Citations (75)
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Alexander Porto, Lara Anderson, Tyler Kalinich, Kyle C. Deane, Lawrence C. Vogel & Kathy Zebracki. (2020) Understanding transition for youth with spinal cord injury: Youth and caregiver perceptions. The Journal of Spinal Cord Medicine 43:4, pages 505-511.
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Robert J. Palisano, Briano Di Rezze, Debra Stewart, Matthew Freeman, Peter L. Rosenbaum, Oksana Hlyva, Lisa Wolfe & Jan Willem Gorter. (2020) Promoting capacities for future adult roles and healthy living using a lifecourse health development approach. Disability and Rehabilitation 42:14, pages 2002-2011.
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Katherine Jackson, Sharon Hamilton, Susan Jones & Steven Barr. (2019) Patient reported experiences of using community rehabilitation and/or support services whilst living with a long-term neurological condition: a qualitative systematic review and meta-aggregation. Disability and Rehabilitation 41:23, pages 2731-2749.
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Gillian M. Mulvale, Tram D. Nguyen, Ashleigh M. Miatello, Mark G. Embrett, Patricia A. Wakefield & Glen E. Randall. (2019) Lost in transition or translation? Care philosophies and transitions between child and youth and adult mental health services: a systematic review. Journal of Mental Health 28:4, pages 379-388.
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Laura R. Hartman, Amy C. McPherson, Joanne Maxwell & Sally Lindsay. (2018) Exploring the ICF-CY as a framework to inform transition programs from pediatric to adult healthcare. Developmental Neurorehabilitation 21:5, pages 312-325.
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Yani Hamdani, Bhavnita Mistry & Barbara E. Gibson. (2015) Transitioning to adulthood with a progressive condition: best practice assumptions and individual experiences of young men with Duchenne muscular dystrophy. Disability and Rehabilitation 37:13, pages 1144-1151.
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Tram Nguyen & Sue Baptiste. (2015) Innovative practice: exploring acculturation theory to advance rehabilitation from pediatric to adult “cultures” of care. Disability and Rehabilitation 37:5, pages 456-463.
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Marie Törnbom, Ulrica Jonsson & Katharina
Stibrant Sunnerhagen. (2013) Increasing symptoms, met and unmet needs in adults with cerebral palsy or meningomyelocele a longitudinal follow-up. Scandinavian Journal of Disability Research 15:3, pages 249-263.
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Carolyn West, Lynne Brodie, Julie Dicker & Katharine Steinbeck. (2011) Development of health support services for adults with spina bifida. Disability and Rehabilitation 33:22-23, pages 2381-2388.
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Jan Willem Gorter. (2009) Transition to Adult-Oriented Health Care: Perspectives of Youth and Adults with Complex Physical Disabilities. Physical & Occupational Therapy In Pediatrics 29:4, pages 362-366.
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Articles from other publishers (65)
Jennifer Splane, Shelley Doucet & Alison Luke. (2023) Transitioning from paediatric to adult healthcare: Exploring the practices and experiences of care providers. Journal of Child Health Care.
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Carol Anne Celona, Kasey Jackman & Arlene Smaldone. (2023) Emergency Department Use by Young Adults With Chronic Illness Before and During the COVID-19 Pandemic. Journal of Emergency Nursing 49:5, pages 755-764.
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Emily Alice Bray, Ajesh George, Bronwyn Everett, Yenna Salamonson & Lucie M. Ramjan. (2023) Feasibility and Acceptability of a Codesigned Health Care Transition Intervention for Young People With Spinal Cord Injuries. Topics in Spinal Cord Injury Rehabilitation 29:3, pages 89-97.
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Shauna Kingsnorth, Yani Hamdani, Clare Cheng, Sally Lindsay, Joanne Maxwell, Angela Colantonio, Mark Bayley & Colin Macarthur. (2023) Health status and health care utilization profiles of adolescents with disabilities. Health Care Transitions 1, pages 100004.
