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SECTION 3: APPROACHES TO HELPING WITH END OF LIFE CHALLENGES

Death Does Not Become Us

The Absence of Death and Dying in Intellectual Disability Research

Pages 225-239 | Received 03 Apr 2001, Accepted 23 Jun 2001, Published online: 11 Oct 2008

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Agustín de la Herrán Gascón, Pablo Rodríguez Herrero, Isabel Rodríguez Peralta & Juan José Medina Rodríguez. (2022) The Pedagogy of death and special needs education. A phenomenological study. European Journal of Special Needs Education 37:5, pages 747-760.
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Katherine Runswick‐Cole. (2010) Living with dying and disabilism: death and disabled children. Disability & Society 25:7, pages 813-826.
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Articles from other publishers (19)

Adi Finkelstein, Ariel Tenenbaum & Yaacov G. Bachner. (2019) ‘I will never be old’: adults with Down syndrome and their parents talk about ageing-related challenges. Ageing and Society 40:8, pages 1788-1807.
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Rafat Hussain, Stuart Wark, Arne Müller, Peta Ryan & Trevor Parmenter. (2019) Personal relationships during end-of-life care: Support staff views of issues for individuals with intellectual disability. Research in Developmental Disabilities 87, pages 21-30.
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Stuart Wark, Rafat Hussain, Arne Müller, Peta Ryan & Trevor Parmenter. (2017) Challenges in providing end‐of‐life care for people with intellectual disability: Health services access. Journal of Applied Research in Intellectual Disabilities 30:6, pages 1151-1159.
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R. J. Stancliffe, M. Y. Wiese, S. Read, G. Jeltes & J. M. Clayton. (2017) Assessing knowledge and attitudes about end of life: Evaluation of three instruments designed for adults with intellectual disability. Journal of Applied Research in Intellectual Disabilities 30:6, pages 1076-1088.
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Kiarash Irandoust & Matthias Rauterberg. (2015) How to Pay Attention to the End of Our Life: An Interactive Installation in Cultural Computing. How to Pay Attention to the End of Our Life: An Interactive Installation in Cultural Computing.
Corina R. Ronneberg, Lisa Peters-Beumer, Beth Marks & Alan Factor. (2015) Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities. OMEGA - Journal of Death and Dying 70:4, pages 380-403.
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Eilish Burke, Mary McCarron, Rachael Carroll, Eimear McGlinchey & Philip McCallion. (2014) What It's Like to Grow Older: The Aging Perceptions of People With an Intellectual Disability in Ireland. Intellectual and Developmental Disabilities 52:3, pages 205-219.
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Stuart Todd, Jane Bernal & Rachel Forrester-Jones. (2013) Death, Dying and Intellectual Disability Research. Journal of Applied Research in Intellectual Disabilities 26:3, pages 183-185.
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Stuart Todd. (2013) ‘Being there’: the Experiences of Staff in Dealing with Matters of Dying and Death in Services for People with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities 26:3, pages 215-230.
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Rachel Forrester-Jones. (2013) The road barely taken: funerals, and people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 26:3, pages 243-256.
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Karen Ryan, Suzanne Guerin, Philip Dodd & John McEvoy. (2011) Exploring the experiences of people with intellectual disabilities when service users die. British Journal of Learning Disabilities 39:4, pages 259-265.
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Karen Ryan, Suzanne Guerin, Philip Dodd & John McEvoy. (2011) Communication contexts about illness, death and dying for people with intellectual disabilities and life-limiting illness. Palliative and Supportive Care 9:2, pages 201-208.
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John McEvoy, Suzanne Guerin, Philip Dodd & John Hillery. (2010) Supporting Adults with an Intellectual Disability During Experiences of Loss and Bereavement: Staff Views, Experiences and Suggestions for Training. Journal of Applied Research in Intellectual Disabilities 23:6, pages 585-596.
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Ellen Auty & Katrina Scior. (2008) Psychologists' Clinical Practices in Assessing Dementia in Individuals With Down Syndrome. Journal of Policy and Practice in Intellectual Disabilities 5:4, pages 259-268.
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Jane Bernal & Irene Tuffrey-Wijne. (2008) Telling the truth – or not: disclosure and information for people with intellectual disabilities who have cancer. International Journal on Disability and Human Development 7:4.
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S. Todd. (2007) Silenced grief: living with the death of a child with intellectual disabilities. Journal of Intellectual Disability Research 51:8, pages 637-648.
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Amelia Jones, Irene Tuffrey-Wijne, Jane Bernal, Gary Butler & Sheila Hollins. (2007) Meeting the cancer information needs of people with learning disabilities: experiences of paid carers. British Journal of Learning Disabilities 35:1, pages 12-18.
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S. Todd & S. Jones. (2005) Looking at the future and seeing the past: the challenge of the middle years of parenting a child with intellectual disabilities. Journal of Intellectual Disability Research 49:6, pages 389-404.
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Stuart Todd. (2005) Surprised endings: the dying of people with learning disabilities in residential services. International Journal of Palliative Nursing 11:2, pages 80-82.
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