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Patient Related Outcome Measures Volume 10, 2019 - Issue

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Original Research

Mild-severe hemophilia B impacts relationships of US adults and children with hemophilia B and their families: results from the B-HERO-S study

Susan Cutter1 Penn Comprehensive Hemophilia and Thrombosis Program, Hospital of the University of Pennsylvania, Philadelphia, PA, USACorrespondence[email protected]

Christine Guelcher2 Comprehensive Hemostasis and Thrombosis Program, Children’s National Health System, Washington, DC, USA

Susan Hunter3 Hemostasis and Thrombosis Center, University Hospitals Cleveland Medical Center, Cleveland, OH, USA

Dawn Rotellini4 National Hemophilia Foundation, New York, NY, USA

Spencer Dunn5 Center for Comprehensive Care and Diagnosis of Inherited Bleeding Disorders, Orange, CA, USA

David L Cooper6 Novo Nordisk Inc., Plainsboro, NJ, USA

Pages 257-266 | Published online: 16 Aug 2019

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Citations (4)

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Articles from other publishers (4)

Nina Sheridan, Beth Thompson, Lauren Lichten, Karlene Coleman & Robert SidonioJr.Jr.. (2023) The emotional experience of mothers of children with haemophilia: maternal guilt, effective coping strategies and resilience within the haemophilia community. Haemophilia 29:2, pages 513-520.
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Steve Chaplin, Maj Friberg Birkedal, Erica Crilly, Simon Fletcher, Sara Garcia, Greta Mulders, Linda Myrin-Westesson, Debra Pollard, Anna Sanigorska & Nanda Uitslager. (2021) Haemophilia specialist nurses’ perceptions of haemophilia B. The Journal of Haemophilia Practice 8:1, pages 119-127.
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Michelle Witkop, Michael Wang, Grace Hernandez, Michael Recht, Kim Baumann & David L. Cooper. (2021) Impact of haemophilia on patients with mild‐to‐moderate disease: Results from the P‐FiQ and B‐HERO‐S studies. Haemophilia 27:S1, pages 8-16.
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Christopher Walsh, Lisa Boggio, Lanette Brown‐Jones, Rachel Miller, Sarah Hawk, Brittany Savage, Kerry Hansen, Don Molter, Kim Baumann, Spencer Dunn, Mark W. Skinner, Kimberly Haugstad, Stormy Johnson, Tammy Davenport, Margaret Bradbury, Michelle Witkop, Hossam Saad & David L. Cooper. (2021) Identified unmet needs and proposed solutions in mild‐to‐moderate haemophilia: A summary of opinions from a roundtable of haemophilia experts. Haemophilia 27:S1, pages 25-32.
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