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Adolescent Health, Medicine and Therapeutics Volume 5, 2014 - Issue
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Original Research

Experiences of health care transition voiced by young adults with type 1 diabetes: a qualitative study

Katharine C Garvey1 Division of Endocrinology, Boston Children’s Hospital, Boston, MA, USA;5 Harvard Medical School, Boston, MA, USACorrespondence[email protected]
,
Margaret G Beste2 Adult Section, Joslin Diabetes Center, Boston, MA, USA
,
Donna Luff3 Institute for Professionalism and Ethical Practice, Boston Children’s Hospital, Boston, MA, USA;5 Harvard Medical School, Boston, MA, USA
,
Astrid Atakov-Castillo2 Adult Section, Joslin Diabetes Center, Boston, MA, USA
,
Howard A Wolpert2 Adult Section, Joslin Diabetes Center, Boston, MA, USA;5 Harvard Medical School, Boston, MA, USA
&
Marilyn D Ritholz4 Behavioral and Mental Health Unit, Joslin Diabetes Center, Boston, MA, USA;5 Harvard Medical School, Boston, MA, USA;6 Department of Psychiatry, Boston Children’s Hospital, Boston, MA, USA
Pages 191-198 | Published online: 20 Oct 2014

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Yueh-Tao Chiang, Hsing-Yi Yu, Fu-Sung Lo, Chi-Wen Chen, Tzu-Ting Huang, Chi-Wen Chang & Philip Moons. (2020) Emergence of a butterfly: the life experiences of type 1 diabetes Taiwanese patients during the 16–25 years old transition period. International Journal of Qualitative Studies on Health and Well-being 15:1.
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Karina Kudahl Hansen & Annesofie Lunde Jensen. (2017) Partnership in transition: Experiences of adolescents with Type 1 diabetes. International Diabetes Nursing 14:2-3, pages 52-59.
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Maureen Monaghan & Katherine Baumann. (2016) Type 1 diabetes: addressing the transition from pediatric to adult-oriented health care. Research and Reports in Endocrine Disorders 6, pages 31-40.
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Articles from other publishers (43)

Chiara Fioretti & Chiara Mugnaini. (2022) Living with type 1 diabetes mellitus in emerging adulthood: A qualitative study. British Journal of Health Psychology 27:4, pages 1226-1240.
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Katherine South, Maureen George, Hossein Sadeghi, Victoria Piane & Arlene Smaldone. (2022) Moving up: Healthcare transition experiences of adolescents and young adults with cystic fibrosis. Journal of Pediatric Nursing 65, pages 116-123.
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Saad Rahmat, Ryan O'Connor & Zheala Qayyum. (2022) Transitional-Age Youth With Chronic Medical and Mental Health Conditions. Psychiatric Annals 52:6, pages 227-231.
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Jennifer M. Ladd, Jonathan Reeves‐Latour, Kaberi Dasgupta, Lorraine E Bell, Nadia Anjachak & Meranda Nakhla. (2022) Toward a better understanding of transition from paediatric to adult care in type 1 diabetes: A qualitative study of adolescents. Diabetic Medicine 39:5.
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Wariya Wongyai, Patchaya Boonchaya‐anant, Nitchakarn Laichuthai, Suphab Aroonparkmongkol, Varaporn Veerapong, Suwaputr Leepulsup, Chantaporn Teeratongdee, Nuntawan Anunapibut & Taninee Sahakitrungruang. (2022) Outcomes of a multidisciplinary transition clinic for youth with type 1 diabetes. Pediatrics International 64:1.
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Yuehtao Chiang, Peikwei Tsay, Chiwen Chen, Chienlung Hsu, Hsingyi Yu, Chiwen Chang, Fusung Lo & Philip Moons. (2021) A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers. International Journal of Environmental Research and Public Health 18:13, pages 7149.
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Joseph M. W. S. Leung, Tricia S. Tang, Catherine E. Lim, Lori M. Laffel & Shazhan Amed. (2020) The four I's of adolescent transition in type 1 diabetes care: A qualitative study. Diabetic Medicine 38:7.
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Jae Hyun Kim & Jae-Ho Yoo. (2021) A national survey of transition from pediatric to adult healthcare providers for adolescents and young adults with type 1 diabetes: perspectives of pediatric endocrinologists in Korea. Annals of Pediatric Endocrinology & Metabolism 26:2, pages 112-117.
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Shadan Ashrafi, Deanne Taylor & Tricia S. Tang. (2021) Moving beyond ‘don't ask, don't tell’: Mental health needs of adults with type 1 diabetes in rural and remote regions of British Columbia. Diabetic Medicine 38:5.
