1,679
Views
75
CrossRef citations to date
0
Altmetric
REVIEWS

Patient-reported outcome measures: Are they patient-generated, patient-centred or patient-valued?

, , , , &
Pages 555-562 | Published online: 16 Jan 2013

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (12)

Sophia Dobischok, Rebecca K Metcalfe, Elizabeth Angela Matzinger, Kurt Lock, Scott Harrison, Scott MacDonald, Sherif Amara, Martin T Schechter, Nick Bansback & Eugenia Oviedo-Joekes. (2022) Feasibility of Testing Client Preferences for Accessing Injectable Opioid Agonist Treatment (iOAT): A Pilot Study. Patient Preference and Adherence 16, pages 3405-3413.
Read now
Francisco González-Saiz, Joan Trujols & Esperanza Vergara-Moragues. (2022) Cocaine Effect Expectancies among Patients with Cocaine Use Disorder with and without Adult Attention Deficit Hyperactivity Disorder: Are There Any Relevant Differences?. Journal of Psychoactive Drugs 0:0, pages 1-12.
Read now
Sharolin Boban, Jenny Downs, Jim Codde, Paul A Cohen & Caroline Bulsara. (2021) Women Diagnosed with Ovarian Cancer: Patient and Carer Experiences and Perspectives. Patient Related Outcome Measures 12, pages 33-43.
Read now
Daria Tai, Eric Li, Teresa Liu-Ambrose, Nick Bansback, Mohsen Sadatsafavi & Jennifer C Davis. (2020) Patient-Reported Outcome Measures (PROMs) to Support Adherence to Falls Prevention Clinic Recommendations: A Qualitative Study. Patient Preference and Adherence 14, pages 2105-2121.
Read now
Barbra Katusiime, Sarah Corlett, Joanne Reeve & Janet Krska. (2016) Measuring medicine-related experiences from the patient perspective: a systematic review. Patient Related Outcome Measures 7, pages 157-171.
Read now
Dan Robotham, Til Wykes, Diana Rose, Lisa Doughty, Sally Strange, Joanne Neale & Matthew Hotopf. (2016) Service user and carer priorities in a Biomedical Research Centre for mental health. Journal of Mental Health 25:3, pages 185-188.
Read now
Alison Gee, Craig McGarty & Michelle Banfield. (2016) Barriers to genuine consumer and carer participation from the perspectives of Australian systemic mental health advocates. Journal of Mental Health 25:3, pages 231-237.
Read now
Joanne Ashcroft, Til Wykes, Joseph Taylor, Adam Crowther & George Szmukler. (2016) Impact on the individual: what do patients and carers gain, lose and expect from being involved in research?. Journal of Mental Health 25:1, pages 28-35.
Read now
Beate Schrank, Tamsin Brownell, Simon Riches, Agnes Chevalier, Zivile Jakaite, Charley Larkin, Vanessa Lawrence & Mike Slade. (2015) Staff views on wellbeing for themselves and for service users. Journal of Mental Health 24:1, pages 48-53.
Read now
Joan Trujols, Ioseba Iraurgi, Eugenia Oviedo-Joekes & Joan Guàrdia-Olmos. (2014) A critical analysis of user satisfaction surveys in addiction services: opioid maintenance treatment as a representative case study. Patient Preference and Adherence 8, pages 107-117.
Read now
Til Wykes, Sonya Lipczynska & Martin Guha. (2013) The h-index, the citation rating, impact factors and the aspiring researcher. Journal of Mental Health 22:6, pages 467-473.
Read now

Articles from other publishers (63)

Charlotte Migchels, Amine Zerrouk, Cleo L. Crunelle, Frieda Matthys, Lies Gremeaux, Kim Fernandez, Jérôme Antoine, Wim van den Brink & Wouter Vanderplasschen. (2023) Patient Reported Outcome and Experience Measures (PROMs and PREMs) in substance use disorder treatment services: A scoping review. Drug and Alcohol Dependence 253, pages 111017.