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Rachel A. Kennedy, Georgia McKenzie, Carlee Holmes & Nora Shields. (2022) Social Support Initiatives That Facilitate Exercise Participation in Community Gyms for People with Disability: A Scoping Review. International Journal of Environmental Research and Public Health 20:1, pages 699.
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Gillian King, Laura R. Bowman, C. J. Curran, Anna Oh, Laura Thompson, Carolyn McDougall, Dolly Menna-Dack & Laura Howson-Strong. (2022) A case study of a strategic initiative in pediatric rehabilitation transition services: An insiders' perspective on team principles and practices. Frontiers in Rehabilitation Sciences 3.
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Ellen Fremion, Rachel Cowley, John Berens, Kristen A. Staggers, K. Jordan Kemere, Judy Lu Kim, Elisha Acosta & Cynthia Peacock. (2022) Improved health care transition for young adults with developmental disabilities referred from designated transition clinics. Journal of Pediatric Nursing 67, pages 27-33.
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Janet Njelesani, Vongai Mlambo, Tsedenia Denekew & Jean Hunleth. (2022) Inclusion of children with disabilities in qualitative health research: A scoping review. PLOS ONE 17:9, pages e0273784.
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Gitte Normann, Kirsten Arntz Boisen, Peter Uldall & Anne Brødsgaard. (2022) Navigating being a young adult with cerebral palsy: a qualitative study. International Journal of Adolescent Medicine and Health 34:4, pages 187-195.
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Colleen Stiles-Shields, Tessa K. KritikosMeredith Starnes, Zoe R. SmithGrayson N. Holmbeck. (2022) The Transition from Pediatric to Adult Health Care in Young Adults with Spina Bifida: Demographic and Physician-Related Correlates. Journal of Developmental & Behavioral Pediatrics 43:3, pages e179-e187.
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Wenche Bekken, Borgunn Ytterhus & Sylvia Söderström. (2021) ‘In the Next Moment I Answer, it is Not Possible.’ Professionals’ Experiences from Transition Planning for Young People. Scandinavian Journal of Disability Research 23:1, pages 338-347.
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Anna G. W. Rosenberg, Minke R. A. Pater, Karlijn Pellikaan, Kirsten Davidse, Anja A. Kattentidt-Mouravieva, Rogier Kersseboom, Anja G. Bos-Roubos, Agnies van Eeghen, José M. C. Veen, Jiske J. van der Meulen, Nina van Aalst-van Wieringen, Franciska M. E. Hoekstra, Aart J. van der Lely & Laura C. G. de Graaff. (2021) What Every Internist-Endocrinologist Should Know about Rare Genetic Syndromes in Order to Prevent Needless Diagnostics, Missed Diagnoses and Medical Complications: Five Years of ‘Internal Medicine for Rare Genetic Syndromes’. Journal of Clinical Medicine 10:22, pages 5457.
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Shauna Kingsnorth, Sally Lindsay, Joanne Maxwell, Yani Hamdani, Angela Colantonio, Jingqin Zhu, Mark Theodore Bayley & Colin Macarthur. (2021) Bridging Pediatric and Adult Rehabilitation Services for Young Adults With Childhood-Onset Disabilities: Evaluation of the LIFEspan Model of Transitional Care. Frontiers in Pediatrics 9.
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Mette S. Ludvigsen, Elisabeth O.C. Hall, Thomas Westergren, Hanne Aagaard, Lisbeth Uhrenfeldt & Liv Fegran. (2021) Being cross pressured-parents’ experiences of the transfer from paediatric to adult care services for their young people with long term conditions: A systematic review and qualitative research synthesis. International Journal of Nursing Studies 115, pages 103851.
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Karen L. Shaw, Gemma Heath & Albert Farre. 2021. Self-Management of Young People with Chronic Conditions. Self-Management of Young People with Chronic Conditions
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Graham Roberts, Marta Vazquez‐Ortiz, Rebecca Knibb, Ekaterina Khaleva, Cherry Alviani, Elizabeth Angier, Katharina Blumchen, Pasquale Comberiati, Bettina Duca, Audrey DunnGalvin, Teresa Garriga‐Baraut, Claudia Gore, M. Hazel Gowland, Valérie Hox, Britt Jensen, Charlotte G. Mortz, Oliver Pfaar, Helena Pite, Alexandra F. Santos, Silvia Sanchez‐Garcia & Frans Timmermans. (2020) EAACI Guidelines on the effective transition of adolescents and young adults with allergy and asthma. Allergy 75:11, pages 2734-2752.
