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Expert Review of Pharmacoeconomics & Outcomes Research Volume 13, 2013 - Issue 5
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Meeting Report

Ethical, legal and social implications of rare diseases and orphan drugs in Europe: meeting report of a Brocher symposium

Eline PicavetKU Leuven Department of Pharmaceutical and Pharmacological Sciences, Herestraat 49, PO Box 521, 3000 Leuven, BelgiumCorrespondence[email protected]
,
David CassimanDepartment of Hepatology, University Hospital Leuven, Herestraat 49, 3000, Leuven, Belgium
,
Wim PinxtenDepartment of Medical Ethics and Philosophy of Medicine, Eramus University Medical Center, Dr. Molewaterplein 50, PO Box 2040, 3000CA, Rotterdam, The Netherlands
&
Steven SimoensKU Leuven Department of Pharmaceutical and Pharmacological Sciences, Herestraat 49, PO Box 521, 3000 Leuven, Belgium
Pages 571-573 | Published online: 09 Jan 2014

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Jaroslav Kacetl, Petra Marešová, Raihan Maskuriy & Ali Selamat. (2020) Ethical Questions Linked to Rare Diseases and Orphan Drugs – A Systematic Review. Risk Management and Healthcare Policy 13, pages 2125-2148.
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Articles from other publishers (6)

Alessandra Blonda, Yvonne Denier, Isabelle Huys, Pawel Kawalec & Steven Simoens. (2022) How Can We Optimize the Value Assessment and Appraisal of Orphan Drugs for Reimbursement Purposes? A Qualitative Interview Study Across European Countries. Frontiers in Pharmacology 13.
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Conor M.W. Douglas, Dimitra Panagiotoglou, Nick Dragojlovic & Larry Lynd. (2021) Methodology for constructing scenarios for health policy research: The case of coverage decision-making for drugs for rare diseases in Canada. Technological Forecasting and Social Change 171, pages 120960.
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Bettina M. Zimmermann, Johanna Eichinger & Matthias R. Baumgartner. (2021) A systematic review of moral reasons on orphan drug reimbursement. Orphanet Journal of Rare Diseases 16:1.
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Alessandra Blonda, Yvonne Denier, Isabelle Huys & Steven Simoens. (2021) How to Value Orphan Drugs? A Review of European Value Assessment Frameworks. Frontiers in Pharmacology 12.
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Kylie Tingley, Doug Coyle, Ian D. Graham, Lindsey Sikora, Pranesh Chakraborty, Kumanan Wilson, John J. Mitchell, Sylvia Stockler-Ipsiroglu & Beth K. Potter. (2018) Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases. Orphanet Journal of Rare Diseases 13:1.
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J. Torrent-Farnell, M. Comellas, J.L. Poveda, I. Abaitua, L.G. Gutiérrez-Solana, J. Pérez-López, J. Cruz, J. Urcelay & L. Lizán. (2018) The view of experts on initiatives to be undertaken to promote equity in the access to orphan drugs and specialised care for rare diseases in Spain: A Delphi consensus. Health Policy 122:6, pages 590-598.
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