Citations (10)
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Read on this site (4)
Ditte Kruse Gyldhof, Michelle Stahlhut & Eva Ejlersen Waehrens. (2022) Participation and engagement in family activities among girls and young women with Rett syndrome living at home with their parents – a cross-sectional study. Disability and Rehabilitation 44:14, pages 3650-3660.
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Aleisha Strugnell, Helen Leonard, Amy Epstein & Jenny Downs. (2020) Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome. Disability and Rehabilitation 42:26, pages 3800-3807.
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Åsa-Sara Sernheim, Helena Hemmingsson, Helene Lidström, I. Witt Engerström & G. M. Liedberg. (2020) Rett syndrome: Teenagers’ and young adults’ activities, usage of time and responses during an ordinary week – a diary study. Scandinavian Journal of Occupational Therapy 27:5, pages 323-335.
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Anna Urbanowicz, Natalie Ciccone, Sonya Girdler, Helen Leonard & Jenny Downs. (2018) Choice making in Rett syndrome: a descriptive study using video data. Disability and Rehabilitation 40:7, pages 813-819.
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Articles from other publishers (6)
Geraldine Boland & Suzanne Guerin. (2022) Supporting Social Inclusion in Neighbourhoods of Adults with Intellectual Disabilities: Service Providers’ Practice Experiences. Journal of Intellectual Disabilities 27:2, pages 291-314.
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Geraldine Boland, Eilin de Paor & Suzanne Guerin. (2023) Living in Localities: The Factors That Influence the Social Inclusion in Neighborhoods of Adults With Intellectual Disability. A Systematic Scoping Review. Inclusion 11:1, pages 55-77.
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Geraldine Boland & Suzanne Guerin. (2021) Connecting locally: The role of adult siblings in supporting the social inclusion in neighbourhoods of adults with intellectual disability. British Journal of Learning Disabilities 50:3, pages 327-340.
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Michal Icht. (2018) Introducing the Beatalk technique: using beatbox sounds and rhythms to improve speech characteristics of adults with intellectual disability. International Journal of Language & Communication Disorders 54:3, pages 401-416.
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Michelle Stahlhut, Bente Appel Esbensen, Jane Lunding Larsen, Anne-Marie Bisgaard, Jenny Downs & Eva Nordmark. (2018) Facilitators and Barriers of Participation in “Uptime” Activities in Girls and Women With Rett Syndrome: Perspectives From Parents and Professionals. Qualitative Health Research 29:4, pages 609-619.
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Amy Epstein, Helen Leonard, Elise Davis, Katrina Williams, Dinah Reddihough, Nada Murphy, Andrew Whitehouse & Jenny Downs. (2016) Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods. American Journal of Medical Genetics Part A 170:3, pages 645-653.
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