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Original Research

Improving current immunoglobulin therapy for patients with primary immunodeficiency: quality of life and views on treatment

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Pages 621-629 | Published online: 02 May 2014

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (4)

Paul M Overton, Natalie Shalet, Fabian Somers & Jeffrey A Allen. (2021) Patient Preferences for Subcutaneous versus Intravenous Administration of Treatment for Chronic Immune System Disorders: A Systematic Review. Patient Preference and Adherence 15, pages 811-834.
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Georgina L Jones, Kate Williams, Mark Edmondson-Jones, Johan Prevot, Jose Drabwell, Leire Solis, Anna Shrimpton & Nizar Mahlaoui. (2020) The Development of a New Questionnaire to Measure the Burden of Immunoglobulin Treatment in Patients with Primary Immunodeficiencies: The IgBoT-35. Patient Preference and Adherence 14, pages 1567-1584.
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Heather L Gelhorn, Zaneta Balantac, Christopher S Ambrose, Yen N Chung & Brian Stone. (2019) Patient and physician preferences for attributes of biologic medications for severe asthma. Patient Preference and Adherence 13, pages 1253-1268.
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Tomohiro Morio, Gautam Baheti, Michael A. Tortorici, Jutta Hofmann & Mikhail A. Rojavin. (2019) Pharmacokinetic properties of Privigen® in Japanese patients with primary immunodeficiency. Immunological Medicine 42:4, pages 162-168.
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Michael Borte, Leif G. Hanitsch, Nizar Mahlaoui, Maria Fasshauer, Dörte Huscher, Matthaios Speletas, Maria Dimou, Marta Kamieniak, Corinna Hermann, David Pittrow & Cinzia Milito. (2023) Facilitated Subcutaneous Immunoglobulin Treatment in Patients with Immunodeficiencies: the FIGARO Study. Journal of Clinical Immunology.
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Chee Mun Chan, Nizar Mahlaoui, Silvia Sánchez−Ramón, Martine Pergent, Leire Solis, Johan Prevot & Adli Ali. (2023) Primary immunodeficiencies (PID) Life Index in Southeast Asia: A comparative analysis of PID Principles of Care (PoC). Frontiers in Immunology 14.
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Bisrat Bekele, Zekarias Masresha, Mekdelawit Alemayehu, Berhanu Seyoum, Liya Wassie & Markos Abebe. (2023) Intravenous Immunoglobulin G (IVIG) Need Assessment Survey Toward Local Manufacturing of IVIG Using a Mini-Pool Plasma Fractionation Technique. Health Services Insights 16, pages 117863292311574.
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Rajiv Mallick, Geneviève Solomon, Paul Bassett, Xiang Zhang, Palak Patel & Oleksandra Lepeshkina. (2022) Immunoglobulin replacement therapy in patients with immunodeficiencies: impact of infusion method on patient-reported outcomes. Allergy, Asthma & Clinical Immunology 18:1.
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Catherine M. Freeman, Jacqueline D. Squire & Avni Y. Joshi. (2022) Immunoglobulin treatment for B-cell immunodeficiencies. Journal of Immunological Methods 509, pages 113336.
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John T. Anderson, Juthaporn Cowan, Antonio Condino-Neto, Donald Levy & Subhransu Prusty. (2022) Health-related quality of life in primary immunodeficiencies: Impact of delayed diagnosis and treatment burden. Clinical Immunology 236, pages 108931.
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Julia Nordin, Leire Solís, Johan Prévot, Nizar Mahlaoui, Helen Chapel, Silvia Sánchez-Ramón, Adli Ali, John W. Seymour & Martine Pergent. (2021) The PID Principles of Care: Where Are We Now? A Global Status Report Based on the PID Life Index. Frontiers in Immunology 12.
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Linde N. Nijhof, Marco van Brussel, Esther M. Pots, Raphaële R. L. van Litsenburg, Elise M. van de Putte, Joris M. van Montfrans & Sanne L. Nijhof. (2021) Severe Fatigue Is Common Among Pediatric Patients with Primary Immunodeficiency and Is Not Related to Disease Activity. Journal of Clinical Immunology 41:6, pages 1198-1207.
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Louise Rath, Maria Pia Campagna, Jim Stankovich, Julian Ellis, Vilija Jokubaitis, Denise McCarthy, Cassie Nesbitt, Wei Zhen Yeh, Michael Zhong, Robb Wesselingh, Mastura Monif, Janene Richards, Viet Bui Minh, Olga Skibina, Helmut Butzkueven & Anneke van der Walt. (2021) Patient Preferences for Time and Location of Infusible Therapies in Multiple Sclerosis and Neuroimmunologic Disorders. International Journal of MS Care 23:3, pages 114-118.
