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LITERATURE REVIEW

Children of parents with intellectual disability: Facing poor outcomes or faring okay?

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Pages 65-82 | Published online: 03 Feb 2012

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (10)

Marjorie Aunos & Laura Pacheco. (2021) Able or unable: how do professionals determine the parenting capacity of mothers with intellectual disabilities. Journal of Public Child Welfare 15:3, pages 357-383.
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Ingrid Weiber, Per-Anders Tengland, Johan Sanmartin Berglund & Mona Eklund. (2020) Everyday life when growing up with a mother with an intellectual or developmental disability: Four retrospective life-stories. Scandinavian Journal of Occupational Therapy 27:6, pages 418-430.
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Ayelet Gur & Michael Ashley Stein. (2020) Social worker attitudes toward parents with intellectual disabilities in Israel. Disability and Rehabilitation 42:13, pages 1803-1813.
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Susan Collings, Iva Strnadová, Julie Loblinzk & Joanne Danker. (2020) Benefits and limits of peer support for mothers with intellectual disability affected by domestic violence and child protection. Disability & Society 35:3, pages 413-434.
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Gemma Bates. (2020) What impact does the child development assessment process have on parental self-efficacy?. Advances in Mental Health 18:1, pages 27-38.
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Susan Collings, Margaret Spencer, Angela Dew & Leanne Dowse. (2018) ‘She was there if I needed to talk or to try and get my point across’: specialist advocacy for parents with intellectual disability in the Australian child protection system. Australian Journal of Human Rights 24:2, pages 162-181.
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Clare Tilbury, Peter Walsh & Jennifer Osmond. (2016) Child Aware Practice in Adult Social Services: A Scoping Review. Australian Social Work 69:3, pages 260-272.
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Articles from other publishers (57)

Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen & Bram Orobio de Castro. (2023) The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities. Journal of Intellectual Disabilities.
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Jan Basiaga. (2023) Families with parental intellectual disabilities in the support and foster care system. Research review. Problemy Opiekuńczo-Wychowawcze 623:8, pages 48-60.
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Tammy Bachrach. (2022) Reflections of Adult Children of Mothers with Intellectual Disability. Journal of Intellectual Disabilities 27:3, pages 671-688.
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Susan Collings & Margaret Spencer. 2023. Working with Families Experiencing Vulnerability. Working with Families Experiencing Vulnerability 246 266 .
Allison West, Stacy Lu, Veni Kandasamy, Jane Daniels, Margo DeVoe & Beth Barnet. (2022) Caregivers with Learning Differences: A Scoping Review and Stakeholder-Engaged Process to Identify Screening Tools for Maternal and Early Childhood Home Visiting Programs. Journal of Developmental and Physical Disabilities 34:6, pages 1031-1051.
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Tommie Forslund, Stina Fernqvist & Helena Tegler. (2022) Parents with intellectual disability reporting on factors affecting their caregiving in the wake of the COVID‐19 pandemic: A qualitative study. Journal of Applied Research in Intellectual Disabilities 35:6, pages 1380-1389.
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Mårten Hammarlund, Pehr Granqvist & Tommie Forslund. (2022) Experiences of Interpersonal Trauma Among Parents With Intellectual Disabilities: A Systematic Review. Trauma, Violence, & Abuse, pages 152483802211192.
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Tommie Forslund, Lene Lindberg & Pehr Granqvist. (2022) Behavior Problems among Children of Mothers with Mild Intellectual Disability: The Role of Maternal Sensitivity, Trauma History, and Intelligence. Disabilities 2:3, pages 488-500.
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Allison L. West & Kate E. Dibble. (2022) Evidence-Based Early Home Visiting for Mothers and Parents With Intellectual Disability: Home Visitor Perceptions and Practices. Intellectual and Developmental Disabilities 60:4, pages 288-302.
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Laura Franklin, Kate Theodore, Daniel Foulds, Mary Cooper, Lisa Mallaghan, Paul Wilshaw, Alison Colborne, Emilie Flower, Deborah Dickinson & Joyce Nga Yu Lee. (2021) “They don't think I can cope, because I have got a learning disability…”: Experiences of stigma in the lives of parents with learning disabilities. Journal of Applied Research in Intellectual Disabilities 35:4, pages 935-947.
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Hilary K. Brown, Ami Tint, Marina Heifetz, Megan Abou Chacra, Deborah Bluestein, Simone Vigod & Yona Lunsky. (2022) Barriers and requirements for parenting supports and mental health care among mothers with intellectual disabilities: Health and social service-provider perspectives. Research in Developmental Disabilities 126, pages 104237.
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Abdul Hameed P. V.Suphala Kotian. (2022) A Systematic Review and Research Agenda on Mental Wellbeing of the Caregivers of Intellectually Disabled Children. International Journal of Management, Technology, and Social Sciences, pages 335-353.
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Fernando Lima, Melissa O'Donnell, Jenny Bourke, Brittany Wolff, Alison Gibberd, Gwynnyth Llewellyn & Helen Leonard. (2022) Child protection involvement of children of mothers with intellectual disability. Child Abuse & Neglect 126, pages 105515.
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Klaudia Wos & Ditta Baczała. (2021) Parenting by mothers with intellectual disabilities in Poland: A photovoice study. Journal of Applied Research in Intellectual Disabilities 34:6, pages 1452-1462.
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Atirah Az-Zahrah Abu Bakar, Azidah Abdul Kadir & Nursuhaila Idris. (2021) A Case Report of Failure to Thrive Caused by Parental Intellectual Disability: The Invisible Population. Korean Journal of Family Medicine 42:5, pages 403-406.
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Yalda Tomlinson & Claira Pitt. (2021) A review of the literature examining the needs and services for women with a learning disability, before during and after pregnancy. Clinical Psychology Forum 1:340, pages 31-35.
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Jon Symonds, David Abbott & Daryl Dugdale. (2020) “Someone will come in and say I'm doing it wrong.” The perspectives of fathers with learning disabilities in England. British Journal of Learning Disabilities 49:1, pages 23-33.
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Katre Luhamaa, Amy McEwan-Strand, Barbara Ruiken, Marit Skivenes & Florian Wingens. (2021) Services and support for mothers and newborn babies in vulnerable situations: A study of eight European jurisdictions. Children and Youth Services Review 120, pages 105762.
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Joyce Koolen, Wietske van Oorsouw, Lisbeth Verharen & Petri Embregts. (2019) Support needs of parents with intellectual disabilities: Systematic review on the perceptions of parents and professionals. Journal of Intellectual Disabilities 24:4, pages 559-583.
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E. Mc Hugh & M. Starke. (2020) Investigating feasibility and fidelity of the Parenting Young Children program in Sweden. Evaluation and Program Planning 80, pages 101702.
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D. Salaeva, L. A. Tarasoff & H. K. Brown. (2020) Health care utilisation in infants and young children born to women with intellectual and developmental disabilities: A systematic review and meta‐analysis. Journal of Intellectual Disability Research 64:4, pages 303-310.
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Beth Tarleton & Danielle Turney. (2019) Understanding ‘Successful Practice/s’ with Parents with Learning Difficulties when there are Concerns about Child Neglect: the Contribution of Social Practice Theory. Child Indicators Research 13:2, pages 387-409.
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Tamara May & Katrina Harris. (2020) Parent training programmes can improve parenting skills in parents with intellectual disabilities. Journal of Paediatrics and Child Health 56:1, pages 172-173.
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Catherine M. Hamby, Erika S. Lunkenheimer & Philip A. Fisher. (2019) The potential of video feedback interventions to improve parent-child interaction skills in parents with intellectual disability. Children and Youth Services Review 105, pages 104395.
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Tatiana Gudkova, Marianne Hedlund & Turid Midjo. (2019) Supporting children of parents with intellectual disability: A scoping review. Journal of Applied Research in Intellectual Disabilities 32:4, pages 737-749.
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Elspeth M. Slayter & Jordan Jensen. (2019) Parents with intellectual disabilities in the child protection system. Children and Youth Services Review 98, pages 297-304.
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Beth A. Mueller, Deborah Crane, David R. Doody, Sally N. Stuart & Melissa A. Schiff. (2019) Pregnancy Course, Infant Outcomes, Rehospitalization, and Mortality among Women with Intellectual Disability. Disability and Health Journal.
