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Brain Injury Volume 28, 2014 - Issue 9
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Research Article

A European survey on attitudes towards pain and end-of-life issues in locked-in syndrome

Athena DemertziComa Science Group, Cyclotron Research Centre & Neurology Department University and University Hospital of Liège, LiègeBelgiumCorrespondence[email protected]
,
Ralf J. JoxInstitute of Ethics, History and Theory of Medicine University of Munich, MunichGermany
,
Eric RacineNeuroethics Research Unit, Institut de recherches cliniques de Montréal Montréal, QuebecCanada
&
Steven LaureysComa Science Group, Cyclotron Research Centre & Neurology Department University and University Hospital of Liège, LiègeBelgium
Pages 1209-1215 | Received 28 Aug 2013, Accepted 25 Jan 2014, Published online: 09 Jun 2014

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Read on this site (3)

Simritpal Kaur Malhi, Penny Welch-West, Anna Maria Koo, Jennifer Fogarty & Andrea Lazosky. (2023) Who gets to decide?: Substitute decision making following severe brain injury with communication impairment. Neuropsychological Rehabilitation 33:6, pages 1049-1060.
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Mohamed Y. Rady & Joseph L. Verheijde. (2015) The Determination of Quality of Life and Medical Futility in Disorders of Consciousness: Reinterpreting the Moral Code of Islam. The American Journal of Bioethics 15:1, pages 14-16.
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Olivia Gosseries & Steven Laureys. (2014) Current knowledge on severe acquired brain injury with disorders of consciousness. Brain Injury 28:9, pages 1139-1140.
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Articles from other publishers (20)

Joelle Robertson‐Preidler & Holland Kaplan. (2023) “But my mom still blinks when I talk to her.” Understanding the concept of social death to avoid bias and improve goals‐of‐care discussions at the end of life. Journal of Evaluation in Clinical Practice.
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Estelle A. C. Bonin, Nicolas Lejeune, Emilie Szymkowicz, Vincent Bonhomme, Charlotte Martial, Olivia Gosseries, Steven Laureys & Aurore Thibaut. (2023) Assessment and management of pain/nociception in patients with disorders of consciousness or locked-in syndrome: A narrative review. Frontiers in Systems Neuroscience 17.
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Laura Schnetzer, Mark McCoy, Jürgen Bergmann, Alexander Kunz, Stefan Leis & Eugen Trinka. (2023) Locked-in syndrome revisited. Therapeutic Advances in Neurological Disorders 16, pages 175628642311608.
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Daniel Kondziella, Moshgan Amiri, Marwan H. Othman, Elisabeth Waldemar Jakobsen, Tejs Jansen & Kirsten Møller. (2022) Understanding, detecting, and stimulating consciousness recovery in the ICU. Acta Neurochirurgica 165:4, pages 809-828.
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Daniel Kondziella & Robert D. Stevens. (2022) Classifying Disorders of Consciousness: Past, Present, and Future. Seminars in Neurology 42:03, pages 239-248.
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Ujwal Chaudhary, Bankim Subhash Chander, Avi Ohry, Andres Jaramillo-Gonzalez, Dorothée Lulé & Niels Birbaumer. (2021) Brain Computer Interfaces for Assisted Communication in Paralysis and Quality of Life. International Journal of Neural Systems 31:11.
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Ralf J. Jox. 2021. Clinical Neurotechnology meets Artificial Intelligence. Clinical Neurotechnology meets Artificial Intelligence 155 168 .
Yifan Yan, Athena Demertzi, Yinyan Xia, Jing Wang, Nantu Hu, Zhiliang Zhang, Haibo Di & Steven Laureys. (2020) Ethics of life-sustaining treatment in locked-in syndrome: A Chinese survey. Annals of Physical and Rehabilitation Medicine 63:6, pages 483-487.
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NICOLA TAYLOR, MACKENZIE GRAHAM, MARK DELARGY & LORINA NACI. (2020) Memory During the Presumed Vegetative State: Implications for Patient Quality of Life. Cambridge Quarterly of Healthcare Ethics 29:4, pages 501-510.
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Fernando Vidal. (2018) Phenomenology of the Locked-In Syndrome: an Overview and Some Suggestions. Neuroethics 13:2, pages 119-143.
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Marie-Christine Nizzi, Veronique Blandin & Athena Demertzi. (2018) Attitudes towards Personhood in the Locked-in Syndrome: from Third- to First- Person Perspective and to Interpersonal Significance. Neuroethics 13:2, pages 193-201.
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James L. Bernat. (2018) Medical Decision Making by Patients in the Locked-in Syndrome. Neuroethics 13:2, pages 229-238.
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D. Kondziella, A. Bender, K. Diserens, W. van Erp, A. Estraneo, R. Formisano, S. Laureys, L. Naccache, S. Ozturk, B. Rohaut, J. D. Sitt, J. Stender, M. Tiainen, A. O. Rossetti, O. Gosseries & C. Chatelle. (2020) European Academy of Neurology guideline on the diagnosis of coma and other disorders of consciousness. European Journal of Neurology 27:5, pages 741-756.
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Daniel Kondziella, Man Cheung Cheung & Anirban Dutta. (2019) Public perception of the vegetative state/unresponsive wakefulness syndrome: a crowdsourced study. PeerJ 7, pages e6575.
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Anine P. Skibsted, Moshgan Amiri, Patrick M. Fisher, Annette Sidaros, Melita Cacic Hribljan, Vibeke Andrée Larsen, Joan Lilja S. Højgaard, Miki Nikolic, John Hauerberg, Martin E. Fabricius, Gitte Moos Knudsen, Kirsten Møller & Daniel Kondziella. (2018) Consciousness in Neurocritical Care Cohort Study Using fMRI and EEG (CONNECT-ME): Protocol for a Longitudinal Prospective Study and a Tertiary Clinical Care Service. Frontiers in Neurology 9.
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Audrey Vanhaudenhuyse, Vanessa Charland-Verville, Aurore Thibaut, Camille Chatelle, Jean-Flory L. Tshibanda, Audrey Maudoux, Marie-Elisabeth Faymonville, Steven Laureys & Olivia Gosseries. (2018) Conscious While Being Considered in an Unresponsive Wakefulness Syndrome for 20 Years. Frontiers in Neurology 9.
Crossref
A. Demertzi. 2018. Coma and Disorders of Consciousness. Coma and Disorders of Consciousness 225 234 .
Daniel Kondziella. (2017) Roald Dahl and the complete locked-in syndrome: “Cold dead body, living brain”. Journal of the Neurological Sciences 379, pages 276-278.
Crossref
Giles Birchley, Kerry Jones, Richard Huxtable, Jeremy Dixon, Jenny Kitzinger & Linda Clare. (2016) Dying well with reduced agency: a scoping review and thematic synthesis of the decision-making process in dementia, traumatic brain injury and frailty. BMC Medical Ethics 17:1.
Crossref
Marie-Aurélie Bruno, Marie-Christine Nizzi, Steven Laureys & Olivia Gosseries. 2016. The Neurology of Conciousness. The Neurology of Conciousness 187 202 .

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