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Research Article

A Qualitative Study of Coping in Mothers of Children with an Autism Spectrum Disorder

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Pages 340-350 | Published online: 24 Aug 2010

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Read on this site (9)

Tomomi McAuliffe, Reinie Cordier, Yu-Wei Chen, Sharmila Vaz, Yvonne Thomas & Torbjörn Falkmer. (2022) In-the-moment experiences of mothers of children with autism spectrum disorder: a comparison by household status and region of residence. Disability and Rehabilitation 44:4, pages 558-572.
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Te Ana Pepperell, Jessica Paynter & Linda Gilmore. (2018) Social support and coping strategies of parents raising a child with autism spectrum disorder. Early Child Development and Care 188:10, pages 1392-1404.
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Kiboum Kim, Junhyoung Kim, Alison Voight & Minjoon Ji. (2018) Listening to the screaming whisper: a voice of mother caregivers of children with autistic spectrum disorder (ASD). International Journal of Qualitative Studies on Health and Well-being 13:1.
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Elaina DaLomba, Mary Frances Baxter, Patricia Fingerhut & Anne O’Donnell. (2017) The effects of sensory processing and behavior of toddlers on parent participation: A pilot study. Journal of Occupational Therapy, Schools, & Early Intervention 10:1, pages 27-39.
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Khim Lynn Ooi, Yin Sin Ong, Sabrina Anne Jacob & Tahir Mehmood Khan. (2016) A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment 12, pages 745-762.
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Terry K. Crowe, Susanne W. Duvall & Julie A. Gutierrez. (2016) Occupational performance goals of mothers of adolescents with disabilities and mothers of adolescents with typical development. Journal of Occupational Science 23:3, pages 370-381.
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Jennifer First, Nancy C. Cheak-Zamora & Michelle Teti. (2016) A qualitative study of stress and coping when transitioning to adulthood with autism spectrum disorder. Journal of Family Social Work 19:3, pages 220-236.
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Abir K. Bekhet, Norah L. Johnson & Jaclene A. Zauszniewski. (2012) Resilience in Family Members of Persons with Autism Spectrum Disorder: A Review of the Literature. Issues in Mental Health Nursing 33:10, pages 650-656.
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Annemarie Murphy, David Trembath, Joanne Arciuli & Jacqueline M. Roberts. (2011) Supporting parents of children with autism spectrum disorders to become informed consumers of evidence on speech pathology practice. Evidence-Based Communication Assessment and Intervention 5:2, pages 116-129.
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Articles from other publishers (47)

