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Original Article

Quality of Life–Rationale and Methods for Developing a Disease-specific Instrument for Inflammatory Bowel Disease

Pages 22-27 | Published online: 08 Jul 2009

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Read on this site (3)

S.-W. Han, E. McColl, N. Steen, J. R. Barton, M. R. Welfare. (1998) The Inflammatory Bowel Disease Questionnaire: A Valid and Reliable Measure in Ulcerative Colitis Patients in the North East of England. Scandinavian Journal of Gastroenterology 33:9, pages 961-966.
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S. Fullerton & G. Gitnick. (1996) Health-Related Quality of Life, Patient Outcome, and Managed Care: The Road Ahead. Scandinavian Journal of Gastroenterology 31:sup221, pages 39-41.
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E. J. Irvine. (1993) Quality of Life–Measurement in Inflammatory Bowel Disease. Scandinavian Journal of Gastroenterology 28:sup199, pages 36-39.
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Articles from other publishers (28)

Line Alvestad, Lars-Petter Jelsness-Jørgensen, Rasmus Goll, Anne Clancy, Thomas Gressnes, Per Christian Valle & Ann Ragnhild Broderstad. (2022) Health-related quality of life in inflammatory bowel disease: a comparison of patients receiving nurse-led versus conventional follow-up care. BMC Health Services Research 22:1.
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Alyse Bedell, Tiffany Taft, Meredith R. Craven, Livia Guadagnoli, Ikuo Hirano & Nirmala Gonsalves. (2018) Impact on Health-Related Quality of Life in Adults with Eosinophilic Gastritis and Gastroenteritis: A Qualitative Assessment. Digestive Diseases and Sciences 63:5, pages 1148-1157.
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Fahad A. Alowais, Yazeed A. Alferayan & Rayed M. Aljehani. (2016) Inflammatory Bowel Disease and Quality of Life in King Abdulaziz Medical City. Open Journal of Gastroenterology 06:01, pages 11-16.
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Steven M McPhail, Joel Dunstan, Julie Canning & Terry P Haines. (2012) Life impact of ankle fractures: Qualitative analysis of patient and clinician experiences. BMC Musculoskeletal Disorders 13:1.
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J. J. Smith, G. Netuveli, S. P. Sleight, P. Das, P. P. Tekkis, S. M. Gabe, S. K. Clark & R. J. Nicholls. (2012) Development of a social morbidity score in patients with chronic ulcerative colitis as a potential guide to treatment. Colorectal Disease 14:5.
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T. H. Taft, E. Kern, M. A. Kwiatek, I. Hirano, N. Gonsalves & L. Keefer. (2011) The adult eosinophilic oesophagitis quality of life questionnaire: a new measure of health-related quality of life. Alimentary Pharmacology & Therapeutics 34:7, pages 790-798.
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Rachele Ciccocioppo, Catherine Klersy, Maria Luisa Russo, Monica Valli, Vincenzo Boccaccio, Venerina Imbesi, Sandro Ardizzone, Gabriele Bianchi Porro & Gino Roberto Corazza. (2011) Validation of the Italian translation of the Inflammatory Bowel Disease Questionnaire. Digestive and Liver Disease 43:7, pages 535-541.
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Andrea Castelli & Maria Júlia Paes da Silva. (2007) "Faz isso, faz aquilo, mas eu tô caindo...": compreendendo a Doença de Chron. Revista da Escola de Enfermagem da USP 41:1, pages 29-35.
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P. D. R. HIGGINS, J. LEUNG, M. SCHWARTZ, J. MAPILI, P. A. WREN & E. M. ZIMMERMANN. (2006) The quantitative validation of non-endoscopic disease activity indices in ulcerative colitis. Alimentary Pharmacology & Therapeutics 25:3, pages 333-342.
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Sally Corbett, Mark Welfare, Elaine McColl, Jan Lecouturier & Zarna Devine. (2006) Implementing a colitis education and support programme. Gastrointestinal Nursing 4:5, pages 12-20.
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Vani Konda, Dezheng Huo, Gretchen Hermes, Michael Liu, Roshan Patel & David T. Rubin. (2006) Do patients with inflammatory bowel disease want genetic testing?. Inflammatory Bowel Diseases 12:6, pages 497-502.
