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Ngan Yi Kitty Lam, Xue Luo & Li Li. (2022) Investigation on skin-protective clothing that addresses needs of epidermolysis bullosa patients/children with epidermolysis bullosa and their parents. The Journal of The Textile Institute 113:6, pages 1185-1196.
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Kerry Sandilands, Angela Williams & Angela J. Rylands. (2022) Carer burden in rare inherited diseases: a literature review and conceptual model. Orphanet Journal of Rare Diseases 17:1.
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A. Angelis, J. E. Mellerio & P. Kanavos. (2022) Understanding the socioeconomic costs of dystrophic epidermolysis bullosa in Europe: a costing and health-related quality of life study. Orphanet Journal of Rare Diseases 17:1.
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Nicholas H. B. Schräder, Eva W. H. Korte, José C. Duipmans, Roy E. Stewart, Maria C. Bolling & André P. Wolff. (2021) Identifying Epidermolysis Bullosa Patient Needs and Perceived Treatment Benefits: An Explorative Study Using the Patient Benefit Index. Journal of Clinical Medicine 10:24, pages 5836.
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Amy S. Paller, John Browning, Milos Nikolic, Christine Bodemer, Dedee F. Murrell, Willistine Lenon, Eva Krusinska, Allen Reha, Hjalmar Lagast & Jay A. Barth. (2020) Efficacy and tolerability of the investigational topical cream SD-101 (6% allantoin) in patients with epidermolysis bullosa: a phase 3, randomized, double-blind, vehicle-controlled trial (ESSENCE study). Orphanet Journal of Rare Diseases 15:1.
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Anna L. Bruckner, Michael Losow, Jayson Wisk, Nita Patel, Allen Reha, Hjalmar Lagast, Jamie Gault, Jayne Gershkowitz, Brett Kopelan, Michael Hund & Dedee F. Murrell. (2020) The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers. Orphanet Journal of Rare Diseases 15:1.
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Atoosa Yazdanshenas, Ezatollah Naderi, Hamideh Moravvej, Kazem Heidari, Masoomeh Faghankhani, Hassan Vahidnezhad & Nikoo Mozafari. (2020) The quality of life in epidermolysis bullosa (EB-QoL) questionnaire: Translation, cultural adaptation, and validation into the Farsi language. International Journal of Women's Dermatology 6:4, pages 301-305.
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Sandra Kearney, Ann Donohoe & Eilish McAuliffe. (2020) Living with epidermolysis bullosa: Daily challenges and health‐care needs. Health Expectations 23:2, pages 368-376.
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Rebecca Cross Bodán. (2020) Reframing the Care of Children With Epidermolysis Bullosa Through the Lens of Medical Trauma. Journal of the Dermatology Nurses' Association 12:1, pages 16-23.
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Kristin Iversen, Lill Monica Drivdal, Kristin J. Billaud Feragen & Amy Østertun Geirdal. (2018) Quality of life in adults with lymphedema cholestasis syndrome 1. Health and Quality of Life Outcomes 16:1.
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Marieke H. Heineke, Lydia P.E. der Steen, Rianne M. Korthouwer, J. Joris Hage, Johannes P.M. Langedijk, Joris J. Benschop, Jantine E. Bakema, Jerry W. Slootstra & Marjolein Egmond. (2017) Peptide mimetics of immunoglobulin A (IgA) and FcαRI block IgA‐induced human neutrophil activation and migration. European Journal of Immunology 47:10, pages 1835-1845.
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Aris Angelis, Panos Kanavos, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, Valentin Brodszky, Johann Matthias Graf von der Schulenburg, Karine Chevreul, Ulf Persson & Giovanni Fattore. (2016) Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe. The European Journal of Health Economics 17:S1, pages 31-42.
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In Kyung JeonHye Rang OnSoo-Chan Kim. (2016) Quality of Life and Economic Burden in Recessive Dystrophic Epidermolysis Bullosa. Annals of Dermatology 28:1, pages 6.
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F. Sampogna, S. Tabolli, C. Di Pietro, D. Castiglia, G. Zambruno & D. Abeni. (2013) The evaluation of family impact of recessive dystrophic epidermolysis bullosa using the Italian version of the Family Dermatology Life Quality Index. Journal of the European Academy of Dermatology and Venereology 27:9, pages 1151-1155.
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Vanessa Lys Simas Yamakawa Boeira, Erica Sales Souza, Bruno de Oliveira Rocha, Pedro Dantas Oliveira, Maria de Fátima Santos Paim de Oliveira, Vitória Regina Pedreira de Almeida Rêgo & Ivonise Follador. (2013) Inherited epidermolysis bullosa: clinical and therapeutic aspects. Anais Brasileiros de Dermatologia 88:2, pages 185-198.
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Jean Christopher Chamcheu, Imtiaz A. Siddiqui, Deeba N. Syed, Vaqar M. Adhami, Mirjana Liovic & Hasan Mukhtar. (2011) Keratin gene mutations in disorders of human skin and its appendages. Archives of Biochemistry and Biophysics 508:2, pages 123-137.
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