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Michelle G Sy, Maria Minerva P Calimag, Rosalina Q de Sagun & Maria Antonia Aurora M Valencia. (2020) We Got to Move it, Move it: The Lived Experiences of Family Carers of Youth with Chronic Neurodevelopmental Disorders as They Enter into Adult Health Care. Journal of Medicine, University of Santo Tomas 4:2, pages 486-499.
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Lisa L. Myers, Arany Nerminathan, Dominic A. Fitzgerald, Jimmy Chien, Anna Middleton, Mary-Clare Waugh & Simon Paul Paget. (2020) Transition to adult care for young people with cerebral palsy. Paediatric Respiratory Reviews 33, pages 16-23.
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Jennifer Fortune, Paul Murphy, Nabil Merchant, Claire Kerr, Thilo Kroll, Aisling Walsh, Meriel Norris, Grace Lavelle & Jennifer Ryan. (2020) Transition from child-centred to adult-oriented healthcare systems for young people with neurodisability: a scoping review protocol. HRB Open Research 3, pages 61.
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Erin Brandon, Marilyn Ballantyne, Melanie Penner, Andrea Lauzon & Erin McCarvill. (2019) Accessing primary health care services for transition-aged young adults with cerebral palsy; perspectives of young adults, parents, and physicians. Journal of Transition Medicine 1:1.
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Michelle S. Franklin, Logan N. Beyer, Samuel M. Brotkin, Gary R. Maslow, McLean D. Pollock & Sharron L. Docherty. (2019) Health Care Transition for Adolescent and Young Adults with Intellectual Disability: Views from the Parents. Journal of Pediatric Nursing 47, pages 148-158.
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Marion Roquet, Ronan Garlantezec, Olivier Remy‐Neris, Elise Sacaze, Philippe Gallien, Juliette Ropars, Laetitia Houx, Christelle Pons & Sylvain Brochard. (2018) From childhood to adulthood: health care use in individuals with cerebral palsy. Developmental Medicine & Child Neurology 60:12, pages 1271-1277.
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Matthew Freeman, Debra Stewart, Charles E. Cunningham & Jan Willem Gorter. (2018) Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review. Journal of Transition Medicine 1:1.
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Sofía Zhang-Jiang & Jan Willem Gorter. (2018) The use of the Rotterdam Transition Profile: 10 years in review. Journal of Transition Medicine 1:1.
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Mary R. Ciccarelli. 2018. Health Care Transition. Health Care Transition
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Jacquie D. Ripat & Roberta L. Woodgate. (2017) The importance of assistive technology in the productivity pursuits of young adults with disabilities. Work 57:4, pages 455-468.
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Cecily L. Betz. (2017) SPN Position Statement: Transition of Pediatric Patients Into Adult Care. Journal of Pediatric Nursing 35, pages 160-164.
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Elizabeth Joly. (2015) Access to services for young adults with medical complexity. Nursing Ethics 24:3, pages 329-336.
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Gemma Heath, Albert Farre & Karen Shaw. (2017) Parenting a child with chronic illness as they transition into adulthood: A systematic review and thematic synthesis of parents’ experiences. Patient Education and Counseling 100:1, pages 76-92.
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Sally Lindsay, Melissa Fellin, Heather Cruickshank, Amy McPherson & Joanne Maxwell. (2016) Youth and parents' experiences of a new inter-agency transition model for spina bifida compared to youth who did not take part in the model. Disability and Health Journal 9:4, pages 705-712.
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M. Dellenmark-Blom, J. E. Chaplin, L. Jönsson, V. Gatzinsky, J. H. Quitmann & K. Abrahamsson. (2016) Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent perspective. Child: Care, Health and Development 42:5, pages 759-767.
