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Acta Oncologica Volume 54, 2015 - Issue 6
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Cancer survivorship

Teenagers want to be told when a parent's death is near: A nationwide study of cancer-bereaved youths’ opinions and experiences

Tove Bylund-GrenkloDepartment of Oncology and Pathology, Karolinska Institutet, Stockholm, Sweden;Research and Development, Stockholms Sjukhem Foundation, Stockholm, Sweden;Palliative Centre & Department of Health and Caring Sciences, Ersta Sköndal University, Växjö, Sweden;Department of Women's and Children's Health, Karolinska Institutet, Stockholm, SwedenCorrespondence[email protected]
,
Ulrika KreicbergsDepartment of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden;Ersta Sköndal University College, Stockholm, Sweden
,
Charlotta UgglaDepartment of Oncology, Karolinska University Hospital, Stockholm, Sweden
,
Unnur A. ValdimarsdóttirCentre of Public Health Sciences, Faculty of Medicine, University of Iceland, Reykjavík, Iceland;Department of Epidemiology, Harvard School of Public Health, Boston, USA
,
Tommy NybergDepartment of Oncology and Pathology, Karolinska Institutet, Stockholm, Sweden
,
Gunnar SteineckDepartment of Oncology and Pathology, Karolinska Institutet, Stockholm, Sweden;Department of Oncology, Division of Clinical Cancer Epidemiology, The Sahlgrenska Academy, Gothenburg, Sweden
&
Carl Johan FürstDepartment of Oncology and Pathology, Karolinska Institutet, Stockholm, Sweden;Research and Development, Stockholms Sjukhem Foundation, Stockholm, Sweden;Department of Oncology, Clinical Sciences, Lund University, Lund, Sweden
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Pages 944-950 | Received 13 Aug 2014, Accepted 15 Oct 2014, Published online: 03 Dec 2014

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Rakel Eklund, Malin Lövgren, Anette Alvariza, Ulrika Kreicbergs & Camilla Udo. (2022) Talking about death when a parent with dependent children dies of cancer: A pilot study of the Family Talk Intervention in palliative care. Death Studies 46:10, pages 2384-2394.
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Juliet Jacobsen, Maria E. C. Schelin & Carl Johan Fürst. (2021) Too much too late? Optimizing treatment through conversations over years, months, and days. Acta Oncologica 60:8, pages 957-960.
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Articles from other publishers (32)

