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Original Research

Lack of information and access to advanced treatment for Parkinson’s disease patients

Pages 433-439 | Published online: 13 Dec 2011

Keep up to date with the latest research on this topic with citation updates for this article.

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Angelo Antonini, A. Jon Stoessl, Leah S. Kleinman, Anne M. Skalicky, Thomas S. Marshall, Kavita R. Sail, Koray Onuk & Per Lars Anders Odin. (2018) Developing consensus among movement disorder specialists on clinical indicators for identification and management of advanced Parkinson’s disease: a multi-country Delphi-panel approach. Current Medical Research and Opinion 34:12, pages 2063-2073.
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Stephen W Pedersen, Martin Suedmeyer, Louis W C Liu, Dirk Domagk, Alison Forbes, Lars Bergmann, Koray Onuk, Ashley Yegin & Teus van Laar. (2017) The role and structure of the multidisciplinary team in the management of advanced Parkinson’s disease with a focus on the use of levodopa–carbidopa intestinal gel. Journal of Multidisciplinary Healthcare 10, pages 13-27.
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Articles from other publishers (39)

Irene A. Malaty, Pablo Martinez-Martin, K. Ray Chaudhuri, Per Odin, Matej Skorvanek, Joohi Jimenez-Shahed, Michael J. Soileau, Susanna Lindvall, Josefa Domingos, Sarah Jones, Ali Alobaidi, Yash J. Jalundhwala, Prasanna L. Kandukuri, Koray Onuk, Lars Bergmann, Samira Femia, Michelle Y. Lee, Jack Wright & Angelo Antonini. (2022) Does the 5–2-1 criteria identify patients with advanced Parkinson's disease? Real-world screening accuracy and burden of 5–2-1-positive patients in 7 countries. BMC Neurology 22:1.
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Alessandro Stefani, Alessandro Tessitore, Nicola Tambasco, Giovanni Cossu, Maria Gabriella Ceravolo, Giovanni Defazio, Francesca Morgante, Silvia Ramat, Gabriella Melzi, Giuliana Gualberti, Rocco Merolla, Koray Onuk & Leonardo Lopiano. (2022) Criteria for identification of advanced Parkinson’s disease: the results of the Italian subgroup of OBSERVE-PD observational study. BMC Neurology 22:1.
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Tove Lise Nielsen, Naja Benigna Kruse, Anita Haahr, Ellen Gabrielsen Hjelle, Line Kildal Bragstad, Ana Palmar‐Santos, Maria Victoria Navarta‐Sánchez, Azucena Pedraz‐Marcos, Sandra Bartolomeu Pires, Helen C. Roberts & Mari Carmen Portillo. (2022) Exploring health and social services in Denmark, Norway, Spain and the United Kingdom for the development of Parkinson's care pathways. A document analysis. Health & Social Care in the Community 30:6.
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Ria Shah, Joy Read, Nathan Davies, Danielle Nimmons, Jennifer Pigott, Anette Schrag, Kate Walters & Megan Armstrong. (2022) People with Parkinson’s perspectives and experiences of self-management: Qualitative findings from a UK study. PLOS ONE 17:9, pages e0273428.
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József Attila Szász, Viorelia Adelina Constantin, Károly Orbán-Kis, Ligia Ariana Bancu, Simona Maria Bataga, Marius Ciorba, Előd Nagy, Mircea Radu Neagoe, István Mihály, Róbert Máté Szász, Krisztina Kelemen, Mihaela Simu & Szabolcs Szatmári. (2022) Levodopa-Carbidopa Intestinal Gel in Advanced Parkinson’s Disease: Observations and Dilemmas after 10 Years of Real-Life Experience. Pharmaceutics 14:6, pages 1115.
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Zhao H.K. Goh, Julia L.Y. Cheong, Connie Marras, Caroline M. Tanner, Meike Kasten, Amos D. Korczyn, Lana Chahine, Raymond Lo & Alastair J. Noyce. (2022) Surveying Global Availability of Parkinson’s Disease Treatment. Journal of Parkinson's Disease 12:3, pages 1023-1034.
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Angelo Antonini, Rajesh Pahwa, Per Odin, Tove Henriksen, Michael J. Soileau, Ramon Rodriguez-Cruz, Stuart H. Isaacson, Aristide Merola, Susanna Lindvall, Josefa Domingos, Ali Alobaidi, Yash J. Jalundhwala, Prasanna L. Kandukuri, Juan Carlos Parra, Pavnit K. Kukreja, Koray Onuk, Lars Bergmann, James Pike & K. Ray Chaudhuri. (2022) Psychometric Properties of Clinical Indicators for Identification and Management of Advanced Parkinson’s Disease: Real-World Evidence From G7 Countries. Neurology and Therapy 11:1, pages 303-318.
