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Research Article

Preliminary Validity and Reliability of the Sickle Cell Disease Health-Related Stigma Scale

, PhD, RN, , PhD, RN, , PhD & , MD
Pages 363-369 | Published online: 30 May 2012

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Anna M. Hood, Lori E. Crosby, Eva Hanson, Lisa M. Shook, Jeffrey D. Lebensburger, Avi Madan-Swain, Megan M. Miller & Zina Trost. (2022) The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease. Ethnicity & Health 27:4, pages 833-846.
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J. Deanna Wilson, Sophie Lanzkron, Lydia H. Pecker, Shawn M. Bediako, Dingfen Han & Mary Catherine Beach. (2020) Psychosocial and Clinical Risk Factors Associated with Substance Use in Observational Cohort of Patients with Sickle Cell Disease. Substance Use & Misuse 55:13, pages 2205-2212.
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Dominique Bulgin, Paula Tanabe & Coretta Jenerette. (2018) Stigma of Sickle Cell Disease: A Systematic Review. Issues in Mental Health Nursing 39:8, pages 675-686.
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Articles from other publishers (17)

Deepa Bhat, Bontha V. Babu, Shaily B. Surti, Manoranjan Ranjit, Jatin Sarmah, Parikipandla Sridevi & Yogita Sharma. (2023) Stigma of sickle cell disease among Indian tribal population: A multi-centric qualitative study. Journal of the National Medical Association 115:6, pages 556-565.
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Nadin M. Abdel Razeq, Reem A. Ali, Ahmad Aqel, Ardie Vanessa Pack-Mabien, Eman Abu Sabbah, Inshirah A. Qadiri & Khadeejeh Y. Aldasoqi. (2023) Nurses’ Attitudes Concerning Analgesia Administration for Pediatric Patients with Sickle Cell Disease in Jordan: A Cross-Sectional Study. Pain Management Nursing.
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Coretta Jenerette, Julia O’Brien, Cheedy Jaja, Evanilda Souza de Santana Carvalho, Cheryl Brewer & Ronald L. HickmanJr.Jr.. (2022) Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form. Western Journal of Nursing Research 45:5, pages 425-431.
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Jessie Reich, Mary Ann Cantrell & Suzanne C. Smeltzer. (2022) An Integrative Review: The Evolution of Provider Knowledge, Attitudes, Perceptions and Perceived Barriers to Caring for Patients with Sickle Cell Disease 1970–Now. Journal of Pediatric Hematology/Oncology Nursing, pages 275275302210901.
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Dora Clayton-Jones, Nadine Matthie, Marsha Treadwell, Joshua J. Field, Amy Mager, Rachel Sawdy, Safiya George Dalmida, Cynthia Leonard, Kathryn L. Koch & Kristin Haglund. (2019) Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease. Journal of Transcultural Nursing 32:1, pages 21-29.
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Aindrea B. Maddray & Shannon M. Phillips. (2020) Instruments to Measure Perceptions in the Emergency Department Provider-Patient with Sickle Cell Disease Interaction: Findings of an Integrative Review from a Ph.D. Project. The Open Nursing Journal 14:1, pages 263-284.
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Ming Zhang, Yuqi Zhang & Yazhuo Kong. (2020) Interaction between social pain and physical pain. Brain Science Advances 5:4, pages 265-273.
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Alicia Renedo, Sam Miles, Subarna Chakravorty, Andrea Leigh, Paul Telfer, John O. Warner & Cicely Marston. (2019) Not being heard: barriers to high quality unplanned hospital care during young people’s transition to adult services – evidence from ‘this sickle cell life’ research. BMC Health Services Research 19:1.
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Grammati Sarri, Menaka Bhor, Seye Abogunrin, Caroline Farmer, Savita Nandal, Rashid Halloway & Dennis A. Revicki. (2018) Systematic literature review and assessment of patient-reported outcome instruments in sickle cell disease. Health and Quality of Life Outcomes 16:1.
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Emily O. Wakefield, William T. Zempsky, Rebecca M. Puhl & Mark D. Litt. (2018) Conceptualizing pain-related stigma in adolescent chronic pain: a literature review and preliminary focus group findings. PAIN Reports 3:7, pages e679.
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Robin R. Leger, Linda D. Wagner & Victoria Odesina. (2018) Stigma in adults with sickle cell disease and family members: Scale development and pilot study in the USA and Nigeria. International Journal of Africa Nursing Sciences 9, pages 23-29.
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Shawn M Bediako, Sophie Lanzkron, Marie Diener-West, Gladys Onojobi, Mary C Beach & Carlton HaywoodJrJr. (2014) The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study. Journal of Health Psychology 21:5, pages 808-820.
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Kimberly M. Wesley, Mimi Zhao, Yvonne Carroll & Jerlym S. Porter. (2016) Caregiver Perspectives of Stigma Associated With Sickle Cell Disease in Adolescents. Journal of Pediatric Nursing 31:1, pages 55-63.
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Coretta M. Jenerette, Bosny J. Pierre-Louis, Nadine Matthie & Yasmeen Girardeau. (2015) Nurses' Attitudes Toward Patients with Sickle Cell Disease: A Worksite Comparison. Pain Management Nursing 16:3, pages 173-181.
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Coretta M. Jenerette, Cheryl A. Brewer, Lloyd J. Edwards, Merle H. Mishel & Karen M. Gil. (2013) An Intervention to Decrease Stigma in Young Adults With Sickle Cell Disease. Western Journal of Nursing Research 36:5, pages 599-619.
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Coretta M. Jenerette, Cheryl A. Brewer & Kenneth I. Ataga. (2014) Care Seeking for Pain in Young Adults with Sickle Cell Disease. Pain Management Nursing 15:1, pages 324-330.
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Emma M Gregg, Stella O Jaiyesimi & Cynthia Barket. (2014) Ocular involvement in sickle cell disease: the ophthalmic nurse role. International Journal of Ophthalmic Practice 5:1, pages 20-26.
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