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Research Papers

Client and therapist views on exercise programmes for early-mid stage Parkinson's disease and Huntington's disease

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Pages 917-928 | Accepted 01 Sep 2009, Published online: 30 Oct 2009

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Valentina Buscemi, Annette Boaz, Helen Dawes, Thomas Jaki, Fiona Jones, Jonathan Marsden, Lorna Paul, Rebecca Playle, Elizabeth Randell, Michael Robling, Lynn Rochester, Monica Busse & Gita Ramdharry. (2023) Exploring the issues that influence how people with rare neurological conditions engage in physical activity. Disability and Rehabilitation 0:0, pages 1-10.
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Jennifer Brunet, Jenson Price, Amanda Wurz, Meghan McDonough & Julie Nantel. (2022) Boxing with Parkinson’s Disease: findings from a qualitative study using self-determination theory. Disability and Rehabilitation 44:15, pages 3880-3889.
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Alison Rowsell, Ann Ashburn, Carolyn Fitton, Victoria A. Goodwin, Sophia Hulbert, Sarah E. Lamb, Emma McIntosh, Alice Nieuwboer, Ruth Pickering, Lynn Rochester, Kim Chivers-Seymour & Claire Ballinger. (2022) Participant expectations and experiences of a tailored physiotherapy intervention for people with Parkinson’s and a history of falls. Disability and Rehabilitation 44:5, pages 727-735.
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Andrew Zaman, Laura Ellingson, Alyssa Sunken, Erin Gibson & Elizabeth L. Stegemöller. (2021) Determinants of exercise behaviour in persons with Parkinson’s disease. Disability and Rehabilitation 43:5, pages 696-702.
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Nora Shields, Andrea M. Bruder & Stacey L. Cleary. (2021) An exploratory content analysis of how physiotherapists perceive barriers and facilitators to participation in physical activity among adults with disability. Physiotherapy Theory and Practice 37:1, pages 149-157.
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Carey Wexler Sherman, Ravi Iyer, Victor Abler, Alexandria Antonelli & Noelle E. Carlozzi. (2020) Perceptions of the impact of chorea on health-related quality of life in Huntington disease (HD): A qualitative analysis of individuals across the HD spectrum, family members, and clinicians. Neuropsychological Rehabilitation 30:6, pages 1150-1168.
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Martijn L.T.M. Müller, Uros Marusic, Miriam van Emde Boas, Daniel Weiss & Nicolaas I. Bohnen. (2019) Treatment options for postural instability and gait difficulties in Parkinson’s disease. Expert Review of Neurotherapeutics 19:12, pages 1229-1251.
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Kerry Peek, Mariko Carey, Robert Sanson-Fisher & Lisa Mackenzie. (2017) Physiotherapists’ perceptions of patient adherence to prescribed self-management strategies: a cross-sectional survey of Australian physiotherapists. Disability and Rehabilitation 39:19, pages 1932-1938.
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Dalie Clark, Megan M. Danzl & Elizabeth Ulanowski. (2016) Development of a community-based exercise program for people diagnosed and at-risk for Huntington’s disease: A clinical report. Physiotherapy Theory and Practice 32:3, pages 232-239.
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Christine O’Brien, Lindy Clemson & Colleen G. Canning. (2016) Multiple factors, including non-motor impairments, influence decision making with regard to exercise participation in Parkinson’s disease: a qualitative enquiry. Disability and Rehabilitation 38:5, pages 472-481.
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Articles from other publishers (49)

Miriam R. Rafferty, Lisa Hoffman, Megan Feeney, Carol Schulte, Adrian Hutber, Todd Galati, Francis Neric & Terry D. Ellis. (2023) Parallel development of Parkinson's-specific competencies for exercise professionals and criteria for exercise education programs. Parkinsonism & Related Disorders 112, pages 105407.
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Hai-Jung Steffi Shih, Lori Quinn, Philippa Morgan-Jones, Katrina Long, Abigail R Schreier & Ciaran P Friel. (2023) Wearable activity monitors to support physical activity interventions in neurodegenerative disease: a feasibility study. Neurodegenerative Disease Management 13:3, pages 177-189.
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Bridget Fowler King, Jillian MacDonald, Laura Stoff, Ella Nettnin, Arun Jayarman, Jennifer G. Goldman & Miriam Rafferty. (2023) Activity Monitoring in Parkinson Disease: A Qualitative Study of Implementation Determinants. Journal of Neurologic Physical Therapy Publish Ahead of Print.
