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Rubén Cuesta-Barriuso, Elena Donoso-Úbeda, Javier Meroño-Gallut, Roberto Ucero-Lozano & Raúl Pérez-Llanes. (2022) Hemophilic Arthropathy: Barriers to Early Diagnosis and Management. Journal of Blood Medicine 13, pages 589-601.
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Ting Zhou, Shuyue Wang, Yao Zhang, Runhui Wu & Hongchao Li. (2023) Cost‐effectiveness analysis of recombinant factor IX Fc fusion protein compared with recombinant factor IX for the treatment of moderate–severe to severe hemophilia B in China. Pediatric Blood & Cancer 70:6.
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Christina Schnohr, Ola Ekholm, Lone Hvitfeldt Poulsen, Lars Lehrmann, Terkel Andersen, Eva Funding, Karen Binger Holm & Jakob Bue Bjorner. (2023) Health and quality of life of patients with haemophilia: A national study of 124 Danish men. Haemophilia 29:2, pages 538-544.
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Valérie‐Anne Chantrain, Catherine Lambert, Patrick De Smet, Sébastien Lobet, Anthe Foubert, Mira Meeus, Cedric Hermans & Nathalie Anne Roussel. (2023) Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: A national cross‐sectional survey. Haemophilia 29:2, pages 521-529.
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Richard Huan Xu, Ming Lu, Shuyang Zhang & Dong Dong. (2022) EQ-5D and SF-6D health utility scores in patients with spinal and bulbar muscular atrophy. The European Journal of Health Economics.
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Valérie Horvais, Matthieu Wargny, Yohann Repessé, Benoît Guillet, Philippe Beurrier, Laurent Ardillon, Brigitte Pan‐Petesch, Vincent Cussac & Marc Trossaërt. (2022)
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Wenhui Zhang, Shitong Xie, Feng Xue, Wei Liu, Lingling Chen, Lei Zhang, Jing Wu & Renchi Yang. (2022) Health‐related quality of life among adults with haemophilia in China: A comparison with age‐matched general population. Haemophilia 28:5, pages 776-783.
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Karina Lopez, Keri Norris, Marci Hardy & Leonard A. Valentino. (2022) Defining the Impact of Social Drivers on Health Outcomes for People with Inherited Bleeding Disorders. Journal of Clinical Medicine 11:15, pages 4443.
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Richard Huan Xu, Dong Dong, Nan Luo, Eliza Lai-Yi Wong, Renchi Yang, Junshuai Liu, Huiqin Yuan & Shuyang Zhang. (2021) Mapping the Haem-A-QoL to the EQ-5D-5L in patients with hemophilia. Quality of Life Research 31:5, pages 1533-1544.
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Jinyu Niu, Liangwen Ning, Qiao Zhang, Ze Liu, Yi Ma, Xiaoxue Xu, Qunhong Wu, Yanhua Hao, Yu Cui & Chaojie Liu. (2022) Health-related quality of life of patients with haemophilia: a cross-sectional survey in the Northeast of China. BMJ Open 12:2, pages e056668.
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Roberto Ucero-Lozano, José Antonio López-Pina, Alba Ortiz-Pérez & Rubén Cuesta-Barriuso. (2021) Quality of life and its predictors among adult patients with haemophilic arthropathy. An observational study. BMC Musculoskeletal Disorders 22:1.
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Kate Khair, Mike Holland, Sandra Dodgson, Paul McLaughlin, Simon Fletcher & Deborah Christie. (2021) Fitness enhances psychosocial well‐being and self‐confidence in young men with hemophilia: Results from Project GYM. Research and Practice in Thrombosis and Haemostasis 5:8, pages e12622.
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Nancy S. Bolous, Yichen Chen, Huiqi Wang, Andrew M. Davidoff, Meenakshi Devidas, Timothy W. Jacobs, Michael M. MeagherAmit C. Nathwani, Ellis J. Neufeld, Bryan A. Piras, Carlos Rodriguez-Galindo, Ulrike M. Reiss & Nickhill Bhakta. (2021) The cost-effectiveness of gene therapy for severe hemophilia B: a microsimulation study from the United States perspective. Blood 138:18, pages 1677-1690.
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Richard Huan Xu, Dong Dong, Nan Luo, Renchi Yang, Junshuai Liu & Shuyang Zhang. (2021) Investigating the Added Value of the EQ-5D-5L With Two Bolt-On Items in Patients With Hemophilia. Frontiers in Medicine 8.
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Richard Huan Xu, Dong Dong, Nan Luo, Eliza Lai-Yi Wong, Yushan Wu, Siyue Yu, Renchi Yang, Junshuai Liu, Huiqin Yuan & Shuyang Zhang. (2021) Evaluating the psychometric properties of the EQ-5D-5L and SF-6D among patients with haemophilia. The European Journal of Health Economics 22:4, pages 547-557.
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Roya Dolatkhah, Reza Shabanloei, Hossein Ebrahimi & Mostafa Ghasempour. (2021) Content analysis of identity challenges in patients with haemophilia: A qualitative study. Nursing Open 8:3, pages 1444-1451.
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Eline van Overbeeke, Brett Hauber, Sissel Michelsen, Michel Goldman, Steven Simoens & Isabelle Huys. (2021) Patient Preferences to Assess Value IN Gene Therapies: Protocol Development for the PAVING Study in Hemophilia. Frontiers in Medicine 8.
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Alexandre Jorge Teixeira Ribeiro, Fábio Ferreira Amorim, Beatriz Mac Dowell Soares, Levy Aniceto Santana & Aline Mizusaki Imoto. (2021) Functional and joint evaluation in a prospective cohort of patients with severe haemophilia. Haemophilia 27:2, pages 314-320.
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Amy Shapiro, Ateefa Chaudhury, Michael Wang, Miguel Escobar, Elisa Tsao, Christopher Barnowski, Jing Feng, Nisha Jain & Doris V. Quon. (2020) Real‐world data demonstrate improved bleed control and extended dosing intervals for patients with haemophilia B after switching to recombinant factor IX Fc fusion protein (rFIXFc) for up to 5 years. Haemophilia 26:6, pages 975-983.
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Hee Jo Baek, Young Shil Park, Ki Young Yoo, Jin-Hye Cha, Young-Joo Kim & Kun Soo Lee. (2020) Health-related quality of life of moderate and severe haemophilia patients: Results of the haemophilia-specific quality of life index in Korea. PLOS ONE 15:9, pages e0238686.
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