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Original Research

Adult children of parents with young-onset dementia narrate the experiences of their youth through metaphors

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Pages 245-254 | Published online: 27 May 2015

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (6)

Summer C. Martin, Allison M. Scott & Anne M. Stone. (2023) Women’s Metaphors About BRCA Gene Testing and How They Can Inform Health Communication Theory and Practice. Health Communication 0:0, pages 1-13.
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Courtney Poole & Tom G. Patterson. (2022) Experiences and Needs of Children Who Have a Parent with Young Onset Dementia: A Meta-ethnographic Review. Clinical Gerontologist 45:4, pages 750-762.
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Kirsten Thorsen & Aud Johannessen. (2021) Metaphors for the Meaning of Caring for a Spouse with Dementia. Journal of Multidisciplinary Healthcare 14, pages 181-195.
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Lilian Hartman, Crispin Jenkinson & David Morley. (2020) Young People’s Response to Parental Neurological Disorder: A Structured Review. Adolescent Health, Medicine and Therapeutics 11, pages 39-51.
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Kirsten Thorsen, Marcia C. N. Dourado & Aud Johannessen. (2020) Awareness of dementia and coping to preserve quality of life: a five-year longitudinal narrative study. International Journal of Qualitative Studies on Health and Well-being 15:1.
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Articles from other publishers (13)

Maddison Wiggins, Alison McEwen & Adrienne Sexton. (2023) Young-onset dementia: A systematic review of the psychological and social impact on relatives. Patient Education and Counseling 107, pages 107585.
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Jeroen Bruinsma, Kirsten Peetoom, Frans Verhey, Christian Bakker & Marjolein de Vugt. (2022) Behind closed doors. A case study exploring the lived experiences of a family of a person with the behavioral variant of frontotemporal dementia. Dementia 21:8, pages 2569-2583.
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Emma Putland. (2022) The (in)accuracies of floating leaves: How people with varying experiences of dementia differently position the same visual metaphor. Dementia 21:5, pages 1471-1487.
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Adrienne Sexton & Paul A. James. (2021) Metaphors and why these are important in all aspects of genetic counseling. Journal of Genetic Counseling 31:1, pages 34-40.
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Silke Hoppe. (2021) Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction. Dementia 21:1, pages 196-213.
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Åke Grundberg, Jonas Sandberg & Åsa G Craftman. (2021) Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review. Dementia 20:8, pages 2933-2956.
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Anna V Cartwright, Charlotte R Stoner, Richard D Pione & Aimee Spector. (2021) The experiences of those affected by parental young onset dementia: A qualitative systematic literature review. Dementia 20:7, pages 2618-2639.
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Ilaria Chirico, Giovanni Ottoboni, Marco Valente & Rabih Chattat. (2021) Children and young people's experience of parental dementia: A systematic review. International Journal of Geriatric Psychiatry 36:7, pages 975-992.
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Annica Lövenmark. (2019) How Children of Parents With Dementia Can Make Their Subject Positions Understandable and Meaningful. Qualitative Health Research 30:5, pages 704-716.
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Caroline Rosenthal Gelman & Kate Rhames. (2016) In their own words: The experience and needs of children in younger-onset Alzheimer's disease and other dementias families. Dementia 17:3, pages 337-358.
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Mel Hall & Pat Sikes. (2016) From “What the Hell Is Going on?” to the “Mushy Middle Ground” to “Getting Used to a New Normal”: Young People’s Biographical Narratives Around Navigating Parental Dementia. Illness, Crisis & Loss 26:2, pages 124-144.
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Pat Sikes & Mel Hall. (2016) “It was then that I thought ‘whaat? This is not my Dad”: The implications of the ‘still the same person’ narrative for children and young people who have a parent with dementia. Dementia 17:2, pages 180-198.
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Mel Hall & Pat Sikes. (2017) “It Would Be Easier If She’d Died”: Young People With Parents With Dementia Articulating Inadmissible Stories. Qualitative Health Research 27:8, pages 1203-1214.
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