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Sonia Butalia, Susan G. Crawford, K. Ashlee McGuire, David K. Dyjur, Julia R. Mercer & Danièle Pacaud. (2021) Improved transition to adult care in youth with type 1 diabetes: a pragmatic clinical trial. Diabetologia 64:4, pages 758-766.
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Maureen Varty, Barbara Speller-Brown, Leslie Phillips & Katherine Patterson Kelly. (2020) Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis. Journal of Pediatric Nursing 55, pages 201-210.
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Sonia Butalia, K. Ashlee McGuire, David Dyjur, Julia Mercer & Daniele Pacaud. (2020) Youth with diabetes and their parents' perspectives on transition care from pediatric to adult diabetes care services: A qualitative study. Health Science Reports 3:3.
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Maureen Varty & Lori L. Popejoy. (2019) A Systematic Review of Transition Readiness in Youth with Chronic Disease. Western Journal of Nursing Research 42:7, pages 554-566.
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Eveline R. Goethals, Rebecca O. La Banca, Peter W. Forbes, Gabriela H. Telo, Lori M. Laffel & Katharine C. Garvey. (2020) Health Care Transition in Type 1 Diabetes: Perspectives of Diabetes Care and Education Specialists Caring for Young Adults. The Diabetes Educator 46:3, pages 252-260.
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Paula Raube. (2020) Lessons Learned in the Development and Implementation of a Diabetes Adolescent Transition Program. Journal of Pediatric Nursing 51, pages 119-120.
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Ashby F. Walker, Mark A. Atkinson, Alexandra M. Lee, Gina Aulisio, Todd M. Brusko, Michael J. Haller & Desmond A. Schatz. (2019) Teaching Type 1 Diabetes: Creating Stakeholder Engagement in Biomedical Careers Through Undergraduate Research Curriculum. Medical Science Educator 30:1, pages 69-73.
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Jennifer K. Raymond, Mark W. Reid, Steven Fox, Jaquelin Flores Garcia, Debbie Miller, Daniel Bisno, Jennifer L. Fogel, Subramanian Krishnan & Elizabeth A. Pyatak. (2020) Adapting home telehealth group appointment model (CoYoT1 clinic) for a low SES, publicly insured, minority young adult population with type 1 diabetes. Contemporary Clinical Trials 88, pages 105896.
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Brandy A. Wicklow & Elizabeth A. C. Sellers. 2020. Behavioral Diabetes. Behavioral Diabetes 199 212 .
Imelda Coyne, Aisling Sheehan, Emily Heery & Alison E. While. (2019) Healthcare transition for adolescents and young adults with long‐term conditions: Qualitative study of patients, parents and healthcare professionals’ experiences. Journal of Clinical Nursing 28:21-22, pages 4062-4076.
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Neesha Ramchandani, Niobe Way, Gail D’Eramo Melkus & Susan Sullivan-Bolyai. (2019) Challenges to Diabetes Self-Management in Emerging Adults With Type 1 Diabetes. The Diabetes Educator 45:5, pages 484-497.
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Elisabeth Iversen, Beate‐Christin H. Kolltveit, Ingvild Hernar, Jan Mårtensson & Anne Haugstvedt. (2019) Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes. Scandinavian Journal of Caring Sciences 33:3, pages 723-730.
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Gayeong Kim, Eun Kyoung Choi, Hee Soon Kim, Heejung Kim & Ho-Seong Kim. (2019) Healthcare Transition Readiness, Family Support, and Self-management Competency in Korean Emerging Adults with Type 1 Diabetes Mellitus. Journal of Pediatric Nursing 48, pages e1-e7.
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Jennifer Saylor, Kathleen M. Hanna & Christina J. Calamaro. (2019) Experiences of College Students Who Are Newly Diagnosed With Type 1 Diabetes Mellitus. Journal of Pediatric Nursing 44, pages 74-80.
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Maureen Monaghan, Elizabeth A. Pyatak & Jennifer Raymond. 2019. Transitioning from Pediatric to Adult Care in Endocrinology. Transitioning from Pediatric to Adult Care in Endocrinology 117 137 .
Courtney N. Sandler & Katharine Garvey. 2019. Transitioning from Pediatric to Adult Care in Endocrinology. Transitioning from Pediatric to Adult Care in Endocrinology 77 95 .
Anastasia Albanese-O'Neill, Giovanna Beauchamp, Nicole Thomas, Sarah C Westen, Nicole Johnson, Desmond Schatz & Michael J Haller. (2018) Transition Education for Young Adults With Type 1 Diabetes: Pilot Feasibility Study for a Group Telehealth Intervention. JMIR Diabetes 3:4, pages e10909.