Karine Poitras, Emilie Lahaie & Rachel Birnbaum. (2023) Judicial decision‐making in family court involving children with autism spectrum disorder. Family Court Review.
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Genesis Sanchez & Casey Cragin. (2023) Coping in parenting adolescents with autism spectrum disorder. The Brown University Child and Adolescent Behavior Letter 39:4, pages 1-4.
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Woan Yin Tan, Nur Hana Hamzaid & Norhayati Ibrahim. (2023) Parental Perceptions on the Importance of Nutrients for Children with Autism Spectrum Disorder (ASD) and the Coping Strategies: A Qualitative Study. Nutrients 15:7, pages 1608.
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Elvira Celebic & Haris Memisevic. (2023) Exploring the Parental Experiences in the Media: A Qualitative Analysis of Articles Written by Parents of Children with Autism in Bosnia and Herzegovina. Journal of Health and Rehabilitation Sciences 2:1, pages 1-9.
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Julie Smith, Nicole Halliwell, Amy Laurent, Jessica Tsotsoros, Katelyn Harris & Beth DeGrace. (2023) Social Participation Experiences of Families Raising a Young Child With Autism Spectrum Disorder: Implications for Mental Health and Well-Being. The American Journal of Occupational Therapy 77:2.
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Catalina Sau Man Ng & Sally Sui Ling Ng. (2022) A qualitative study on the experience of stigma for Chinese parents of children with autism spectrum disorder. Scientific Reports 12:1.
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Ankita Verma, Harsh Priyank, Butta Viswanath, Jaimesh Kumar Bhagat, Saurav Purbay, Mahalakshmi V & Sahana Shivakumar. (2022) Assessment of Parental Perceptions of Socio-Psychological Factors, Unmet Dental Needs, and Barriers to Utilise Oral Health Care in Autistic Children. Cureus.
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Leila Dehghan, Hamid Dalvand, Mohammad Reza Hadian Rasanani & Greg Kelly. (2021) Exploring the process of health in mothers of children with cerebral palsy: Changing “clinical reasoning”. British Journal of Occupational Therapy 85:4, pages 283-291.
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Christina N. Marsack‐Topolewski, Tam E. Perry & Keith T. Chan. (2020) “I'm Glad She Chose Me as Her Parent”: Rewards of Caregiving for Adults With Autism. Family Relations 70:5, pages 1465-1476.
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Helen M. Bourke‐Taylor, Sarah Grzegorczyn & Kahli S. Joyce. (2021) Peer mentor training: Pathway to competency for facilitators of Healthy Mothers Healthy Families workshops. Child: Care, Health and Development 47:5, pages 575-587.
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Parisa Ghanouni & Graham Hood. (2021) Stress, Coping, and Resiliency Among Families of Individuals with Autism: a Systematic Review. Review Journal of Autism and Developmental Disorders 8:3, pages 389-402.
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Anne B. O' Connor, Barry Carpenter & Barry Coughlan. (2021) Confident championing: A grounded theory of parental adjustment following a child’s diagnosis of developmental disability. British Journal of Learning Disabilities 49:2, pages 247-258.
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Gregorius Abanit Asa, Nelsensius Klau Fauk, Paul Russell Ward, Karen Hawke, Rik Crutzen & Lillian Mwanri. (2021) Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia. PLOS ONE 16:5, pages e0251274.
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María Inmaculada Fernández‐Ávalos, María Nieves Pérez‐Marfil, Rosario Ferrer‐Cascales, Francisco Cruz‐Quintana & Manuel Fernández‐Alcántara. (2020) Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability. Journal of Applied Research in Intellectual Disabilities 34:3, pages 712-723.
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Gal Bohadana, Shirley Morrissey & Jessica Paynter. (2020) Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis. Journal of Autism and Developmental Disorders 51:4, pages 1290-1303.
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Ben Grey, Rudi Dallos & Rebecca Stancer. (2021) Feeling ‘like you’re on … a prison ship’ – Understanding the caregiving and attachment narratives of parents of autistic children. Human Systems: Therapy, Culture and Attachments 1:1, pages 96-114.
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Fionnuala Larkin, Marianna E. Hayiou-Thomas, Zaynah Arshad, Matthew Leonard, Frances J. Williams, Nicoletta Katseniou, Rania N. Malouta, Charlotte R. P. Marshall, Maria Diamantopoulou, Etonia Tang, Sneha Mani & Elizabeth Meins. (2020) Mind-Mindedness and Stress in Parents of Children with Developmental Disorders. Journal of Autism and Developmental Disorders 51:2, pages 600-612.
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Jan Christopher Cwik. 2021. Spiritual Needs in Research and Practice. Spiritual Needs in Research and Practice 265 280 .
María Inmaculada Fernández-Ávalos, María Nieves Pérez-Marfil, Rosario Ferrer-Cascales, Francisco Cruz-Quintana, Violeta Clement-Carbonell & Manuel Fernández-Alcántara. (2020) Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study. International Journal of Environmental Research and Public Health 17:22, pages 8690.
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Hilda Shilubane & Nomfundo Mazibuko. (2020) Understanding autism spectrum disorder and coping mechanism by parents: An explorative study. International Journal of Nursing Sciences 7:4, pages 413-418.
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Jamal M Al Khateeb, Louise Kaczmarek & Muna S Al Hadidi. (2019) Parents’ perceptions of raising children with autism spectrum disorders in the United States and Arab countries: A comparative review. Autism 23:7, pages 1645-1654.
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Eugenia Bianchi & Stephany Rodríguez Jurado. (2019) Biomedicalización de los tiempos: terapéuticas, biosocialidades y cuidados cotidianos en familias de niños y niñas con diagnóstico de TEA en Buenos Aires. Saúde e Sociedade 28:1, pages 92-106.
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Reshmi L. Singh, Eric J. Moody, Bethany Rigles & Elyssa B. Smith. (2018) What it Takes to Raise Children with Autism in a Rural State. Advances in Neurodevelopmental Disorders 3:1, pages 17-28.