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Karen A. CookSusan M. JackHal SidenLehana ThabaneGina Browne. (2016) Investing in Uncertainty: Young Adults with Life-Limiting Conditions Achieving Their Developmental Goals. Journal of Palliative Medicine 19:8, pages 830-835.
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Courtney J. Wright, Heidi Zeeman & Valda Biezaitis. (2016) Holistic Practice in Traumatic Brain Injury Rehabilitation: Perspectives of Health Practitioners. PLOS ONE 11:6, pages e0156826.
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Elizabeth Joly. (2016) Integrating transition theory and bioecological theory: a theoretical perspective for nurses supporting the transition to adulthood for young people with medical complexity. Journal of Advanced Nursing 72:6, pages 1251-1262.
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S. Lindsay. (2016) Child and youth experiences and perspectives of cerebral palsy: a qualitative systematic review. Child: Care, Health and Development 42:2, pages 153-175.
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B. Di Rezze, T. Nguyen, G. Mulvale, N. G. Barr, C. J. Longo & G. E. Randall. (2016) A scoping review of evaluated interventions addressing developmental transitions for youth with mental health disorders. Child: Care, Health and Development 42:2, pages 176-187.
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Sally Lindsay, Meghann Proulx, Joanne Maxwell, Yani Hamdani, Mark Bayley, Colin Macarthur & Angela Colantonio. (2016) Gender and Transition From Pediatric to Adult Health Care Among Youth With Acquired Brain Injury: Experiences in a Transition Model. Archives of Physical Medicine and Rehabilitation 97:2, pages S33-S39.
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Jonathan Tolentino & Gregg Talente. 2016. Care of Adults with Chronic Childhood Conditions. Care of Adults with Chronic Childhood Conditions
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Hope L. O'Brien & Joshua M. Cohen. (2015) Young Adults With Headaches: The Transition From Adolescents to Adults. Headache: The Journal of Head and Face Pain 55:10, pages 1404-1409.
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Ellen McLaughlin Carroll. (2015) Health Care Transition Experiences of Young Adults With Cerebral Palsy. Journal of Pediatric Nursing 30:5, pages e157-e164.
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Elizabeth Joly. (2015) Transition to Adulthood for Young People with Medical Complexity: An Integrative Literature Review. Journal of Pediatric Nursing 30:5, pages e91-e103.
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Carol Anne Celona. (2015) Measuring Acuity and Patient Progress for Youth With Special Health Care Needs in Transition Care Utilizing Nursing Outcomes. Journal of Pediatric Nursing 30:5, pages e15-e18.
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Cecily L. Betz, Wendy M. Nehring & Marie L. Lobo. (2015) Transition Needs of Parents of Adolescents and Emerging Adults With Special Health Care Needs and Disabilities. Journal of Family Nursing 21:3, pages 362-412.
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Joshua R. Mann, Julie A. Royer, Margaret A. Turk, Suzanne McDermott, Margaret M. Holland, Orgul D. Ozturk, James W. Hardin & Judy K. Thibadeau. (2014) Inpatient and Emergency Room Visits for Adolescents and Young Adults With Spina Bifida Living in South Carolina. PM&R 7:5, pages 499-511.
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Karen A Kuhlthau, Marji E Warfield, Jill Hurson, Jennifer Delahaye & Morgan K Crossman. (2014) Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions. Autism 19:3, pages 262-271.
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M. Freeman, D. Stewart, L. Shimmell, C. Missiuna, J. Burke-Gaffney, S. Jaffer & M. Law. (2015)
Development and evaluation of The KIT: Keeping It Together™
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outh
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Joan T. Le & Shubhra Mukherjee. (2015) Transition to Adult Care for Patients with Spina Bifida. Physical Medicine and Rehabilitation Clinics of North America 26:1, pages 29-38.
