Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes

Joanna C Robson1 Faculty of Health and Applied Sciences, University of the West of England, Bristol, UK, [email protected];2 Faculty of Health and Applied Sciences, University Hospitals Bristol NHS Trust, Bristol, UK, [email protected]Correspondence[email protected]

David Jayne3 Department of Medicine, University of Cambridge, Cambridge, UK

Peter A Merkel4 Division of Rheumatology, Department of Medicine;5 Department of Biostatistics, Epidemiology, and Informatic, University of Pennsylvania, Philadelphia, PA, USA

Jill Dawson6 Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK

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José Joel Hurtado-Arias, Isabela Ramírez-Mulhern, Carlos Gonzalez-Martínez, Javier Merayo-Chalico, Ana Barrera-Vargas & Andrea Hinojosa-Azaola. (2023) Patient-reported outcomes in ANCA-associated vasculitis: a cross-sectional study to explore the interactions between patients’ and physicians’ perspectives. Rheumatology International 43:5, pages 933-940.
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Ayuko Tokonami, Ryuichi Ohta, Noritaka Katagiri, Naho Yoshioka, Fumiko Yamane & Chiaki Sano. (2022) Autoimmune Vasculitis Causing Acute Bilateral Lower Limb Paralysis. Cureus.
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Gülen Hatemi, Alfred Mahr, Mitsuhiro Takeno, Doyoung Kim, Melike Melikoğlu, Sue Cheng, Shannon McCue, Maria Paris, Mindy Chen & Yusuf Yazici. (2022) Impact of apremilast on quality of life in Behçet’s syndrome: analysis of the phase 3 RELIEF study. RMD Open 8:2, pages e002235.
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Irena Doubelt, Jason M Springer, Tanaz A Kermani, Antoine G Sreih, Cristina Burroughs, David Cuthbertson, Simon Carette, Nader A Khalidi, Curry L Koening, Carol Langford, Carol A McAlear, Larry W Moreland, Paul A Monach, Dianne G Shaw, Philip Seo, Ulrich Specks, Kenneth J Warrington, Kalen Young, Peter A Merkel & Christian Pagnoux. (2022) Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis. Interactive Journal of Medical Research 11:1, pages e27273.
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Allyson C Egan, Rona M Smith & David R W Jayne. (2021) Introduction to the European Vasculitis Society 3rd International Vasculitis Course (Cambridge) case-based supplement. Rheumatology 60:Supplement_3, pages iii1-iii5.
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Yingzhuo Song, Tao Zhang, Huiguang Cheng, Wei Jiang, Pu Li, Jun Zhang & Zhanhai Yin. (2021) Imidazolium-Based Ionic Liquid-Assisted Preparation of Nano-Spheres Loaded with Bio-Active Peptides to Decrease Inflammation in an Osteoarthritis Model: Ex Vivo Evaluations . Journal of Biomedical Nanotechnology 17:5, pages 859-872.
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Navjeet Gill, Jan Willem Cohen Tervaert & Elaine Yacyshyn. (2020) Vasculitis patient journey: a scoping review of patient experiences with vasculitis. Clinical Rheumatology 40:5, pages 1697-1708.
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Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes

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Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes

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