Crossref
Joan Trujols, M. Josefa Campins & Santiago Duran-Sindreu. (2023) Satisfaction With Opioid Agonist Treatment: The Compelling Need for Multidimensional, Patient-centered, Patient-reported Experience Measures. Journal of Addiction Medicine 17:6, pages 745-745.
Crossref
Mohammed M. Hassanein, Hasniza Zaman Huri, Kauser Baig, Abduelmula R. Abduelkarem & Marwan Al‐Momani. (2023) Development and validation of the genitourinary syndrome of menopause symptoms and vaginal treatments acceptability questionnaire ( GSM‐SVTAQ ): An electronic patient‐reported outcomes measure . International Journal of Gynecology & Obstetrics.
Crossref
Elisabeth Okrant, Sharon Reif & Constance M. Horgan. (2023) Development of an addiction recovery patient-reported outcome measure: Response to Addiction Recovery (R2AR). Substance Abuse Treatment, Prevention, and Policy 18:1.
Crossref
Joan Trujols, Muriel Vicent-Gil, Santiago Duran-Sindreu & Maria J Portella. (2023) A truly patient-centred evaluation of opioid agonist treatment. The Lancet Psychiatry 10:8, pages 583.
Crossref
Vicent-Gil M.Serra-Blasco M., Navarra-Ventura G.Trujols J.Balanzá-Martínez V.Portella MJ.Cardoner N.. (2022) In pursuit of full recovery in major depressive disorder. European Archives of Psychiatry and Clinical Neuroscience 273:5, pages 1095-1104.
Crossref
Diana M J Delnoij, Meggie Derks, Laura Koolen, Shuka Shekary & Jozua Suitela. (2023) Using Patient Blogs on Social Media to Assess the Content Validity of Patient-Reported Outcome Measures: Qualitative Analysis of Patient-Written Blogs. JMIR Formative Research 7, pages e43210.
Crossref
Srividya N. Iyer, Aarati Taksal, Ashok Malla, Helen Martin, Mary Anne Levasseur, Megan A. Pope, Thara Rangaswamy, Padmavati Ramachandran & Greeshma Mohan. (2022) Show me you care : A patient‐ and family‐reported measure of care experiences in early psychosis services . Early Intervention in Psychiatry 17:7, pages 662-669.
Crossref
Sundos Q. Al-Ebrahim, Jeff Harrison, Timothy F. Chen & Mohammed A. Mohammed. (2023) Cross-cultural adaptation and psychometric properties of patient-reported outcome measures in Arabic speaking countries: A scoping review. Research in Social and Administrative Pharmacy 19:7, pages 989-1006.
Crossref
Abigail F. Newlands, Lindsey Roberts, Kayleigh Maxwell, Melissa Kramer, Jessica L. Price & Katherine A. Finlay. (2023) Development and psychometric validation of a patient-reported outcome measure of recurrent urinary tract infection impact: the Recurrent UTI Impact Questionnaire. Quality of Life Research 32:6, pages 1745-1758.
Crossref
Petra V Lostelius, Magdalena Mattebo, Eva Thors Adolfsson, Anne Söderlund, Mikael Andersén, Sofia Vadlin & Åsa Revenäs. (2023) Development and usability evaluation of an electronic health report form to assess health in young people: a mixed-methods approach. BMC Medical Informatics and Decision Making 23:1.
Crossref
Sebastian von Peter, Patrick Jänchen, Lena Göppert, Timo Beeker, Jenny Ziegenhagen, Rosa Kato Glück, Helene Krispin, Andrea Pfennig, Martin Heinze, Julian Schwarz & Yuriy Ignatyev. (2023) Erlebensbezogene Qualitätsmerkmale für die psychiatrische Behandlung: Vorstellung eines vorläufigen multivariaten Konstrukts. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 176, pages 51-60.