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Hai-Jung Steffi Shih, Chelsea E. Macpherson, Miriam King, Elizabeth Delaney, Yu Gu, Katrina Long, Jennifer Reid, Julie Fineman, Geraldine Yu, Jamie Rieger, Ashrita Satchidanand, Hiral Shah, Roy N. Alcalay & Lori Quinn. (2022) Physical Activity Coaching via Telehealth for People With Parkinson Disease: A Cohort Study. Journal of Neurologic Physical Therapy 46:4, pages 240-250.
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Ledia Alushi, James Alexander, Julie Jones & Louise Lafortune. (2022) A Systematic Review on Physical Health Education Interventions for People with Parkinson’s Disease: Content, Impact, and Implementation Considerations Across the Parkinson’s Trajectory. Journal of Parkinson's Disease 12:5, pages 1389-1407.
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Kelly J Atkins, Ciarán P Friel, Sophie C Andrews, Trevor T-J Chong, Julie C Stout & Lori Quinn. (2022) A qualitative examination of apathy and physical activity in Huntington's and Parkinson's disease. Neurodegenerative Disease Management 12:3, pages 129-139.
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Judith Bek, Aline I. Arakaki, Fleur Derbyshire-Fox, Gayathri Ganapathy, Matthew Sullivan & Ellen Poliakoff. (2022) More Than Movement: Exploring Motor Simulation, Creativity, and Function in Co-developed Dance for Parkinson’s. Frontiers in Psychology 13.
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Michail Elpidoforou, Daphne Bakalidou, Maria Drakopoulou, Anna Kavga, Chrysa Chrysovitsanou & Leonidas Stefanis. (2022) Effects of a structured dance program in Parkinson’s disease. A Greek pilot study. Complementary Therapies in Clinical Practice 46, pages 101528.
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Ella Nettnin, Stephanie Burrows, Guanhong Miao, Samuel S. Wu, David K. Simon & Miriam R. Rafferty. (2022) Associations between exercise classes and self-reported exercise by people with Parkinson’s disease at Parkinson’s foundation centers of excellence. Clinical Parkinsonism & Related Disorders 6, pages 100137.
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Muhammed Shahriar Zaman, Setareh Ghahari & Mary Ann McColl. (2021) Barriers to Accessing Healthcare Services for People with Parkinson’s Disease: A Scoping Review. Journal of Parkinson's Disease 11:4, pages 1537-1553.
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Thillai Vignesh, Renukadevi Mahadevan & Sandeep Padantaya Harish. (2021) Adherence to Kinect Adventure Games in Individuals with Parkinson’s Disease – An Experimental Study from Mysore, India. Journal of Evolution of Medical and Dental Sciences 10:33, pages 2754-2760.
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Laura Prieto, Michael L. Norris & Luis Columna. (2021) “Keep Moving”: Experiences of People With Parkinson’s and Their Care Partners in a Dance Class. Adapted Physical Activity Quarterly 38:2, pages 307-328.
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Noelle E. Carlozzi, Nicholas R. Boileau, Kelvin L. Chou, Rebecca E. Ready, David Cella, Michael K. McCormack, Jennifer A. Miner & Praveen Dayalu. (2019) HDQLIFE and Neuro‐QoL Physical Function Measures: Responsiveness in Persons with Huntington's Disease. Movement Disorders 35:2, pages 326-336.
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Helena de Oliveira Braga, Elaine Cristina Gregório, Rafaela Simon Myra, Ana Sofia Kauling de Souza, Talita Vitorina Kunh, Jessica Klug, Adriana Coutinho de Azevedo Guimarães & Alessandra Swarowsky. (2019) EMPOWER-PD - A physical therapy intervention to empower the individuals with Parkinson’s disease: a study protocol for a feasibility randomized controlled trial. Pilot and Feasibility Studies 5:1.
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Cheney J G Drew, Lori Quinn, Katy Hamana, Rhys Williams-Thomas, Lucy Marsh, Polyxeni Dimitropoulou, Rebecca Playle, Beth Ann Griffin, Mark Kelson, Robin Schubert, Lisa Muratori, Ralf Reilmann, Anne Rosser & Monica Busse. (2019) Physical Activity and Exercise Outcomes in Huntington Disease (PACE-HD): Protocol for a 12-Month Trial Within Cohort Evaluation of a Physical Activity Intervention in People With Huntington Disease. Physical Therapy 99:9, pages 1201-1210.
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Jacob Yomtoob, Chen Yeh & Danny Bega. (2019) Ancillary Service Utilization and Impact in Huntington’s Disease. Journal of Huntington's Disease 8:3, pages 301-310.
