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Original Research

Online information and support needs of young people with cancer: a participatory action research study

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Pages 121-135 | Published online: 17 Sep 2018

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Sarah Lea, Ana Martins, Sue Morgan, Jamie Cargill, Rachel M Taylor & Lorna A Fern. (2019) Health care professional perceptions of online information and support for young people with cancer in the United Kingdom. Adolescent Health, Medicine and Therapeutics 10, pages 103-116.
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Articles from other publishers (20)

Lisa McCann, Christopher Hewitt & Kathryn A McMillan. (2023) Developing an e-Prehabilitation System of Care for Young Adults Diagnosed With Cancer: User-Centered Design Study. JMIR Cancer 9, pages e41441.
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Ivana Martinović, Sung Un Kim & Snježana Stanarević Katavić. (2021) Study of health information needs among adolescents in Croatia shows distinct gender differences in information seeking behaviour. Health Information & Libraries Journal 40:1, pages 70-91.
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Kelsea LeBeau, Sarah Collins, Gaia Zori, Drew Walker, Emily Marchi, Jamie L. Pomeranz & Mark Hart. (2023) Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients. Palliative and Supportive Care, pages 1-12.
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Maria CableLouise SoanesMichael Whelan. (2023) Determining Domains of Practice for Youth Support Co-Coordinator Work in Teenage/Young Adult Cancer Care in United Kingdom. Journal of Adolescent and Young Adult Oncology.
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Paulina Bressel. 2023. Information for a Better World: Normality, Virtuality, Physicality, Inclusivity. Information for a Better World: Normality, Virtuality, Physicality, Inclusivity 126 143 .
Meghan Waterman, Rachel M. Lee, Jacqueline C. Carter & Sheila N. Garland. (2022) Orthorexia symptoms and disordered eating behaviors in young women with cancer. Eating Behaviors 47, pages 101672.
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Eva De Clercq, Michael Rost, Nicolas von der Weid, Marc Ansari & Bernice S. Elger. (2022) To be or not to be in the social media arena? The perspective of healthcare providers working within adolescent and young adult oncology in Switzerland. International Journal of Adolescent Medicine and Health 34:6, pages 417-429.
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Diana Richter, Katharina Clever, Anja Mehnert-Theuerkauf & Antje Schönfelder. (2022) Fear of Recurrence in Young Adult Cancer Patients—A Network Analysis. Cancers 14:9, pages 2092.
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Taryn Allen, Stephanie Reda, Staci Martin, Phoebe Long, Alexis Franklin, Sima Zadeh Bedoya, Lori Wiener & Pamela L. Wolters. (2022) The Needs of Adolescents and Young Adults with Chronic Illness: Results of a Quality Improvement Survey. Children 9:4, pages 500.
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Irit Schwartz-Attias, Haya Raz, Tamar Natanzon-Bracha, Adi Finkelstein & Shulamith Kreitler. (2021) Adolescents With Cancer Need Trustworthy Information and Prefer to Receive It From a Human Source Rather Than From the Internet: A Qualitative Study. Frontiers in Psychology 12.
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Rachel M Taylor, Lorna A Fern, Julie Barber, Faith Gibson, Sarah Lea, Nishma Patel, Stephen Morris, Javier Alvarez-Galvez, Richard Feltbower, Louise Hooker, Ana Martins, Dan Stark, Rosalind Raine & Jeremy S Whelan. (2021) Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme. Programme Grants for Applied Research 9:12, pages 1-82.
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Allison J. Lazard, Meredith K. Reffner Collins, Ashley Hedrick, Lindsey N. Horrell, Tushar Varma, Brad Love, Carmina G. Valle & Catherine Benedict. (2021) Initiation and changes in use of social media for peer support among young adult cancer patients and survivors. Psycho-Oncology 30:11, pages 1859-1865.
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Sarah Lea, Ana Martins, Maria Cable, Lorna A. Fern, Sue Morgan, Louise Soanes, Michael Whelan & Rachel M. Taylor. (2021) Exploring Young People’s Experience of Ending Active Cancer Treatment. Cancer Nursing 44:4, pages 288-294.
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Atlal Abusanad. (2020) “Najia” Story: A WhatsApp Support Group For Patients With Breast Cancer. Innovations in Digital Health, Diagnostics, and Biomarkers 1:1, pages 16-18.
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Signe Hanghøj, Kirsten A Boisen, Maiken Hjerming & Helle Pappot. (2021) Adolescents’ and young adults’ experiences of a prototype cancer smartphone app. DIGITAL HEALTH 7, pages 205520762199725.
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Eva De ClercqMichael RostFabienne Gumy-PauseTamara DieschVittoria EspeliBernice S. Elger. (2020) Moving Beyond the Friend-Foe Myth: A Scoping Review of the Use of Social Media in Adolescent and Young Adult Oncology. Journal of Adolescent and Young Adult Oncology 9:5, pages 561-571.
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Grace Davies, Phyllis Butow, Christine E. Napier, Nicci Bartley, Ilona Juraskova, Bettina Meiser, Mandy L. Ballinger, David M. Thomas, Timothy E. Schlub & Megan C. Best. (2020) Advanced Cancer Patient Knowledge of and Attitudes towards Tumor Molecular Profiling. Translational Oncology 13:9, pages 100799.
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Rachel M. Taylor, Jeremy S. Whelan, Faith Gibson, Sue Morgan & Lorna A. Fern. (2018) Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement. Research Involvement and Engagement 4:1.
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Sarah Lea, Ana Martins, Matt Bassett, Maria Cable, Gary Doig, Lorna A. Fern, Sue Morgan, Louise Soanes, Sam Smith, Michael Whelan & Rachel M. Taylor. (2018) Issues experienced and support provided to adolescents and young adults at the end of active treatment for cancer: A rapid review of the literature. European Journal of Cancer Care 27:6, pages e12972.
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Lorna A. Fern & Archie Bleyer. (2018) Dynamics and Challenges of Clinical Trials in Adolescents and Young Adults With Cancer. The Cancer Journal 24:6, pages 307-314.
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