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Research Paper

“This is not just a little accident”: a qualitative understanding of paediatric burns from the perspective of parents

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Pages 41-50 | Received 08 Mar 2013, Accepted 05 Feb 2014, Published online: 27 Feb 2014

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Read on this site (4)

Lina Sophie Toft Lernevall, Asgjerd Litleré Moi, Eva Gjengedal & Pia Dreyer. (2023) Parents’ lived experience of living with and caring for their burn-injured child in a home setting. International Journal of Qualitative Studies on Health and Well-being 18:1.
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Lina S. T Lernevall, A. L. Moi, E. Gjengedal & P. Dreyer. (2021) Parents’ lived experiences of parental needs for support at a burn centre. International Journal of Qualitative Studies on Health and Well-being 16:1.
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Marthe R. Egberts, Iris M. Engelhard, Alette E. E. de Jong, Helma W. C. Hofland, Rinie Geenen & Nancy E. E. Van Loey. (2019) Parents’ memories and appraisals after paediatric burn injury: a qualitative study. European Journal of Psychotraumatology 10:1.
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Anna M. Follent, Anna. F. Rumbach, Elizabeth C. Ward, Jeanne Marshall, Pamela Dodrill & Peter Lewindon. (2017) Dysphagia progression and feeding skills following pediatric alkali ingestion injury: two case reports. Disability and Rehabilitation 39:23, pages 2452-2459.
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Articles from other publishers (45)

