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Research Article

‘It’s like a problem that doesn’t exist’: The emotional well-being of mothers caring for a child with brain injury

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Pages 1063-1072 | Received 22 Jun 2012, Accepted 06 Apr 2013, Published online: 19 Jun 2013

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Penelope Analytis, Narelle Warren, Alison Crichton, Sarah Knight & Jennie Ponsford. (2022) Coping and wellbeing in families with a child with acquired brain injury compared with families in the community. Disability and Rehabilitation 44:25, pages 7993-8000.
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Marissa L. Diener, Anne V. Kirby, Felicia Sumsion, Heather E. Canary & Michael M. Green. (2022) Community reintegration needs following paediatric brain injury: perspectives of caregivers and service providers. Disability and Rehabilitation 44:19, pages 5592-5602.
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Einat Yehene, Hadas Zukerman, Gil Goldzweig, Maya Gerner, Amichai Brezner & Jana Landa. (2022) Perfectionism, Big Five and biopsychosocial functioning among parents of children with and without acquired brain injury (ABI). Brain Injury 36:7, pages 860-867.
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T.A. Wearne, J.A. Logan, E.M. Trimmer, E. Wilson, M. Filipcikova, E. Kornfeld, J.A. Rushby & S. McDonald. (2021) Regulating emotion following severe traumatic brain injury: a randomized controlled trial of heart-rate variability biofeedback training. Brain Injury 35:11, pages 1390-1401.
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Einat Yehene, Amichai Brezner, Shani Ben-Valid, Sapir Golan, Ofri Bar-Nadav & Janna Landa. (2021) Factors associated with parental grief reaction following pediatric acquired brain injury. Neuropsychological Rehabilitation 31:1, pages 105-128.
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Katrina J. Luzinat, Penelope Analytis, Amelia J. Hicks, Narelle Warren & Jennie L. Ponsford. (2020) The experience of a recreational camp for families with a child or young person with acquired brain injury. Neuropsychological Rehabilitation 30:2, pages 233-248.
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Terry Carney, Shih-Ning Then, Christine Bigby, Ilan Wiesel, Jacinta Douglas & Elizabeth Smith. (2019) Realising ‘will, preferences and rights’: reconciling differences on best practice support for decision-making?. Griffith Law Review 28:4, pages 357-379.
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Madeleine Fitzpatrick, Eunan McCrudden & Karen Kirby. (2019) A Pilot Investigation of a Parenting Intervention for Parents and Children with Neurodevelopmental Disorders (NDD). Child Care in Practice 25:2, pages 129-145.
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M. J. Minney, R. M. Roberts, J. L. Mathias, J. Raftos & A. Kochar. (2019) Service and support needs following pediatric brain injury: perspectives of children with mild traumatic brain injury and their parents. Brain Injury 33:2, pages 168-182.
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Tricia S Williams, Kyla P McDonald, Samantha D Roberts, Robyn Westmacott, Sara Ahola Kohut, Nomazulu Dlamini & Steven P Miller. (2018) In their own words: developing the Parent Experiences Questionnaire following neonatal brain injury using participatory design. Brain Injury 32:11, pages 1386-1396.
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Emma Tyerman, Fiona J. R. Eccles & Victoria Gray. (2017) The experiences of parenting a child with an acquired brain injury: A meta-synthesis of the qualitative literature. Brain Injury 31:12, pages 1553-1563.
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Gerard A. Riley & Selina Balloo. (2016) Maternal narratives about their child’s identity following acquired brain injury. Cogent Psychology 3:1.
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Mark Holloway & Lauren Tyrrell. (2016) Acquired Brain Injury, Parenting, Social Work, and Rehabilitation: Supporting Parents to Support Their Children. Journal of Social Work in Disability & Rehabilitation 15:3-4, pages 234-259.
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Audrey McKinlay, Mark Linden, Roberta DePompei, Catherine Aaro Jonsson, Vicki Anderson, Lucia Braga, Enrico Castelli, Peter de Koning, Carol A. Hawley, Eric Hermans, Ingela Kristiansen, Alison Madden, Peter Rumney, Ron Savage & Beth Wicks. (2016) Service provision for children and young people with acquired brain injury: Practice recommendations. Brain Injury 30:13-14, pages 1656-1664.
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Amelia Paget, Macpherson Mallewa, Dorothy Chinguo, Chawanangwa Mahebere-Chirambo & Melissa Gladstone. (2016) “It means you are grounded” – caregivers’ perspectives on the rehabilitation of children with neurodisability in Malawi. Disability and Rehabilitation 38:3, pages 223-234.
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Articles from other publishers (14)