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Angelo Antonini, Per Odin, Peter Schmidt, Fernando Cubillos, David G. Standaert, Tove Henriksen, Joohi Jimenez-Shahed, Ali Alobaidi, Yash J. Jalundhwala, Yanjun Bao, Jorge Zamudio, Juan Carlos Parra, Pavnit Kukreja, Koray Onuk, Anne M. Skalicky, Leah Kleinman, Eddie Jones, Sharon Metz & Hubert H. Fernandez. (2021) Validation and clinical value of the MANAGE-PD tool: A clinician-reported tool to identify Parkinson's disease patients inadequately controlled on oral medications. Parkinsonism & Related Disorders 92, pages 59-66.
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Jenny M. Norlin, Michael Willis, Ulf Persson, Emelie Andersson, Sven Pålhagen & Per Odin. (2021) Swedish guidelines for device‐aided therapies in Parkinson's disease —Economic evaluation and implementation. Acta Neurologica Scandinavica 144:2, pages 170-178.
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Angelo Antonini, Per Odin, Rajesh Pahwa, Jason Aldred, Ali Alobaidi, Yash J. Jalundhwala, Pavnit Kukreja, Lars Bergmann, Sushmitha Inguva, Yanjun Bao & K. Ray Chaudhuri. (2021) The Long-Term Impact of Levodopa/Carbidopa Intestinal Gel on ‘Off’-time in Patients with Advanced Parkinson’s Disease: A Systematic Review. Advances in Therapy 38:6, pages 2854-2890.
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Francesca Morgante, Valentina Oppo, Margherita Fabbri, Enrica Olivola, Chiara Sorbera, Rosa De Micco, Giovanna Chiara Ielo, Fabiana Colucci, Salvatore Bonvegna, Alessio Novelli, Nicola Modugno, Mariachiara Sensi, Maurizio Zibetti, Leonardo Lopiano, Alessandro Tessitore, Manuela Pilleri, Roberto Cilia, Antonio E. Elia, Roberto Eleopra, Lucia Ricciardi & Giovanni Cossu. (2020) Levodopa–carbidopa intrajejunal infusion in Parkinson’s disease: untangling the role of age. Journal of Neurology 268:5, pages 1728-1737.
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D. Santos-García, T. de Deus Fonticoba, E. Suárez Castro, A. Aneiros Díaz & D. McAfee. (2020) 5-2-1 Criteria: A Simple Screening Tool for Identifying Advanced PD Patients Who Need an Optimization of Parkinson’s Treatment. Parkinson's Disease 2020, pages 1-6.
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Hayrettin O. Gülcan & Ilkay E. Orhan. (2020) The Main Targets Involved in Neuroprotection for the Treatment of Alzheimer’s Disease and Parkinson Disease. Current Pharmaceutical Design 26:4, pages 509-516.
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Elisa Montanaro, Carlo Alberto Artusi, Maurizio Zibetti & Leonardo Lopiano. (2019) Complex therapies for advanced Parkinson’s disease: what is the role of doctor-patient communication?. Neurological Sciences 40:11, pages 2357-2364.
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Frouke A. P. Nijhuis, Lieneke van den Heuvel, Bastiaan R. Bloem, Bart Post & Marjan J. Meinders. (2019) The Patient's Perspective on Shared Decision-Making in Advanced Parkinson's Disease: A Cross-Sectional Survey Study. Frontiers in Neurology 10.
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Melissa J. Armstrong, Tara Rastgardani, Anna R. Gagliardi & Connie Marras. (2019) Barriers and facilitators of communication about off periods in Parkinson’s disease: Qualitative analysis of patient, carepartner, and physician Interviews. PLOS ONE 14:4, pages e0215384.
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Nataliya Titova, Pablo Martinez-Martin, Elena Katunina & K. Ray Chaudhuri. (2017) Advanced Parkinson’s or “complex phase” Parkinson’s disease? Re-evaluation is needed. Journal of Neural Transmission 124:12, pages 1529-1537.
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Max Lange, Josef Mauerer, Jürgen Schlaier, Annette Janzen, Florian Zeman, Ulrich Bogdahn, Alexander Brawanski & Andreas Hochreiter. (2017) Underutilization of deep brain stimulation for Parkinson’s disease? A survey on possible clinical reasons. Acta Neurochirurgica 159:5, pages 771-778.
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Beriwan Ezat, Lasse Pihlstrøm, Jan Aasly, Ole-Bjørn Tysnes, Arild Egge & Espen Dietrichs. (2017) Bruk av avansert behandling ved Parkinsons sykdom i Norge. Tidsskrift for Den norske legeforening 137:9, pages 619-623.
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Frouke A.P. Nijhuis, Jolien van Heek, Bastiaan R. Bloem, Bart Post & Marjan J. Faber. (2016) Choosing an Advanced Therapy in Parkinson’s Disease; is it an Evidence-Based Decision in Current Practice?. Journal of Parkinson's Disease 6:3, pages 533-543.
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