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Seong Won Han, Elaine McColl, John Roger Barton, Peter James, Ian Nicholas Steen & Mark Richard Welfare. (2005) Predictors of Quality of Life in Ulcerative Colitis.. Inflammatory Bowel Diseases 11:1, pages 24-34.
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E. Jan Irvine. 2005. Inflammatory Bowel Disease: From Bench to Bedside. Inflammatory Bowel Disease: From Bench to Bedside 481 494 .
Matthias Rose, Otto B. Walter, Herbert Fliege, Martin Hildebrandt, Hubert Mönnikes & Burghard F. Klapp. 2004. Dipeptidyl Aminopeptidases in Health and Disease. Dipeptidyl Aminopeptidases in Health and Disease 321 331 .
E. Jan Irvine. 2003. Inflammatory Bowel Disease: From Bench to Bedside. Inflammatory Bowel Disease: From Bench to Bedside 481 494 .
Athanasios G Pallis, Ioannis G Vlachonikolis & Ioannis A Mouzas. (2002) Assessing health-related quality of life in patients with inflammatory bowel disease, in Crete, Greece. BMC Gastroenterology 2:1.
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B. P. J. Van Balkom, E. J. Schoon, R. W. Stockbrügger, F. L. Wolters, R. A. Van Hogezand, S. J. H. Van Deventer, B. Oldenburg, H. M. Van Dullemen & M. G. V. M. Russel. (2002) Effects of anti‐tumour necrosis factor‐α therapy on the quality of life in Crohn's disease. Alimentary Pharmacology & Therapeutics 16:6, pages 1101-1107.
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Dianne Groll, Stephen J. Vanner, William T. Depew, Laurington R. DaCosta, Jerome B. Simon, Aubrey Groll, Nancy Roblin & William G. Paterson. (2002) The IBS-36: a new quality of life measure for irritable bowel syndrome. The American Journal of Gastroenterology 97:4, pages 962-971.
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Matthias Rose, Martin Hildebrandt, Herbert Fliege, Simone Seibold, Hubert Mönnikes & Burghard F. Klapp. (2002) T-Cell Immune Parameters and Depression in Patients With Crohn's Disease. Journal of Clinical Gastroenterology 34:1, pages 40-48.
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Eric Wong, Lisa Cronin, Lauren Griffith, E.Jan Irvine & Gordon H Guyatt. (2001) Problems of HRQL assessment. Journal of Clinical Epidemiology 54:11, pages 1081-1085.
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Benjamin D. Roye, Michael G. Vitale, Annetine C. Gelijns & David P. RoyeJr.Jr.. (2001) Patient-Based Outcomes After Clubfoot Surgery. Journal of Pediatric Orthopaedics 21:1, pages 42-49.
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Benjamin D. Roye, Michael G. Vitale, Annetine C. Gelijns & David P. RoyeJr.Jr.. (2001) Patient-Based Outcomes After Clubfoot Surgery. Journal of Pediatric Orthopaedics, pages 42-49.
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A.G. Pallis & I.A. Mouzas. (2000) Instruments for quality of life assessment in patients with inflammatory bowel disease. Digestive and Liver Disease 32:8, pages 682-688.
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Jan E. Irvine, Gordon R. Greenberg, Brian G. Feagan, Francois Martin, Lloyd R. Sutherland, Alan B. R. Thomson, Lars-Goran Nilsson & Tore Persson. (2000) Quality of Life Rapidly Improves with Budesonide Therapy for Active Crohnʼs Disease. Inflammatory Bowel Diseases 6:3, pages 181-187.
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Scott A. Seidel, Martin Newman & Kenneth W. Sharp. (2022) Ileoanal Pouch versus Ileostomy: Is There a Difference in Quality of Life?. The American Surgeon 66:6, pages 540-547.
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Scott A. Seidel, Shari E. Peach, Martin Newman & Kenneth W. Sharp. (2022) Ileoanal Pouch Procedures: Clinical Outcomes and Quality-of-Life Assessment. The American Surgeon 65:1, pages 40-46.
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W. Häuser. 1999. Darmkrankheiten. Darmkrankheiten 775 784 .
Thomas Ehrmann, Wolfgang Bittmann & Wolf Heitland. (1998) Untersuchung der Lebensqualität bei Patienten mit chronisch entzündlicher DarmerkrankungQuality of life evaluation in Chronic Inflammatory Bowel disease. Coloproctology 20:5, pages 171-178.
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