Crossref
Jennifer Moloney, Julie Regan & Margaret Walshe. (2022) Patient Reported Outcome Measures in Dysphagia Research Following Stroke: A Scoping Review and Qualitative Analysis. Dysphagia 38:1, pages 181-190.
Crossref
Muriel Vicent-Gil, Joan Trujols, Maria Serra-Blasco, Guillem Navarra-Ventura, Dolors Puigdemont, Carlo Alemany, Sara Crivillés, Javier de Diego-Adeliño, Narcís Cardoner & Maria J. Portella. (2023) If you feel you can’t, you won’t: the role of subjective and objective cognitive competence on psychosocial functioning in depression. European Psychiatry 66:1.
Crossref
R. Ritunnano, D. Papola, M.R. Broome & B. Nelson. (2023) Phenomenology as a resource for translational research in mental health: methodological trends, challenges and new directions. Epidemiology and Psychiatric Sciences 32.
Crossref
Sharolin Ann Boban, Caroline Bulsara, Jim Codde, Paul A. Cohen & Jenny Downs. (2022) Employing cognitive interviewing to evaluate, improve and validate items for measuring the health-related quality of life of women diagnosed with ovarian cancer. BMC Women's Health 22:1.
Crossref
Karlin Schroeder, Neil Bertelsen, Jessica Scott, Katherine Deane, Laura Dormer, Devika Nair, Jim Elliott, Sarah Krug, Ify Sargeant, Hayley Chapman & Nicholas Brooke. (2022) Building from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to Action. Therapeutic Innovation & Regulatory Science 56:5, pages 848-858.
Crossref
Joan Trujols, Santiago Duran‐Sindreu & Maria J Portella. (2022) Patient‐reported outcome measures ( PROMs ) to guide clinical care: recommendations and challenges . Medical Journal of Australia 217:2, pages 110-110.
Crossref
Stefan Kluzek, Benjamin Dean & Karolina A Wartolowska. (2022) Patient-reported outcome measures (PROMs) as proof of treatment efficacy. BMJ Evidence-Based Medicine 27:3, pages 153-155.
Crossref
Edward P. Liebmann, Sandra G. Resnick, Rani A. Hoff & Ira R. Katz. (2022) Associations between patient experience and clinical outcomes in substance use disorder clinics: Findings from the veterans outcomes assessment survey. Journal of Substance Abuse Treatment 133, pages 108505.
Crossref
Sebastian von Peter, Helene Krispin, Rosa Kato Glück, Jenny Ziegenhagen, Lena Göppert, Patrick Jänchen, Christine Schmid, Anne Neumann, Fabian Baum, Bettina Soltmann, Martin Heinze, Julian Schwarz, Timo Beeker & Yuriy Ignatyev. (2022) Needs and Experiences in Psychiatric Treatment (NEPT)- Piloting a Collaboratively Generated, Initial Research Tool to Evaluate Cross-Sectoral Mental Health Services. Frontiers in Psychiatry 13.
Crossref
Camilla Holmenlund, Søren Overgaard, Randi Bilberg & Claus Varnum. (2021) Evaluation of the Oxford Hip Score: Does it still have content validity? Interviews of total hip arthroplasty patients. Health and Quality of Life Outcomes 19:1.
Crossref
Kirsten Marchand, Julie Foreman, Scott MacDonald, Scott Harrison, Martin T. Schechter & Eugenia Oviedo-Joekes. (2020) Building healthcare provider relationships for patient-centered care: A qualitative study of the experiences of people receiving injectable opioid agonist treatment. Substance Abuse Treatment, Prevention, and Policy 15:1.
Crossref
Carolyn Ehrlich, Maddy Slattery & Elizabeth Kendall. (2020) Consumer engagement in health services in Queensland, Australia: A qualitative study about perspectives of engaged consumers. Health & Social Care in the Community 28:6, pages 2290-2298.
