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Adolescent Health, Medicine and Therapeutics Volume 9, 2018 - Issue

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Original Research

Perceptions and attitudes toward clinical trials in adolescent and young adults with cancer: a systematic review

Victoria Forcina1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada

Branavan Vakeesan1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada

Chelsea Paulo1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada

Laura Mitchell1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada

Jennifer AH Bell2 Joint Center for Bioethics, University of Toronto, Toronto, ON, Canada

Seline Tam1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada

Kate Wang1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada

Abha A Gupta1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada;3 Division of Medical Oncology and Hematology, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada;4 Division of Hematology/Oncology, Hospital for Sick Children, University of Toronto, Toronto, ON, Canada

Jeremy Lewin1 Adolescent and Young Adult Program, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada;3 Division of Medical Oncology and Hematology, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada;5 ONTrac, Peter MacCallum Cancer Centre, Melbourne, VIC, AustraliaCorrespondence[email protected]

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Pages 87-94 | Published online: 13 Jun 2018

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Michele Polfuss, Kim Mooney-Doyle, Mary Keller, Karen S. Gralton, Barbara Giambra & Ashlee Vance. (2023) Developing a Family Resource: Considerations for Family Member Research Participation. Journal of Family Nursing 29:2, pages 202-222.
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Lindsey Camp, Erin CoffmanJuhitha ChinthapatlaKelly Ann BoeyLauren LuxAndrew Smitherman, Michelle L. ManningLisa M. VizerEmily Haines & Carmina G. Valle. (2023) Active Treatment to Survivorship Care: A Mixed-Methods Study Exploring Resource Needs and Preferences of Young Adult Cancer Survivors in Transition. Journal of Adolescent and Young Adult Oncology.
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Amanda M. Gutierrez, Jill O. RobinsonRobin Raesz-MartinezIsabel CanfieldMary A. MajumderSarah ScollonLauren R. DesrosiersRebecca L. Hsu, Wendy Allen-RhoadesD. Williams ParsonsSharon E. PlonAmy L. McGuireJanet Malek. (2023) Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research. Journal of Adolescent and Young Adult Oncology.
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Narelle J McPhee, Claire E Nightingale, Samuel J Harris, Eva Segelov & Eli Ristevski. (2022) Barriers and enablers to cancer clinical trial participation and initiatives to improve opportunities for rural cancer patients: A scoping review. Clinical Trials 19:4, pages 464-476.
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Kamal M. Al-Shami, Wesam S. Ahmed & Karem H. Alzoubi. (2022) Motivators and barriers towards clinical research participation: A population-based survey from an Arab MENA country. PLOS ONE 17:6, pages e0270300.
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Justine A. EllisVajiranee S. MalalasekeraChristie AllanPeter F. ChoongJordan R. HansfordRyan HehirNatasha MorelloSally O'CallaghanLisa OrmeNitya PhillipsonMark A. RosenthalSusan SawyerRobyn StrongLeanne SuperAngela WattChris WilliamsAnne WoollettAlexandra RobertsonJeremy Lewin. (2022) Systems-Level Change to Alleviate Barriers to Cancer Clinical Trial Access for Adolescents and Young Adults in Australia. Journal of Adolescent and Young Adult Oncology 11:2, pages 173-180.
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Renata Abrahão, Elysia M. Alvarez, Austin R. Waters, Crystal C. Romero, Melissa M. Gosdin, Hiba Naz, Brad H. Pollock, Anne C. Kirchhoff & Theresa H. M. Keegan. (2021) A qualitative study of barriers and facilitators to adolescents and young adults’ participation in cancer clinical trials: Oncologist and patient perspectives. Pediatric Blood & Cancer 69:4.
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Nupur Mittal, Aniket Saha, Viswatej Avutu, Varun Monga, David R. Freyer & Michael Roth. (2022) Shared barriers and facilitators to enrollment of adolescents and young adults on cancer clinical trials. Scientific Reports 12:1.
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Alison E. Parker, Tracy M. Scull & Abigail M. Morrison. (2021) DigiKnowIt News : Educating youth about pediatric clinical trials using an interactive, multimedia educational website . Journal of Child Health Care 26:1, pages 139-153.
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Viswatej Avutu, Kathleen A. Lynch, Marie E. Barnett, Jacqueline A. Vera, Julia L. Glade Bender, William D. Tap & Thomas M. Atkinson. (2022) Psychosocial Needs and Preferences for Care among Adolescent and Young Adult Cancer Patients (Ages 15–39): A Qualitative Study. Cancers 14:3, pages 710.
