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Perspectives

The use of research evidence on patient preferences in health care decision-making: issues, controversies and moving forward

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Iris Linden, Maud Hevink, Claire Wolfs, Marieke Perry, Carmen Dirksen & Rudolf Ponds. (2023) Understanding patients’ and significant others’ preferences on starting a diagnostic trajectory for dementia: An integrative review. Aging & Mental Health 27:5, pages 862-875.
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Rosanne Janssens, Liese Barbier, Mireille Muller, Irina Cleemput, Isabelle Stoeckert, Chiara Whichello, Bennett Levitan, Tarek A. Hammad, Charis Girvalaki, Juan-Jose Ventura, Karin Schölin Bywall, Cathy Anne Pinto, Elise Schoefs, Eva G. Katz, Ulrik Kihlbom & Isabelle Huys. (2023) How can patient preferences be used and communicated in the regulatory evaluation of medicinal products? Findings and recommendations from IMI PREFER and call to action. Frontiers in Pharmacology 14.
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Jorien Veldwijk, Esther de Bekker-Grob, Juhaeri Juhaeri, Eline van Overbeeke, Stephanie Tcherny-Lessenot, Cathy Anne Pinto, Rachael L. DiSantostefano & Catharina G.M. Groothuis-Oudshoorn. (2023) Suitability of Preference Methods Across the Medical Product Lifecycle: A Multicriteria Decision Analysis. Value in Health 26:4, pages 579-588.
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Jinsong Geng, Haini Bao, Zhe Feng, Jingyi Meng, Xiaolan Yu & Hao Yu. (2022) Investigating patients’ preferences for new anti-diabetic drugs to inform public health insurance coverage decisions: a discrete choice experiment in China. BMC Public Health 22:1.
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Nathan S. McClure, Feng Xie, Mike Paulden, Arto Ohinmaa & Jeffrey A. Johnson. (2022) Small differences in EQ-5D-5L health utility scores were interpreted differently between and within respondents. Journal of Clinical Epidemiology 142, pages 133-143.
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Lidia Engel, Stirling Bryan & David G. T. Whitehurst. (2021) Conceptualising ‘Benefits Beyond Health’ in the Context of the Quality-Adjusted Life-Year: A Critical Interpretive Synthesis. PharmacoEconomics 39:12, pages 1383-1395.
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Nathan S. McClure, Mike Paulden, Arto Ohinmaa & Jeffrey A. Johnson. (2021) Modifying the quality-adjusted life year calculation to account for meaningful change in health-related quality of life: insights from a pragmatic clinical trial. The European Journal of Health Economics 22:9, pages 1441-1451.
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Arthur A. Stone, Joan E. Broderick, Roberta E. Goldman, Doerte U. Junghaenel, Alicia Bolton, Marcella May & Stefan Schneider. (2021) I. Indices of Pain Intensity Derived From Ecological Momentary Assessments: Rationale and Stakeholder Preferences. The Journal of Pain 22:4, pages 359-370.
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Eline van Overbeeke, Valérie Forrester, Steven Simoens & Isabelle Huys. (2020) Use of Patient Preferences in Health Technology Assessment: Perspectives of Canadian, Belgian and German HTA Representatives. The Patient - Patient-Centered Outcomes Research 14:1, pages 119-128.
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R. R. van Tol, J. Kleijnen, A. J. M. Watson, J. Jongen, D. F. Altomare, N. Qvist, T. Higuero, J. W. M. Muris & S. O. Breukink. (2020) European Society of ColoProctology: guideline for haemorrhoidal disease. Colorectal Disease 22:6, pages 650-662.
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Rosanne Janssens, Isabelle Huys, Eline van Overbeeke, Chiara Whichello, Sarah Harding, Jürgen Kübler, Juhaeri Juhaeri, Antonio Ciaglia, Steven Simoens, Hilde Stevens, Meredith Smith, Bennett Levitan, Irina Cleemput, Esther de Bekker-Grob & Jorien Veldwijk. (2019) Opportunities and challenges for the inclusion of patient preferences in the medical product life cycle: a systematic review. BMC Medical Informatics and Decision Making 19:1.
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Samare P.I. Huls, Chiara L. Whichello, Job van Exel, Carin A. Uyl-de Groot & Esther W. de Bekker-Grob. (2019) What Is Next for Patient Preferences in Health Technology Assessment? A Systematic Review of the Challenges. Value in Health 22:11, pages 1318-1328.
