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Original Research

Psychometric evaluation of the hypoparathyroidism symptom diary

Theresa Coles1 RTI Health Solutions, Research Triangle Park, NC, USA, [email protected]

Kristina Chen2 Shire Human Genetic Therapies, Lexington, MA, USA

Lauren Nelson1 RTI Health Solutions, Research Triangle Park, NC, USA, [email protected]Correspondence[email protected]

Nimanee Harris1 RTI Health Solutions, Research Triangle Park, NC, USA, [email protected]

Montserrat Vera-Llonch2 Shire Human Genetic Therapies, Lexington, MA, USA

Alan Krasner2 Shire Human Genetic Therapies, Lexington, MA, USA

Susan Martin3 RTI Health Solutions, Ann Arbor, MI, USA

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Pages 25-36 | Published online: 29 Jan 2019

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S. N. Fırat, Ş. M. Kuşkonmaz, Ç. E. Önder, T. Omma, H. Genç & C. Çulha. (2022) Sonographic evaluation of subclinical entheseal involvement in patients with hypoparathyroidism: a case control study. Journal of Endocrinological Investigation 46:1, pages 133-139.
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Mishaela R Rubin, Gaia Tabacco, Beatriz Omeragic, Rukshana Majeed, Christiane Hale & Adam M Brickman. (2022) A Pilot Study of Cognition Among Hypoparathyroid Adults. Journal of the Endocrine Society 6:3.
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Bettina Stamm, Martina Blaschke, Lara Wilken, Deborah Wilde, Christina Heppner, Andreas Leha, Christoph Herrmann‐Lingen & Heide Siggelkow. (2022) The Influence of Conventional Treatment on Symptoms and Complaints in Patients With Chronic Postsurgical Hypoparathyroidism. JBMR Plus 6:2.
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Hans-Peter KapfhammerHans-Peter Kapfhammer. 2022. Depression, Angst, traumatischer Stress und internistische Erkrankungen. Depression, Angst, traumatischer Stress und internistische Erkrankungen 601 682 .

Meryl Brod, Lori McLeod, Denka Markova, Jill Gianettoni, Sanchita Mourya, Zhengning Lin, Aimee Shu & Alden Smith. (2021) Psychometric validation of the Hypoparathyroidism Patient Experience Scales (HPES). Journal of Patient-Reported Outcomes 5:1.
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Neil Gittoes, Lars Rejnmark, Steven W. Ing, Maria Luisa Brandi, Sigridur Björnsdottir, Stefanie Hahner, Lorenz C. Hofbauer, Pascal Houillier, Aliya A. Khan, Michael A. Levine, Michael Mannstadt, Dolores M. Shoback, Tamara J. Vokes, Pinggao Zhang, Claudio Marelli, John Germak & Bart L. Clarke. (2021) The PARADIGHM (physicians advancing disease knowledge in hypoparathyroidism) registry for patients with chronic hypoparathyroidism: study protocol and interim baseline patient characteristics. BMC Endocrine Disorders 21:1.
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Inan Anaforoglu, Seda Sancak, Emin Murat Akbas, Guzide Gonca Oruk, Masum Canat, Kadriye Aydın Tezcan, Ziynet Alphan Uc, Suheyla Gorar, Gulhan Cavlak Duman, Guzin Fidan Yaylali, Merve Yılmaz, Betul Ekiz Bilir, Humeyra Bozoglan, Gulhan Akbaba, Mazhar Muslum Tuna, Seckin Akcay, Dilek Tuzun, Gulay Simsek Bagir, Filiz Eksi Haydardedeoglu, Gulsah Elbuken, Goknur Yorulmaz, Ozlem Celik & Murat Topbas. (2021) Effects of Treatment Adherence on Quality of Life in Hypoparathyroid Patients. Experimental and Clinical Endocrinology & Diabetes 129:12, pages 918-925.
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Samuel Frey, Lucile Figueres, François Pattou, Maëlle Le Bras, Cécile Caillard, Muriel Mathonnet, Antoine Hamy, Laurent Brunaud, Jean-Christophe Lifante, Christophe Trésallet, Frédéric Sebag, Fabrice Menegaux, Claire Blanchard, Maxime Leroy & Eric Mirallié. (2021) Impact of Permanent Post-thyroidectomy Hypoparathyroidism on Self-evaluation of Quality of Life and Voice. Annals of Surgery 274:5, pages 851-858.
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Meryl Brod, Laura Tesler Waldman, Alden Smith & David Karpf. (2020) Living with hypoparathyroidism: development of the Hypoparathyroidism Patient Experience Scale-Impact (HPES-Impact). Quality of Life Research 30:1, pages 277-291.
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Meryl Brod, Laura Tesler Waldman, Alden Smith & David Karpf. (2019) Assessing the Patient Experience of Hypoparathyroidism Symptoms: Development of the Hypoparathyroidism Patient Experience Scale-Symptom (HPES-Symptom). The Patient - Patient-Centered Outcomes Research 13:2, pages 151-162.
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Heide Siggelkow, Bart L. Clarke, John Germak, Claudio Marelli, Kristina Chen, Helen Dahl‐Hansen, Elizabeth Glenister, Nawal Bent‐Ennakhil, Davneet Judge, Katie Mycock & Jens Bollerslev. (2019) Burden of illness in not adequately controlled chronic hypoparathyroidism: Findings from a 13‐country patient and caregiver survey. Clinical Endocrinology 92:2, pages 159-168.
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Mishaela R. Rubin. (2020) Recent advances in understanding and managing hypoparathyroidism. F1000Research 9, pages 766.
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Stephan Petersenn, Jörg Bojunga, Georg Brabant, Gwendolin Etzrodt-Walter, Reinhard Finke, Stephan Scharla, Bettina Stamm, Matthias M. Weber, Corinna Wicke & Heide Siggelkow. (2019) Hypoparathyreoidismus — ein unterschätztes Problem?Hypoparathyroidism — un underestimated problem?. MMW - Fortschritte der Medizin 161:S7, pages 12-20.
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Susan Martin, Kristina Chen, Nimanee Harris, Montserrat Vera-Llonch & Alan Krasner. (2019) Development of a Patient-Reported Outcome Measure for Chronic Hypoparathyroidism. Advances in Therapy 36:8, pages 1999-2009.
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Psychometric evaluation of the hypoparathyroidism symptom diary

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