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John T. Anderson, Vincent R. Bonagura, Juthaporn Cowan, Connie Hsu, S. Shahzad Mustafa, Niraj C. Patel, John M. Routes, Panida Sriaroon, Donald C. Vinh, Jutta H. Hofmann, Michaela Praus & Mikhail A. Rojavin. (2021) Safety and Tolerability of Subcutaneous IgPro20 at High Infusion Parameters in Patients with Primary Immunodeficiency: Findings from the Pump-Assisted Administration Cohorts of the HILO Study. Journal of Clinical Immunology 41:2, pages 458-469.
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Juthaporn Cowan, Vincent R. Bonagura, Patricia L. Lugar, Paul J. Maglione, Niraj C. Patel, Donald C. Vinh, Jutta H. Hofmann, Michaela Praus & Mikhail A. Rojavin. (2020) Safety and Tolerability of Manual Push Administration of Subcutaneous IgPro20 at High Infusion Rates in Patients with Primary Immunodeficiency: Findings from the Manual Push Administration Cohort of the HILO Study. Journal of Clinical Immunology 41:1, pages 66-75.
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Graham Walter, Chrystyna Kalicinsky, Richard Warrington, Marianne Miguel, Jeannette Reyes & Tamar S. Rubin. (2020) Delivery of subcutaneous immunoglobulin by rapid “push” infusion for primary immunodeficiency patients in Manitoba: a retrospective review. Allergy, Asthma & Clinical Immunology 16:1.
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R. Mallick, T. Henderson, B. J. Lahue, A. Kafal, P. Bassett & C. Scalchunes. (2020) Subcutaneous immunoglobulin in primary immunodeficiency – impact of training and infusion characteristics on patient-reported outcomes. BMC Immunology 21:1.
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Ewa Wiesik-Szewczyk, Dariusz Sołdacki, Leszek Paczek & Karina Jahnz-Różyk. (2020) Facilitated Subcutaneous Immunoglobulin Replacement Therapy in Clinical Practice: A Two Center, Long-Term Retrospective Observation in Adults With Primary Immunodeficiencies. Frontiers in Immunology 11.
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Saida Ridao-Manonellas, Anna Fábregas-Bofill, Gloria Núñez-Rueda, Míriam González-Amores, Marina García-Prat, Laura López-Seguer, Jacques G. Rivière, Andrea Martín-Nalda, Natalia Mendoza-Palomar, Susana Melendo-Pérez & Pere Soler-Palacín. (2020) Health-Related Quality of Life and Multidimensional Fatigue Scale in Children with Primary Immunodeficiencies. Journal of Clinical Immunology 40:4, pages 602-609.
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Ying Zhang, Gautam Baheti, Hugo Chapdelaine, Jutta Hofmann, Mikhail Rojavin, Michael Tortorici & Elie Haddad. (2020) Population pharmacokinetic analysis of weekly and biweekly IgPro20 (Hizentra®) dosing in patients with primary immunodeficiency. International Immunopharmacology 81, pages 106005.
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Pieter van Paassen, David Pittrow, Clemens Scheidegger, Jens Klotsche & Pauline M Ellerbroek. (2020) Use of recombinant human hyaluronidase-facilitated subcutaneous immunoglobulin in elderly patients. Immunotherapy 12:2, pages 131-139.
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Christine Anterasian, Richard Duong, Peg Gruenemeier, Carol Ernst, Jessica Kitsen & Bob Geng. (2019) Quality of Life Differences for Primary Immunodeficiency Patients on Home SCIG versus IVIG. Journal of Clinical Immunology 39:8, pages 814-822.
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Dmitrii Peshko, Ekaterina Kulbachinskaya, Ilya Korsunskiy, Elena Kondrikova, Federica Pulvirenti, Isabella Quinti, Oleg Blyuss, Audrey Dunn Galvin & Daniel Munblit. (2019) Health-Related Quality of Life in Children and Adults with Primary Immunodeficiencies: A Systematic Review and Meta-Analysis. The Journal of Allergy and Clinical Immunology: In Practice 7:6, pages 1929-1957.e5.
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Kenneth Paris, Elie Haddad, Michael Borte, Nicholas Brodszki, Beáta Dérfalvi, Laszlo MaródiIftikhar Hussain, Amy Darter, Werner Engl, Heinz Leibl, Barbara McCoy & Leman Yel. (2019) Tolerability of subcutaneous immunoglobulin 20%, Ig20Gly, in pediatric patients with primary immunodeficiencies. Immunotherapy 11:5, pages 397-406.
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Christina Petersson, Ramona Fust, Carina Hagstedt, Per Wågström & Åsa Nilsdotter-Augustinsson. (2018) “Experiences of the burden of treatment”-Patient reports of facilitated subcutaneous immunoglobulin treatment in adults with immunodeficiency. Journal of Clinical Nursing 27:23-24, pages 4270-4278.
