Uygulanan Yas Destek ProgramlarıGrief Support Programs Implemented to Reduce the Effects of Grief on Family. Psikiyatride Güncel Yaklaşımlar 11:3, pages 402-417.
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Dorothy Brooten, JoAnne M. Youngblut, Carmen Caicedo & Julia Dankanich. (2019) Parents: Wish I had done, wish I had not done, and coping after child NICU/PICU death. Journal of the American Association of Nurse Practitioners 31:3, pages 175-183.
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Sonia Carreño-Moreno, Lorena Chaparro-Díaz, Gloria Mabel Carrillo & Olga Janneth Gómez-Ramírez. (2019) Duelo en el cuidador del niño fallecido por cáncer: revisión exploratoria. Duazary 16:2, pages 281-294.
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JoAnne M. Youngblut & Dorothy Brooten. (2018) Comparison of mothers and grandmothers physical and mental health and functioning within 6 months after child NICU/PICU death. Italian Journal of Pediatrics 44:1.
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Ashleigh E. Butler, Helen Hall & Beverley Copnell. (2018) Bereaved parents’ experiences of research participation. BMC Palliative Care 17:1.
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Lori Wiener, Abby R. Rosenberg, Wendy G. Lichtenthal, Julia Tager & Meaghann S. Weaver. (2018) Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings. Palliative and Supportive Care 16:6, pages 706-711.
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Tamara Vern-Gross. (2018) Comprehensive care for the child or adolescent diagnosed with a childhood malignancy requiring palliative radiation therapy: A review. Applied Radiation Oncology, pages 7-17.
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Malin Lövgren & Josefin Sveen. 2018. Palliative Care in Pediatric Oncology. Palliative Care in Pediatric Oncology 245 264 .
Tamara Vern-Gross & Karen Marcus. 2018. Pediatric Radiation Oncology. Pediatric Radiation Oncology 419 450 .
Justin N. Baker. 2018. Brain Tumors in Children. Brain Tumors in Children 379 402 .
Tiina Jaaniste, Sandra Coombs, Theresa Donnelly, Norm Kelk & Danielle Beston. (2017) Risk and Resilience Factors Related to Parental Bereavement Following the Death of a Child with a Life-Limiting Condition. Children 4:11, pages 96.
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이동훈, 서은경, Minsoo Khang, 이춘화 & Ji Young Shin. (2017) A Qualitative Study on the Social Support, Conflict, Isolation Experiences of Adolescent Victims’ Parents of the Sewol Ferry Disaster. Korea Journal of Counseling 18:5, pages 331-355.
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Julie Berrett-Abebe, Elyse Levin-Russman, Marie Elena Gioiella & Jeffrey M. Adams. (2016) Parental experiences with a hospital-based bereavement program following the loss of a child to cancer. Palliative and Supportive Care 15:3, pages 348-358.
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Randy L. Wei, Bo A. Wan, Edward Chow & Stephen Lutz. 2017. Clinical Radiation Oncology. Clinical Radiation Oncology 141 157 .
Moire Stevenson, Marie Achille, Stephen Liben, Marie-Claude Proulx, Nago Humbert, Antoinette Petti, Mary Ellen Macdonald & S. Robin Cohen. (2016) Understanding How Bereaved Parents Cope With Their Grief to Inform the Services Provided to Them. Qualitative Health Research 27:5, pages 649-664.
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Sonia Carreño Moreno, Lorena Chaparro Díaz & Rocío López Rangel. (2017) Encontrar sentido para continuar viviendo el reto al perder un hijo por cáncer infantil: revisión integrativa. Persona y Bioética 21:1, pages 46-61.
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Kimberley Widger, Stefan Friedrichsdorf, Joanne Wolfe, Stephen Liben, Jason D. Pole, Eric Bouffet, Mark Greenberg, Amna Husain, Harold Siden, James A. Whitlock & Adam Rapoport. (2016) Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer. BMC Palliative Care 15:1.
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Kimberley Widger, Ann E Tourangeau, Rose Steele & David L Streiner. (2015) Initial development and psychometric testing of an instrument to measure the quality of children’s end-of-life care. BMC Palliative Care 14:1.
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Wendy G. Lichtenthal, Corinne R. Sweeney, Kailey E. Roberts, Geoffrey W. Corner, Leigh A. Donovan, Holly G. Prigerson & Lori Wiener. (2015) Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology. Pediatric Blood & Cancer 62:S5, pages S834-S869.
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Christina Melin-Johansson, Inge Axelsson, Marie Jonsson Grundberg & Frida Hallqvist. (2014) When a Child Dies: Parents' Experiences of Palliative Care—An Integrative Literature Review. Journal of Pediatric Nursing 29:6, pages 660-669.
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