Phoebe Hocking, Miriam Broadhurst, Reginald D.V. Nixon & Anne Gannoni. (2023) Validation of the Psychosocial Assessment Tool 2.0 for paediatric burn patients. Burns 49:7, pages 1632-1642.
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Fatemeh Rangraz Jeddi, Ehsan Nabovati, Mohammadreza Mobayen, Hossein Akbari, Alireza Feizkhah, Joseph Osuji & Parissa Bagheri Toolaroud. (2023) Health care needs, eHealth literacy, use of mobile phone functionalities, and intention to use it for self-management purposes by informal caregivers of children with burns: a survey study. BMC Medical Informatics and Decision Making 23:1.
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Sabri Karahan, Melike Ayça Ay Kaatsiz, Atiye Erbas & Yunus Kaya. (2023) A Qualitative Analysis on the Experiences of Mothers of Children in Burn Intensive Care Unit: “She burned on the outside, me inside...”. Journal of Burn Care & Research.
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Amira Allahham, Matthew N. Cooper, Enrique Mergelsberg, Mark W. Fear, Lisa J. Martin & Fiona M. Wood. (2023) A comparison of parent-reported and self-reported psychosocial function scores of the PedsQL for children with non-severe burn. Burns 49:5, pages 1122-1133.
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Nicole Wickens, Elmie Janse van Rensburg, Patricia de Gouveia Belinelo, Helen Milroy, Lisa Martin, Fiona Wood & Alix Woolard. (2023) “It’s a big trauma for the family”: A qualitative insight into the psychological trauma of paediatric burns from the perspective of mothers. Burns.
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Jessica Killey, Megan Simons, Sarah Prescott, Roy Kimble & Zephanie Tyack. (2023) Becoming Experts in Their Own Treatment: Child and Caregiver Engagement With Burn Scar Treatments. Qualitative Health Research 33:6, pages 496-508.
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Camila Kairuz, Kate Hunter, Keziah Bennett-Brook, Courtney Ryder, Andrew J A Holland, Tamara Mackean, Madeleine Jacques, Deborah Maze, Michele Scarcella, Karl Briscoe & Julieann Coombes. (2023) Codesigning informative resources for families of Aboriginal and Torres Strait Islander children who sustained a burn injury: a protocol for a participatory action research study. BMJ Open 13:5, pages e068530.
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Amira Allahham, Matthew N. Cooper, Mark W. Fear, Lisa Martin & Fiona M. Wood. (2023) Quality of life in paediatric burn patients with non-severe burns. Burns 49:1, pages 220-232.
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Ibtihal Awwad Al-Naimat & Nadin M. Abdel Razeq. (2023) Parents’ Experience and Healthcare Needs of having a Hospitalized Child with Burn Injury in Jordanian Hospitals: A Phenomenological Study Protocol. The Open Nursing Journal 17:1.
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Bani Malhotra & Girija Kaimal. (2022) Art therapy in pediatric burn care: A conceptual framework for clinical practice. Burns 48:7, pages 1753-1761.
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Julia Meyer, Julia Buchmann, Madeleine Ritter-Herschbach, Nicole Reinsperger & Max Zilezinski. (2021) Edukationsbedarfe von Kindern mit Brandverletzungen und deren Eltern – Ein Scoping ReviewEducational needs of children with burns and their parents—A scoping review. HeilberufeScience 13:1-2, pages 35-48.
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Megan Simons & Jodie A. Copley. (2022) Matching Qualitative Inquiry Design and Practice to Contemporary Burns Research Questions: Are We Getting It Right?. European Burn Journal 3:2, pages 256-263.
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Courtney Ryder, Andrew J.A. Holland, Tamara Mackean, Kate Hunter, Kris Rogers & Rebecca Ivers. (2022) In response to “Driving improved burns care and patient outcomes through clinical registry data: A review of quality indicators in the Burns Registry of Australia and New Zealand”. Burns 48:2, pages 477-479.
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Hao Zheng, Kankan Wu, Yueyue Zhou, Lin Fu, Daiyu Zhang & Zhengkui Liu. (2021) Prevalence and associated factors of post-traumatic stress disorder in burned patients and their family members. Burns 47:5, pages 1102-1109.
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Bruna Costa, Maia Thornton, Ella Guest, Jane Meyrick & Heidi Williamson. (2020) The effectiveness of interventions to improve psychosocial outcomes in parents of children with appearance‐affecting health conditions: A systematic review. Child: Care, Health and Development 47:1, pages 15-30.
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Courtney Ryder, Tamara Mackean, Kate Hunter, Kurt Towers, Kris Rogers, Andrew J. A. Holland & Rebecca Ivers. (2020) Factors contributing to longer length of stay in Aboriginal and Torres Strait Islander children hospitalised for burn injury. Injury Epidemiology 7:1.
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Erin A. Brown, Marthe Egberts, Rachmania Wardhani, Alexandra De Young, Roy Kimble, Bronwyn Griffin, Kristen Storey & Justin Kenardy. (2020) Parent and Clinician Communication During Paediatric Burn Wound Care: A Qualitative Study. Journal of Pediatric Nursing 55, pages 147-154.
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Lina S.T. Lernevall, Asgjerd L. Moi, Michelle Cleary, Rachel Kornhaber & Pia Dreyer. (2020) Support needs of parents of hospitalised children with a burn injury: An integrative review. Burns 46:4, pages 771-781.
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J. Suurmond, A. Bakker & N.E. Van Loey. (2020) Psychological distress in ethnic minority parents of preschool children with burns. Burns 46:2, pages 407-415.
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Marthe R. Egberts, Iris M. Engelhard, Rens van de Schoot, Anne Bakker, Rinie Geenen, Peter G.M. van der Heijden & Nancy E.E. Van Loey. (2020) Mothers’ emotions after pediatric burn injury: Longitudinal associations with posttraumatic stress and depressive symptoms 18 months postburn. Journal of Affective Disorders 263, pages 463-471.
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S.L. Wall Wall, D.L. Clarke Clarke, M.T.D. Smith Smith & N.L. Allorto Allorto. (2020) Use of methoxyflurane for paediatric patients in a regional burn service outpatient clinic. Southern African Journal of Anaesthesia and Analgesia 26:5, pages 240-244.