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Georgina L. Jones, Katharina S. Vogt, Duncan Chambers, Mark Clowes & Anna Shrimpton. (2018) What Is the Burden of Immunoglobulin Replacement Therapy in Adult Patients With Primary Immunodeficiencies? A Systematic Review. Frontiers in Immunology 9.
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Kerri L. Sowers, Bini A. Litwin, Alan C. W. Lee & Mary Lou A. Galantino. (2018) Exercise Perception and Behaviors in Individuals Living with Primary Immunodeficiency Disease. Journal of Clinical Immunology 38:2, pages 174-184.
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A Stubbs, C Bangs, B Shillitoe, J D Edgar, S O Burns, M Thomas, H Alachkar, M Buckland, E McDermott, G Arumugakani, M S Jolles, R Herriot & P D Arkwright. (2018) Bronchiectasis and deteriorating lung function in agammaglobulinaemia despite immunoglobulin replacement therapy. Clinical and Experimental Immunology 191:2, pages 212-219.
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Richard L Wasserman. (2017) Recombinant human hyaluronidase-facilitated subcutaneous immunoglobulin infusion in primary immunodeficiency diseases. Immunotherapy 9:12, pages 1035-1050.
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Serge Sultan, Émélie Rondeau, Marie-Claude Levasseur, Renée Dicaire, Hélène Decaluwe & Élie Haddad. (2017) Quality of Life, Treatment Beliefs, and Treatment Satisfaction in Children Treated for Primary Immunodeficiency with SCIg. Journal of Clinical Immunology 37:5, pages 496-504.
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Richard L. Wasserman, Diane Ito, Yan Xiong, Xiaolan Ye, Patrick Bonnet & Josephine Li-McLeod. (2017) Impact of Site of Care on Infection Rates Among Patients with Primary Immunodeficiency Diseases Receiving Intravenous Immunoglobulin Therapy. Journal of Clinical Immunology 37:2, pages 180-186.
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Tanja M. Windegger, Christine A. Lambooy, Leanne Hollis, Karen Morwood, Helen Weston & Yoke Lin Fung. (2017) Subcutaneous Immunoglobulin Therapy for Hypogammaglobulinemia Secondary to Malignancy or Related Drug Therapy. Transfusion Medicine Reviews 31:1, pages 45-50.
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J. F. Viallard, P. Agape, V. Barlogis, G. Cozon, C. Faure, F. Fouyssac, C. Gaud, M. P. Gourin, M. Hamidou, C. Hoarau, F. Husseini, M. Ojeda-Uribe, M. Pavic, I. Pellier, A. Perlat, N. Schleinitz & B. Slama. (2016) Treatment with Hizentra in patients with primary and secondary immunodeficiencies: a real-life, non-interventional trial. BMC Immunology 17:1.
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Linda K. Miars, Michelle Tran & Kimberly Duff. (2016) Practical Considerations for Self-Administration of Subcutaneous Immunoglobulin G Utilizing Recombinant Human Hyaluronidase, an Advanced Method of Subcutaneous Administration. Journal of Infusion Nursing 39:6, pages 359-368.
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Ann Gardulf. (2016) Clinical experiences in primary and secondary immunodeficiencies and immune-mediated conditions using Gammanorm ® . Immunotherapy 8:5, pages 633-647.
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Eric M. Tichy & Leslie Vaughan. (2016) Selecting a polyclonal immune globulin treatment for a patient with primary immune deficiency disease: Role of the clinical pharmacist. American Journal of Health-System Pharmacy 73:8, pages 533-546.
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Dinara Gabdullina, Oksana Ussenova, Marina Morenka & Yelena Kovzel. (2016) Primary immunodeficiency: modern approaches to diagnosis and therapy. Journal of Clinical Medicine of Kazakhstan 1:39, pages 12-15.
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Fonda Jiang, Troy R. Torgerson & Andrew G. Ayars. (2015) Health-related quality of life in patients with primary immunodeficiency disease. Allergy, Asthma & Clinical Immunology 11:1.
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Deborah Elstein, Aya Abrahamov, Anat Oz, Naama Arbel, Hagit Baris & Ari Zimran. (2015) 13,845 home therapy infusions with velaglucerase alfa exemplify safety of velaglucerase alfa and increased compliance to every-other-week intravenous enzyme replacement therapy for Gaucher disease. Blood Cells, Molecules, and Diseases 55:4, pages 415-418.
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Katarzyna Bal, Izabela Kałuzińska-Parzyszek, Agnieszka Sobocińska, Daniela Podlecka, Joanna Jerzyńska & Iwona Stelmach. (2015) Efficacy and Safety of Hospital-Based Intravenous Immunoglobulin and Home-Based Self-Administered Subcutaneous Immunoglobulin in Polish Children with Primary Immunodeficiency Diseases. The Indian Journal of Pediatrics 82:8, pages 768-769.
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