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Ann Ashburn, Ruth Pickering, Emma McIntosh, Sophia Hulbert, Lynn Rochester, Helen C Roberts, Alice Nieuwboer, Dorit Kunkel, Victoria A Goodwin, Sarah E Lamb, Claire Ballinger & Kim Chivers Seymour. (2019) Exercise- and strategy-based physiotherapy-delivered intervention for preventing repeat falls in people with Parkinson’s: the PDSAFE RCT. Health Technology Assessment 23:36, pages 1-150.
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Heather Hunter, Christopher Lovegrove, Bernhard Haas, Jennifer Freeman & Hilary Gunn. (2019) Experiences of people with Parkinson's disease and their views on physical activity interventions: a qualitative systematic review. JBI Database of Systematic Reviews and Implementation Reports 17:4, pages 548-613.
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. (2019) Exploration of a Co-Production Approach to Developing a Walking Group with People with Huntington’s Disease. Med One.
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Nora E. Fritz, Ashwini K. Rao, Deb Kegelmeyer, Anne Kloos, Monica Busse, Lynda Hartel, Judith Carrier & Lori Quinn. (2017) Physical Therapy and Exercise Interventions in Huntington’s Disease: A Mixed Methods Systematic Review. Journal of Huntington's Disease 6:3, pages 217-235.
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Lori Quinn & Don Morgan. (2017) From Disease to Health: Physical Therapy Health Promotion Practices for Secondary Prevention in Adult and Pediatric Neurologic Populations. Journal of Neurologic Physical Therapy 41, pages S46-S54.
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Noelle E. Carlozzi, Rebecca E. Ready, Samuel Frank, David Cella, Elizabeth A. Hahn, Siera M. Goodnight, Stephen G. Schilling, Nicholas R. Boileau & Praveen Dayalu. (2017) Patient-reported outcomes in Huntington's disease: Quality of life in neurological disorders (Neuro-QoL) and Huntington's disease health-related quality of life (HDQLIFE) physical function measures. Movement Disorders 32:7, pages 1096-1102.
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Hanan Khalil, Monica Busse, Lori Quinn, Mohammad Nazzal, Waleed Batyha, Shatha Alkhazaleh & Mahmoud A Alomari. (2017) A pilot study of a minimally supervised home exercise and walking program for people with Parkinson's disease in Jordan. Neurodegenerative Disease Management 7:1, pages 73-84.
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Breiffni Leavy, Kirsti Skavberg Roaldsen, Kamilla Nylund, Maria Hagströmer & Erika Franzén. (2017) “Pushing the Limits”: Rethinking Motor and Cognitive Resources After a Highly Challenging Balance Training Program for Parkinson Disease. Physical Therapy 97:1, pages 81-89.
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Susanne Clinch, Monica Busse, Mate D. D?br?ssy & Stephen B. Dunnett. 2017. Functional Neural Transplantation IV - Translation to Clinical Application, Part A. Functional Neural Transplantation IV - Translation to Clinical Application, Part A 305 329 .
Lori Quinn & Monica Busse. 2017. Huntington Disease. Huntington Disease 151 165 .
Miriam R. Rafferty & Daniel M. Corcos. (2016) Commentary on “A Tandem Cycling Program: Feasibility and Physical Performance Outcomes in People With Parkinson Disease”. Journal of Neurologic Physical Therapy 40:4, pages 230-231.
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Lori Quinn, Katy Hamana, Mark Kelson, Helen Dawes, Johnny Collett, Julia Townson, Raymund Roos, Anton Adriaan van der Plas, Ralf Reilmann, Jan C. Frich, Hugh Rickards, Anne Rosser & Monica Busse. (2016) A randomized, controlled trial of a multi-modal exercise intervention in Huntington?s disease. Parkinsonism & Related Disorders 31, pages 46-52.
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Lori Quinn, Rob Trubey, Nina Gobat, Helen Dawes, Rhiannon Tudor Edwards, Carys Jones, Julia Townson, Cheney Drew, Mark Kelson, Vincent Poile, Anne Rosser, Kerenza Hood & Monica Busse. (2016) Development and Delivery of a Physical Activity Intervention for People With Huntington Disease. Journal of Neurologic Physical Therapy 40:2, pages 71-80.
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Judith Bek, Jordan Webb, Emma Gowen, Stefan Vogt, Trevor J. Crawford, Matthew S. Sullivan & Ellen Poliakoff. (2016) Patients’ Views on a Combined Action Observation and Motor Imagery Intervention for Parkinson’s Disease. Parkinson's Disease 2016, pages 1-8.