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L.S.T. Lernevall, A.L. Moi, E. Gjengedal & P. Dreyer. (2019) Staff Members’ Experience of Providing Parental Support in a National Burn Centre. The Open Nursing Journal 13:1, pages 211-219.
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Cody C. Frear, Bronwyn Griffin, Leila Cuttle, Steven M. McPhail & Roy Kimble. (2019) Study of negative pressure wound therapy as an adjunct treatment for acute burns in children (SONATA in C): protocol for a randomised controlled trial. Trials 20:1.
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K. Coy, P. Brock, S. Pomeroy, J. Cadogan & K. Beckett. (2019) A Road Less Travelled: using Experience Based Co-Design to map children’s and families’ emotional journey following burn injury and identify service improvements. Burns 45:8, pages 1848-1855.
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Erin A. Brown, Alexandra De Young, Roy Kimble & Justin Kenardy. (2019) Impact of Parental Acute Psychological Distress on Young Child Pain-Related Behavior Through Differences in Parenting Behavior During Pediatric Burn Wound Care. Journal of Clinical Psychology in Medical Settings 26:4, pages 516-529.
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Nicholas P Seivert, Mackenzie Sommerhalder, Dylan Stewart, Susan Ziegfeld, Rick Ostrander, Elizabeth K Reynolds & Carisa Parrish. (2019) Routine Psychological Screening for Parent Depressive Symptoms in an Outpatient Pediatric Specialty Burn Clinic. Journal of Burn Care & Research 40:6, pages 947-952.
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Laura Hawkins, Luna C M Centifanti, Natalie Holman & Peter Taylor. (2019) Parental Adjustment following Pediatric Burn Injury: The Role of Guilt, Shame, and Self-Compassion. Journal of Pediatric Psychology 44:2, pages 229-237.
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E.A. Brown, A. De Young, R. Kimble & J. Kenardy. (2019) Development and validity of the Burns-Child Adult Medical Procedure Interaction Scale (B-CAMPIS) for young children. Burns 45:1, pages 76-87.
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Janine M. Duke, Sean M. Randall, Thirthar P. Vetrichevvel, Sarah McGarry, James H. Boyd, Suzanne Rea & Fiona M. Wood. (2018) Long-term mental health outcomes after unintentional burns sustained during childhood: a retrospective cohort study. Burns & Trauma 6.
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M. Simons, P.C.C. Lim, R.M. Kimble & Z. Tyack. (2018) Towards a clinical and empirical definition of burn scarring: A template analysis using qualitative data. Burns 44:7, pages 1811-1819.
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Rachel Kornhaber, Charmaine Childs & Michelle Cleary. (2018) Experiences of guilt, shame and blame in those affected by burns: A qualitative systematic review. Burns 44:5, pages 1026-1039.
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Marthe R. Egberts, Alette E.E. de Jong, Helma W.C. Hofland, Rinie Geenen & Nancy E.E. Van Loey. (2018) Parental presence or absence during paediatric burn wound care procedures. Burns 44:4, pages 850-860.
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Erin A. Brown, Alexandra De Young, Roy Kimble & Justin Kenardy. (2018) Review of a Parent’s Influence on Pediatric Procedural Distress and Recovery. Clinical Child and Family Psychology Review 21:2, pages 224-245.
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Mimmie Willebrand, Folke Sjöberg, Fredrik Huss & Josefin Sveen. (2018) Parents' perceived quality of pediatric burn care. Journal of Critical Care 43, pages 256-259.
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Anna M. Follent, Anna F. Rumbach, Elizabeth C. Ward, Jeanne Marshall, Pamela Dodrill & Peter Lewindon. (2017) Dysphagia and feeding difficulties post-pediatric ingestion injury: Perspectives of the primary caregiver. International Journal of Pediatric Otorhinolaryngology 103, pages 20-28.
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Nichola Foster, Rachel Kornhaber, Sarah McGarry, Fiona M. Wood & Dale W. Edgar. (2017) Heterotopic Ossification in adults following a burn: A phenomenological analysis. Burns 43:6, pages 1250-1262.
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Jessica Morley, Natalie Holman & Craig D. Murray. (2017) Dressing changes in a burns unit for children under the age of five: A qualitative study of mothers’ experiences. Burns 43:4, pages 757-765.
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Josefin Sveen, Gerhard Andersson, Bo Buhrman, Folke Sjöberg & Mimmie Willebrand. (2017) Internet-based information and support program for parents of children with burns: A randomized controlled trial. Burns 43:3, pages 583-591.
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Megan Simons, Nathaniel Price, Roy Kimble & Zephanie Tyack. (2016) Patient experiences of burn scars in adults and children and development of a health-related quality of life conceptual model: A qualitative study. Burns 42:3, pages 620-632.
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Catrin Griffiths. (2016) How are parents affected when their child has an appearance-altering injury?. Journal of Aesthetic Nursing 5:2, pages 79-81.
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M. Willebrand & J. Sveen. (2016) Injury-related fear-avoidance and symptoms of posttraumatic stress in parents of children with burns. Burns 42:2, pages 414-420.
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M. Willebrand & J. Sveen. (2016) Perceived support in parents of children with burns. General Hospital Psychiatry 38, pages 105-108.
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Rachel Anne Kornhaber, A.E.E. de Jong & L. McLean. (2015) Rigorous, robust and systematic: Qualitative research and its contribution to burn care. An integrative review. Burns 41:8, pages 1619-1626.
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Josefin Sveen, Gerhard Andersson, Lisa Ekselius, Folke Sjöberg, Bo Buhrman & Mimmie Willebrand. (2015) Internet-based information and self-help program for parents of children with burns: Study protocol for a randomized controlled trial. Internet Interventions 2:4, pages 367-371.
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Vedrana Vejzovic, Ann-Cathrine Bramhagen, Ewa Idvall & Anne Wennick. (2015) Parents' experiences when their child is undergoing an elective colonoscopy. Journal for Specialists in Pediatric Nursing 20:2, pages 123-130.
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