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Charlotte Angelhoff, Hanna Askenteg, Ulrica Wikner & Ulla Edéll-Gustafsson. (2018) “To Cope with Everyday Life, I Need to Sleep” – A Phenomenographic Study Exploring Sleep Loss in Parents of Children with Atopic Dermatitis. Journal of Pediatric Nursing 43, pages e59-e65.
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Gary Byrne, Kiran M. Sarma, John Hendler & Anthony O'Connell. (2018) On the spectrum, off the beaten path. A qualitative study of Irish parents’ experiences of raising a child with autism spectrum conditions. British Journal of Learning Disabilities 46:3, pages 182-192.
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Helen M. Bourke-Taylor & Fiona M. Jane. (2018) Mothers’ Experiences of a Women’s Health and Empowerment Program for Mothers of a Child with a Disability. Journal of Autism and Developmental Disorders 48:6, pages 2174-2186.
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Elizabeth O’Nions, Francesca Happé, Kris Evers, Hannah Boonen & Ilse Noens. (2017) How do Parents Manage Irritability, Challenging Behaviour, Non-Compliance and Anxiety in Children with Autism Spectrum Disorders? A Meta-Synthesis. Journal of Autism and Developmental Disorders 48:4, pages 1272-1286.
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Nancy C Cheak-Zamora, Michelle Teti, Anna Maurer-Batjer & Erica Koegler. (2017) Exploration and Comparison of Adolescents With Autism Spectrum Disorder and Their Caregiver’s Perspectives on Transitioning to Adult Health Care and Adulthood. Journal of Pediatric Psychology 42:9, pages 1028-1039.
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Tomomi McAuliffe, Reinie Cordier, Sharmila Vaz, Yvonne Thomas & Torbjorn Falkmer. (2017) Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households. Journal of Autism and Developmental Disorders 47:10, pages 3189-3203.
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Saima Habib, Paula Prendeville, Asma Abdussabur & William Kinsella. (2017) Pakistani mothers’ experiences of parenting a child with autism spectrum disorder (ASD) in Ireland. Educational and Child Psychology 34:2, pages 67-79.
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David B. Nicholas, Lonnie Zwaigenbaum, Stanley Ing, Radha MacCulloch, Wendy Roberts, Patricia McKeever & Carly A. McMorris. (2015) “Live It to Understand It”. Qualitative Health Research 26:7, pages 921-934.
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Jacqueline Corcoran, Amber Berry & Stephanie Hill. (2015) The lived experience of US parents of children with autism spectrum disorders. Journal of Intellectual Disabilities 19:4, pages 356-366.
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Nancy C. Cheak-Zamora, Michelle Teti & Jennifer First. (2015) ‘Transitions are Scary for our Kids, and They're Scary for us’: Family Member and Youth Perspectives on the Challenges of Transitioning to Adulthood with Autism. Journal of Applied Research in Intellectual Disabilities 28:6, pages 548-560.
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George S. Tomlin & Yvonne Swinth. (2015) Contribution of Qualitative Research to Evidence in Practice for People With Autism Spectrum Disorder. The American Journal of Occupational Therapy 69:5, pages 6905360010p1-6905360010p4.
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Yvonne Swinth, George Tomlin & Marge Luthman. (2015) Content Analysis of Qualitative Research on Children and Youth With Autism, 1993–2011: Considerations for Occupational Therapy Services. The American Journal of Occupational Therapy 69:5, pages 6905185030p1-6905185030p9.
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Heather Miller Kuhaneck, Stephanie Madonna, Audrey Novak & Emily Pearson. (2015) Effectiveness of Interventions for Children With Autism Spectrum Disorder and Their Parents: A Systematic Review of Family Outcomes. The American Journal of Occupational Therapy 69:5, pages 6905180040p1-6905180040p14.
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Erna Imperatore Blanche, Jesus Diaz, Tanya Barretto & Sharon A. Cermak. (2015) Caregiving Experiences of Latino Families With Children With Autism Spectrum Disorder. The American Journal of Occupational Therapy 69:5, pages 6905185010p1-6905185010p11.
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Tri Budi Santoso, Yuko Ito, Nobuo Ohshima, Mikiyo Hidaka & Peter Bontje. (2015) Resilience in Daily Occupations of Indonesian Mothers of Children With Autism Spectrum Disorder. The American Journal of Occupational Therapy 69:5, pages 6905185020p1-6905185020p8.
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Anne V. Kirby, Tamira J. White & Grace T. Baranek. (2015) Caregiver Strain and Sensory Features in Children With Autism Spectrum Disorder and Other Developmental Disabilities. American Journal on Intellectual and Developmental Disabilities 120:1, pages 32-45.
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Wei Zhang, Ting Ting Yan, K Louise Barriball, Alison E While & Xiao Hong Liu. (2013) Post-traumatic growth in mothers of children with autism: A phenomenological study. Autism 19:1, pages 29-37.
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Jennifer L. Suppo & Michael R. Mayton. (2017) Expanding Training Opportunities for Parents of Children with Autism. Rural Special Education Quarterly 33:3, pages 19-28.
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Sabrin Rizk, Kris Pizur-Barnekow & Amy R. Darragh. 2014. Comprehensive Guide to Autism. Comprehensive Guide to Autism 223 246 .
Sarah Dababnah & Susan L. Parish. (2013) “At a moment, you could collapse”: Raising children with autism in the West Bank. Children and Youth Services Review 35:10, pages 1670-1678.
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Damien Page. (2013) Managers coping in further educational colleges. Journal of Management Development 32:7, pages 705-720.
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Patricia E. Fingerhut. (2013) Life Participation for Parents: A Tool for Family-Centered Occupational Therapy. The American Journal of Occupational Therapy 67:1, pages 37-44.
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Jennifer Suppo & Kim Floyd. (2017) Parent Training for Families who have Children with Autism: A Review of the Literature. Rural Special Education Quarterly 31:2, pages 12-26.
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Sabrin Rizk, Kris Pizur-Barnekow & Amy R. Darragh. (2011) Leisure and Social Participation and Health-Related Quality of Life in Caregivers of Children with Autism. OTJR: Occupation, Participation and Health 31:4, pages 164-171.
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