Crossref
Victor D. Dinglas, Sai P.S. Cherukuri & Dale M. Needham. (2020) Core outcomes sets for studies evaluating critical illness and patient recovery. Current Opinion in Critical Care 26:5, pages 489-499.
Crossref
Josefien J F Breedvelt, Victoria Zamperoni, Emily South, Eleonora P Uphoff, Simon Gilbody, Claudi L H Bockting, Rachel Churchill & Antonis A Kousoulis. (2020) A systematic review of mental health measurement scales for evaluating the effects of mental health prevention interventions. European Journal of Public Health 30:3, pages 510-516.
Crossref
Kaying Kan, Frederike Jörg, Erik Buskens, Robert A. Schoevers & Manna A. Alma. (2020) Patients’ and clinicians’ perspectives on relevant treatment outcomes in depression: qualitative study. BJPsych Open 6:3.
Crossref
Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L. Haywood, Alison Shaw & Esther Crawley. (2020) Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking. Quality of Life Research 29:5, pages 1169-1181.
Crossref
Joan Trujols, Ivan Solà, Ioseba Iraurgi, M. Josefa Campins, Elisa Ribalta & Santiago Duran-Sindreu. (2019) Individualized and Standardized Outcome Measures: Further Arguments in Favor of Cohabitation. Administration and Policy in Mental Health and Mental Health Services Research 47:3, pages 339-343.
Crossref
Kirsten Marchand, Scott Beaumont, Jordan Westfall, Scott MacDonald, Scott Harrison, David C. Marsh, Martin T. Schechter & Eugenia Oviedo-Joekes. (2019) Conceptualizing patient-centered care for substance use disorder treatment: findings from a systematic scoping review. Substance Abuse Treatment, Prevention, and Policy 14:1.
Crossref
Andrew Grundy, Anju Devianee Keetharuth, Rosemary Barber, Jill Carlton, Janice Connell, Elizabeth Taylor Buck, Michael Barkham, Thomas Ricketts, Dan Robotham, Diana Rose, John Kay, Rob Hanlon & John Brazier. (2019) Public involvement in health outcomes research: lessons learnt from the development of the recovering quality of life (ReQoL) measures. Health and Quality of Life Outcomes 17:1.
Crossref
Bronwyn Myers, Kim Johnson, Warren Lucas, Rajen Govender, Ron Manderscheid, Petal Petersen Williams & J. Randy Koch. (2019) South African service users’ perceptions of patient‐reported outcome and experience measures for adolescent substance use treatment: A qualitative study. Drug and Alcohol Review 38:7, pages 823-830.
Crossref
Victoria SaigleSarah AsadJustin PresseauMichaël ChasséLauralyn McIntyreShane W. English. (2019) Do patient-reported outcome measures for SAH include patient, family, and caregiver priorities?. Neurology 92:6, pages 281-295.
Crossref
George Athanasiou & Chris Bachtsetzis. 2019. Health and Social Care Systems of the Future: Demographic Changes, Digital Age and Human Factors. Health and Social Care Systems of the Future: Demographic Changes, Digital Age and Human Factors 365 372 .
Joanne Greenhalgh, Kate Gooding, Elizabeth Gibbons, Sonia Dalkin, Judy Wright, Jose Valderas & Nick Black. (2018) How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis. Journal of Patient-Reported Outcomes 2:1.
Crossref
Annie Madden, Max Hopwood, Joanne Neale & Carla Treloar. (2018) Beyond cure: patient reported outcomes of hepatitis C treatment among people who inject drugs in Australia. Harm Reduction Journal 15:1.
Crossref
Tasneem L. Talib, Paige DeChant, Jacob Kean, Patrick O. Monahan, David A. Haggstrom, Madison E. Stout & Kurt Kroenke. (2018) A qualitative study of patients’ perceptions of the utility of patient-reported outcome measures of symptoms in primary care clinics. Quality of Life Research 27:12, pages 3157-3166.
