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Journal of Psychosocial Oncology Volume 24, 2006 - Issue 3
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Original Articles

Making It Work

Informal Caregiving, Cancer, and Employment

Jennifer E. Swanberg PhD MMHS University of Kentucky, College of Social Workm, 663 Patterson Office Tower, Lexington, KY, 40506-0027, USA
Pages 1-18 | Published online: 22 Sep 2008

Citations (36)

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Claire E. Wakefield, Jordana K. McLoone, Nadia T. Evans, Sarah J. Ellis & Richard J. Cohn. (2014) It's More than Dollars and Cents: The Impact of Childhood Cancer on Parents’ Occupational and Financial Health. Journal of Psychosocial Oncology 32:5, pages 602-621.
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Una Stenberg, Milada Cvancarova, Mirjam Ekstedt, Mariann Olsson & Cornelia Ruland. (2014) Family Caregivers of Cancer Patients: Perceived Burden and Symptoms During the Early Phases of Cancer Treatment. Social Work in Health Care 53:3, pages 289-309.
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Catherine Jane Golics, Mohammad Khurshid Azam Basra, M Sam Salek & Andrew Yule Finlay. (2013) The impact of patients’ chronic disease on family quality of life: an experience from 26 specialties. International Journal of General Medicine 6, pages 787-798.
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Articles from other publishers (33)