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Rosanne Janssens, Selena Russo, Eline van Overbeeke, Chiara Whichello, Sarah Harding, Jürgen Kübler, Juhaeri Juhaeri, Karin Schölin Bywall, Alina Comanescu, Axel Hueber, Matthias Englbrecht, Nikoletta Nikolenko, Gabriella Pravettoni, Steven Simoens, Hilde Stevens, Richard Hermann, Bennett Levitan, Irina Cleemput, Esther de Bekker-Grob, Jorien Veldwijk & Isabelle Huys. (2019) Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA. The Patient - Patient-Centered Outcomes Research 12:5, pages 513-526.
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Nigel S. Cook, Konstantinos Kostikas, Jean-Bernard Gruenberger, Bhavik Shah, Purnima Pathak, Vinay Preet Kaur, Alaknanda Mudumby, Rajat Sharma & Florian S. Gutzwiller. (2019) Patients' perspectives on COPD: findings from a social media listening study. ERJ Open Research 5:1, pages 00128-2018.
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Merel L. Kimman, Marlies S. Wijsenbeek, Sander M. J. van Kuijk, Kioa L. Wijnsma, Nicole C. A. J. van de Kar, Marjolein Storm, Xana van Jaarsveld & Carmen D. Dirksen. (2018) Validity of the Patient Experiences and Satisfaction with Medications (PESaM) Questionnaire. The Patient - Patient-Centered Outcomes Research 12:1, pages 149-162.
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Eline van Overbeeke, Chiara Whichello, Rosanne Janssens, Jorien Veldwijk, Irina Cleemput, Steven Simoens, Juhaeri Juhaeri, Bennett Levitan, Jürgen Kübler, Esther de Bekker-Grob & Isabelle Huys. (2019) Factors and situations influencing the value of patient preference studies along the medical product lifecycle: a literature review. Drug Discovery Today 24:1, pages 57-68.
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Rosanne Janssens, Eline van Overbeeke, Lotte Verswijvel, Lissa Meeusen, Carolien Coenegrachts, Kim Pauwels, Marc Dooms, Hilde Stevens, Steven Simoens & Isabelle Huys. (2018) Patient Involvement in the Lifecycle of Medicines According to Belgian Stakeholders: The Gap Between Theory and Practice. Frontiers in Medicine 5.
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Merel L. Kimman, Adrienne H. Rotteveel, Marlies Wijsenbeek, Rémy Mostard, Nelleke C. Tak, Xana van Jaarsveld, Marjolein Storm, Kioa L. Wijnsma, Marielle Gelens, Nicole C. A. J. van de Kar, Jack Wetzels & Carmen D. Dirksen. (2017) Development and Pretesting of a Questionnaire to Assess Patient Experiences and Satisfaction with Medications (PESaM Questionnaire). The Patient - Patient-Centered Outcomes Research 10:5, pages 629-642.
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Elsa Dent, Christopher Lien, Wee Shiong Lim, Wei Chin Wong, Chek Hooi Wong, Tze Pin Ng, Jean Woo, Birong Dong, Shelley de la Vega, Philip Jun Hua Poi, Shahrul Bahyah Binti Kamaruzzaman, Chang Won, Liang-Kung Chen, Kenneth Rockwood, Hidenori Arai, Leocadio Rodriguez-Mañas, Li Cao, Matteo Cesari, Piu Chan, Edward Leung, Francesco Landi, Linda P. Fried, John E. Morley, Bruno Vellas & Leon Flicker. (2017) The Asia-Pacific Clinical Practice Guidelines for the Management of Frailty. Journal of the American Medical Directors Association 18:7, pages 564-575.
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J.J. Wong, P. Côté, D.A. Sutton, K. Randhawa, H. Yu, S. Varatharajan, R. Goldgrub, M. Nordin, D.P. Gross, H.M. Shearer, L.J. Carroll, P.J. Stern, A. Ameis, D. Southerst, S. Mior, M. Stupar, T. Varatharajan & A. Taylor-Vaisey. (2017) Clinical practice guidelines for the noninvasive management of low back pain: A systematic review by the Ontario Protocol for Traffic Injury Management (OPTIMa) Collaboration. European Journal of Pain 21:2, pages 201-216.
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Janet Wale, Anna Mae Scott, Bjørn Hofmann, Sarah Garner, Eric Low & Lloyd Sansom. (2017) WHY PATIENTS SHOULD BE INVOLVED IN HEALTH TECHNOLOGY ASSESSMENT. International Journal of Technology Assessment in Health Care 33:1, pages 1-4.
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Don Husereau, Chris Henshall, Laura Sampietro-Colom & Sarah Thomas. (2016) CHANGING HEALTH TECHNOLOGY ASSESSMENT PARADIGMS?. International Journal of Technology Assessment in Health Care 32:4, pages 191-199.
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