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International Journal of Chronic Obstructive Pulmonary Disease Volume 14, 2019 - Issue

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Commentary

Patient registries for home oxygen research and evaluation

Yves Lacasse1 Research Center, Quebec University Institute of Cardiology and Pulmonology, Laval University, Québec, QC, CanadaCorrespondence[email protected]

Jerry A Krishnan2 Division of Pulmonary, Critical Care, Sleep and Allergy, Department of Medicine, University of Illinois at Chicago, Chicago, IL, USA

François Maltais1 Research Center, Quebec University Institute of Cardiology and Pulmonology, Laval University, Québec, QC, Canada

Magnus Ekström3 Faculty of Medicine, Department of Clinical Sciences Lund, Respiratory Medicine and Allergology, Lund University, Lund, Sweden

Pages 1299-1304 | Published online: 18 Jun 2019

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Julie McMullan, Ashleen L. Crowe, Caitlin Bailie, Kerry Moore, Lauren S. McMullan, Nahid Shamandi, Helen McAneney & Amy Jayne McKnight. (2020) Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate. Orphanet Journal of Rare Diseases 15:1.
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