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Edgardo Rodríguez-Torres, Margarita M. González-Pérez & Clemente Díaz-Pérez. (2021) Barriers and facilitators to the participation of subjects in clinical trials: An overview of reviews. Contemporary Clinical Trials Communications 23, pages 100829.
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Rebecca L. Jacobsen, Catherine Fiona Macpherson, Bethann Mangel Pflugeisen & Rebecca H. Johnson. (2021) Care Experience, by Site of Care, for Adolescents and Young Adults With Cancer. JCO Oncology Practice 17:6, pages e817-e826.
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Patrizia Natale, Valeria Saglimbene, Marinella Ruospo, Andrea Matus Gonzalez, Giovanni FM Strippoli, Nicole Scholes-Robertson, Chandana Guha, Jonathan C Craig, Armando Teixeira-Pinto, Tom Snelling & Allison Tong. (2021) Transparency, trust and minimizing burden to increase recruitment and retention in trials: a systematic review. Journal of Clinical Epidemiology 134, pages 35-51.
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Ruth I. Hart, Dorothy Boyle, David A. Cameron, Fiona J. Cowie, Larry Hayward, Nicholas B. Heaney, Angela B. Jesudason & Julia Lawton. (2021) Strategies for improving access to clinical trials by teenagers and young adults with cancer: A qualitative study of health professionals’ views. European Journal of Cancer Care 30:3.
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Rebecca Sheridan, Jacqueline Martin-Kerry, Joanna Hudson, Adwoa Parker, Peter Bower & Peter Knapp. (2020) Why do patients take part in research? An overview of systematic reviews of psychosocial barriers and facilitators. Trials 21:1.
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Ruth I. Hart, David A. Cameron, Fiona J. Cowie, Jeni Harden, Nicholas B. Heaney, David Rankin, Angela B. Jesudason & Julia Lawton. (2020) The challenges of making informed decisions about treatment and trial participation following a cancer diagnosis: a qualitative study involving adolescents and young adults with cancer and their caregivers. BMC Health Services Research 20:1.
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Marilyn M. Schapira, Evelyn M. Stevens, James E. Sharpe, Lauren Hochman, Joseph G. Reiter, Shawna R. Calhoun, Shivani A. Shah, Leonard Charles Bailey, Rochelle Bagatell, Jeffrey H. Silber, Eric Tai & Lamia P. Barakat. (2020) Outcomes among pediatric patients with cancer who are treated on trial versus off trial: A matched cohort study. Cancer 126:15, pages 3471-3482.
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Mohamed‐Eslam F. Mohamed, Natella Rakhmanina & Hazem E. Hassan. (2020) Inclusion of Adolescents With Adults in Phase 3 Clinical Trials: Overview of the Current State and a Call for Action. The Journal of Clinical Pharmacology 60:5, pages 559-562.
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Jeremy Lewin, Jennifer A. H. Bell, Kate Wang, Victoria Forcina, Seline Tam, Amirrtha Srikanthan, Yu-Chung Lin, Nathan Taback, Laura Mitchell & Abha A. Gupta. (2020) Evaluation of Adolescents’ and Young Adults’ Attitudes Toward Participation in Cancer Clinical Trials. JCO Oncology Practice 16:3, pages e280-e289.
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Elizabeth J. Siembida, Holli A. Loomans‐Kropp, Neha Trivedi, Ann O’Mara, Lillian Sung, Irene Tami‐Maury, David R. Freyer & Michael Roth. (2019) Systematic review of barriers and facilitators to clinical trial enrollment among adolescents and young adults with cancer: Identifying opportunities for intervention. Cancer 126:5, pages 949-957.
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Erik Olsman. 2020. Historical and Multidisciplinary Perspectives on Hope. Historical and Multidisciplinary Perspectives on Hope 197 214 .

Jessika Boles & Sarah Daniels. (2019) Researching the Experiences of Children with Cancer: Considerations for Practice. Children 6:8, pages 93.
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Lamia P. BarakatEvelyn StevensYimei LiAnne ReillyJanet A. DeatrickNaomi E. GoldsteinLisa A. Schwartz. (2019) Evaluation of the Pediatric Research Participation Questionnaire for Measuring Attitudes Toward Cancer Clinical Trials Among Adolescents and Young Adults. Journal of Adolescent and Young Adult Oncology 8:4, pages 423-433.
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Perceptions and attitudes toward clinical trials in adolescent and young adults with cancer: a systematic review

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Perceptions and attitudes toward clinical trials in adolescent and young adults with cancer: a systematic review

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