Trupti Dhumal, Zasim Azhar Siddiqui, George A. Kelley, Felicity Harper & Kimberly M. Kelly. (2023) Systematic review and meta-analysis of randomized controlled trials of interventions addressing caregiver distress and burden among cancer caregivers. PEC Innovation 2, pages 100145.
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Daniel Paixão Pequeno, Juliana Carron, Karla Cristina Gaspar, Carmen Silvia Passos Lima & Gustavo Jacob Lourenço. (2022) Quality of life of family caregivers and survival of head and neck cancer patients in palliative care. European Journal of Cancer Care 31:6.
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Daniel Paixão Pequeno, Elisângela Godoi Viaro, Juliana Carron, Diego Rodrigues Silva, Karla Cristina Gaspar, Carmen Silvia Passos Lima & Gustavo Jacob Lourenço. (2021) Influence of Sociodemographic Characteristics and Inflammation-Related Gene Variants on the Comfort Level of Caregivers of Patients With Head and Neck Cancer. Journal of Holistic Nursing 40:3, pages 227-237.
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Ellen Xiang, Patricia Guzman, Martha Mims & Hoda Badr. (2022) Balancing Work and Cancer Care: Challenges Faced by Employed Informal Caregivers. Cancers 14:17, pages 4146.
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Margaret I. Fitch, Linda Sharp, Paul Hanly & Christopher J. Longo. (2021) Experiencing financial toxicity associated with cancer in publicly funded healthcare systems: a systematic review of qualitative studies. Journal of Cancer Survivorship 16:2, pages 314-328.
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Femmy M. Bijnsdorp, Bregje D. Onwuteaka-Philipsen, Cécile R.L. Boot, Allard J. van der Beek, Hanna T. Klop & H. Roeline W. Pasman. (2021) Combining paid work and family care for a patient at the end of life at home: insights from a qualitative study among caregivers in the Netherlands. BMC Palliative Care 20:1.
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M.L. Longacre, L. Weber-Raley & E. E. Kent. (2019) Cancer Caregiving While Employed: Caregiving Roles, Employment Adjustments, Employer Assistance, and Preferences for Support. Journal of Cancer Education 36:5, pages 920-932.
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Amy Isham, Simon Mair & Tim Jackson. (2021) Worker wellbeing and productivity in advanced economies: Re-examining the link. Ecological Economics 184, pages 106989.
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Femmy M. Bijnsdorp, H. Roeline W. Pasman, Cécile R. L. Boot, Susanne M. van Hooft, AnneLoes van Staa & Anneke L. Francke. (2020) Profiles of family caregivers of patients at the end of life at home: a Q-methodological study into family caregiver’ support needs. BMC Palliative Care 19:1.
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Christopher J. Longo, Margaret I. Fitch, Laura Banfield, Paul Hanly, K. Robin Yabroff & Linda Sharp. (2020) Financial toxicity associated with a cancer diagnosis in publicly funded healthcare countries: a systematic review. Supportive Care in Cancer 28:10, pages 4645-4665.
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Simone M. C. H. Langenberg, Carla M. L. van Herpen, Claudia C. M. van Opstal, Anke N. M. Wymenga, Winette T. A. van der Graaf & Judith B. Prins. (2019) Caregivers’ burden and fatigue during and after patients’ treatment with concomitant chemoradiotherapy for locally advanced head and neck cancer: a prospective, observational pilot study. Supportive Care in Cancer 27:11, pages 4145-4154.
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Chelsea Coumoundouros, Lydia Ould Brahim, Sylvie D. Lambert & Jane McCusker. (2019) The direct and indirect financial costs of informal cancer care: A scoping review. Health & Social Care in the Community.
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Joseph E. Gaugler, Deborah L. Pestka, Heather Davila, Rebecca Sales, Greg Owen, Sarah A. Baumgartner, Rocky Shook, Jane Cunningham & Maureen Kenney. (2018) The Complexities of Family Caregiving at Work: A Mixed-Methods Study. The International Journal of Aging and Human Development 87:4, pages 347-376.
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Lidia Santarpia & Federico Bozzetti. (2017) Acute impact of home parenteral nutrition in patients with late-stage cancer on family caregivers: preliminary data. Supportive Care in Cancer 26:2, pages 667-671.
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Rachelle Ireson, Bharati Sethi & Allison Williams. (2018) Availability of caregiver-friendly workplace policies (CFWPs): an international scoping review. Health & Social Care in the Community 26:1, pages e1-e14.
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Allison M. Williams, Emile Tompa, Donna S. Lero, Janet Fast, Amin Yazdani & Isik U. Zeytinoglu. (2017) Evaluation of caregiver-friendly workplace policy (CFWPs) interventions on the health of full-time caregiver employees (CEs): implementation and cost-benefit analysis. BMC Public Health 17:1.
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S. Arlandis Guzmán, E. Martínez Cuenca, R. Martínez García, M.A. Bonillo García, J. Rejas & E. Broseta-Rico. (2017) Cultural adaptation to Spanish (Spain) of the “overactive bladder-family impact measure (OAB-FIM)” questionnaire. Actas Urológicas Españolas (English Edition) 41:5, pages 324-332.
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S. Arlandis Guzmán, E. Martínez Cuenca, R. Martínez García, M.A. Bonillo García, J. Rejas & E. Broseta-Rico. (2017) Adaptación cultural al español (España) del cuestionario Overactive Bladder Family Impact Measure (OAB-FIM). Actas Urológicas Españolas 41:5, pages 324-332.
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Shruti Ramesh, Rachelle Ireson & Allison Williams. (2017) International synthesis and case study examination of promising caregiver-friendly workplaces. Social Science & Medicine 177, pages 52-60.
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Yeonjung Lee & Fengyan Tang. (2013) More Caregiving, Less Working. Journal of Applied Gerontology 34:4, pages 465-483.
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Nerina Vecchio. (2015) Labour force participation of families coping with a disabling condition. Economic Analysis and Policy 45, pages 1-10.
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Ourania Govina, Grigorios Kotronoulas, Kyriaki Mystakidou, Stylianos Katsaragakis, Eugenia Vlachou & Elisabeth Patiraki. (2015) Effects of patient and personal demographic, clinical and psychosocial characteristics on the burden of family members caring for patients with advanced cancer in Greece. European Journal of Oncology Nursing 19:1, pages 81-88.
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Yeonjung Lee & Karen A. Zurlo. (2014) Spousal Caregiving and Financial Strain Among Middle-Aged and Older Adults. The International Journal of Aging and Human Development 79:4, pages 302-321.
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Catherine Jane Golics, Mohammad Khurshid Azam Basra, Andrew Yule Finlay & Sam Salek. (2013) The development and validation of the Family Reported Outcome Measure (FROM-16)© to assess the impact of disease on the partner or family member. Quality of Life Research 23:1, pages 317-326.
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Catherine Jane Golics, Mohammad Khurshid Azam Basra, Andrew Yule Finlay & Sam Salek. (2013) The impact of disease on family members: a critical aspect of medical care. Journal of the Royal Society of Medicine 106:10, pages 399-407.
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Elaine Wittenberg-Lyles, George Demiris, Debra Parker Oliver, Karla Washington, Stephanie Burt & Sara Shaunfield. (2012) Stress Variances Among Informal Hospice Caregivers. Qualitative Health Research 22:8, pages 1114-1125.
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Mirjana Vuksan, Allison Williams & Valorie Crooks. (2012) Family friendly policies: accommodating end‐of‐life caregivers in workplaces. International Journal of Workplace Health Management 5:1, pages 4-14.
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Susan R. Mazanec, Barbara J. Daly, Sara L. Douglas & Amy R. Lipson. (2011) Work productivity and health of informal caregivers of persons with advanced cancer. Research in Nursing & Health 34:6, pages 483-495.
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Una Stenberg, Cornelia M. Ruland & Christine Miaskowski. (2009) Review of the literature on the effects of caring for a patient with cancer. Psycho-Oncology 19:10, pages 1013-1025.
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Karin S. Coyne, Louis S. Matza, Jessica Brewster‐Jordan, Christine Thompson & Tamara Bavendam. (2009) The psychometric validation of the OAB family impact measure (OAB‐FIM). Neurourology and Urodynamics 29:3, pages 359-369.
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Karin S. Coyne, Louis S. Matza & Jessica Brewster‐Jordan. (2009) “We have to stop again?!”: The impact of overactive bladder on family members. Neurourology and Urodynamics 28:8, pages 969-975.
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Joseph E. Gaugler, William C. Given, Jeanette Linder, Ritesh Kataria, Galina Tucker & William F. Regine. (2007) Work, gender, and stress in family cancer caregiving. Supportive Care in Cancer 16:4, pages 347-357.
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Amanda C. Brody & Leigh Ann Simmons. (2016) Family Resiliency During Childhood Cancer: The Father's Perspective. Journal of Pediatric Oncology Nursing 24:3, pages 152-165.
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