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Original Research

A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care

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Pages 2649-2660 | Published online: 12 Dec 2018

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (2)

Delphine Hoegy, Ronald Guilloux, Nathalie Bleyzac, Alexandra Gauthier-Vasserot, Giovanna Cannas, Yves Bertrand, Claude Dussart & Audrey Janoly-Dumenil. (2022) Pediatric-Adult Care Transition: Perceptions of Adolescent and Young Adult Patients with Sickle Cell Disease and Their Healthcare Providers. Patient Preference and Adherence 16, pages 2727-2737.
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Mercè Vidal Flor, Margarida Jansà i Morató, Carmen Yoldi Vergara, Roque Cardona-Hernández, Marga Giménez Alvárez, Ignacio Conget Donlo & Pilar Isla Pera. (2022) Type 1 Diabetes Patient Experiences Before and After Transfer from a Paediatric to an Adult Hospital. Patient Preference and Adherence 16, pages 2229-2246.
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Jennifer Mooney, Anna Dominic, Alyona Lewis & Roger Chafe. (2023) Young adults with eating disorders perspectives on educational resources to support the transition into adult medicine: a thematic analysis. Journal of Eating Disorders 11:1.
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Monique Cassidy, Shelley Doucet, Alison Luke, Alex Goudreau & Lillian MacNeill. (2022) Improving the transition from paediatric to adult healthcare: a scoping review on the recommendations of young adults with lived experience. BMJ Open 12:12, pages e051314.
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Saman Fouladirad, Alexander CheongAshutosh Singhal, Mandeep S. Tamber & Patrick J. McDonald. (2022) A qualitative study of transitioning patients with hydrocephalus from pediatric to adult care: fear of uncertainty, communication gaps, independence, and loss of relationships. Journal of Neurosurgery: Pediatrics 30:1, pages 1-7.
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Kelly Haskard-Zolnierek, Courtney Wilson, Julia Pruin, Rebecca Deason & Krista Howard. (2021) The Relationship Between Brain Fog and Medication Adherence for Individuals With Hypothyroidism. Clinical Nursing Research 31:3, pages 445-452.
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Sandrine Mayen, Marie-Claude Lagouanelle-Simeoni, José Cote, David Fonte, Rachel Reynaud, Stéphanie Gentile & Sébastien Colson. (2021) Educational needs and type 1 diabetes mellitus: The voices of adolescents, parents and caregivers. Health Education Journal 81:2, pages 226-237.
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Sarah Ofori‐Ansah, Michelle Evans, Janice Jones & Nicola Thomas. (2021) Decision‐making experiences of young adults with long‐term conditions. Journal of Renal Care 48:1, pages 24-40.
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Xi Peng, Xinhong Guo, Hongmei Li, Dan Wang, Chenxi Liu & Yaling Du. (2022) A Qualitative Exploration of Self-Management Behaviors and Influencing Factors in Patients With Type 2 Diabetes. Frontiers in Endocrinology 13.
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Hanan AlBurno, Francine Schneider, Hein de Vries, Dabia Al Mohannadi & Liesbeth Mercken. (2022) Determinants of adherence to insulin and blood glucose monitoring among adolescents and young adults with type 1 diabetes in Qatar: a qualitative study. F1000Research 11, pages 907.
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Claudia Barned, Alexis Fabricius, Alain Stintzi, David R Mack & Kieran C O’Doherty. (2021) “The Rest of my Childhood was Lost”: Canadian Children and Adolescents’ Experiences Navigating Inflammatory Bowel Disease. Qualitative Health Research 32:1, pages 95-107.
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Hélène Mellerio, Paul Jacquin & Enora Le Roux. (2021) Accompagner la transition des jeunes avec une maladie chronique. médecine/sciences 37:10, pages 888-894.
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Slávka Mrosková, Eleonóra Klímová, Ľudmila Majerníková & Ľubomíra Tkáčová. (2021) Quality of Life of Children and Adolescents with Multiple Sclerosis—A Literature Review of the Quantitative Evidence. International Journal of Environmental Research and Public Health 18:16, pages 8645.
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Delphine Hoegy, Nathalie Bleyzac, Alexandra Gauthier-Vasserot, Giovanna Cannas, Angélique Denis, Arnaud Hot, Yves Bertrand, Pauline Occelli, Sandrine Touzet, Claude Dussart & Audrey Janoly-Dumenil. (2020) Impact of a paediatric-adult care transition programme on the health status of patients with sickle cell disease: study protocol for a randomised controlled trial (the DREPADO trial). Trials 21:1.
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Maureen Varty, Barbara Speller-Brown, Leslie Phillips & Katherine Patterson Kelly. (2020) Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis. Journal of Pediatric Nursing 55, pages 201-210.
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Delphine Hoegy, Ronald Guilloux, Nathalie Bleyzac, Alexandra Gauthier‐Vasserot, Giovanna Cannas, Yves Bertrand, Arnaud Hot, Claude Dussart & Audrey Janoly‐Dumenil. (2020) Sickle cell disease perceptions of caregivers, adolescent, and adult patients: Barriers and facilitators to medical care adherence. Journal of Advanced Nursing 76:9, pages 2391-2400.
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Marta Vazquez‐Ortiz, Elizabeth Angier, Katharina Blumchen, Pasquale Comberiati, Bettina Duca, Audrey DunnGalvin, Claudia Gore, Valérie Hox, Britt Jensen, Helena Pite, Alexandra F. Santos, Silvia Sanchez, Cherry Alviani, Teresa Garriga‐Baraut, Rebecca Knibb, Charlotte G. Mortz, M. Hazel Gowland, Frans Timmermans & Graham Roberts. (2020) Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review. Allergy 75:8, pages 1850-1880.
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Maxime Morsa, Rémi Gagnayre, Marie-Pascale Pomey, Carole Deccache & Pierre Lombrail. (2019) Developmentally appropriate patient education during transition: A study of healthcare providers’ and parents’ perspective. Health Education Journal 79:4, pages 377-389.
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Ruheena Sangrar, Susan Maureen Docherty-Skippen & Karen Beattie. (2019) Blended face-to-face and online/computer-based education approaches in chronic disease self-management: A critical interpretive synthesis. Patient Education and Counseling 102:10, pages 1822-1832.
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