Crossref
Victor D. Dinglas, Leeza N. Faraone & Dale M. Needham. (2018) Understanding patient-important outcomes after critical illness. Current Opinion in Critical Care 24:5, pages 401-409.
Crossref
Marta Romero‐García, Laura de la Cueva‐Ariza, Llucia Benito‐Aracil, Teresa Lluch‐Canut, Joan Trujols‐Albet, Maria Antonia Martínez‐Momblan, Maria‐Eulàlia Juvé‐Udina & Pilar Delgado‐Hito. (2018) Nursing Intensive‐Care Satisfaction Scale [ NICSS ]: Development and validation of a patient‐centred instrument . Journal of Advanced Nursing 74:6, pages 1423-1435.
Crossref
Jed Boardman. (2018) Routine outcome measurement: recovery, quality of life and co-production. The British Journal of Psychiatry 212:1, pages 4-5.
Crossref
Heather Palis, Kirsten Marchand, Daphne Guh, Suzanne Brissette, Kurt Lock, Scott MacDonald, Scott Harrison, Aslam H. Anis, Michael Krausz, David C. Marsh, Martin T. Schechter & Eugenia Oviedo-Joekes. (2017) Men’s and women’s response to treatment and perceptions of outcomes in a randomized controlled trial of injectable opioid assisted treatment for severe opioid use disorder. Substance Abuse Treatment, Prevention, and Policy 12:1.
Crossref
Bianca Wiering, Dolf de Boer & Diana Delnoij. (2017) Patient involvement in the development of patient-reported outcome measures: The developers’ perspective. BMC Health Services Research 17:1.
Crossref
David Ebbevi, Anna Essén & Helena Hvitfeldt Forsberg. (2017) Persons with rheumatoid arthritis challenge the relevance of the health assessment questionnaire: a qualitative study of patient perception. BMC Musculoskeletal Disorders 18:1.
Crossref
Bianca Wiering, Dolf de Boer & Diana Delnoij. (2017) Asking what matters: The relevance and use of patient-reported outcome measures that were developed without patient involvement. Health Expectations 20:6, pages 1330-1341.
Crossref
T. Wykes, J. Evans, C. Paton, T. R. E. Barnes, D. Taylor, R. Bentall, B. Dalton, T. Ruffell, D. Rose & S. Vitoratou. (2017) What side effects are problematic for patients prescribed antipsychotic medication? The Maudsley Side Effects (MSE) measure for antipsychotic medication. Psychological Medicine 47:13, pages 2369-2378.
Crossref
Joan Trujols, Francisco González-Saiz, María José Manresa, Saul Alcaraz, Francesca Batlle, Santiago Duran-Sindreu & José Pérez de los Cobos. (2017) Patient perception of methadone dose adequacy in methadone maintenance treatment: The role of perceived participation in dosage decisions. Patient Education and Counseling 100:5, pages 981-986.
Crossref
Kirsten Marchand & Eugenia Oviedo-Joekes. (2017) Prioritizing the patient in patient-centered addictions treatment. Addiction 112:3, pages 466-467.
Crossref
Bianca Wiering, Dolf de Boer & Diana Delnoij. (2017) Patient involvement in the development of patient-reported outcome measures: a scoping review. Health Expectations 20:1, pages 11-23.
Crossref
Joanne Greenhalgh, Sonia Dalkin, Kate Gooding, Elizabeth Gibbons, Judy Wright, David Meads, Nick Black, Jose Maria Valderas & Ray Pawson. (2017) Functionality and feedback: a realist synthesis of the collation, interpretation and utilisation of patient-reported outcome measures data to improve patient care. Health Services and Delivery Research 5:2, pages 1-280.
Crossref
Laura Al-Dakhiel Winkler, Jacob Stampe Frølich, Claire Gudex, Kirsten Hørder, Niels Bilenberg & René Klinkby Støving. (2017) Patient- and clinician- reported outcome in eating disorders. Psychiatry Research 247, pages 230-235.
