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Patient Preference and Adherence Volume 14, 2020 - Issue
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Review

Measuring the Patient Experience of Mental Health Care: A Systematic and Critical Review of Patient-Reported Experience Measures

Sara Fernandes1 Aix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-8849-787X
ORCID Icon,
Guillaume Fond1 Aix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceORCID Iconhttps://orcid.org/0000-0003-3249-2030
ORCID Icon,
Xavier Yves Zendjidjian1 Aix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceORCID Iconhttps://orcid.org/0000-0002-4028-7398
ORCID Icon,
Karine Baumstarck1 Aix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France
,
Christophe Lançon1 Aix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France
,
Fabrice Berna2 FondaMental Foundation, Créteil, FranceORCID Iconhttps://orcid.org/0000-0002-6118-0629
ORCID Icon,
Franck Schurhoff2 FondaMental Foundation, Créteil, France
,
Bruno Aouizerate2 FondaMental Foundation, Créteil, France
,
Chantal Henry2 FondaMental Foundation, Créteil, France
,
Bruno Etain2 FondaMental Foundation, Créteil, FranceORCID Iconhttps://orcid.org/0000-0002-5377-1488
ORCID Icon,
Ludovic Samalin2 FondaMental Foundation, Créteil, France
,
Marion Leboyer2 FondaMental Foundation, Créteil, FranceORCID Iconhttps://orcid.org/0000-0001-5473-3697
ORCID Icon,
Pierre-Michel Llorca2 FondaMental Foundation, Créteil, FranceORCID Iconhttps://orcid.org/0000-0001-7438-8990
ORCID Icon,
Magali Coldefy3 Institute for Research and Information in Health Economics (IRDES), Paris, France
,
Pascal Auquier1 Aix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France
,
Laurent Boyer1 Aix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France
& On behalf of the French PREMIUM Group show all
Pages 2147-2161 | Published online: 03 Nov 2020