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Jan Willem Gorter, Debra Stewart, Marc Woodbury Smith, Gillian King, Marilyn Wright, Tram Nguyen, Matt Freeman & Marilyn Swinton. (2014) Pathways toward Positive Psychosocial Outcomes and Mental Health for Youth with Disabilities: A Knowledge Synthesis of Developmental Trajectories. Canadian Journal of Community Mental Health 33:1, pages 45-61.
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Margo N. OrlinNancy A. CicirelloAnne E. O'DonnellAntonette K. Doty. (2014) The Continuum of Care for Individuals With Lifelong Disabilities: Role of the Physical Therapist. Physical Therapy 94:7, pages 1043-1053.
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Lisieux E. Jesus, Samuel Dekermacher, Júlia Frota, Jailma J. Bragança & Kleber M. Anderson. (2014) Adolescents and adults in pediatric urology clinics. Journal of Pediatric Urology 10:3, pages 408-411.
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Fiona Burns, Robbie Stewart, Dinah Reddihough, Adam Scheinberg, Kathleen Ooi & H. Kerr Graham. (2014) The cerebral palsy transition clinic: Administrative chore, clinical responsibility, or opportunity for audit and clinical research?. Journal of Children's Orthopaedics 8:3, pages 203-213.
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Nancy L. Young, Lianne A. Anselmo, Tricia A. Burke, Anna McCormick & Shubhra Mukherjee. (2014) Youth and Young Adults With Spina Bifida: Their Utilization of Physician and Hospital Services. Archives of Physical Medicine and Rehabilitation 95:3, pages 466-471.
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Cecily L. Betz, Marie L. Lobo, Wendy M. Nehring & Kim Bui. (2013) Voices not heard: A systematic review of adolescents' and emerging adults' perspectives of health care transition. Nursing Outlook 61:5, pages 311-336.
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Karen G. C. B. Bindels-de Heus, AnneLoes van Staa, Ingeborg van Vliet, Frans V. P. M. Ewals & Sander R. Hilberink. (2013) Transferring Young People With Profound Intellectual and Multiple Disabilities From Pediatric to Adult Medical Care: Parents' Experiences and Recommendations. Intellectual and Developmental Disabilities 51:3, pages 176-189.
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Margaret A. Turk, Lynne Rommeiser Logan & Frieda Ansoanuur. (2013) Adults with Childhood Onset Disabilities: A Focused Review of Three Conditions. Current Physical Medicine and Rehabilitation Reports 1:2, pages 72-87.
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Nancy L. Young, Kaitlin Sheridan, Tricia A. Burke, Shubhra Mukherjee & Anna McCormick. (2013) Health Outcomes among Youths and Adults with Spina Bifida. The Journal of Pediatrics 162:5, pages 993-998.
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Karen Cook, Harold Siden, Susan Jack, Lehana Thabane & Gina Browne. (2013) Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care. Nursing Research and Practice 2013, pages 1-10.
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Maryam Oskoui. (2014) Growing Up With Cerebral Palsy: Contemporary Challenges of Healthcare Transition. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 39:1, pages 23-25.
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J. W. Gorter, D. Stewart & M. Woodbury-Smith. (2011) Youth in transition: care, health and development. Child: Care, Health and Development 37:6, pages 757-763.
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Y. Hamdani, A. Jetha & C. Norman. (2011) Systems thinking perspectives applied to healthcare transition for youth with disabilities: a paradigm shift for practice, policy and research. Child: Care, Health and Development 37:6, pages 806-814.
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S. Kingsnorth, C. Gall, S. Beayni & P. Rigby. (2011) Parents as transition experts? Qualitative findings from a pilot parent-led peer support group. Child: Care, Health and Development 37:6, pages 833-840.
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A. L. van Staa, S. Jedeloo, J. van Meeteren & J. M. Latour. (2011) Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child: Care, Health and Development 37:6, pages 821-832.
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Ellen Fremion, Rachel Cowley, Kristen A. Staggers, John Berens, K. Jordan Kemere, Judy Kim, Elisha Acosta & Cynthia Peacock. (2022) Improved Health Care Transition for Young Adults with Developmental Disabilities Referred from Designated Transition Clinics. SSRN Electronic Journal.
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