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T. Sanders, J. Elliott, P. Norman, B. Johnson & S. Heller. (2018) Experiences of self-management among young adults with Type 1 diabetes in the context of a structured education programme: a qualitative study. Diabetic Medicine 35:11, pages 1531-1537.
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Navneet Singh & Patrick J McDonald. (2018) Transitioning in hydrocephalus: Current practices in Canadian Paediatric Neurosurgery centres. Paediatrics & Child Health 23:7, pages e150-e155.
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S. Michaud, K. Dasgupta, L. Bell, J.-F. Yale, N. Anjachak, S. Wafa & M. Nakhla. (2018) Adult care providers’ perspectives on the transition to adult care for emerging adults with Type 1 diabetes: a cross-sectional survey. Diabetic Medicine 35:7, pages 846-854.
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Silvia Potì, Francesca Emiliani & Laura Palareti. (2017) Subjective Experience of Illness Among Adolescents and Young Adults With Diabetes. Journal of Patient Experience 5:2, pages 140-146.
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Mark W. ReidSubramanian KrishnanCari BergetCindy CainJohn “Fred” ThomasGeorgeanna J. KlingensmithJennifer K. Raymond. (2018) CoYoT1 Clinic: Home Telemedicine Increases Young Adult Engagement in Diabetes Care. Diabetes Technology & Therapeutics 20:5, pages 370-379.
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Shivani Agarwal, Katharine C. Garvey, Jennifer K. Raymond & Mark H. Schutta. (2017) Perspectives on care for young adults with type 1 diabetes transitioning from pediatric to adult health systems: A national survey of pediatric endocrinologists. Pediatric Diabetes 18:7, pages 524-531.
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Meranda Nakhla, Lorraine E Bell, Sarah Wafa & Kaberi Dasgupta. (2017) Improving the transition from pediatric to adult diabetes care: the pediatric care provider’s perspective in Quebec, Canada. BMJ Open Diabetes Research & Care 5:1, pages e000390.
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Jennifer K. Raymond. (2017) Models of Care for Adolescents and Young Adults with Type 1 Diabetes in Transition: Shared Medical Appointments and Telemedicine. Pediatric Annals 46:5.
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Shivani AgarwalJennifer K. RaymondMark H. SchuttaSerena CardilloVictoria A. MillerJudith A. Long. (2016) An Adult Health Care–Based Pediatric to Adult Transition Program for Emerging Adults With Type 1 Diabetes. The Diabetes Educator 43:1, pages 87-96.
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Marlene Taube-Schiff & Shira Yufe. 2017. Psychiatric Care in Severe Obesity. Psychiatric Care in Severe Obesity 275 285 .
R. Sakr, O. Dupuy, A. Voican, L. Pietri & D. Huet. (2016) Difficultés de prise en charge de jeunes diabétiques en transition. Médecine des Maladies Métaboliques 10:8, pages 763-770.
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EunSeok Cha, James M. Crowe, Betty J. Braxter & Bonnie Mowinski Jennings. (2016) Understanding How Overweight and Obese Emerging Adults Make Lifestyle Choices. Journal of Pediatric Nursing 31:6, pages e325-e332.
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Jennifer K. RaymondCari L. BergetKimberly A. DriscollKaitlin KetchumCynthia CainJohn F. “Fred” Thomas. (2016) CoYoT1 Clinic: Innovative Telemedicine Care Model for Young Adults with Type 1 Diabetes. Diabetes Technology & Therapeutics 18:6, pages 385-390.
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Stacy E. Croteau, Maura Padula, Kate Quint, Loren D'Angelo & Ellis J. Neufeld. (2016) Center-Based Quality Initiative Targets Youth Preparedness for Medical Independence: HEMO-Milestones Tool in a Comprehensive Hemophilia Clinic Setting . Pediatric Blood & Cancer 63:3, pages 499-503.
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P. Jacquin, S. Loison, E. Le Roux, C. Rocaboy, S. Guilmin-Crépon & N. Tubiana-Rufi. (2015) Adolescents et jeunes adultes atteints de diabète : réussir la transition de la pédiatrie à la médecine d’adulte. Médecine des Maladies Métaboliques 9:7, pages 661-667.
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Mary K. Findley, EunSeok Cha, Eugene Wong & Melissa Spezia Faulkner. (2015) A Systematic Review of Transitional Care for Emerging Adults with Diabetes. Journal of Pediatric Nursing 30:5, pages e47-e62.
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Steve Chaplin. (2015) Literature Review: Transition From Paediatric to Adult Services in Haemophilia. The Journal of Haemophilia Practice 2:2, pages 29-51.
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