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Esther Coren, Kerry Ramsbotham & Manfred Gschwandtner. (2018) Parent training interventions for parents with intellectual disability. Cochrane Database of Systematic Reviews 2018:7.
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S. Collings, G. Llewellyn & R. Grace. (2017) Home and the social worlds beyond: exploring influences in the lives of children of mothers with intellectual disability. Child: Care, Health and Development 43:5, pages 697-708.
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Beth Tarleton. 2017. The Wiley Handbook of What Works in Child Maltreatment. The Wiley Handbook of What Works in Child Maltreatment 433 451 .
David McConnell, Maurice Feldman & Marjorie Aunos. (2017) Parents and parenting with intellectual disabilities: An expanding field of research. Journal of Applied Research in Intellectual Disabilities 30:3, pages 419-422.
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Susan Collings, Rebekah Grace & Gwynnyth Llewellyn. (2017) The role of formal support in the lives of children of mothers with intellectual disability. Journal of Applied Research in Intellectual Disabilities 30:3, pages 492-500.
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Agnieszka Wołowicz-Ruszkowska & David McConnell. (2017) The experience of adult children of mothers with intellectual disability: A qualitative retrospective study from Poland. Journal of Applied Research in Intellectual Disabilities 30:3, pages 482-491.
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Gabrielle Hindmarsh, Gwynnyth Llewellyn & Eric Emerson. (2017) The Social-Emotional Well-Being of Children of Mothers with Intellectual Impairment: A Population-Based Analysis. Journal of Applied Research in Intellectual Disabilities 30:3, pages 469-481.
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Lene Lindberg, Mari Fransson, Tommie Forslund, Lydia Springer & Pehr Granqvist. (2017) Maternal Sensitivity in Mothers with Mild Intellectual Disabilities is Related to Experiences of Maltreatment and Predictive of Child Attachment: A Matched-Comparison Study. Journal of Applied Research in Intellectual Disabilities 30:3, pages 445-455.
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Phoebe Kaspar & Biza Stenfert Kroese. (2017) What makes a good mother? An interpretative phenomenological analysis of the views of women with learning disabilities. Women's Studies International Forum 62, pages 107-115.
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. 2017. La parentalité à l’épreuve de la maladie ou du handicap : quel impact pour les enfants ?. La parentalité à l’épreuve de la maladie ou du handicap : quel impact pour les enfants ? 165 188 .
Maria Wickström, Berit Höglund, Margareta Larsson & Maria Lundgren. (2017) Increased risk for mental illness, injuries, and violence in children born to mothers with intellectual disability: A register study in Sweden during 1999–2012. Child Abuse & Neglect 65, pages 124-131.
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Swarnima Bhargava & Daanesh Marazban Umrigar. 2017. Gaming and Technology Addiction. Gaming and Technology Addiction 600 615 .
R. M. Powell & S. L. Parish. (2017) Behavioural and cognitive outcomes in young children of mothers with intellectual impairments. Journal of Intellectual Disability Research 61:1, pages 50-61.
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Olivia Hewitt & Angela Clarke. (2016) A qualitative investigation into the experiences of having a parent with a learning disability. British Journal of Learning Disabilities 44:4, pages 292-300.
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Susan Collings, Rebekah Grace & Gwynnyth Llewellyn. (2016) Negotiating with Gatekeepers in Research with Disadvantaged Children: A Case Study of Children of Mothers with Intellectual Disability. Children & Society 30:6, pages 499-509.
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Robyn M. PowellSusan L. ParishIlhom Akobirshoev. (2016) Health of Young Children Whose Mothers Have Intellectual Disability. American Journal on Intellectual and Developmental Disabilities 121:4, pages 281-294.
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Swarnima Bhargava & Daanesh Marazban Umrigar. 2016. Handbook of Research on Diagnosing, Treating, and Managing Intellectual Disabilities. Handbook of Research on Diagnosing, Treating, and Managing Intellectual Disabilities 370 385 .
E. Paula CrowleyE. Paula Crowley. 2016. Preventing Abuse and Neglect in the Lives of Children with Disabilities. Preventing Abuse and Neglect in the Lives of Children with Disabilities 159 182 .
Karen McKenzie, Laura Shewan & Suzanne Wilson. 2016. Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Health Care for People with Intellectual and Developmental Disabilities across the Lifespan 85 101 .
M. Meppelder, M. Hodes, S. Kef & C. Schuengel. (2015) Parenting stress and child behaviour problems among parents with intellectual disabilities: the buffering role of resources. Journal of Intellectual Disability Research 59:7, pages 664-677.
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G. Hindmarsh, G. Llewellyn & E. Emerson. (2015) Mothers with intellectual impairment and their 9-month-old infants. Journal of Intellectual Disability Research 59:6, pages 541-550.
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Beth Tarleton. (2015) A few steps along the road? Promoting support for parents with learning difficulties. British Journal of Learning Disabilities 43:2, pages 114-120.
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Gwynnyth Llewellyn & Gabrielle Hindmarsh. (2015) Parents with Intellectual Disability in a Population Context. Current Developmental Disorders Reports 2:2, pages 119-126.
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Ingrid Weiber, Per-Anders Tengland, Johan Berglund & Mona Eklund. (2014) Social and Healthcare Professionals' Experiences of Giving Support to Families Where the Mother Has an Intellectual Disability: Focus on Children. Journal of Policy and Practice in Intellectual Disabilities 11:4, pages 293-301.
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Elizabeth Lightfoot & Elspeth Slayter. (2014) Disentangling over-representation of parents with disabilities in the child welfare system: Exploring child maltreatment risk factors of parents with disabilities. Children and Youth Services Review 47, pages 283-290.
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Eric Emerson & Philip Brigham. (2014) The developmental health of children of parents with intellectual disabilities: Cross sectional study. Research in Developmental Disabilities 35:4, pages 917-921.
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Élise Milot, Daniel Turcotte & Sylvie Tétreault. (2014) Parentalité et déficience intellectuelle : enjeux de l’intervention auprès des familles. Service social 60:1, pages 49-71.
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E. Emerson & P. Brigham. (2013) Health behaviours and mental health status of parents with intellectual disabilities: cross sectional study. Public Health 127:12, pages 1111-1116.
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Mikaela Starke. (2013) Everyday Life of Young Adults With Intellectual Disabilities: Inclusionary and Exclusionary Processes Among Young Adults of Parents With Intellectual Disability. Intellectual and Developmental Disabilities 51:3, pages 164-175.
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Gwynnyth Llewellyn. (2013) Parents With Intellectual Disability and Their Children: Advances in Policy and Practice. Journal of Policy and Practice in Intellectual Disabilities 10:2, pages 82-85.
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