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F. Klein, J. Schleithoff, M. Schulz, K. Webel, H. Foullois, M. Loehr & K.-T. Kronmueller. (2023) Development and validation of the German translation of the views on inpatient care (VOICE-DE) outcome measure to assess service users’ perceptions of inpatient psychiatric care. Journal of Mental Health 32:3, pages 560-566.
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S Fernandes, G Fond, X Zendjidjian, P Michel, C Lançon, F Berna, F Schurhoff, B Aouizerate, C Henry, B Etain, L Samalin, M Leboyer, D Misdrahi, PM Llorca, M Coldefy, P Auquier, K Baumstarck & L Boyer. (2021) A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France. Journal of Market Access & Health Policy 9:1.
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Ola A. Abdelhadi, Brad H. PollockJill JosephTheresa H.M. Keegan. (2023) Shared Decision-Making Among Adolescent and Young Adult Cancer Survivors and Noncancer Adults: Associated Medical Expenditures and Health Care Utilization. Journal of Adolescent and Young Adult Oncology 12:2, pages 168-176.
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Torleif Ruud, Ingrid Kyte Fjellestad & Ketil Hanssen-Bauer. (2023) Patient experiences in psychiatric departments for the elderly (PEPDE): development, properties, and use of a brief questionnaire. BMC Psychiatry 23:1.
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Tian Jiang, Aihua Li, Minlu Zhang, Zhou Zhou, Lu Wang, Xiaoqian Zhang, Yi Zhang & Qiu Zhang. (2023) Measuring Self-management Among People with Diabetes Mellitus: A Systematic Review of Patient-Reported Diabetes-Specific Instruments in English and Chinese. Advances in Therapy 40:3, pages 769-813.
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Sebastian von Peter, Patrick Jänchen, Lena Göppert, Timo Beeker, Jenny Ziegenhagen, Rosa Kato Glück, Helene Krispin, Andrea Pfennig, Martin Heinze, Julian Schwarz & Yuriy Ignatyev. (2023) Erlebensbezogene Qualitätsmerkmale für die psychiatrische Behandlung: Vorstellung eines vorläufigen multivariaten Konstrukts. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 176, pages 51-60.
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Hilde Hestad Iversen, Mona Haugum & Oyvind Bjertnaes. (2022) Reliability and validity of the Psychiatric Inpatient Patient Experience Questionnaire – Continuous Electronic Measurement (PIPEQ-CEM). BMC Health Services Research 22:1.
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Laurent Boyer, Sara Fernandes, Bach Xuan Tran & Guillaume Fond. (2022) Development of the PREMIUM Computerized Adaptive Testing for Measuring the Quality of Information Delivered to Patients with Severe Mental Illnesses. Journal of Clinical Medicine 11:22, pages 6687.
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Guillaume Fond, Sara Fernandes, Guillaume Lucas, Neil Greenberg & Laurent Boyer. (2022) Depression in healthcare workers: Results from the nationwide AMADEUS survey. International Journal of Nursing Studies 135, pages 104328.
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Guillaume Lucas, Sébastien Colson, Laurent Boyer, Stéphanie Gentile & Guillaume Fond. (2022) Work environment and mental health in nurse assistants, nurses and health executives: Results from the AMADEUS study. Journal of Nursing Management 30:7, pages 2268-2277.
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Benson S. Chen, Tomasz Galus, Stephanie Archer, Valerija Tadić, Mike Horton, Konrad Pesudovs, Tasanee Braithwaite & Patrick Yu-Wai-Man. (2022) Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies. Graefe's Archive for Clinical and Experimental Ophthalmology 260:6, pages 2045-2055.
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Rebecca Feo, Sheela Kumaran, Tiffany Conroy, Louise Heuzenroeder & Alison Kitson. (2021) An evaluation of instruments measuring behavioural aspects of the nurse–patient relationship. Nursing Inquiry 29:2.
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Sara Fernandes, Guillaume Fond, Xavier Zendjidjian, Pierre Michel, Karine Baumstarck, Christophe Lançon, Ludovic Samalin, Pierre-Michel Llorca, Magali Coldefy, Pascal Auquier & Laurent Boyer. (2022) Development and Calibration of the PREMIUM Item Bank for Measuring Respect and Dignity for Patients with Severe Mental Illness. Journal of Clinical Medicine 11:6, pages 1644.
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Froukje E de Vries, Kenneth Mah, Carmine Malfitano, Gilla K Shapiro, Camilla Zimmermann, Sarah Hales & Gary Rodin. (2022) Clinical evaluation questionnaire in advanced cancer: a psychometric study of a novel measure of healthcare provider interactions. BMJ Supportive & Palliative Care, pages bmjspcare-2021-003408.
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Laurent Boyer, Sara Fernandes, Melanie Faugere, Raphaelle Richieri, Pascal Auquier, Guillaume Fond & Christophe Lancon. (2022) The Validity of the SQoL-18 in Patients with Bipolar and Depressive Disorders: A Psychometric Study from the PREMIUM Project. Journal of Clinical Medicine 11:3, pages 743.
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David H. Klemanski, Todd Barnes, Cynthia Bautista, Cristina Tancreti, Beth Klink & Ebony Dix. (2022) Development and Validation of the Psychiatric Inpatient Experience (PIX) Survey: A Novel Measure of Patient Experience Quality Improvement. Journal of Patient Experience 9, pages 237437352211056.
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Eman A. Haji, Ahmed H. Ebrahim, Hassan Fardan & Haitham Jahrami. (2022) Reporting Inpatients’ Experiences and Satisfaction in a National Psychiatric Facility: A Study Based on the Random Forest Algorithm. Journal of Patient Experience 9, pages 237437352110698.
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Hao Luo, Alice Hirdes, Jyrki Heikkilä, Kathleen De Cuyper, Chantal Van Audenhove, Margaret Saari & John P. Hirdes. (2021) interRAI Subjective Quality of Life Scale for Mental Health and Addiction Settings: A Self-Reported Measure Developed From a Multi-National Study. Frontiers in Psychiatry 12.
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