Dröfn Birgisdóttir, Tove Bylund Grenklo, Ulrika Kreicbergs, Gunnar Steineck, Carl Johan Fürst & Jimmie Kristensson. (2023) Family cohesion predicts long-term health and well-being after losing a parent to cancer as a teenager: A nationwide population-based study. PLOS ONE 18:4, pages e0283327.
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Cong Fu, Stinne Glasdam, Sigrid Stjernswärd & Hongxuan Xu. (2023) A Qualitative Systematic Review About Children’s Everyday Lives when a Parent Is Seriously Ill with the Prospect of Imminent Death - Perspectives of Children and Parents. OMEGA - Journal of Death and Dying, pages 003022282211497.
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Farya Phillips, Elizabeth A. Prezio, Jennifer Currin‐McCulloch & Barbara L. Jones. (2022) Wonders & Worries: A randomized clinical trial of a psychosocial intervention for children who have a parent with cancer. Psycho-Oncology 31:8, pages 1399-1411.
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Melissa Jessop, Amanda Fischer & Phillip Good. (2022) Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature. Palliative Medicine 36:6, pages 928-937.
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Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza & Malin Lövgren. (2020) Children’s Views Are Not Taken Into Account in Accordance With Article 12 of the United Nations Convention on the Rights of the Child in the Family Talk Intervention When a Parent Is Cared for in Palliative Care. OMEGA - Journal of Death and Dying 85:1, pages 126-154.
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Emily Beatrice Bergersen, Maria Larsson & Cecilia Olsson. (2022) Children and adolescents’ preferences for support when living with a dying parent – An integrative review. Nursing Open 9:3, pages 1536-1555.
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Kristine Harrsen, Marie Marx Tølbøll & Lene Holm Larsen. (2022) Effects of an Integrated Treatment Program on Grief and Distress Among Parentally Bereaved Young Adults. OMEGA - Journal of Death and Dying, pages 003022282110697.
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Tove Bylund-Grenklo, Dröfn Birgisdóttir, Kim Beernaert, Tommy Nyberg, Viktor Skokic, Jimmie Kristensson, Gunnar Steineck, Carl Johan Fürst & Ulrika Kreicbergs. (2021) Acute and long-term grief reactions and experiences in parentally cancer-bereaved teenagers. BMC Palliative Care 20:1.
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Eliza M. Park, Caitlin Jensen, Mi-Kyung Song, Justin M. Yopp, Allison M. Deal, Paula K. Rauch, Joseph A. Greer & Donald L. Rosenstein. (2021) Talking With Children About Prognosis: The Decisions and Experiences of Mothers With Metastatic Cancer. JCO Oncology Practice 17:6, pages e840-e847.
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Steve Marshall, Rachel Fearnley, Katherine Bristowe & Richard Harding. (2020) The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis. Palliative Medicine 35:2, pages 246-260.
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Jane Cockle-Hearne, Susie Aldiss, Faith Gibson, Shannon Milne, Jennifer Todd & Emma Ream. (2021) Support interventions provided during palliative care to families with dependent children when a parent has terminal illness: a scoping review protocol. JBI Evidence Synthesis 19:11, pages 3163-3173.
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Birgit Hauger, Marit Wiker & Bente Hamnes. (2020) Sykepleiere strekker ikke til i arbeid med barn som pårørende. Nordisk sygeplejeforskning 10:4, pages 266-279.
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Rakel Eklund, Anette Alvariza, Ulrika Kreicbergs, Li Jalmsell & Malin Lövgren. (2020) The family talk intervention for families when a parent is cared for in palliative care – potential effects from minor children’s perspectives. BMC Palliative Care 19:1.
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Ellen H. Zahlis, Mary Ellen Shands & Frances Marcus Lewis. (2020) Upping my game as a parent: Attributed gains in participating in a cancer parenting program for child-rearing parents with advanced cancer. Palliative and Supportive Care 18:3, pages 339-345.
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Jane Cockle-Hearne, Elizabeth Reed, Jennifer Todd & Emma Ream. (2020) The dying parent and dependent children: a nationwide survey of hospice and community palliative care support services. BMJ Supportive & Palliative Care, pages bmjspcare-2019-001947.
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Pär Holmberg, Johanna Nilsson, Carina Elmqvist & Gunilla Lindqvist. (2019) Nurses’ encounters with children as next of kin to parents with a cancer diagnosis on oncology wards. Nordic Journal of Nursing Research 40:1, pages 33-40.
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Frances Marcus LewisElizabeth Trice LoggersFarya PhillipsRebecca PalaciosKenneth P. TercyakKristin A. GriffithMary Ellen ShandsEllen H. ZahlisZainab AlzawadHebah Ahmed Almulla. (2020) Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program. Journal of Palliative Medicine 23:2, pages 211-219.
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Denice Kopchak Sheehan, Dana Hansen, Pam Stephenson, Murray Mayo, Raya Albataineh & Ezinne Anaba. (2019) Telling Adolescents That a Parent Has Died. Journal of Hospice & Palliative Nursing 21:2, pages 152-159.
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Annemarie Dencker, Scott A. Murray, Bruce Mason, Bo Andreassen Rix, Per Bøge & Tine Tjørnhøj-Thomsen. (2019) Disrupted biographies and balancing identities: A qualitative study of cancer patients’ communication with healthcare professionals about dependent children. European Journal of Cancer Care 28:2, pages e12991.
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Anette Hauskov Graungaard, Christina Roested Bendixen, Ole Rikard Haavet, Tone Smith-Sivertsen & Marjukka Mäkelä. (2019) Somatic symptoms in children who have a parent with cancer: A systematic review. Child: Care, Health and Development 45:2, pages 147-158.
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Louise Dalton, Elizabeth Rapa, Sue Ziebland, Tamsen Rochat, Brenda Kelly, Lucy Hanington, Ruth Bland, Aisha Yousafzai, Alan Stein, Theresa Betancourt, Myra Bluebond-Langner, Catherine D'Souza, Mina Fazel, Kim Fredman-Stein, Emily Harrop, Daniel Hochhauser, Barbara Kolucki, Aoife C Lowney, Elena Netsi & Linda Richter. (2019) Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent. The Lancet 393:10176, pages 1164-1176.
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Eunice Gorman. 2019. Contextualizing Childhoods. Contextualizing Childhoods 197 218 .
Sarah E. Shea & Cynthia W. Moore. (2018) Parenting with a Life-Limiting Illness. Child and Adolescent Psychiatric Clinics of North America 27:4, pages 567-578.
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Rahel Hoffmann, Julia Kaiser & Anette Kersting. (2018) Psychosocial outcomes in cancer-bereaved children and adolescents: A systematic review. Psycho-Oncology 27:10, pages 2327-2338.
Crossref
Tina Lundberg, Ulla Forinder, Mariann Olsson, Carl Johan Fürst, Kristofer Årestedt & Anette Alvariza. (2018) Bereavement stressors and psychosocial well-being of young adults following the loss of a parent – A cross-sectional survey. European Journal of Oncology Nursing 35, pages 33-38.
Crossref
Adam Walczak, Fiona McDonald, Pandora Patterson, Katherine Dobinson & Kimberley Allison. (2018) How does parental cancer affect adolescent and young adult offspring? A systematic review. International Journal of Nursing Studies 77, pages 54-80.
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Annemarie Dencker, Bo Andreassen Rix, Per Bøge & Tine Tjørnhøj-Thomsen. (2017) A qualitative study of doctors' and nurses' barriers to communicating with seriously ill patients about their dependent children. Psycho-Oncology 26:12, pages 2162-2167.
Crossref
Kayo Hirooka, Hiroki Fukahori, Yumi Akita & Miwa Ozawa. (2016) Posttraumatic Growth Among Japanese Parentally Bereaved Adolescents: A Web-Based Survey. American Journal of Hospice and Palliative Medicine® 34:5, pages 442-448.
Crossref
Anette Alvariza, Malin Lövgren, Tove Bylund-Grenklo, Pia Hakola, Carl Johan Fürst & Ulrika Kreicbergs. (2016) How to support teenagers who are losing a parent to cancer: Bereaved young adults' advice to healthcare professionals—A nationwide survey. Palliative and Supportive Care 15:3, pages 313-319.
Crossref
Josefin Sveen, Ulrika Kreicbergs, Ulrica Melcher & Anette Alvariza. (2015) Teenagers' reasoning about a parent's recent death in cancer. Palliative and Supportive Care 14:4, pages 349-357.
Crossref
Atle Dyregrov & Kari Dyregrov. (2016) Barn som mister foreldre [Children who lose parents]. Scandinavian Psychologist 3.
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T. Bylund-Grenklo, C. J. Fürst, T. Nyberg, G. Steineck & U. Kreicbergs. (2016) Unresolved grief and its consequences. A nationwide follow-up of teenage loss of a parent to cancer 6–9 years earlier. Supportive Care in Cancer.
Crossref

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