Mark A. Linden, Mark Holloway, Claire Cooper, Akudo Amadiegwu, Caroline Bald, Michael Clark, Andy Mantell, Alyson Norman & Andrew Bateman. (2023) Social workers and acquired brain injury: A systematic review of the current evidence-base. PLOS ONE 18:11, pages e0292128.
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Taylor Jenkin, Vicki A. Anderson, Kate D'Cruz, Adam Scheinberg & Sarah Knight. (2022) Family-centred service in paediatric acquired brain injury rehabilitation: Bridging the gaps. Frontiers in Rehabilitation Sciences 3.
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Lyndal Hickey, Vicki Anderson & Brigid Jordan. (2022) Australian parent and sibling perspectives on the impact of paediatric acquired brain injury on family relationships during the first 6 weeks at home. Health & Social Care in the Community 30:6.
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Einat Yehene, Alexander Manevich & Simon Shimshon Rubin. (2021) Caregivers’ Grief in Acquired Non-death Interpersonal Loss (NoDIL): A Process Based Model With Implications for Theory, Research, and Intervention. Frontiers in Psychology 12.
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Dominica Zentner, David S. Celermajer, Thomas Gentles, Yves d’Udekem, Julian Ayer, Gillian M. Blue, Cameron Bridgman, Luke Burchill, Michael Cheung, Rachael Cordina, Evelyn Culnane, Andrew Davis, Karin du Plessis, Karen Eagleson, Kirsten Finucane, Belinda Frank, Sebastian Greenway, Leeanne Grigg, Winita Hardikar, Tim Hornung, Jenny Hynson, Ajay J. Iyengar, Paul James, Robert Justo, Jonathan Kalman, Nadine Kasparian, Brian Le, Kate Marshall, Jacob Mathew, David McGiffin, Mark McGuire, Paul Monagle, Ben Moore, Julie Neilsen, Bernadette O’Connor, Clare O’Donnell, Andreas Pflaumer, Kathryn Rice, Gary Sholler, Jonathan R. Skinner, Siddharth Sood, Juliet Ward, Robert Weintraub, Tom Wilson, William Wilson, David Winlaw & Angela Wood. (2020) Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement. Heart, Lung and Circulation 29:1, pages 5-39.
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Einat Yehene, Sapir Golan, Amichai Brezner, Maya Gerner & Janna Landa. (2019) Exploring the role of perceived vs. observed behavioral outcomes in parental grief reaction following pediatric acquired brain injury. NeuroRehabilitation 45:1, pages 11-18.
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Clara Chavez-Arana, Cathy Catroppa, Guillermina Yáñez-Téllez, Belén Prieto-Corona, Adriana Amaya-Hernández, Miguel A. de León, Antonio García, Roberto Gómez-Raygoza, Stephen J. C. Hearps & Vicki Anderson. (2019) How Do Parents Influence Child Disruptive Behavior After Acquired Brain Injury? Evidence From a Mediation Model and Path Analysis. Journal of the International Neuropsychological Society 25:3, pages 237-248.
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Kaliny Oliveira Dantas, Robson da Fonseca Neves, Kátia Suely Queiroz Silva Ribeiro, Geraldo Eduardo Guedes de Brito & Marcia do Carmelo Batista. (2019) Repercussões do nascimento e do cuidado de crianças com deficiência múltipla na família: uma metassíntese qualitativa. Cadernos de Saúde Pública 35:6.
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Paulo Roberto Lima Falcão do Vale, Sheila Cerqueira, Hudson P. SantosJr.Jr., Beth P. Black & Evanilda Souza de Santana Carvalho. (2019) Bad news: Families’ experiences and feelings surrounding the diagnosis of Zika-related microcephaly. Nursing Inquiry 26:1, pages e12274.
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Louise M. Crowe, Clara Chavez Arana & Cathy Catroppa. 2019. Handbook of Medical Neuropsychology. Handbook of Medical Neuropsychology 41 55 .
Emine Aslan Telci, Feride Yarar, Uğur Cavlak & Orcin Telli Atalay. (2018) Comparison of musculoskeletal pain distribution, quality of life and hopelessness level in mothers with disabled children in different ambulation levels. Journal of Back and Musculoskeletal Rehabilitation 31:2, pages 305-313.
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Anna M. Follent, Anna F. Rumbach, Elizabeth C. Ward, Jeanne Marshall, Pamela Dodrill & Peter Lewindon. (2017) Dysphagia and feeding difficulties post-pediatric ingestion injury: Perspectives of the primary caregiver. International Journal of Pediatric Otorhinolaryngology 103, pages 20-28.
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D. McCann. (2015) Does continuous partial attention offer a new understanding of the required vigilance and associated stress for parents of children with complex needs?. Child: Care, Health and Development 41:6, pages 1238-1241.
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S. Kirk, D. Fallon, C. Fraser, G. Robinson & G. Vassallo. (2015) Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions. Child: Care, Health and Development 41:2, pages 303-313.
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