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Review Article

Third-party disability in family members of people with aphasia: a systematic review

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Pages 1324-1341 | Received 28 Sep 2011, Accepted 26 Sep 2012, Published online: 05 Jul 2013

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (16)

Molly Manning, Anne MacFarlane, Anne Hickey, Rose Galvin & Sue Franklin. (2022) The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults. Disability and Rehabilitation 44:14, pages 3440-3452.
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Sarah J. Wallace, Linda Worrall, Guylaine Le Dorze, Caitlin Brandenburg, Jessica Foulkes & Tanya A. Rose. (2022) Many ways of measuring: a scoping review of measurement instruments for use with people with aphasia. Aphasiology 36:4, pages 401-466.
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Caroline Baker, Linda Worrall, Miranda Rose & Brooke Ryan. (2021) Stroke health professionals’ management of depression after post-stroke aphasia: a qualitative study. Disability and Rehabilitation 43:2, pages 217-228.
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Katarina L. Haley, Adam Jacks, Blaise Morrison & Jessica D. Richardson. (2020) Balance and preference in activity participation for informal caregivers of people with aphasia: A questionnaire study. Aphasiology 34:9, pages 1182-1200.
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Laurelie R. Wall, Rebecca L. Nund, Elizabeth C. Ward, Petrea L. Cornwell & Delena I. Amsters. (2020) Experiences of communication changes following spinal cord injury: a qualitative analysis. Disability and Rehabilitation 42:16, pages 2271-2278.
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Michelle C. Attard, Yasmine Loupis, Leanne Togher & Miranda L. Rose. (2020) Experiences of people with severe aphasia and spouses attending an Interdisciplinary Community Aphasia Group. Disability and Rehabilitation 42:10, pages 1382-1396.
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Caroline Baker, Linda Worrall, Miranda Rose & Brooke Ryan. (2020) ‘It was really dark’: the experiences and preferences of people with aphasia to manage mood changes and depression. Aphasiology 34:1, pages 19-46.
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Ciara Shiggins, Varda Soskolne, Dafna Olenik, Gill Pearl, Line Haaland-Johansen, Jytte Isaksen, Caroline Jagoe, Ruth McMenamin & Simon Horton. (2020) Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study. Aphasiology 34:1, pages 70-101.
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Caroline Baker, Linda Worrall, Miranda Rose, Kyla Hudson, Brooke Ryan & Leana O’Byrne. (2018) A systematic review of rehabilitation interventions to prevent and treat depression in post-stroke aphasia. Disability and Rehabilitation 40:16, pages 1870-1892.
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Michelle C. Attard, Yasmine Loupis, Leanne Togher & Miranda L. Rose. (2018) The efficacy of an inter-disciplinary community aphasia group for living well with aphasia. Aphasiology 32:2, pages 105-138.
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Sarah J. Wallace, Linda Worrall, Tanya Rose, Guylaine Le Dorze, Madeline Cruice, Jytte Isaksen, Anthony Pak Hin Kong, Nina Simmons-Mackie, Nerina Scarinci & Christine Alary Gauvreau. (2017) Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF. Disability and Rehabilitation 39:14, pages 1364-1379.
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Sarah J. Wallace, Linda Worrall, Tanya Rose & Guylaine Le Dorze. (2014) Measuring outcomes in aphasia research: A review of current practice and an agenda for standardisation. Aphasiology 28:11, pages 1364-1384.
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Meghann Grawburg, Tami Howe, Linda Worrall & Nerina Scarinci. (2014) Describing the impact of aphasia on close family members using the ICF framework. Disability and Rehabilitation 36:14, pages 1184-1195.
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Karen M. McLellan, Clare M. McCann, Linda E. Worrall & Matire L. N. Harwood. (2014) “For Māori, language is precious. And without it we are a bit lost”: Māori experiences of aphasia. Aphasiology 28:4, pages 453-470.
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Jennifer S. Shafer, Katarina L. Haley & Adam Jacks. (2023) Barriers to Informational Support for Care Partners of People With Aphasia After Stroke. American Journal of Speech-Language Pathology, pages 1-21.
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Kirstine Shrubsole, Emma Power & Marie‐Christine Hallé. (2022) Communication partner training with familiar partners of people with aphasia: A systematic review and synthesis of barriers and facilitators to implementation. International Journal of Language & Communication Disorders 58:2, pages 601-628.