Crossref
John F. P. Bridges & Ellen M. Janssen. 2017. Patient Involvement in Health Technology Assessment. Patient Involvement in Health Technology Assessment 225 233 .
Evi B. Koster, Erik W. Baars & Diana M. J. Delnoij. (2016) Patient-centered outcomes on quality of life and anthroposophic healthcare: a qualitative triangulation study. Quality of Life Research 25:9, pages 2257-2267.
Crossref
T. H. P. Draak, K. C. Gorson, E. K. Vanhoutte, S. I. van Nes, P. A. van Doorn, D. R. Cornblath, L. H. van den Berg, C. G. Faber & I. S. J. Merkies. (2016) Correlation of the patient's reported outcome Inflammatory-RODS with an objective metric in immune-mediated neuropathies. European Journal of Neurology 23:7, pages 1248-1253.
Crossref
Gitte Lee Mortensen, Jayanti De, Mads Holme, Tina Neve, Per Göran Torell & Jonas Eberhard. (2016) Social Aspects of the Quality of Life of Persons Suffering from Schizophrenia. Open Journal of Psychiatry 06:01, pages 50-60.
Crossref
Joan Trujols, Ioseba Iraurgi, Francesca Batlle, Santiago Durán-Sindreu & José Pérez de los Cobos. (2015) Towards a genuinely user-centred evaluation of harm reduction and drug treatment programmes: A further proposal. International Journal of Drug Policy 26:12, pages 1285-1287.
Crossref
Toomas Timpka, Jenny Jacobsson, Joakim Ekberg, Caroline F. Finch, Jerome Bichenbach, Pascal Edouard, Victor Bargoria, Pedro Branco & Juan Manuel Alonso. (2015) Meta-narrative analysis of sports injury reporting practices based on the Injury Definitions Concept Framework (IDCF): A review of consensus statements and epidemiological studies in athletics (track and field). Journal of Science and Medicine in Sport 18:6, pages 643-650.
Crossref
Daniel Miller, Carolyn Steele Gray, Kerry Kuluski & Cheryl Cott. (2014) Patient-Centered Care and Patient-Reported Measures: Let’s Look Before We Leap. The Patient - Patient-Centered Outcomes Research 8:4, pages 293-299.
Crossref
Julie Williams, Mary Leamy, Victoria Bird, Clair Le Boutillier, Sam Norton, Francesca Pesola & Mike Slade. (2014) Development and evaluation of the INSPIRE measure of staff support for personal recovery. Social Psychiatry and Psychiatric Epidemiology 50:5, pages 777-786.
Crossref
Yael Keshet, Elad Schiff, Noah Samuels & Eran Ben‐Arye. (2014) Giving voice to cancer patients: assessing non‐specific effects of an integrative oncology therapeutic program via short patient narratives. Psycho-Oncology 24:2, pages 169-174.
Crossref
M. Romero-García & J. Trujols-Albet. (2015) Hacia una mayor incorporación de la perspectiva del paciente en el diseño de los instrumentos de evaluación de la efectividad y calidad de los cuidados. Enfermería Intensiva 26:1, pages 1-2.
Crossref
José Pérez de los Cobos, Joan Trujols, Núria Siñol & Francesca Batlle. (2014) Development and validation of the scale to assess satisfaction with medications for addiction treatment-methadone for heroin addiction (SASMAT-METHER). Drug and Alcohol Dependence 142, pages 79-85.
Crossref
Graham Thornicroft & Mike Slade. (2014) New trends in assessing the outcomes of mental health interventions. World Psychiatry 13:2, pages 118-124.
Crossref
Michele Tansella, Graham Thornicroft & Heidi Lempp. (2014) Lessons from Community Mental Health to Drive Implementation in Health Care Systems for People with Long-Term Conditions. International Journal of Environmental Research and Public Health 11:5, pages 4714-4728.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.