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Maria H. Nilsson, Susanne Iwarsson, Björg Thordardottir & Maria Haak. (2015) Barriers and Facilitators for Participation in People with Parkinson’s Disease. Journal of Parkinson's Disease 5:4, pages 983-992.
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Laurie A. King, Jennifer Wilhelm, Yiyi Chen, Ron Blehm, John Nutt, Zunqiu Chen, Andrea Serdar & Fay B. Horak. (2015) Effects of Group, Individual, and Home Exercise in Persons With Parkinson Disease. Journal of Neurologic Physical Therapy 39:4, pages 204-212.
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Hanan Khalil & Jawad A. Bajwa. (2015) Barriers and Facilitators in Physical Rehabilitation for Parkinson's Disease in the Arabian World. Movement Disorders Clinical Practice 2:3, pages 227-229.
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Laura M. Blandy, Winifred A. Beevers, Kerry Fitzmaurice & Meg E. Morris. (2015) Therapeutic Argentine Tango Dancing for People with Mild Parkinson’s Disease: A Feasibility Study. Frontiers in Neurology 6.
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Roberto De Icco, Cristina Tassorelli, Eliana Berra, Monica Bolla, Claudio Pacchetti & Giorgio Sandrini. (2015) Acute and Chronic Effect of Acoustic and Visual Cues on Gait Training in Parkinson’s Disease: A Randomized, Controlled Study. Parkinson's Disease 2015, pages 1-9.
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Monica Busse, Lori Quinn, Helen Dawes, Carys Jones, Mark Kelson, Vincent Poile, Rob Trubey, Julia Townson, Rhiannon Tudor Edwards, Anne Rosser & Kerenza Hood. (2014) Supporting physical activity engagement in people with Huntington’s disease (ENGAGE-HD): study protocol for a randomized controlled feasibility trial. Trials 15:1.
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Jan C Frich, Merete Røthing & Alf Reiar Berge. (2014) Participants’, caregivers’, and professionals’ experiences with a group-based rehabilitation program for Huntington’s disease: a qualitative study. BMC Health Services Research 14:1.
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Terry EllisJennifer K. BoudreauTamara R. DeAngelisLisa E. BrownJames T. CavanaughGammon M. EarhartMatthew P. FordK. Bo ForemanLeland E. Dibble. (2013) Barriers to Exercise in People With Parkinson Disease. Physical Therapy 93:5, pages 628-636.
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Ruth M. Pickering, Carolyn Fitton, Claire Ballinger, Louise Fazakarley & Ann Ashburn. (2013) Self reported adherence to a home-based exercise programme among people with Parkinson's disease. Parkinsonism & Related Disorders 19:1, pages 66-71.
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M. I. Ransome. (2012) Androgen Function in the Pathophysiology and Treatment of Male Huntington’s Disease Patients. Journal of Neuroendocrinology 24:10, pages 1275-1283.
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Lori Quinn & Monica Busse. (2012) Physiotherapy clinical guidelines for Huntington’s disease. Neurodegenerative Disease Management 2:1, pages 21-31.
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Lori Quinn & Monica Busse. (2012) Development of physiotherapy guidance and treatment-based classifications for people with Huntington’s disease. Neurodegenerative Disease Management 2:1, pages 11-19.
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Hanan KhalilLori QuinnRobert van DeursenRichard MartinAnne RosserMonica Busse. (2012) Adherence to Use of a Home-Based Exercise DVD in People With Huntington Disease: Participants' Perspectives. Physical Therapy 92:1, pages 69-82.
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Teresa Steffen, Cheryl Petersen & Leah Dvorak. (2012) Community-Based Exercise and Wellness Program for People Diagnosed With Parkinson Disease. Journal of Geriatric Physical Therapy 35:4, pages 173-180.
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Natalie E. Allen, Catherine Sherrington, Gayanthi D. Suriyarachchi, Serene S. Paul, Jooeun Song & Colleen G. Canning. (2012) Exercise and Motor Training in People with Parkinson's Disease: A Systematic Review of Participant Characteristics, Intervention Delivery, Retention Rates, Adherence, and Adverse Events in Clinical Trials. Parkinson's Disease 2012, pages 1-15.
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Heather Ene, Cynthia McRae & Margaret Schenkman. (2011) Attitudes Toward Exercise Following Participation in an Exercise Intervention Study. Journal of Neurologic Physical Therapy 35:1, pages 34-40.
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