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Kim Coutts & Bibi Sayed. (2023) Third party disability of family members of adults with dysphagia. African Journal of Disability 12.
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Marian C Brady, Myzoon Ali, Kathryn VandenBerg, Linda J Williams, Louise R Williams, Masahiro Abo, Frank Becker, Audrey Bowen, Caitlin Brandenburg, Caterina Breitenstein, Stefanie Bruehl, David A Copland, Tamara B Cranfill, Marie di Pietro-Bachmann, Pamela Enderby, Joanne Fillingham, Federica Lucia Galli, Marialuisa Gandolfi, Bertrand Glize, Erin Godecke, Neil Hawkins, Katerina Hilari, Jacqueline Hinckley, Simon Horton, David Howard, Petra Jaecks, Elizabeth Jefferies, Luis MT Jesus, Maria Kambanaros, Eun Kyoung Kang, Eman M Khedr, Anthony Pak-Hin Kong, Tarja Kukkonen, Marina Laganaro, Matthew A Lambon Ralph, Ann Charlotte Laska, Béatrice Leemann, Alexander P Leff, Roxele R Lima, Antje Lorenz, Brian MacWhinney, Rebecca Shisler Marshall, Flavia Mattioli, İlknur Maviş, Marcus Meinzer, Reza Nilipour, Enrique Noé, Nam-Jong Paik, Rebecca Palmer, Ilias Papathanasiou, Brígida F Patrício, Isabel Pavão Martins, Cathy Price, Tatjana Prizl Jakovac, Elizabeth Rochon, Miranda L Rose, Charlotte Rosso, Ilona Rubi-Fessen, Marina B Ruiter, Claerwen Snell, Benjamin Stahl, Jerzy P Szaflarski, Shirley A Thomas, Mieke van de Sandt-Koenderman, Ineke van der Meulen, Evy Visch-Brink, Linda Worrall & Heather Harris Wright. (2022) Complex speech-language therapy interventions for stroke-related aphasia: the RELEASE study incorporating a systematic review and individual participant data network meta-analysis. Health and Social Care Delivery Research 10:28, pages 1-272.
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Valérie Bergua, Michèle Koleck, Nadine Raoux, Laetitia Rullier, Céline Meillon, Camille Ouvrard, Bertrand Glize, Bruno Quintard & Hélène Amieva. (2022) “Living with a person with Aphasia”: A psychosocial program for informal caregivers of people with aphasia. Annals of Physical and Rehabilitation Medicine 65:5, pages 101628.
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Bonnie B. Y. Cheng, Brooke J. Ryan, David A. Copland & Sarah J. Wallace. (2022) Prognostication in Poststroke Aphasia: Perspectives of Significant Others of People With Aphasia on Receiving Information About Recovery. American Journal of Speech-Language Pathology 31:2, pages 896-911.
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Candice L. Osborne & Shannon B. Juengst. (2021) Examining Care Partner Problems Using the International Classification of Functioning, Disability and Health . American Journal of Occupational Therapy 75:5, pages 7505205030p1.
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Molly Manning, Anne MacFarlane, Anne Hickey, Rose Galvin & Sue Franklin. (2021) ‘I hated being ghosted’ – The relevance of social participation for living well with post‐stroke aphasia: Qualitative interviews with working aged adults. Health Expectations 24:4, pages 1504-1515.
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Ganda Pariama & Agus Yudawijaya. (2021) Description of Triglyceride Risk Factors with Ischemic Stroke Patients at UKI Hospital for 2018. Journal of Drug Delivery and Therapeutics 11:3, pages 177-182.
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Helen Mach, Carolyn Baylor, Rebecca Hunting Pompon & Kathryn Yorkston. (2021) Beyond the Patient: A Mixed-Methods Inquiry Into Family Members' Involvement in the Treatment of Parkinson's Disease to Target Third-Party Disability. American Journal of Speech-Language Pathology 30:1, pages 169-185.
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Roxele Ribeiro Lima, Natalia Cristina Silveira & Helbert do Nascimento Lima. (2021) O impacto na qualidade de vida de cuidadores inseridos em um ambiente de terapia grupal para afásicos. Audiology - Communication Research 26.
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Kim A. Coutts & Maxine Solomon. (2020) The use of diet modifications and third-party disability in adult dysphagia: The unforeseen burden of caregivers in an economically developing country. South African Journal of Communication Disorders 67:1.
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Molly Manning, Ciara Cuskelly, Erin Russ & Sue Franklin. (2020) Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland. Health & Social Care in the Community 28:6, pages 2105-2116.
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Samantha E. Shune & Ashwini Namasivayam-MacDonald. (2020) Dysphagia-Related Caregiver Burden: Moving Beyond the Physiological Impairment. Perspectives of the ASHA Special Interest Groups 5:5, pages 1282-1289.
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Carolyn Baylor & Meghan Darling-White. (2020) Achieving Participation-Focused Intervention Through Shared Decision Making: Proposal of an Age- and Disorder-Generic Framework. American Journal of Speech-Language Pathology 29:3, pages 1335-1360.
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Claire Croteau, Paméla McMahon‐Morin, Guylaine Le Dorze & Geneviève Baril. (2020) Impact of aphasia on communication in couples. International Journal of Language & Communication Disorders 55:4, pages 547-557.
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Joël MacoirMonica LavoieSonia RouthierNathalie Bier. (2019) Key Factors for the Success of Self-Administered Treatments of Poststroke Aphasia Using Technologies. Telemedicine and e-Health 25:8, pages 663-670.
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Jennifer S. Shafer, Paul R. Shafer & Katarina L. Haley. (2019) Caregivers navigating rehabilitative care for people with aphasia after stroke: a multi‐lens perspective. International Journal of Language & Communication Disorders.
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Meghann Grawburg, Tami Howe, Linda Worrall & Nerina Scarinci. (2019) Family-Centered Care in Aphasia. Topics in Language Disorders 39:1, pages 29-54.
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Helen Mach, Carolyn Baylor, Rebecca Hunting Pompon & Kathryn Yorkston. (2019) Third-Party Disability in Family Members of People With Communication Disorders Associated With Parkinson's Disease. Topics in Language Disorders 39:1, pages 71-88.
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Catherine A. Off, Jenna R. Griffin, Kirsten W. Murray & Lisa Milman. (2019) Interprofessional Caregiver Education, Training, and Wellness in the Context of a Cohort Model for Aphasia Rehabilitation. Topics in Language Disorders 39:1, pages 5-28.
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Hege Prag Øra, Melanie Kirmess, Marian C. Brady, Ingvild Elisabeth Winsnes, Silje Merethe Hansen & Frank Becker. (2018) Telerehabilitation for aphasia – protocol of a pragmatic, exploratory, pilot randomized controlled trial. Trials 19:1.
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Helen L. Blake & Sharynne McLeod. (2018) The International Classification of Functioning, Disability and Health: Considering Individuals From a Perspective of Health and Wellness. Perspectives of the ASHA Special Interest Groups 3:17, pages 69-77.
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Brooke Ryan, Kyla Hudson, Linda Worrall, Nina Simmons-Mackie, Emma Thomas, Emma Finch, Kathy Clark & Jennifer Lethlean. (2017) The Aphasia Action, Success, and Knowledge Programme: Results from an Australian Phase I Trial of a Speech-Pathology-Led Intervention for People with Aphasia Early Post Stroke. Brain Impairment 18:3, pages 284-298.
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Jacinta M. Douglas. (2017) “So that's the way it is for me — always being left out.” Acquired Pragmatic Language Impairment and Social Functioning following Traumatic Brain Injury. Brain Impairment 18:3, pages 321-331.
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Robyn O'Halloran, Marcella Carragher & Abby Foster. (2017) The Consequences of the Consequences. Topics in Language Disorders 37:1, pages 85-100.
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Pamela Snow & Jacinta Douglas. 2017. Research in Clinical Pragmatics. Research in Clinical Pragmatics 617 649 .
Linda Worrall, Brooke Ryan, Kyla Hudson, Ian Kneebone, Nina Simmons-Mackie, Asaduzzaman Khan, Tammy Hoffmann, Emma Power, Leanne Togher & Miranda Rose. (2016) Reducing the psychosocial impact of aphasia on mood and quality of life in people with aphasia and the impact of caregiving in family members through the Aphasia Action Success Knowledge (Aphasia ASK) program: study protocol for a randomized controlled trial. Trials 17:1.
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Linda Worrall & Sarah Wallace. (2015) The ICF, Relationship-Centred Care and Research Outcome Measurement: Carol Frattali's Impact on Aphasia Research. Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders 25:3, pages 107-113.
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